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Got test results back

Hi Ladies,

Hope everyone is doing as well as possible. I'm not great right now. I got my CA125 back today, it's 457. So I'll be going to the gyn oncologist for surgery. My ob/gyn's office will be making the appt for me, I should know tomorrow when the appt is. I will have to go to Shreveport, La or Dallas,TX. I live about halfway in between. Any spare prayers you have, I would sure appreciate them. I'll keep you all posted when I know more.
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Avatar universal
I will most certainly be praying for you.  I know it is scary.  It sounds like you will have a very good doctor and hospital--even though it is far away.  Let us know when you find out more or if you just feel like chatting.
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You have my prayers and good thoughts and positive thinking going out to you...please keep us posted.  You know that this whole board wishes you love and good health and peace of mind.  Remember that.
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I pray for everyone on this site --- you included!  Hang in there!
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My thoughts and prayers are with you!
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I have read of numbers in the thousands with some advanced disease so it can be worse but is still always scary! Cindi
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Avatar universal
Thank you all for the kind words and prayers. I am pretty scared right now, but I keep telling myself that the CA125 doesn't really mean anything. While having surgery out of town is a pain in the tush, at least I will have the specialist. When my gyn asked if I wanted to go to Shreveport or Dallas, I said wherever the doctors are best! I'm trying to look on the light side as much as possible. All of my friends are looking for rub-on tattooes so if I have chemo and go bald, I can put them on my head. Yes, my brother died of cancer, but all of the women in my family that have had it have survived. I'm not going to be the one to mess that record up!! I know I am rambling here, but if anyone can understand where I am coming from, it is you ladies. I feel bad that I haven't been encouraging to the other ladies posting here, but I haven't been able to focus long enough to keep the stories straight as to who is going through what. But you are all in my prayers. The Lord can keep it all straight for me.
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Avatar universal
Those ARE some big numbers, I can understand your worry. (not that I know what they mean)I am currently awaiting my numbers from the CA125 I took yesterday. I too live in a remote mountain town in CO, surgery will be far away as well.  I've already felt so alone here w/this, there is a new cancer support group in town, but it's primarily men that go and one girl with liver cancer.  I just can't seem to discuss the cramps, bleeding, gassiness, bloating, sexual pain, etc issues with that group, could you?  Therefore, I have you all to listen to me complain about it all, I truly enjoy knowing that I am not alone in this.  And...check this morning's devotion I had...
ISA 43:5 Do not be afraid, for I am with you;
    I will bring your children from the east
    and gather you from the west.
I don't even know anyone of you, but love you all.  Thanks for being there.  Rebel Spirit, you are loved and prayed for.  Julie BB
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Avatar universal
Rebel,  My Gyn NP always said, "Anything that tickles the tummy will tickle the CA125." I am new so I don't know your whole story and tried to do a search for your posts and it didn't work by posters name. Someone let me know how if there is a way.  I know it is scary but I like your attitude!!! The tattoo thing is great. Some would say don't borrow trouble. But I always do better if I acknowledge the worst then start jabbing away at it...like the tattos if the hair goes. We can't be as afraid of something we are defeating in our mind any way we can.

I hope I have not been TOO smart/profetic for my own good. But... I have always had long straight hair...mid back to butt range. But last summer after 12 years of it I cut it all off!!! I had it braided to give to Locks of Love. But I never could bring myself to donate it. I just had a nagging little thing that said not yet. Now it is sitting here in my desk drawer and I'm in that boat.If I have to I will get it made into a wig, no matter the cost.

It sometimes is just healthier to get mad at the situation, or the tumor, or the cyst, or the unruly bleeding, make it into a "thing/being" and have at it. It is better for me than crying or moaning or desolving into mush. Of course I sometimes do that too, probably more frequestly tha the latter. But We  can be strong for each other. And remind each other to fight not just cry. So I'm looking for some tatoos for support! My girls will love it...they wear them all the time and try to get me to,too!

Hang in there!      Cindi
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Avatar universal
I am sorry to here about your knews but keep your head up there's nothing like the unknown and I wish the best for your outcome. I have a daughter with cancer and it is really tough but don't give up you are in my prayers.
Carrie
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cip
Hope you are hanging in there, Rebel Spirit. Rememeber those CA 125's are not the most reliable tests. It is good you are proceeding on with your doctor. I'll be thinking good thoughts for you......
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I'll be praying for you as well.  Please be sure and keep us posted.  Love, hugs and God bless, Barb
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117289 tn?1391712825
You are most definitly in my thoughts and prayers.  Please keep posting and letting us know how things are.  Let us know your surgery date too.  You will get through this.  We are here for you every step of the way.  Godspeed.
~Tascha
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Avatar universal
Oh Rebel I just feel so terrible for you right now.  I am glad that you get a gyn onc.  I know you are frightened but your doctor sounded like she is doing the right things for you.  Try not to get too down, CA tests can be unreliable. My heart aches because of the pain you have been and now are going through.  I am praying for you.  It'll be OK.  
Lots of Love, Katie


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