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158939 tn?1274915197

Wanting someone to explain MRI results

Hi again all,

I had a MRI of my brain and lower back last week for pain and numbness in my left arm and leg, "electrical shocks" all over my body, dizziness, headache, crushing back ache, forgetfulness, etc. following viral meningitis two months ago.  Two MDs have suggested I be checked for MS, another for encephalitis.

The "quick read" from the radiologist showed "nothing of note" but, having had quite a few misdiagnosis, I got a copy of the MRI and have spent quite a bit of time going through it.  I noticed a large (about the size of my thumb) "white spot" deep in my brain on my right side (all my symptoms are on the left side of my body).  I've also noticed smaller white spots (about the size of a coffee bean) in other areas of my brain.  No, they didn't do the contrast even though I asked for it.  The technician said "oh, from what I've seen you don't need it."  (grrrrr)

From all the research I've done (including medical journals and MRI pictures), these look very much like MS lesions.

I don't have an appointment with my soon-to-be neurologist for a month and my internal medicine specialist says he's no neurologist.  Has ANYONE ever asked a medical professional to sit down with them and go through their MRI?  Who would I ask - a radiologist, my neurologist, my internal med specialist?

I would like someone to look it over and not just take the "quick read" from a radiologist - I'd like to know what's going on in my head and what these bright white areas mean - if anything.

Any suggestions??
16 Responses
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Avatar universal
Mri results....
Right side of brain is larger than the other side. What does that mean?
Helpful - 0
158939 tn?1274915197
Thank you
Helpful - 0
158939 tn?1274915197
>>>>Apology withdrawn. My empathy for all you've been through was
a reaction & attempt to help. Nothing to apoligize for. You
do have a problem but don't take it out on me. I just offered
my help. You probably do have an Occipital abnormality. The
Occiptal is in back of skull & above brain. It's function is
to understand visiual images/meaning of written words. Just
take the disk to appt for viewing. Your post said MRI & now
you say a head CT. Big difference. I hope you get your answers
& some help.


I apologize if you felt I was "taking it out on you".  I was simply trying to clarify some of the points you were making.  I was in error saying CT - I meant MRI.  I do have a pretty good basic understanding of brain physiology and what each portion of the brain controls - I'm just not familiar with MRIs and some of the things I was seeing on them.  Nor am I familiar with what MS lesions may look like on an MRI.  I've been through so much lately (cancer, diabetes, and now this), I'm just trying to find a way to interpret what I'm seeing.  If you feel you were attacked, I apologize, I was simply trying to clarify.  I guess I'll just have to do as you suggested, take the disk to my appointment and hope someone will look at it and figure out what's going on before I completely lose use of my left arm.
Helpful - 0
Avatar universal
Apology withdrawn. My empathy for all you've been through was
a reaction & attempt to help. Nothing to apoligize for. You
do have a problem but don't take it out on me. I just offered
my help. You probably do have an Occipital abnormality. The
Occiptal is in back of skull & above brain. It's function is
to understand visiual images/meaning of written words. Just
take the disk to appt for viewing. Your post said MRI & now
you say a head CT. Big difference. I hope you get your answers
& some help.
Helpful - 0
Avatar universal
We're fine. I've posted you before even on the other Neuro-
Forum. You've been throught alot. I post to help because I've dealt w/ a severe illness & my background. I'm retired & a few
decades older. Yrs ago, they had consults to MD's to keep the
patients records reviewed/updated/questioned if reports didn't
match clinical. Dr's had us so they had lots of patients for
their practice & avoid mal-practice. My job was to go through
files from many ofc's & report what didn't match. I was able to
'suggest' a fol-up/re-do/re-read/discrepancy to save the MD's buns. I was able to read what was left out of reports & be like
a patient advocate. I had problems sleeping over the errors I
found & pgs missing. I know their lack of honesty/dismissing/or
many were great MD's. When I became ill & a patient, imagine my
terror. It took 8 yrs to dx myself by witholding the anger when
I got the pat on the head. That was yrs ago. They no longer use
consultants. A report says alot to me, especially when a poster
says certain things. A while back, I urged someone to get a
special scan. They had every indication of a rare disorder
being over-looked. I was called a know it all! I hope I was
wrong. Result could be death. I can only 'suggest' & then hope.
I forget that you need to have the control. I hope this new Dr
is good. A hm-file is for you to read what they aren't saying.
The lab can give you copy & 'never' tells Dr. I don't want to
drag this on, but a Cervical MRI would rule out a few things
w/ your arm problem. C4 affects shoulder/C5 neck to arm/if thumb
is numb, maybe C6 narrowing/C7 msgs your middle fingers. These are always over-looked by MD's. These are just examples of what
mri's don't show/say. If you have a spur at C3, that could be
pressing off/on to numb arm. I didn't have a computer back then
but a report will help you be in control using technology. I
hope to read the board some day abt your break-through. It's
hard to type feelings. I do wish you well fast.
Helpful - 0
Avatar universal
My apologies for trying to help. I wish you well.
Helpful - 0
158939 tn?1274915197
I do have a copy on CD (digitized) but the report my doctor's office called and gave me was the radiologist's report stated "nothing abnormal".

I don't know how to read MRIs but I can tell you the nomenclature on the slides (whether or not it means anything to anyone).  I was looking for bright or dark areas that weren't on the other side of the brain.  I know the body isn't perfectly symmetrical but what I'm noting really stands out in the pictures and is not there on the other side of the brain:

AXT2:
  Image 1: bright white spot on left side behind lower nasal cavity
  Image 2: same as image 1
  Image 3:  bright white spots on right side near midline of brain
  Image 4:  same
  Image 5:  long, squiggly dark "shadows" in spinal column (like wide threats or small worms - yech!)
**Image 6:  large white spot (about the size of my thumb) on right side near center of brain.  More dark thread-like shadows near spinal column
  Image 7:  dark thread-like shadows interior from spinal column
  Image 10: bright white area on left side, above eye
  Image 13: bright white spot on right side in occipital lobe - dark spot "shadows" in both temporal lobes
  Image 14:  dark shadows and "holes" in both temporal lobes

AXT2 Flair:
  Image 24 - large white area on left side

SAG T2 Flair
  Image 11: bright white area midline of brain near base of skull; another on brain stem

AXPD
  Image 4: bright white area in right, center of brain

AXT1 SE
  Images 18-20:  bright white spots throughout occipital lobes

AXDWI ASSET
  Image 1:  bright white areas on right side and in center of brain
  Images 2-3:  bright white spots in temporal lobes
  Image 6:  bright white spot on right side, occipital lobe

I also figured out why my lower back feels like it's being crushed - my lumbar spine looks like it needs braces!  It curves from side to side and appears to be torqued too.  But that is another post.

My numbness, pain, weakness, and "electrical shocks" are mostly on my left side in my arm and hand (some in my leg and foot).

Does this make sense to anyone?
Helpful - 0
158939 tn?1274915197
Oh, a few more things.  I'm 40 and these symptoms have been with me since mid-August when I was seen in the emergency room with viral meningitis.

I have had problems with weakness, pain, numbness off and on for years and have been diagnosed with Lupus (misdiagnosis - no abnormal ANAs) and fibromyalgia.  

I have also have thyroid cancer (removed), COPD, type II diabetes, recurrent ovarian cysts (both removed), gallbladder removed (spherocytosis), IBS, ulcers, migraines . . . (shall I go on)?  My sisters all have the same or similar symptoms.

My family is a prime example for why ancestors should have dated further away from the village!  :-)
Helpful - 0
158939 tn?1274915197
>>>Now I understand that you have a disk w/o written report. I'm
sorry but the spots here/there don't help. You've also mixed
the interpretations of brain & spine together. Squiggly dark
spots in spine can be the ends of the vertabra in column.

Actually what I posted was only the head CT - there's a lot more on the spinal CT that I didn't mention.

>>>Often there will be a R for rt-side or an L for left. When films are up to read, the radiologist knows that his 'left' viewing is the 'right part' of the person. Just like you are looking in a mirror. My guess is the dark spots/holes in temporal lobes are really holes where they should be.

The disk is clearly marked "left" and "right"

>>>If you see 2 black holes bilateral on sides of where nose should be, those are cavities of your maxillary sinuses & filled w/ air & cartilage/septum.

Actually the eyes, nasal cavaties, etc. are very clear - none of the bright white areas or dark "squiggles" were in those areas and they were NOT bilateral - only on the side I mentioned.

>>>>I don't think disk gives you all the slics/frames do either. Often there are 12-20 pgs w/ several frames as they shift techniques. I'll ck back later.

Actually each shift has between 12 and 26 slides - I have just under a hundred slides on the disk.
Helpful - 0
Avatar universal
Now I understand that you have a disk w/o written report. I'm
sorry but the spots here/there don't help. You've also mixed
the interpretations of brain & spine together. Squiggly dark
spots in spine can be the ends of the vertabra in column. White
can be while they did FLAIR test or skull bone. There are many shades of grey to dark that separate anything from cartilage to
tissue. Your disk may be like films. Often there will be a R
for rt-side or an L for left. When films are up to read, the
radiologist knows that his 'left' viewing is the 'right part'
of the person. Just like you are looking in a mirror. My guess
is the dark spots/holes in temporal lobes are really holes
where they should be. If you see 2 black holes bilateral on
sides of where nose should be, those are cavities of your
maxillary sinuses & filled w/ air & cartilage/septum. Call ofc
for printed report from radiologist. Maybe I can assist w/ some info. You've had alot going on that would show alot of old
stuff-firing & it would take a specialist so get copy. Maybe
it would help if you scroll up to read 10/12 'MRI Result' by
kooki. They got report. It was short but said alot. Ofc's will
always say zip or nothing noticeable. I don't think disk gives
you all the slics/frames do either. Often there are 12-20 pgs
w/ several frames as they shift techniques. I'll ck back later.
Helpful - 0
Avatar universal
Do you have a copy of the report. If in US, they must give you
one upon request. If you have the films (not sure) to study,
the white may just be the intensity to highlight in that frame
to ck to ID it. A scan can do that w/o dye. Get copy & share.
There is something of interest you mentioned. Your problems are
on the left & the brain works opposite. Left is usually more
dominant but the right brain (depending on where spot is), may
be affecting a pathway. Rt. brain will make left arm move & vs-
versa. Other scattered spots may be slt firing if you suffer
from extreme stress or hdaches. Scattered specks show up often
if over 50? Our brains age like the rest of us. Get copy &
read/share here. I'd get copy & just calmly ask a Dr to explain
because you don't sleep well & 'value' their opinion. Your reg.
Dr if you have one can request a re-read after reading the
report since films aren't their specialty & it takes up time.
Neuro's have had an extensive education & know how to read but
rely on report. Generally you get a copy w/ films?
Helpful - 0
Avatar universal
Just ask if the neuro can go over the mri with you.State that you have seen .My neurosurgeons office is that way and the neurosurgeon just pulls the mri's right up on the screen.
Helpful - 0
Avatar universal
You could always contact a top MS specialist. Explain your predicament (idiot radiologists, & misdiagnosis) and ask what they would charge to read the MRI. You should be able to find a top MS specialist in your area. Otherwise contact the AMA for assistance.
Helpful - 0
158939 tn?1274915197
Thank you all.  I went through enough hell trying to find a doctor for my ovarian problems last year, I don't want any more medical "professionals" misdiagnosing me because they are too busy to look at labs.  

Helpful - 0
158939 tn?1274915197
Problem is, the MRI was done at the same clinic that the neurologist is located at and everything they do is digitized and in their computer system.  I'm worried that she won't look at the films - only read the report.
Helpful - 0
Avatar universal
Take the films to your neurologist.He will be able to read them.I never take the written report ,just the films.That way the neuro must read them.
Helpful - 0
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