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Mastocytosis Community

This patient support community is for discussions relating to Mastocytosis.

1 - 20 (of 43) questions
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Avatar_universal
Would prefer a naturopath or integrative medical doctor. Thanks.
sgtanthony | Posted
Avatar_universal
I strongly suspect I have a type of Mast Cell Disorder (see under my question for why Im thinking that). Ive had some strange incidences with freckles. What Im trying to find out if masto freckles can suddenly disappear in some kin...
seadove | Posted
Avatar_universal
Unexpected loss of weight and over-sensitivity to alcohol were reason to visit a doctor. Blood tests were normal except tryptase level of 24 ng/ml. This result could possibly indicate mastocytosis. Since then yearly check of liver and...
oliedrie | Last answer
Avatar_universal
What is the life expectancy of undiagnosed abdominal liposarcoma
beteta | Posted
Avatar_universal
What is the life expectancy of a abdominal liposarcoma
beteta | Posted
9489126_tn?1404091053
Is it possible for a 7 year old girl to get mosqito bites on the crease (where her upper thigh and leg meet), and then pop up on her libias'?
laylablu | Posted
Avatar_universal
Hi I have systemic masto, and two heart conditions, they won't to put me on betablockers but I heard they are not recommended with masto, is there a safe heart medicine for Afib that doesn't affect mast
Sawe | Posted
Avatar_universal
Hi, I have a rare form of masto since 1995, it was never in the skin, started in bone marrow at age 50, but now I have two deadly heat disorders, ahriythimia and Afib, and I was told, that u can't take beta blockers with Masto, so do u k...
Sawe | Posted
Avatar_universal
Hello, I have not yet been diagnosed with Mastocytosis, but I was wondering what type of doctor diagnoses this? I do have autonomic neuropathy/POTS and was researching various things and I came across Mastocytosis and couldn't help b...
Snflwris | Last answer
474256_tn?1237993296
I didn't really have a question...I just saw that there was a new Mastocytosis forum! I just wanted to say hey! I have Urticaria Pigmentosa. It seems to be the kind that stays with you into adulthood. I have a twin brother and he als...
Jennifer78 | Last answer
17568_tn?1424977159
Cancer Therapy: Can It Hurt Your Heart? Thursday Aug 01, 2013, 12:00PM - 01:00PM (EST) For one day only, doctors from the Cleveland Clinic Cardio-Oncology Center will participate in a live, online health chat to answer your persona...
Cindy | Posted
Avatar_universal
Just wondering if anyone else has had outbreaks of this painful, itchy rash that looks like someone has clawed your back, chest, neck. My husband had his first outbreak a couple of years ago after eating lobster. I did some research an...
Jana1952 | Last answer
Avatar_universal
Hi all I was diagnosed with systemic mastocytosis after 2 anaphylaxis fits mine has been in my bones causing ostoporosis I have had this as long as 25 years as I work full time shift work I have severe bone pain and numbness in both hand...
peje61 | Last answer
959034_tn?1253675076
How many different types of mastocytosis? How is it diagnosed? How is mcad diagnosed?
somemonkey | Last answer
623944_tn?1244039090
Funny, I was just looking into this and here is this community! I've been a member of MedHelp since Sept 08. My docs and I have been trying to figure out what is wrong with me. It's been going on for 7 years! Not one has looked at my...
Dnmh | Last answer
Avatar_universal
Was amazed to find this forum as I've never met another person with UP! My adult son has had UP almost his whole life. His only problem (other than the spots themselves) is that he cannot expose his torso to the sun. He has an extreme...
Jifizap53 | Last answer
Avatar_universal
Can Mastocytosis affect ones eye sight? My daughter has been diagnosed with MS but they have found absolutely no lesions. She seems to have many other symptoms that point to Mastocytosis. I guess my question is can MS be misdiagnose...
Skeeter551 | Last answer
Avatar_universal
i miss my period from last 4 month but now I have bleeding but like a spot I done pragnenecy test but its negative I want a baby plz help me what I need to do
simon99 | Posted
1572521_tn?1296510068
My son is almost 1 and 1/2 and has urticiaria pigmentosa/ mast cell disease,he got it when he was about 3 months old(thats when all the spots were showing up but there was always one from birth) december i went for an allergy test becaus...
Jennifer1989 | Posted
1185128_tn?1264540908
Hello All, my name is Tif. I have a one year old little girl that at 5 months old, presented with some peculiar looking round to oval shaped pinkish brown spots on her torso and back with a welt or two on her legs and arms and neck- usua...
sweetbabiesx3 | Last answer
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