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Peripheral Nerve Hyperexcitability (PNH) Community

This patient support community is for discussions relating to Peripheral Nerve Hyperexcitability (PNH) and the various conditions related to it such as neuromyotonia (NMT), cramp fasciculation syndrome (CFS), benign fasciculation syndrome (BFS), Isaacs syndrome and others.

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Avatar universal
Does anyone else suffering with peripheral neuropathy feel numbness in the lower part of the face?? Almost the same effects as having that novocain shot at the dentist.
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Avatar universal
I am not a diabetic. I was told I have nerve damage . A shooting pain from my wrist to my elbow that feels like torture . All I do is scream and cry it is so painful. No numbness .Creams, hot to cold compresses, pain pills to electro pad...
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Avatar universal
Hello I have been diagnosed with peripheral neuropathy and was wondering if when I walk my legs seem to feel so heavy...I am now noticing that same heaviness in my upper body, the smallest task like showering totally exhausts me... I fee...
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Avatar universal
I am 28 years old, A non smoker and I am fit and healthy. I train in a gym and also cardio and I have no health issues. I suffer with twitching on my calves and feet 24/7 day and night, It never stops. What could it be? I have a link of ...
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Avatar universal
I have a pinched nerve resulting from shoulder replacement surgery. The shoulder has healed well but I have tingling and burning from my elbow down to my wrist. It has been 15 weeks and the tingling sensation has moved down to the fore...
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Avatar universal
My current neuro saw small white matter sub cortical lesions on an MRI from a couple years ago. I am 26, is this normal? And how does he rule out MS if there are lesions? Can lesions heal? Or become invisible on other mri's? I have sh...
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764549 tn?1234549054
I have been diagnosed and been on disability for two years. The pain in my body just keep getting worse,,and we have to keep raising the meds to keep up with it..I have a great team of Drs. and one of the best hospitals so that is good.....
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Avatar universal
Dear Friends: Kindly let me jump in: My feet began feeling as if I was wearing socks ( when I wasn't - only in the AM ), 2) my feet and ankles tingle sometimes, albeit less lately, 3) my hands have tough extra layers of skin and i...
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Avatar universal
Please help me. I really need some advice and opinions. I'm so terrified and scared. First off, I have a problem with alcohol for the past few years or so. In the past 6 months, i started having some some numbness/ pins and needles sensa...
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Avatar universal
I have been diagnosed with idiopathic small fiber neuropathy. I have been taking 40 mg of simivistatin for the past 13 years. My symptoms started about 10 years ago. Is it possible that the medication is causing this?
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Avatar universal
I had rotator cuff surgery 3 weeks ago, no more shoulder pain but the pain from my forearm to the wrist is excruciating especially when attempting to straighten my arm out. It is also extremely sensitive to the touch. I've tried icing ...
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Avatar universal
I have a lot of burning in top of my head. also it feels like a lot of pressure. like I have something tied around my head. I can't hear right either. At night when I lay down to sleep it wakes me up with horrable pain threw out my scoul...
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Avatar universal
pnh
over many years i have been having numerous problems from back pains cramps depression anxiety fatuige etc etc . latley things have been getting worse . as i walk i feel as my legs are going to cramp , i am have constant hot sweats , m...
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Avatar universal
I've been told that most insurance companies won't pay for neural scans if the doctor or PA codes the procedure as CPT code 95904 because the device is "investigational". Is this true?
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Avatar universal
Ms
Why does my left leg and arm shake on one side of my body after sitting long? Usually when I stand up, I need to stand still for a few minutes to let my blood flow through my body while my left arm and leg shakes uncontrollably and I ha...
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Avatar universal
For several weeks now my right arm has been giving me problems. As I remember it, it started waking up one morning and my shoulder feeling alot of pain. Days later the pain was all in my elbow and stayed there for at least a week.. Sin...
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Avatar universal
I'm 17 and for a few years now I've been having, occassionally, some severe cramps in my legs - mainly at night. Sometimes I flexed my foot and it would suddenly sieze up, but I learnt to deal with it. I thought it was magnesium definien...
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Avatar universal
I had blood taken 3 months ago, my arm was badly bruised, am feeling tingling and pain by elbow. I had mri and emg both normal? anybody have any options.
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2131366 tn?1352814065
I have restless legs syndrome (was confirmed on sleep study) now when I lay down my legs also start to go numb and are painful? Lower back pain also. needless to say I am concerned and tired. Any ideas???
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Avatar universal
I'm 17 and suffer from peripheral Neuropathy which is being investigated. My doctor has given me fluoxetine and for a while I had all the main side effects which eventually wore off. Although for the past 3-4 weeks I've been feeling re...
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