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MSK (Medullary Sponge Kidney Disease) Group

This patient Support Group is for discussions relating to MSK (Medullary Sponge Kidney Disease). If you or somebody you know suffers from MSK, you've come to the right place to give, get, & share advice about this oftentimes painful, uncommon disease. WELCOME to our GROUP ~ We're Here to Help!

1 - 20 (of 18) questions
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Avatar universal
i am 38 and was just recently diagnosed with MSK. I have had numerous stones and UTI's since i was 18. I had to file for intermittent family medical leave for my stones cause i have had to miss days at work cause the pain gets so bad...I...
  Posted
Avatar universal
Hi Everyone. I have posted on here before but it has been a long time and I forgot my user name and stuff so I just rejoined. LOl! Okay I have a lot to say/Ask so here goes. I have been dealing with MSk now for close to 3 years. It has...
  Posted
Avatar universal
I was just recently diagnosed with MSK...the pain is getting worse and I am exhausted and nauseous alot..does anyone else feel this way? Are any of you on pain medication?
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625490 tn?1318210149
I was diagnosed this past febuary via IVP, doctors aren't very helpful and I am at my wits end most days, along with my frequent and chronic colics I often get diarrhea, especially when my pain is mostly in my lower back and groin, does ...
  Posted
489228 tn?1291535054
I just had an idea, esp with all our newbies. 1. How many would be interested in a private part of our forum for us to discuss, list, share and compare research and info on MSK? Maybe even more a of pro activist group to help g...
  Posted
489228 tn?1291535054
MSK, for many of us, can be a chronically painful, difficult to understand and treat disease. Since many of us have chronic pain even when there is no stone in the ureter and or no infection shows on standard UA test this can make tre...
  Posted
1223946 tn?1281395958
I'm fairly new to this group, not yet been diagnosed with MSK but seem to have the symptoms, I've been told that I now have calcinosis, recurring stones, which I can't pass because of stricted ureters, so have had unsucessful Lithotripsy...
  Posted
1528126 tn?1291771901
Hello everyone! I am new to this site! I am 22 and I just found out last week that i may have MSK. I went to the doc and found out I had a uti with blood in my urine. A couple days later I had a persistant back pain (lower right of my ba...
  Posted
1223946 tn?1281395958
Just had another opinion on my woes and intermittent renal colic.....and NO I don't have MSK according to the Urologist I saw just recurring stones and calcinosis. Anyone else had any good news lately?
  Posted
Avatar universal
Hello all, I am new to this group. I was diagnosed with MSK bilateral with nephrocalcinosis multiple groups of stones in 07 but was only an incidental finding was having knee pain so they did a back x-ray found stones had an IVP showed ...
  Posted
Avatar universal
Hi all, hope this finds everyone to having some better days. I spent all day in ER again yesterday because I have anotber infection, the dip showed a lot of blood and protien in my urine, Dr. said it was a bladder infection, but I have ...
  Posted
Avatar universal
Hi everyone! So glad I found this site...My name is Kim and I was officially diagnosed with MSK 2 years ago..I don;t know anyone else who ha this disease. I have been in and out of ER dozens of times, passed a few stones, have had many ...
  Posted
1113762 tn?1266119076
Hey all. How close or where do we stand with the private research group? I don't want to be left out. Thanks! Jaim
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1002319 tn?1265178710
Are you on any type of pain medication for your MSK??
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1002319 tn?1265178710
Great work on this new site and congrats!! You are always so helpful and understanding. This is just a wonderful addition to Med-Help. Thank you!!!! Best, Cara
  Posted
Avatar universal
hi i am new to this site and was surprised to see it. it was nice to read that other people out there know what i am going through. i have had bad back pain since i was a child which made me throw up. my mom took me to the hospital lots...
  Posted
Avatar universal
Hello, I am new on here and was diagnosed with MSK in Feb. 2009. I have other serious medical conditions, but they are taken second seat to my kidney problems at the moment. I have had approx. 15 diagnosed and treated kidney infections...
  Posted
1073373 tn?1255970243
I was diagnosed with msk after 4 years of kidney stones and pain. Now I was on a pain management plan with my family doctor and all of a sudden he decided to take me off of my meds and said there is no pain associated with msk. I need h...
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