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Ovarian Cancer Community
This patient support community is for discussions relating to ovarian cancer, biopsy, chemotherapy, clinical trials, genetics, hysterectomy, immunotherapy, radiation therapy, screening, and staging.
hysterectomy / oophorectomy
by LauraTA, Sep 14, 2004 12:00AM
I am 33 and was diagnosed w/ ovarian cancer 18 months ago when I had a cyst removed laparoscopically from my right ovary. Only the right ovary was affected, and so it was removed. I did not have a complete staging but was considered to be Stage 1c since there was some spillage from the ovary. We kept the left ovary to preserve fertility since I was just about to be married. A lot of endometriosis was found and removed.
I had six chemo treatments but my CA-125 was normal right after the surgery. I had a second-look via laparscope after my last chemo. No additional cancer was found.
In Feb. of this year, my CA-125 went up to 51 but went down to normal again a few weeks later ( also had a cyst come and go ). Then, in July it went up to 86 but in August went down to 56. Meanwhile, a sizable mass which appears to be endo was found on my left ovary and has not resolved a month later. Oncologist does not think it is cancer since my CA-125 has gotten lower and feels that the endo is probably affecting the blood work. He is scheduling a CT scan and gave me a nasal spray for endo ( I have not started it yet ) to see if it makes the mass shrink. He is letting me decide if I want to have surgery or not.
I have pretty much decided to have the left ovary removed but I don't know if I should have a complete hysterectomy or just oophorectomy. Also, does it sound reasonable to leave the ovary if all indicates that it is just endometriosis? Thanks for your insight!
I had six chemo treatments but my CA-125 was normal right after the surgery. I had a second-look via laparscope after my last chemo. No additional cancer was found.
In Feb. of this year, my CA-125 went up to 51 but went down to normal again a few weeks later ( also had a cyst come and go ). Then, in July it went up to 86 but in August went down to 56. Meanwhile, a sizable mass which appears to be endo was found on my left ovary and has not resolved a month later. Oncologist does not think it is cancer since my CA-125 has gotten lower and feels that the endo is probably affecting the blood work. He is scheduling a CT scan and gave me a nasal spray for endo ( I have not started it yet ) to see if it makes the mass shrink. He is letting me decide if I want to have surgery or not.
I have pretty much decided to have the left ovary removed but I don't know if I should have a complete hysterectomy or just oophorectomy. Also, does it sound reasonable to leave the ovary if all indicates that it is just endometriosis? Thanks for your insight!
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