Lupus, Fibro, Antiphosphpolipid Antibody Syndrome and other Autoimmune Life Stoppers Group

Have autoimmune diseases such as Lupus, Antiphoshpolipid Antibody Syndrome, Fibromyalgia, Reynauds, and others seemed to have stopped your life in its tracks? Do you just need an outlet? Would you like to share your story or draw on the experiences of others? This is the place for you. No negativity will be tolerated. Only support, respect, and healing found here.

1 - 20 (of 31) questions
I was told I have discoid lupus by a dermatologist after just a visual exam. He prescribed me typical steroids and after a month I see no improvement. I'm scaredi am going to lose more hair. There is a distinct red ring around the bald...
tonia71 | Posted
Hello All, I'm sorry to put this post here because I don't know actually in which category it belongs. I've been having health problem 12 years from now, my symptoms started after having a case similar to hypothermia. First, I noticed st...
elia81 | Posted
Does anyone else have more than one generation in family of fibro, lupus, or other rheumatological problems? I was diagnosed with fibromyalgia 11 years ago, lupus about 7 years ago (and I also have several other serious health problem...
21tulips | Last answer
Back in 2007 I was diagnosed with Lupus of the skin. I had lost tremendous amounts of hair, my ANA and skin biopsy came back positive then and now For the past years (on lupus meds and steriods) my ANA is normal. My Rhemy is now stating ...
PMWolf | Posted
Does anyone here have palindrome rheumatism? I was just formally diagnosed this past week. I was told in the past that I had lupus - not, and rheumatoid arthritis - not quite... My rheumatologist told me palindrome rheumatism is a subset...
Minnow57 | Posted
Hello all, glad I found this site, seems really informative and has such a diverse group. I am hoping to get to know everyone and see how other people are dealing with this disease. Things they have found helpful, new ideas. Things li...
donna1414 | Posted
I have antibodies for lupus and my brother has Multiple Sclerosis. Are the two related other than both being autoimmune? Are their genetic links to lupus and MS?
melissa_aikers | Posted
Hi everyone! Today I received the news I've been dreading for the past few months: my Rheumatologist confirmed that I have Lupus. Frankly I'm a little numb, meaning the news hasn't sunk in completely. Thankfully I didn't freak out i...
mutsu2150 | Last answer
Hello There. I am a 47 year old woman and was recently had an episode of Optic Neuritis. My opthamologist immediately had me have an MRI and it came back clear. He said not to worry about MS but follow up with a neurologist. I also h...
tree729 | Posted
Well this is my first post so here it goes; I am a Registered Nurse and for YEARS I believed that Fibromyalgia was a joke.. I believed at one time that women who claimed to have fibromyalgia just wanted drugs or were emotional wrecks. ...
Kimberli1111 | Posted
hello and welcome!! I am so glad that you decided to join our group! Are there any specific things you would like to talk about? Or shall we just get to know each other? This is my first attempt at group ANYTHING so I am open to suggest...
rooroo41 | Last answer
I know I have shingles. I started to have a burning, itchy sensation to the top of my thigh, which progressed to my lower back and up to the right side of the middle of my back. Now I have visible patchy blisters. To me its obvious. But ...
EarthwormRN | Last answer
I want to know if anyone else has read or heard their doctor state that you fibromyalgia is caused by something traumatic before the age of 12? I have been told this was recent research, but not given a copy. The dr. is my pain speci...
nan1953 | Last answer
I was diagnosed with Sjogren's Syndrome back in 2010, but I did not truly follow up on the matter until 2012 when I suffered from a blood clot in my lung. At the time all of my blood tests came back normal, so doctors connected the bloo...
ChicagoLady1986 | Posted
24 year old fit female, with asthma as my only medical history aside from bacterial meningitis as an infant. Otherwise, I have been healthy. I know I have shingles. I started to have a burning, itchy sensation to the top of my thigh, whi...
EarthwormRN | Posted
Just beginning my path of discovering what is going on with my body. I have a wonderful life, two children, a dog, a cat, and a very supportive group of people who are worried to death about my failing health. I am hoping to find an o...
veryillgeek | Posted
foi diagnosticada com lupus aos 14 anos,depois de uma serie de injeções dolorosas de benzetasil,o especialista introduzio para tratamento diversos remedios,entre eles,corticoides,antiinflamatorios,analgesicos,antidepressivos,remedios par...
dika170 | Posted
I was diagnosed with Lupus and my brother died at 39 of ALS. Is there any relation? Any info would be helpful
Michellery | Posted
I am a 28 yr old female dagnoised with fms and cfs I have a small lesion on my right foot originaly thought to be a cyst and a large lesion on my left foot that covers the entire top of my of my foot. I have elevated aso and crp level...
evera | Last answer
im 26yrs old and starting in august of 09 i was sick with wut i thought was a summer cold towards the end of the month i started coughing up blood and not just a little it was all blood,i went to the doctors and i was told i had bronchit...
missy101008 | Last answer
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