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Recurring Bilateral Ovarian Cysts

History:  March '05 started w/ a very light period and then heavy prolonged bleeding.  Went to the gyn, he didn't feel anything on exam, prescribed meds to get the bleeding to stop, they worked for about 2 weeks, bleeding then continued.  When I mentioned constant cramping was sent for a pelvic ultrasound (ab & transvaginal).  Results came back showing bilateral ovarian cysts.  Had lap to remove them in June '05-right side was 7cm, and hiding 4-5 smaller ones on the fallopian tube, left was 3 cm.   Dr. also saw the beginnings of endo during the surgery. I stayed on the pill until Oct. '05.  Back to the dr. in Oct. '05 b/c I was having-sense of heaviness, bloating, etc. and cramping + very heavy periods.  Repeat US but no cysts were seen.  Then March '06 I had a very light period, 27 days later another one (normally 35 days apart), then 28 days later another light one lasting only 2 days.  All began w/ a blood streaked discharge and then tissue like pink clots before true bleeding.  Called dr. & they wanted to see me (my period was May 1&2 and I'm still having cramping feeling like I'm going to start again).  I got in that day, had an ultrasound the next day, and go back to my dr. this Monday.  The US tech said she saw small cysts on both ovaries-about 1 cm.  If these cysts are so small why am I having so much cramping?  Why does sex hurt so much?  And why are they back again?  How fast can they grow?  I'm I headed towards another lap? Is there anything I can do to prevent them?  You'd think after last year I'd know the answers to these ques. but I fell like I know nothing!
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108861 tn?1227246048
Hi Lorrie,
     Carrie & Christoher!  Both my kids, a boy and a girl names start with "C" too!  Chad  Caitlin, that's probably why your screen name caused my curiosity.  Fabmom4 had surgery in April and doesHydrosalphinx drop by periodically since she had both ovaries removed and now has another cyst, what's called ORS or ovarian remnant Syndrome, suppose to be rare but we have heard from 4 women in as many months with it!  Does not asnwer you question, I know but late and rambling.  Fab also had Hydrosalphinx, or fluid in one of her tubes so wondering if you might be able to look that up and get a bit more info.  I only recall one other women who actually had a cyst, versus fluid in her fallopin tube and that was in addition to the benign cyst on the adjacent ovary.  It is tough enough to find decent info on the ovarian issues let alone the tube!  I also recall running across one article that had a type of cyst mentioned specific to the fallopion tube and if need be will find it for you.  It has been a long day, Monday Monday!  So toddling off to bed.  Goodnight Lorrie!  MV
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Avatar universal
OK, this all sounds VERY familiar as  I  have recently had similar problems.

Beginning about...let me think... oh.... Perhaps as much as 6 years ago, I began having radical changes in my menstrual cycle.  My monthly cycles had been as regular as clockwork, then (rather suddenly) the cycles began to vary in length from as few as 18 days to as long as 32 days.  I also developed mid-cycle spotting.  My periods themselves also changed, in that one cycle I would hardly bleed at all, then the very next cycle might fill a tampon in a few hours.

A visit to my doctor resulted in testing that determined that I am "perimenopausal."  In simple terms, that means my hormones are now 'reversing puberty'.  We all remember what puberty was like.   Now, I get to go through all that again, in reverse!  The hormonal disfunctions and disruptions can cause many of the symptoms we often associate with PMS, like bloating, gastro-intestinal distress, along with mid-cycle spotting and irregular menstrual cycles.   What fun.  At least I have a great doctor to explain all this to me!

Then, in 2004, I developed symptoms that read like those posted on every "you have ovarian cancer" checklist; however, God was good to me, and the large mass discovered in my ultrasound testing was nothing more than an endometrioma.  At surgery, we also discovered that I have endometriosis, which was a complete surprise, as I'd never had symptoms of that condition.  That surgery, by the way, consisted of the removal of the mass, the left ovary and fallopian tube, as well as many of the endometrial implants.

Let's move right along  to... late November/early December 2005.  Symptoms of the original 2004 endometrioma incident recur, and my doctor sent me back for another ultrasound.    This time, I was diagnosed via  ultrasound as having not one, but two cysts on my remaining ovary.   However, these cysts were much smaller, less than 2 cm each, whereas the original 2204 cyst was more than  6 cm at discovery, and roughly 15 cm at surgery a few weeks later (these things can grow, FAST!)  It was also noted that I had a polyp in my uterus.  The polyp was not there during the 2004 incident.   (Note, the polyp was removed in March of this year, and was benign.)

My doctor  performed a second ultrasound herself for the follow-up of my more recent cyst situation.  I was able to watch the entire imaging process, and got a step-by-step review of what we were seeing on the screen.  The cysts that I had developed this time, although having the basically the SAME symptoms as the large complex mass of 2004, were simply functional cysts.    In fact, there was a collapsed cyst on the ovary that was in the process of resolving, another cyst that was likely about to eject the "egg" it contained, and other much smaller cysts in various stages of the formation process.

Needless to say, I did not require surgery this time for these cysts, as they were "normal" - even if the symptoms were not.  The symptoms of these functional cysts mimicked the more serious endometrioma that I developed in 2004.

So, yes, it is possible for even small, normal cysts to cause pain.  And the disruption of normal hormonal production caused by cysts that form in multiples, or are reluctant to resolve, can cause symptoms such as irregular menstrual cycles, changes in periods, and mid-cycle bleeding.

I did not note in my  mind an age for you...did you post it?  It might be that you are in the normal stages of perimenopause.  Otherwise, you are younger, and perhaps consulting with a fertility specialist, who knows all the little details of hormones and cysts and such, might offer  you  more relief that a standard gyn.
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108861 tn?1227246048
Hi @csMom,
      Welcome to the Forum, who are the 2cs?  Recurrent cysts can and do grow that fast!  When you had the last lap, what did they classify the cysts as?  Hemmrahgic?  I had recurrent functional cysts pretty much from the time I hit puburty till after I had my kids!  Sounds like you have had some so no relief there!  They are the worst!  We all get functional tiny cysts each month called follicles.  Apparently, these follicles compete to emit the egg and sometimes the "Losers" don't resolve within the cycle but instead persist causing no end of problems!  They rupture!  They hurt intensly for about three days, that was my experience with them!  Hated it!  That was in the seventies when there was no such thing as US.  I was lucky in that a female GYN got stationed in Germany and had me come in at stratetic times within my cycles to make the determination of recurrent functional cysts.  (That name, functional, slays me!!!  I was active duty AF at time)  I had relief, not total of course, but less often once I had my kids.  I am guessing you already have a couple so I know our experience with the major curse is not identical but I recognise it none the less.  Hope to hear from you soon 2csmom!  Love to know your first name!  Your screen name is touching but clumsy at best!  Mary V
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Avatar universal
Thanks for your replies.  FYI-the 2cs are my kids Carrie & Christopher, my name is Lorri, and I'm 34.  I've contemplated the perimenopause idea but when I search online for symptoms I'm not having too many of those.

I've always had regular periods up until last year when the first cysts appeared.  When I had the cysts removed, the 7cm one was hiding several smaller cysts on my rt. fallopian tube.  I don't recall how they classified the cysts-but if they were functional would I have had them on the tube as well?  When we first found them via ultrasound, my dr. gave me 3 options-draining them vaginally w/ needle (can't recall the name of the procedure), laproscopic surgery, or wait & see.  But he was only willing to give me 2-3 weeks to wait and see if they changed on their own.

I go back to see him tomorrow, for the "official" results of the US, and I'm sure since they are small he will want to wait and see.  All I know is that I'm tired of cramping, and the sharp pains that come and go.  I just worry about it turning into something more serious.

Thanks Again
LorriH
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Avatar universal
Hi I have a 2cm cyst on my right ovarie i have severe pain for about a year now i have been to the doctor alot. All they have done is give me a ultrasound and said i have a 2cm cyst. I hurt to have sex with my husband, i have alot of pressure when i go to the bathroom which is quiet often, im only 20 and i think i have hot flashes, low sex drive and no money. Everytime i go to the doctor they tell me that they cant help me because i dont have money so all i can tell you is good luck because if your town is like mine you will have to hurt forever.
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