sezuires and pain

Question

I have been having sezuires for a year. I am having sezuires back to back from two to more sezuires a day. I have had MRI and CT scan with shows that my glands are swollen and that there fluid in my nose. I also have a pain that is on the left saide of my head going down my neck. I have pain in my left ear and jaw that I have to cry out. I have had two EEG test and they show I do have sezuires, but not espilicy sezuire. I had stayed a week in the hospital to find out what is wrong and the test is coming normal. The doctors think it might be stress, however I am getting worse. I need someone to tell me what to do, because this can not be stress that is making feel this bad.

Quixotic1 · Answer

I don't understand the concept that the EEG shows seizures but not epileptic seizures.  That doesn't make sense.  Are they saying that you "look"  like you're having seizures, but that nothing shows up on the EEG test?  Have they said you are having pseudoseizures? (sudo-seizures?)

About the pain on the side of your face and in your ear.  Does something trigger this pain, like touching somewhere on your face or jaw, or eating or wind blowing on your face?  Is the pain in your face related to the seizures?  Do you think the pain is causing the seizures?

Could you possibly obtain the EEG readout, so we could see what they are saying?

If you would answer these questions we might be able to give you some ideas.

Quix

jackcookie · Answer

They said that it looks like that I am having seizures. I had a sleep study done and doing the study I had a seizure. The doctors said they saw the activity on the EEG and that it my by pseudoseizures. I do know that when I have the pain in my ear and jaw I have a seizure before the pain start and after the pain begin. The pain on my left side is there when I open and close my mouth, when any air hits it and when I lay on that side or someone touches it. I noticed cold and too much heat cause it to hurt more. I do not know if the pain have anything to do with the seizures, but I know my body and something is not right.

Quixotic1 · Answer

You are describing the classic symptoms of a pain disorder called "Trigeminal Neuralgia  (TN)."  This is consider to be one of the most painful disorders known.  It would not surprise me if it appeared you were having a seizure when the pain hits.  You need to see a specialist in that disease.  I have to leave for a short time, but you could do a search on 

trigeminal neuralgia

and do some reading on it.  When I get back tonight I will locate some article for you to read.

Quix

sezuires and pain

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