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Medullary Sponge Kidney Disease (MSK) Community

This patient support community is for discussions relating to Medullary Sponge Kidney Disease (MSK).

81 - 100 (of 649) questions
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Avatar universal
I've just joined the MSK Community but have been living with MSK for 16 years. Even after living with MSK for so long I've never actually talked to anyone else with MSK. After looking through past discussions I find it encourgagng to f...
  Posted
691983 tn?1266808432
dose anyone know how many pople with msk have Autoimmune Disease????i had a positive antinuclear blood test .so that's pointing at a autoimmune disease but witch one ???? my joints hurt in my hands wrist ,my legs not as bad and my neck....
  Posted
Avatar universal
Hi there....new here and newly diagnosed. I have had a history of numerous stones for the past 12 yrs. This most recent one I was sent to a urologist. He did a blood test and also a 24 hour urine. The results of both of these tests a...
  Posted
Avatar universal
I havent posted in here for so long - lol. Im feeling a bit anxious about my latest kidney report. Ive had mskd for a few years now. 3 years ago i had a partial nephrectomy for 5cm renal cell carcinoma. i have quite a few cysts mainly si...
  Posted
463897 tn?1448485050
Hi, Please visit our new Kidney Stone Ask an Expert Forum with FREE questions answered by David Rudnick, M.D. http://www.medhelp.org/forums/Kidney-Stones/show/1434 This is a place to ask your personal questions about kidney...
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Avatar universal
I was diagnosed with MSK about 5 years ago. For about that time I've had what I describe as "gel" in my urine almost every day. It comes and goes in amounts, but it's almost always there. Years ago a nephrologist told me that it was c...
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Avatar universal
I was brought to tears when I found this page while I was Googling about msk. I unfortunately have to search the internet for answers and information about my condition because my nephrologist, urologist, or primary know anything about i...
  Posted
592774 tn?1325397342
For about 2 years I use a heating pad almost constantly when my kidneys hurt (which was almost constantly until last month).In November I had an older one start sparking and flaming at the control one morning when I was still half asleep...
  Posted
Avatar universal
I have had MSK since 1999 when I was pregnant with my last child. After I had her I was in and out of the hospital every 3 months because my stones were 10mm and I could not pass them. After numerous lithotripsies and 7 specialists, I fi...
  Posted
Avatar universal
I'm new to this forum and glad I found it. Lately I've been having more and more pain specifically on my right side. I see some older posts about people with chronic pain, but I thought I'd start a newer thread to if there's any new info...
  Posted
Avatar universal
I'm so glad I found this forum. I was diagnosed with MSK when I was 18 after I had my first kidney stone attack. Since then I would be able to pass stones without extreme pain. I'm now 27 and for the past 10 months I have been dealing wt...
  Posted
4358712 tn?1353348292
Hi all... I'm new here and have decided that I have to start taking MSK seriously, because I really haven't before. :0 I just had 2 stents put in Thursday and called the drs ofc this morning , only to find out I have to leave them in s...
  Posted
Avatar universal
Hello everyone. So i just found out today that i have msk from seeing a kidney specialist for the first time after he reviewed my ct scan. This is after 2 years of struggling with uti's, kidney infections and flank pain. I just passed m...
  Posted
Avatar universal
I was diagnosed with msk about 4 years ago. In the past few month I have had pain in both kidneys that has progressively gotten worse. I see a nephrologist and he doesn't seem concerned and ally family dr does is give me high doses of pa...
  Posted
Avatar universal
Hi, My sister (28 yo) and myself (34 yo) have recently been diagnosed with bilateral medullary nephrocalcinosis. Mine is advanced and I also have bilateral renal cortical thinning. Our 24 hour urine tests came back fairly normal - my si...
  Posted
Avatar universal
After 3 days of ongoing punch me in both kidney and lower pelvic pain I went to the ER. Only because the flow was getting weaker shall we say. Usually I just dose myself with the Oxy, heating pads and gnaw at my pillow. 3 weeks ago th...
  Posted
3561662 tn?1347596562
So I jus turned 21 and about eight months ago when I was pregnant with my second child I found out that I have MSK. Since then I have had at least eight uti's/bacterial infections. Every time I get one I feel horrible. The symptoms seem ...
  Posted
Avatar universal
Has anyone experienced uriospesis cause by pseundomnas?
  Posted
Avatar universal
Has anyone else dealt with pseudomas? It's a terrible bacteria infection that I became infected with during my stone removals. After 3 longs stays in the hospital 35 days of IV therapy twice a day, blood clots caused by a pic line and b...
  Posted
Avatar universal
Since I had my daughter all of my problems started, MSK, multiple stones(10 small in my left, I 9mm I had taken out already) and 5 large in my right, I also have ic and endometriosis, an my rectum prolapsed about 6months ago. Just found ...
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