Aa
chiari malformation with pseudotumor cerebri
i was diagnosed with acm 4 years ago, and i had 2 decopmression surgeries. in the last year ive had 15 spinal taps for headaches and vision problems. i have lost all of my vision in my right eye. my doctors are talking about putting in a lumbar shunt for the ptc, but my pressure readings on each tap has not been very high, usually its about 22-28. my vision and headaches get bettter for a couple of days afterward. does my pressure seem high enough to have a shunt put in? also the tonsils are still descending from the acm. will so many spinal taps cause me more problems with the acm? right now i am so miserable i dont know what to do ( diamox doesnt help, im allergic to it). does anybody have any suggestions.
Hey, I think there is a medical clinic in Long Island, N.Y. that specializes in Chiari Mal....google search it...you might want to try them.
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