Hello all- I was really hoping to tap into some of your wisdom. Like most I have a HISTORY, so I will give all facts w/out all the story behind each....37 year old female, hashimotos thyroiditis-managed with levathyroid,chronic osteomyelitis ( jaw, left foot and possibly both shoulders), Left ankle and foot surgery to repair torn ligament-3 years ago.-Also-no other meds besides thyroid.
SYMPTOMS; bone pain (9 years),muscle pain(feels like deep bruise),joint pain, LEFT FOOT; burning cramping & bruised feeling-(arch and top of foot),mild calf cramps,LEFT ARM & HAND; palm feels like bruised meat W/sharp burning pain, joints ache,LEFT FOREARM;tendon running from inside of elbow to wrist tight,burns & feels bruised, MUSCLES IN NECK;(front and back) burn & feel super tight.Also wide spread fasiculations.
ALL OF THESE SYMPTOMS WAX AND WANE---I CAN GO FOR WEEKS FEELING PRETTY GOOD - THEN I GET HIT. MOST SYMPTOMS HAVE COME AND GONE OVER THE LAST 7 YEARS......LATELY THOUGH I AM FEELING LIKE MY LEFT ARM IS VISIBLY LOSING MUSCLE TONE AND IS WEAKER THAN MY RIGHT(WHICH IS MY DOMINATE HAND). Way back when the doctors were trying to figure out the ostemyelitis thing I had an MRI, ct scan, bone scan, CBC, some test with tiny needles to check my muscles (not very pleasant), and xrays galore.
So does any of this (obviously besides the osteomyelitis stuff) sound familiar to any one?? I have a crazy fear of A.L.S. ---all the other bad ones are also there ever present.
Thank you in advance for any guidance.