I ssume you've had a complete eye exam by an ophthamologist? If not, get one. Has anyone considered Trigeminal Neuralgia? This is just a guess as I am not a neurologist.
It really does sound like nerve pain. Try doing some reading at
http://www.tna-support.org/
See if the description of TN or of atypical trigeminal neuralgia fits what you are going through. If so you could contact the association to find neurologists knowledgeable in it.
Best of luck, do let us know what happens, Qix
I reread your post and TN doesn't fit with the extremity weakness. Have they done imaging (MRI with and without contrast) of your cervical spine? Severe ongoing pain will certainly cause an increase in BP and you are likely having very poor sleep from the pain. All of this will cause severe fatigue and mental fog.
Have you seen a neurologist?