Myelodysplastic Syndrome Community
About This Community:

WELCOME TO THE MYELODYSPLASTIC SYNDROME COMMUNITY: This Patient-To-Patient Community is for discussions relating to Causes, Clinical Trials, Complications, Diagnosis, Living With Myelodysplastic Syndromes, Prognosis, Questions to Ask Your Doctor and Treatment Options.

Font Size:
A
A
A
Sort by:
Last Post
Date Started
Background:
Blank
Blank
Blank
Avatar_f_tn
AtheanaMay 27
LizjpMay 27
2
By Atheana Blank
I see some old posts. Anyone our there?
Avatar_f_tn
wlennonMay 09
Dr. Kokil Mathur Mar 21, 2013
3
By Kandyb Blank
I am 30 and just recently diagnosised with MDS. I have WBC at 1.7; hypocellular bone marrow and no iron in my bone m...
Avatar_m_tn
By davidhr Blank
I have just been diagnosed with MDS with RCMD and I am currently at low risk for progression to AML. I am 72 years o...
17568_tn?1393094935
By Cindy Blank
Cancer Therapy: Can It Hurt Your Heart? Thursday Aug 01, 2013, 12:00PM - 01:00PM (EST) For one day only, doctor...
Avatar_m_tn
S. Kaul, MD Jun 26, 2013
1
By reelman Blank
My wife has MDS. She primarily suffers from chronic leukopenia due to neutropenia. We are moving to an area that on...
Avatar_f_tn
S. Kaul, MD Apr 12, 2013
1
By Needyteen Blank
Hi, I'm fourteen years old and I lead a decently active lifestyle. About a year ago, I developed a strange sort of 's...
Avatar_m_tn
Dr. Kokil Mathur Mar 21, 2013
1
By tomenswar Blank
My 15 year old nephew has MDS and is currently on dialysis as well as antifungal medicine. He is also getting UV trea...
Avatar_m_tn
LizjpMar 20, 2013
mtairApr 11, 2010
2
By Vince53 Blank
I'm searching for support groups. I need to talk with others about their treatments, what they have tries as far as ...
Avatar_f_tn
Brenda550Feb 15, 2013
Dr. Kokil Mathur Feb 14, 2013
dgoodenNov 03, 2012
3
By debsy8342 Blank
I have MDS, not receiving any treatment at this time. I'm in a "wait and watch" phase right now. However, I am dealin...
Avatar_m_tn
himanshubhandulaOct 02, 2012
1
By davvydo Blank
I have the blood disease Myelodysplasia, which in my case manifests itself by lowering my platelets and white blood c...
Avatar_m_tn
himanshubhandulaOct 02, 2012
S. Kaul, MD May 07, 2012
2
By pcpatnaik Blank
My father aged 69 is suffering from shortage of Hemoglobin, RBC and WBC since May 2011 it was identified from Bone ...
Avatar_m_tn
By Str8att Blank
Hi, I've diagnosed with Myelodysplatic Syndrome (MDS) and ITP back in 2006. Since then I've also had a splenectom...
Avatar_m_tn
By needhelptonight Blank
Let me start with the following: a.) I am a bit of hypochondriac that being said, b.) 3 months ago I ran in a ...
Avatar_n_tn
pcpatnaikApr 30, 2012
Bhupinder Kaur, MD Aug 16, 2008
2
By Ef444 Blank
My mother has been diagnosed with sever anemia. Iron, Vit B12, Folate levels are all normal. Doctors are waiting on ...
Avatar_m_tn
electra711Dec 13, 2011
reelmanSep 12, 2011
mtkauffSep 10, 2011
3
By reelman Blank
My wife has MDS. She is 41 yrs old, and has been battling MDS for about 20 years. Recently, she was having bladder ...
Avatar_f_tn
By Smileyjmc Blank
I have been sick for about 5 yrs it started with itchy head n body ears n nose got infected n eatn up n my neck on th...
Avatar_f_tn
danielleAAMay 16, 2011
1
By BrennyB Blank
I was diagnosed with myelodysplasia RAEB-1 of the red blood cells in February 2008. My hemoglobin ranges from 8.0 to...
Avatar_f_tn
By ginny9 Blank
I was diagnosed today and i am scared and do not whats next other than a bone biopsy can anyone shed some light on li...
Avatar_f_tn
steve3018Jan 31, 2011
1
By MONKEY_DO Blank
Hi! Ho! Does anyone do odd things like hiking, or volounteer police work while taking Revlimid and warfarin (5mg)? ...
Avatar_f_tn
By Fleamarketer Blank
Hello, Looking for a specialist in the suburban Philadelphia area. Thanks
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Myelodysplastic Syndrome Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank