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Medullary Sponge Kidney Disease (MSK) Community

This patient support community is for discussions relating to Medullary Sponge Kidney Disease (MSK).

81 - 100 (of 644) questions
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592774_tn?1325397342
For about 2 years I use a heating pad almost constantly when my kidneys hurt (which was almost constantly until last month).In November I had an older one start sparking and flaming at the control one morning when I was still half asleep...
ngio64 | Last answer
Avatar_universal
I have had MSK since 1999 when I was pregnant with my last child. After I had her I was in and out of the hospital every 3 months because my stones were 10mm and I could not pass them. After numerous lithotripsies and 7 specialists, I fi...
bratlee007 | Last answer
Avatar_universal
I'm new to this forum and glad I found it. Lately I've been having more and more pain specifically on my right side. I see some older posts about people with chronic pain, but I thought I'd start a newer thread to if there's any new info...
Yoshi18 | Last answer
Avatar_universal
I'm so glad I found this forum. I was diagnosed with MSK when I was 18 after I had my first kidney stone attack. Since then I would be able to pass stones without extreme pain. I'm now 27 and for the past 10 months I have been dealing wt...
broookiebrooke | Last answer
4358712_tn?1353348292
Hi all... I'm new here and have decided that I have to start taking MSK seriously, because I really haven't before. :0 I just had 2 stents put in Thursday and called the drs ofc this morning , only to find out I have to leave them in s...
cat_mac | Last answer
Avatar_universal
Hello everyone. So i just found out today that i have msk from seeing a kidney specialist for the first time after he reviewed my ct scan. This is after 2 years of struggling with uti's, kidney infections and flank pain. I just passed m...
cass0738 | Last answer
Avatar_universal
I was diagnosed with msk about 4 years ago. In the past few month I have had pain in both kidneys that has progressively gotten worse. I see a nephrologist and he doesn't seem concerned and ally family dr does is give me high doses of pa...
lmquinn22 | Last answer
Avatar_universal
Hi, My sister (28 yo) and myself (34 yo) have recently been diagnosed with bilateral medullary nephrocalcinosis. Mine is advanced and I also have bilateral renal cortical thinning. Our 24 hour urine tests came back fairly normal - my si...
rpatrick | Last answer
Avatar_universal
After 3 days of ongoing punch me in both kidney and lower pelvic pain I went to the ER. Only because the flow was getting weaker shall we say. Usually I just dose myself with the Oxy, heating pads and gnaw at my pillow. 3 weeks ago th...
ducttape | Last answer
3561662_tn?1347596562
So I jus turned 21 and about eight months ago when I was pregnant with my second child I found out that I have MSK. Since then I have had at least eight uti's/bacterial infections. Every time I get one I feel horrible. The symptoms seem ...
Nik_3 | Last answer
Avatar_universal
Has anyone experienced uriospesis cause by pseundomnas?
baabsthewonderdog811 | Last answer
Avatar_universal
Has anyone else dealt with pseudomas? It's a terrible bacteria infection that I became infected with during my stone removals. After 3 longs stays in the hospital 35 days of IV therapy twice a day, blood clots caused by a pic line and b...
baabsthewonderdog811 | Last answer
Avatar_universal
Since I had my daughter all of my problems started, MSK, multiple stones(10 small in my left, I 9mm I had taken out already) and 5 large in my right, I also have ic and endometriosis, an my rectum prolapsed about 6months ago. Just found ...
lilvino | Last answer
Avatar_universal
I have had 6 stints in the last year the last time they took the stint out it took about a month for my kidney fiction to return I knew I had sponge kidney sense I was a kid I am 37 and it just seems to get worse the older I get the la...
Starzerin | Last answer
Avatar_universal
Im brand new, so i am not sure on anything. 10 years ago i passed a stone while i was travelling cross country. It was rather large,i think, about the size of two grains of rice which formed a sideways t. Since then i have added four mor...
motherof6kidstolove | Last answer
3192366_tn?1344989358
Hello, I have bilateral MSK, have never passed a stone as they are embedded in the upper regions of my kidneys. I have been plagued by UTI's, but no other complications. Just had a 24 hour urine done, which shows very high urine calciu...
TrishLCSW | Last answer
Avatar_universal
I have been experiencing kidney infections and kidney stones for several years. Recently, I went to my regular doctor and told her I thought I had an infection and/or a kidney stone. I had a CT scan and the results came back that I had...
Debbie1713 | Last answer
Avatar_universal
Dear me it's been some time since I have last been here... I hope all you Kidney Beans are coping! Iv had a terrible year that started last July when I got Sepsis and ended up staying in hosp for 12days. During this time my hubbie ...
sarand | Last answer
Avatar_universal
So after reading the previous posts i'm getting slightly mixed emotions, i am so glad to know i'm not the only one going through this (although knowing what the pains are like, glad doesn't seem to be the correct term!) but i'm also just...
fedup268 | Last answer
463897_tn?1448485050
Hi Everyone, In order to protect the privacy of our members, we ask that all research requests, news stories, etc. be submitted to MedHelp for review, prior to posting anywhere on our site. ** IMPORTANT REMINDER ** Everyone should a...
MH Community Mgr | Posted
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