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Peripheral Nerve Hyperexcitability (PNH) Community

This patient support community is for discussions relating to Peripheral Nerve Hyperexcitability (PNH) and the various conditions related to it such as neuromyotonia (NMT), cramp fasciculation syndrome (CFS), benign fasciculation syndrome (BFS), Isaacs syndrome and others.

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2133801 tn?1335792785
My mom is scheduled to go for Spinal Fusion with Instrumentation on wednesday morning. I just want to make sure is it necessary for them to give her surgery? She has severe leg cramps and pain and were diagnosed with spondylolisthesis gr...
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Here is the thing : Two weeks ago, I was lying in bed when I felt tingling in my left pinky toe and area around it. The other toes were not affected. The tingling was quite intense, it felt like burning. It went away pretty soon. But yes...
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What would cause the left side of my head to feel very hot to the touch and feel like my skin is burned?Y
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I have recently been diagnosed with Fibro, and have been reccommended vitamin B12, to help with me symptoms, has any body tried this with any success
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head severely jerks to right and then the right arm jerks , it will also do the same on opposite side ,her other health is fine, under a lot of stress, father thinks no need for a doctor. help
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About 6 months ago I compressed c5 and c8 lost 50% strength in left tri I have regained about 20% of my strength back but have lost visibile size in tri. 5 days ago I injuried the bicep of the same arm during jiu-jitsu training is this a...
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2045856 tn?1330096584
i had 70% of mixopapillary-ependymoma removed by surgery in march 2000. i suffer from type two diabetes but seems to be well controlled by pills. in bed, my top part of my feet above the arch and sometimes spasms anywhere in my feet, occ...
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About 3 weeks ago a small patch of skin under the band of my bra, felt as if it were sunburnt, this sensation is now from the center of by back, between the shoulders, stretching around the side, through arm pit, over left breast to the ...
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Avatar universal
Hi my name is sonietta, And my question is What are some of the reasons for inflamed nerves, and head acks that would coulse my Neurologes to say I need to get a spinal-tap. I just need some one to tell me in People talk not Doc, talk, l...
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I need help with my balance, I am not dizzy just can't keep my balance.
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hi, im 29..im having some leg probs. i weigh 80kg,my legs always weak and fatigued..i cant even walk properly..cant do sports at all..i get weird pulses in my feet and back of legs..cant have sex either..it takes my legs 2 weeks to recov...
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warming feeling just below my right knecap to the left side of the kneecap
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I had permanent crowns put on my teeth in December, since then my mouth and lips feel swollen 95% of the time, can't taste food, and hard to open my mouth. Upon putting these crowns in, one of them was difficult for the dentist and he w...
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1981844 tn?1326331909
After 2 years of thinking I crazy OHSU just diagnosed me with pnh and cramp fasciculation. My legs have felt like something crawling under the skin for a while and cramp when I try to play soccer or do anything else strenuous. I have le...
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went 2 the g.i. doc. told him ive been throwing up and diareah since april 2011! His responce to me was "it is all in my head"! He gave me a powder calld cholestyramine for these imaginary symptoms! Volital throwing up and diarreah now s...
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I have pain starting in my hip that goes down my leg. It hurts alot.
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Hi I am a 29 year old female and have been suffering with what feels like constant stimulation of the nerves particularly in my legs and hands. I can feel constant 'muscle grabbing' kind of like mild muscle contractions and I'm consc...
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on April 1st 2011 I had an operation for a mid foot fusion,here in London England,I was given a nerve block I presume to help the pain,it is now 27th December and my foot is still just as numb as it was when I left hospital,the numbness ...
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i have paresthesia of the chin after implant placement. the implant was removed but i still have paresthesia 1 year from that incidence. i still feel touch an temperature but the tingling bother me, what kind of treatment can i get?
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Avatar universal
The peripheral neuropathy in my feet is unusual in that it completely disappears after a night's rest. My feet feel normal in the morning but after I have been walking around for 30 minutes or so it comes back and gets worse during the ...
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