Interstitial Cystitis (IC), Pelvic Pain Support Forum Group

This support forum is for those who suffer from Interstitial Cystitis and Chronic Pelvic Pain and for those who support them. IC is a very individual and often difficult to treat painful illness. IC often has many other conditions that exist along with it adding to the Pelvic Pain. This forum is to provide support, encouragement, and education so that together we can find treatments and hopefully someday a cure!

1 - 20 (of 35) questions
I was diagnosed with I C in the early 1990s and did not have Hunner's ulcers at the time. I knew very little about I C, however, in 1999 I met a 78 yr-old woman whom was ‘frozen’ in a chair from her pain due to the uncontrollable pain of...
Missdeb333 | Posted
Hi, I've been dealing with nutcracker syndrome, pelvic congestion syndrome, and chronic pelvic pain for 1 1/2 years now. Recently, I was referred to a urogynecologist in Park Ridge, IL. He said I probably have IC and pedundal neuropath...
lucylu38 | Last answer
I was just diagnosed with interstitial cystitis this month, after years of bladder infection symptoms without any actual infection. My doctor just put me on an IC diet until my bladder in healed. In a few months she said I can start test...
KiaraGirl95 | Posted
Dear members: I have been reading more in the past 2 years than all of my years in high school, college, and teaching combined. Why, Why, are we cursed with this terrible IC problem? I am a mother and grandmother age 65. I am a teach...
Mammie1947 | Last answer
hello there..im new to the site and was just diagnosed with Pelvic Congestion Syndrome. I also suffer from IC and IBS. I am on a mission to find a doctor who specializes in this area and don't know where to begin. I have had chronic lowe...
tiarobertson | Last answer
hello , i just joined med help hoping to find others with some of the same health issues as myself. i feel like no one understands or can even relate to the pain and discomfort of IC. I can not even put into words to explain it to people...
kertney_todd | Posted
has any one with IC with ulcers also in the bladder ever gained weight with no apparent reason,but maybe because of a bad flare up? I have noticed that when I try to do ab work outs that it always brings on a bad flare up with my IC. Thi...
esor15 | Last answer
Hello everyone my name is Bridgett, Glade to have found this Forum. I have suffered with IC, for as long as i can remember, I'm 44 so lets just say half my lief. I also get cystitis on my ovaries during the 2 weeks before I have my per...
noodle44 | Last answer
Does anyone else out there have migraines and IC, or IC & fibromyalgia or CFS..Ok, I've been copying interesting med info into my iPad notes, so I don't have the source for this this minute, but if someone is interested I'll find it..be ...
Ellemma | Posted
I have ic and I am doing the ic diet except I feel like I need to eat all the time so I do and I just keep losing weight no less then 5 lb a week does anyone know whats happening
Shorty87 | Posted
Hi, I am new here. I desperately need help. My problems all began in 1992 I had a tubal in Feb and all my bladder issuses started in June. I had never had them before. I found a great uro in TX. She worked with me several years but ...
missnell | Posted
doctors have told me for years ive had endo..15 to be exact. now there saying i might have I.C. here are my symptoms: burning while having number one(pee) especially after words. and frequency . burning and stabbing pain in vagina,outsid...
unicornkari | Last answer
I am so sorry I have not been on this site to help and answer you questions. I went through a great deal personally and just got behind here. If you have any questions please feel free to ask or even to send me a private message! Shelly
MSKshelly | Posted
I've been diagnosed with hematuria, microscopic, been to a urologist and had a scope done but he found nothing...but what scares me is that it's "a vast amount of blood"....I was scared it was cancer, specialist said that I had the insid...
jsuter69 | Last answer
Hi there, I'm in the 2nd day of what appears to be a flare (brought about by, I believe, intercourse). However, I no longer have health insurance, and as a result, I can't afford to hop to the doctor to find out if what I have is a blad...
jacks121 | Last answer
I have chronic bladder infections most often after relations. I have been on many antibiotics for years, more often now.(I have become resistant to many and allergic to some, one even caused me to now have cold urticaria). Is there any...
ElsaRod | Posted
Has anyone delt with Pelvic congestion syndrome? Why does this peak mid cycle? TTC with nasty pelvic pain isn't working real well. Sorry, just a little frustrated. My doc made the diagnosis but doesn't have any suggestions for how to man...
KeyD | Last answer
Hi everyone, I am new to the support group and just trying to get the hang of things. I just turned 20 years old and was diagnosed with IC in January of 2009. They believe I have had it since I was at least 7 years old, but I also have I...
ncoleman | Last answer
I have been told by my doctor that I have a chronic case of IC....(about three years ago) I was ok for awhile and, now the severe pain has returned....which meant I had to return to my urologist....He gave me elmiron and vesicare to trea...
purplefairy34476 | Last answer
How do you manage constant bladder spasms when you know you don't have an UTI?
PBlunt | Last answer
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