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Interstitial Cystitis (IC), Pelvic Pain Support Forum Group

This support forum is for those who suffer from Interstitial Cystitis and Chronic Pelvic Pain and for those who support them. IC is a very individual and often difficult to treat painful illness. IC often has many other conditions that exist along with it adding to the Pelvic Pain. This forum is to provide support, encouragement, and education so that together we can find treatments and hopefully someday a cure!

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Avatar universal
I have been told by my doctor that I have a chronic case of IC....(about three years ago) I was ok for awhile and, now the severe pain has returned....which meant I had to return to my urologist....He gave me elmiron and vesicare to trea...
  Posted
Avatar universal
How do you manage constant bladder spasms when you know you don't have an UTI?
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Avatar universal
I was just recently diagnosed with IC. It is such a shock and very painful. Will I always feel like this? I am currently taking Elimon for about 2 weeks along with bladder installations. I thought I was feeling better for about two days,...
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Avatar universal
I was putting sodium bicarb, ecapsules of elmeron and 4%lidocaine in my bladder and as soon as I voided it out the pain was unbearable. Now I use elmeron and bactriostatic water for installations and it is not making me better or worse. ...
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489228 tn?1291535054
PCS
Any of you with Pelvic Congestion Syndrome ever have a vein rupture? What are your symptoms like?? Shelly
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Avatar universal
I recently had an u/s done for RLQ pain, the results were "vascular or venous lake area is quite prominent in the margin of the uterus." I was diagnosed with PCS in january 09. Nothing was found in the RLQ. my questions is could this cau...
  Posted
Avatar universal
My mother is on Hydrocodone for her IC pain which she has daily. It has been bad for 4 months now. She is on elival 10mgs so far and its been 1 week with Hydrocodone for pain. Problem for her is very bad constipation. She goes 5 days wit...
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Avatar universal
hi i'm new to the group and happy to find some info on IC. I have had out infections my whole life or so i thought! 2 yrs. ago i had another doctor for a few months while mine was on maternity leave after going in every 2 to 4 weeks wit...
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489228 tn?1291535054
This is IC Awarness Week, Oct. 19th- the 23rd. Please help us get the word out about IC and the painful disease it can be to live with!! Shelly
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489228 tn?1291535054
I personally am seeing so many marriages and effected by the stress of a chronic illness. I am looking for resources to help others as well as for myself. What do you need to help you? How has IC effected your marriage? So do y...
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489228 tn?1291535054
Just so you know if you have a question that needs a doctors input, Medhelp also has an IC expert forum for that purpose. Dr. Burks specializes in IC and does take IC patients in his region as well. I do know that many of the expert...
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Avatar universal
Hi there, I havent been diagnosed with IC, but it certainly seems like I may be headed down that path. I havent had intercourse in a while (since the last time I had symptoms) and i'm kind of scared to, to be honest. Is there any way t...
  Posted
489228 tn?1291535054
Do your live with frequency, pelvic pain, burning etc. yet the doctors keep telling you nothing is wrong then ask you doctor if it might be IC. Though Medhelp does not allow us to post direct links or give out our personal e-mail addre...
  Posted
168348 tn?1379360675
Hi, I'm new to the group. What causes IC and is it hereditary? What are the symptoms? Thanks, C~
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