Mastocytosis Community
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This patient support community is for discussions relating to Mastocytosis.

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By Sawe
Hi I have systemic masto, and two heart conditions, they won't to put me on betablockers but I heard they are not rec...
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By Sawe
Hi, I have a rare form of masto since 1995, it was never in the skin, started in bone marrow at age 50, but now I hav...
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roxy801Nov 26, 2013
1
By Snflwris
Hello, I have not yet been diagnosed with Mastocytosis, but I was wondering what type of doctor diagnoses this? I...
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jessbrandauAug 29, 2013
jessbrandauAug 29, 2013
GenRNApr 02, 2013
ProblemedGirlNov 15, 2012
nrobbinNov 03, 2012
30
By Jennifer78 Blank
I didn't really have a question...I just saw that there was a new Mastocytosis forum! I just wanted to say hey! I h...
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By Cindy Blank
Cancer Therapy: Can It Hurt Your Heart? Thursday Aug 01, 2013, 12:00PM - 01:00PM (EST) For one day only, doctor...
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abhishek0990Feb 08, 2013
allykat86Nov 05, 2012
2
By Jana1952 Blank
Just wondering if anyone else has had outbreaks of this painful, itchy rash that looks like someone has clawed your b...
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Dr. Kokil Mathur May 06, 2012
1
By peje61 Blank
Hi all I was diagnosed with systemic mastocytosis after 2 anaphylaxis fits mine has been in my bones causing ostoporo...
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sunflower12345May 03, 2012
HopeNHimDec 11, 2009
marlee16Oct 26, 2009
evo123Aug 29, 2009
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By somemonkey Blank
How many different types of mastocytosis? How is it diagnosed? How is mcad diagnosed?
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SninkleSep 04, 2011
ProudMomma007Sep 04, 2011
DnmhMar 01, 2009
Jennifer78Feb 27, 2009
4
By Dnmh Blank
Funny, I was just looking into this and here is this community! I've been a member of MedHelp since Sept 08. My do...
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Jifizap53Aug 29, 2011
ohcalcutagirlAug 25, 2011
2
By Jifizap53 Blank
Was amazed to find this forum as I've never met another person with UP! My adult son has had UP almost his whole lif...
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Weesy68Apr 27, 2011
Weesy68Apr 27, 2011
2
By Skeeter551 Blank
Can Mastocytosis affect ones eye sight? My daughter has been diagnosed with MS but they have found absolutely no l...
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By simon99 Blank
i miss my period from last 4 month but now I have bleeding but like a spot I done pragnenecy test but its negative I ...
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By Jennifer1989 Blank
My son is almost 1 and 1/2 and has urticiaria pigmentosa/ mast cell disease,he got it when he was about 3 months old(...
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sweetbabiesx3Jan 18, 2011
1
By sweetbabiesx3 Blank
Hello All, my name is Tif. I have a one year old little girl that at 5 months old, presented with some peculiar looki...
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By sunshine9955 Blank
When my son was 2 years he developed a red bump on the back of his leg. Doctor thought it was infected and we tried ...
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By richo100 Blank
Hi I was diagnosed with Mastocytosis following a skin biopsy 8 weeks ago. I have been symptomatic for the last year o...
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Mischel_SFeb 08, 2010
Jennifer78Jan 06, 2009
2
By firefly9798 Blank
please explain to me what mastocytosis is ....
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marlee16Oct 26, 2009
1
By jenh53 Blank
Anyone familiar with Mast Cell Leukemia? I see a topic for this under this forum, but no posts. I am trying to ident...
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marlee16Oct 26, 2009
1
By sassyjane Blank
I will be having chemotherapy treatment for my Mastocytosis and would like to know what is involed or if anyone has b...
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Jennifer78Feb 27, 2009
1
By strether Blank
Hello All, When I was 15, I was diagnosed with a disease with a long name ending in pigmentosa, and I had no idea ...
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