Medullary Sponge Kidney Disease (MSK) Community
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This patient support community is for discussions relating to Medullary Sponge Kidney Disease (MSK).

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1
By Paul2005
Hi I am 31 and had msk for 8 years I am finding it very difficult to cope with the pain I have been put on mst and li...
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By jessgirl1982
I was diagnosed by accident When I had an ultrasound done for abdominal pain. I was told I have medulla spongy kidney...
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ChitChatNineBlankJan 29, 2009
MSKshellyJan 28, 2009
3
By Kaitydid Blank
I'm just wondering if anyone out there has tried any type of alternative therapies for chronic pain control? My doct...
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nicstone79Dec 30, 2014
1
By shell2479
Hi all im very new to Medullary sponge kidney and was only diagnosed today by accident after suffering abdominal pain...
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AddMosDec 10, 2014
1
By Mels05toy
I rolled a tractor trailer over at work, luckily i was wearing my seatbelt. Unfortunately when the truck went over, t...
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By Kymberli84
I don't know how much more I can take I'm physically and mentally drained. I was diagnose 5 yrs ago I need proof that...
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ChitChatNineBlankNov 14, 2014
1
By Patients39 Blank
I have MSK and Thin Basement Membrane Kidney Disease Along possible Nutcracker Syndrome getting worse. My kidneys are...
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ChitChatNineBlankNov 14, 2014
1
By calitimber
I am a 38 year old mother of 3 boys and was diagnosed with MSK a few years ago. I have suffered from kidney stones s...
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ChitChatNineBlankNov 14, 2014
1
By carrie_e_cross
I am 21 years old and have been having a lot of UTIs over the past year but my doctor kept telling me it was somethin...
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ChitChatNineBlankNov 14, 2014
1
By angiewhitcraft
I "accidently" was diagnosed with MSK almost 5 years ago, but had my first bout with stones and UTI a few days ago. ...
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ChitChatNineBlankNov 14, 2014
1
By TheodoreMommy
2 months ago, my 10-month old baby boy was diagnosed with MSK on both kidneys. His pedia nephrologist has placed him ...
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ChitChatNineBlankNov 14, 2014
1
By rdm1649
I'm not here looking for advice, I have advice to share. Having MSK disease and all the stones that go along with...
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ChitChatNineBlankNov 14, 2014
1
By Kimbaw
I have known I've had msk for 8 yrs, and I've never had stones, but I do have pain and my hands and feet and face see...
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ChitChatNineBlankNov 14, 2014
MSKidneyNov 07, 2014
ChitChatNineBlankNov 06, 2013
badkidneys840Oct 02, 2013
ChitChatNineBlankSep 16, 2013
5
By Clbeyer9 Blank
I was diagnosed with MSK six years ago. I am 38. At first it was just the kidney stones but about three years ago, I ...
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ChitChatNineBlankNov 14, 2014
Marlene1981Nov 08, 2014
Susan615Mar 20, 2010
MSKshellyMar 20, 2010
Susan615Mar 19, 2010
6
By Susan615 Blank
In Early Jan. I had a bladder infection. I first noticed it because it looked like white bubbles or white things wer...
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tabcrabNov 05, 2014
ChitChatNineBlankMay 15, 2013
makeawagerMay 13, 2013
ChitChatNineBlankMar 21, 2013
marisanicole123Mar 21, 2013
12
By FrancesFarmer Blank
If you also suffer with reoccurring kidney pain whether you are passing stones or not...please respond as I am reliev...
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Momof2sweetheartsOct 30, 2014
MSKshellySep 26, 2010
honeylrSep 15, 2010
toomanystonesSep 14, 2010
4
By honeylr Blank
Hello everyone. I am a newcomer with the Medullary Sponge Kidney Diagnosis. I have just found out after 5 years of ...
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calitimberSep 15, 2014
ChitChatNineBlankJul 17, 2014
kd1980May 08, 2014
ChitChatNineBlankMay 07, 2014
4
By Vmarturana Blank
My names Vicky, I'm 24 years old and was recently diagnosed with msk in my right kidney . Ihave a nephrologist appoin...
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JamesisahotmessAug 05, 2014
lpiazzonAug 03, 2014
2
By Jamesisahotmess Blank
Well, I was originally diagnosed with nephrocalcinosis, but no reason was given. My new nephrologist is almost positi...
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ChitChatNineBlankJul 17, 2014
JjzinnJul 08, 2014
ChitChatNineBlankJul 19, 2012
Barb1069Apr 15, 2012
4
By laf95 Blank
I was diagnosed with MSK last December. I've been struggling with kidney stones for over a year. Urologist did a 24 ...
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