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Nephrotic Syndrome Community

WELCOME TO THE NEPHROTIC SYNDROME COMMUNITY: This is a patient-to-patient support community where you can find others who share your interest in Childhood Nephrotic Syndrome. The mission of this community is to provide a place for patients and their loved ones to share the best information and support possible.

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Avatar universal
I'm an 19 yrs female. Two yrs back following proximal stricture in right ureter, stent was implanted and on review after two months,stent was removed. Recently, I'm finding intermittent obstruction in flow of urine with incomplete emptin...
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Avatar universal
This is a long post so sorry for how long it may be we are both at our wits end with this problem. 4 months ago, my other half woke up with a severe headache which started at the back of the head. She was laid in bed all day and the ...
  Posted
Avatar universal
My son is 14.7 years of age. In school is always shy,soft spoken and well mannered boy.Since middle of 2014 he started to loose weight, he lost appetite.Around Nov 2014, my wife took him to doctor, in urine test, Protein excretion was +,...
  Posted
10948614 tn?1414177319
I only ask because I have been carrying around about 20-30 pounds of generalized pitting edema/fluid for about two years now and nobody can figure out the underlying cause. I've been screened for heart, liver, kidney diseases, as well...
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Avatar universal
Hi Sir/Madam, I need advice regarding my father's health. Yesterday his blood creatinine level has been reported to be 1.2mg/dl. Just 4 Months back his serum creatinine level was 0.6mg/dl. He is 64 and of Indian ethnicity. He is on...
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Avatar universal
could sjogrens cause me to be like a drunk person from 2 days to 10 weeks or longer?
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Avatar universal
My mom and my little sister who is just now 14 is really sick. It started with my moms neck started to cramp and led to loss of control in her neck (like a new born baby holding her head up). then she could no longer use her legs. when b...
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Avatar universal
what is high necroinflamma Activity Score of .46 mean
  Posted
Avatar universal
Recently my wife has blood creatinine test and report is high. Its is : 1.4mg% (normal range as in report is 0.80 to 1.20 ). Did second test again in another pathological centre after 10/12 days, result is 1.2mg/dl (normal range as i...
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Avatar universal
My daughter is 13 yes old. She was diagnosed with acute nephrotic syndrome in April 2010. Her kidney function was maintained at 70%. But picked up to 80% in February this year.
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Avatar universal
For the past 6 months I have been experiencing nerve sensations in my upper arms, chest and fore head. I have been to my primary care dr. 2 neurologists, neurosurgeon and a reumatologist(sp). I have had blood work, MRI, X rays and al...
  Posted
Avatar universal
I am a 26 year old man. I have been having foamy urine for the past 6 months, with a mild upper abdo discomfort. USG showed up mildly enlarged liver and thick walled gallbladder with cholesterol deposit (cholesterolosis). Kidney was ...
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Avatar universal
I am a 61 yr. old woman who has been recently diagnosed with this. I also have congestive heart failure and diabetes. Just wanting to know what I can do to improve the kidney function or at least slow the progression of the disease. I ha...
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Avatar universal
my daughter has iga nephropathy her spot protein is22.2mg, and 274.1mg is spot creatinine, heamoglobin 12.4, pottassium is 4.2 mEq , creatinine .4mg this report taken on 22-3-2012..she is taking gissicor ,envas 5mg,alsartan,eva q syrub. ...
  Posted
Avatar universal
i have had a uti since june of this year that with treatment will not go away. and now im having problems with my arms, hands, legs, feet, and face swelling. i have a high trace of protein in my urine. the amount of protein is 300. i am ...
  Posted
Avatar universal
about 3 weeks ago i was on a very high protein and creatine diet ( im a bodybuilder ) my proteinuria came up to be .71 gr/24 hour, im wondering if there is a relationship between the protein/creatine supps and high levels of proteinuria?...
  Posted
Avatar universal
I have been living with Membraneous Nephopithy for 13 years now and I have been taking 400mg of cyclosporine daily the whole time. I notice that I am starting to have many stomach problems and I am used to the hair growth in places you d...
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Avatar universal
Does any one have alports syndrome i can not find anyone else who has it and if so what are your symtoms and how do you deal with it?
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Avatar universal
Hello Dr, I had a UA done yesterday to check for protein and everything came back negative/normal. I had 16 oz of water to drink before the UA test. I was wondering if that would've caused any false negative as the urine might have be...
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Avatar universal
I was asked to do a 24 hour urine sample but the jug wasn't large enough. I didn't figure this out untill too late at night so I was unable to go to doc for another container. I had to spill some out to get my morning collection. I know ...
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