Myelodysplastic Syndrome Community
WELCOME TO THE MYELODYSPLASTIC SYNDROME COMMUNITY: This Patient-To-Patient Community is for discussions relating to Causes, Clinical Trials, Complications, Diagnosis, Living With Myelodysplastic Syndromes, Prognosis, Questions to Ask Your Doctor and Treatment Options.
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1
By Needyteen Apr 09, 2013
Hi, I'm fourteen years old and I lead a decently active lifestyle. About a year ago, I developed a strange sort of 's...
1
By Kandyb Mar 15, 2013
I am 30 and just recently diagnosised with MDS. I have WBC at 1.7; hypocellular bone marrow and no iron in my bone m...
1
By tomenswar Mar 14, 2013
My 15 year old nephew has MDS and is currently on dialysis as well as antifungal medicine. He is also getting UV trea...
I'm searching for support groups.
I need to talk with others about their treatments, what they have tries as far as
...
3
himanshubhandulaOct 02, 2012
1
I have the blood disease Myelodysplasia, which in my case manifests itself by lowering my platelets and white blood c...
himanshubhandulaOct 02, 2012
2
My father aged 69 is suffering from shortage of Hemoglobin, RBC and WBC since May 2011 it was identified from Bone ...
Hi,
I've diagnosed with Myelodysplatic Syndrome (MDS) and ITP back in 2006.
Since then I've also had a splenectom...
Let me start with the following:
a.) I am a bit of hypochondriac that being said,
b.) 3 months ago I ran in a ...
pcpatnaikApr 30, 2012
2
My mother has been diagnosed with sever anemia.
Iron, Vit B12, Folate levels are all normal. Doctors are waiting on ...
3
My wife has MDS. She is 41 yrs old, and has been battling MDS for about 20 years. Recently, she was having bladder ...
danielleAAMay 16, 2011
1
I was diagnosed with myelodysplasia RAEB-1 of the red blood cells in February 2008. My hemoglobin ranges from 8.0 to...
steve3018Jan 31, 2011
1
Hi! Ho!
Does anyone do odd things like hiking, or volounteer police work while taking Revlimid and warfarin (5mg)? ...
Hello,
Looking for a specialist in the suburban Philadelphia area. Thanks
FYI - According to a recent article in the Journal of Clinical Oncology re: myelodysplastic syndromes (MDS):
Apri...
My mother, 90 has been suffering with this condition for over a year, plus many other health issues. Please can you t...
Myelodysplastic Syndrome Community Resources
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