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Peripheral Nerve Hyperexcitability (PNH) Community

This patient support community is for discussions relating to Peripheral Nerve Hyperexcitability (PNH) and the various conditions related to it such as neuromyotonia (NMT), cramp fasciculation syndrome (CFS), benign fasciculation syndrome (BFS), Isaacs syndrome and others.

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Avatar_universal
I have a pinched nerve resulting from shoulder replacement surgery. The shoulder has healed well but I have tingling and burning from my elbow down to my wrist. It has been 15 weeks and the tingling sensation has moved down to the fore...
nanajane1 | Last answer
Avatar_universal
My current neuro saw small white matter sub cortical lesions on an MRI from a couple years ago. I am 26, is this normal? And how does he rule out MS if there are lesions? Can lesions heal? Or become invisible on other mri's? I have sh...
nat2006 | Last answer
764549_tn?1234549054
I have been diagnosed and been on disability for two years. The pain in my body just keep getting worse,,and we have to keep raising the meds to keep up with it..I have a great team of Drs. and one of the best hospitals so that is good.....
Lino58 | Last answer
Avatar_universal
Dear Friends: Kindly let me jump in: My feet began feeling as if I was wearing socks ( when I wasn't - only in the AM ), 2) my feet and ankles tingle sometimes, albeit less lately, 3) my hands have tough extra layers of skin and i...
rich872 | Last answer
Avatar_universal
Please help me. I really need some advice and opinions. I'm so terrified and scared. First off, I have a problem with alcohol for the past few years or so. In the past 6 months, i started having some some numbness/ pins and needles sensa...
bluebutterfly22 | Last answer
Avatar_universal
I have been diagnosed with idiopathic small fiber neuropathy. I have been taking 40 mg of simivistatin for the past 13 years. My symptoms started about 10 years ago. Is it possible that the medication is causing this?
mattmerd | Last answer
Avatar_universal
I had rotator cuff surgery 3 weeks ago, no more shoulder pain but the pain from my forearm to the wrist is excruciating especially when attempting to straighten my arm out. It is also extremely sensitive to the touch. I've tried icing ...
Whinningmomma | Last answer
Avatar_universal
I have a lot of burning in top of my head. also it feels like a lot of pressure. like I have something tied around my head. I can't hear right either. At night when I lay down to sleep it wakes me up with horrable pain threw out my scoul...
trenab1958 | Last answer
Avatar_universal
pnh
over many years i have been having numerous problems from back pains cramps depression anxiety fatuige etc etc . latley things have been getting worse . as i walk i feel as my legs are going to cramp , i am have constant hot sweats , m...
skelly427 | Last answer
Avatar_universal
I've been told that most insurance companies won't pay for neural scans if the doctor or PA codes the procedure as CPT code 95904 because the device is "investigational". Is this true?
doc7739 | Last answer
Avatar_universal
Ms
Why does my left leg and arm shake on one side of my body after sitting long? Usually when I stand up, I need to stand still for a few minutes to let my blood flow through my body while my left arm and leg shakes uncontrollably and I ha...
JB30238 | Last answer
Avatar_universal
For several weeks now my right arm has been giving me problems. As I remember it, it started waking up one morning and my shoulder feeling alot of pain. Days later the pain was all in my elbow and stayed there for at least a week.. Sin...
unkilorsed | Last answer
Avatar_universal
I'm 17 and for a few years now I've been having, occassionally, some severe cramps in my legs - mainly at night. Sometimes I flexed my foot and it would suddenly sieze up, but I learnt to deal with it. I thought it was magnesium definien...
whateveranne | Last answer
Avatar_universal
I had blood taken 3 months ago, my arm was badly bruised, am feeling tingling and pain by elbow. I had mri and emg both normal? anybody have any options.
mia399 | Last answer
2131366_tn?1352814065
I have restless legs syndrome (was confirmed on sleep study) now when I lay down my legs also start to go numb and are painful? Lower back pain also. needless to say I am concerned and tired. Any ideas???
Pink6464 | Last answer
Avatar_universal
I'm 17 and suffer from peripheral Neuropathy which is being investigated. My doctor has given me fluoxetine and for a while I had all the main side effects which eventually wore off. Although for the past 3-4 weeks I've been feeling re...
stacey93 | Last answer
Avatar_universal
IS IT POSSIBLE TO ACQUIRE P.AD. AS A RESULT OF DEGENERATIVE DISC DISEASE. WHAT ROLL IF ANY DOES (D.D.D.) PLAY WITH REGARD TO (P.A.D.)?
pattiboy767 | Last answer
Avatar_universal
I'm a 60 year old male that is very active. I fractured my ankle 9 months ago and just found out that it never healed (non-union). I have had what I believe is BCFS for about 6 or 7 years now. I have never been diagnosed, I don't really ...
northslope | Last answer
230948_tn?1235847929
Hi All i've been ill for nearly 3 yrs now i thought i had MS but tests are negative i am going to see a neuromuscular consultant who specialise in MG and channalopathies in a few weeks. I have sweating,muscle contractions that neve...
uk2 | Last answer
Avatar_universal
Sir, i am 43 yr old working lady in delhi, india. i need your advise. i have been observing for two weeks that, in a day, i feel ten times to 15 times a strong vibration in my left hand near lady finger. please guide me . i dont have...
kusum543 | Last answer
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