Myelodysplastic Syndrome Community
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WELCOME TO THE MYELODYSPLASTIC SYNDROME COMMUNITY: This Patient-To-Patient Community is for discussions relating to Causes, Clinical Trials, Complications, Diagnosis, Living With Myelodysplastic Syndromes, Prognosis, Questions to Ask Your Doctor and Treatment Options.

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CML2014Aug 23, 2015
1
By saddaught Blank
Hello everyone, My loving, wonderful, kind hearted, young father is critical in the ICU right now. Back story: My da...
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By cheflazo Blank
My Mom has been diagnosed with MDS at a younger age than what has normally been the case for MDS. So, I started a we...
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wlennonMay 09, 2014
daniellemaryJan 27, 2014
Dr. Kokil Mathur Mar 21, 2013
3
By Kandyb Blank
I am 30 and just recently diagnosised with MDS. I have WBC at 1.7; hypocellular bone marrow and no iron in my bone m...
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ClarkLAMay 27, 2015
1
By Umater Blank
Hi! I am new to this site but not new to MDS, I have been on decitabine treatments for 6 months, my blasts are at abo...
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AtheanaMay 27, 2014
LizjpMay 27, 2014
2
By Atheana Blank
I see some old posts. Anyone our there?
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By davidhr Blank
I have just been diagnosed with MDS with RCMD and I am currently at low risk for progression to AML. I am 72 years o...
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By Cindy Blank
Cancer Therapy: Can It Hurt Your Heart? Thursday Aug 01, 2013, 12:00PM - 01:00PM (EST) For one day only, doctor...
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S. Kaul, MD Jun 26, 2013
1
By reelman Blank
My wife has MDS. She primarily suffers from chronic leukopenia due to neutropenia. We are moving to an area that on...
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S. Kaul, MD Apr 12, 2013
1
By Needyteen Blank
Hi, I'm fourteen years old and I lead a decently active lifestyle. About a year ago, I developed a strange sort of 's...
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Dr. Kokil Mathur Mar 21, 2013
1
By tomenswar Blank
My 15 year old nephew has MDS and is currently on dialysis as well as antifungal medicine. He is also getting UV trea...
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LizjpMar 20, 2013
mtairApr 11, 2010
2
By Vince53 Blank
I'm searching for support groups. I need to talk with others about their treatments, what they have tries as far as ...
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Brenda550Feb 15, 2013
Dr. Kokil Mathur Feb 14, 2013
dgoodenNov 03, 2012
3
By debsy8342 Blank
I have MDS, not receiving any treatment at this time. I'm in a "wait and watch" phase right now. However, I am dealin...
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himanshubhandulaOct 02, 2012
1
By davvydo Blank
I have the blood disease Myelodysplasia, which in my case manifests itself by lowering my platelets and white blood c...
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himanshubhandulaOct 02, 2012
S. Kaul, MD May 07, 2012
2
By pcpatnaik Blank
My father aged 69 is suffering from shortage of Hemoglobin, RBC and WBC since May 2011 it was identified from Bone ...
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By Str8att Blank
Hi, I've diagnosed with Myelodysplatic Syndrome (MDS) and ITP back in 2006. Since then I've also had a splenectom...
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By needhelptonight Blank
Let me start with the following: a.) I am a bit of hypochondriac that being said, b.) 3 months ago I ran in a ...
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pcpatnaikApr 30, 2012
Bhupinder Kaur, MD Aug 16, 2008
2
By Ef444 Blank
My mother has been diagnosed with sever anemia. Iron, Vit B12, Folate levels are all normal. Doctors are waiting on ...
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electra711Dec 13, 2011
reelmanSep 12, 2011
mtkauffSep 10, 2011
3
By reelman Blank
My wife has MDS. She is 41 yrs old, and has been battling MDS for about 20 years. Recently, she was having bladder ...
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By Smileyjmc Blank
I have been sick for about 5 yrs it started with itchy head n body ears n nose got infected n eatn up n my neck on th...
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danielleAAMay 16, 2011
1
By BrennyB Blank
I was diagnosed with myelodysplasia RAEB-1 of the red blood cells in February 2008. My hemoglobin ranges from 8.0 to...
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