Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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5480RM40 minutes
TinaInTexasJul 03, 2014
TinaInTexasJul 03, 2014
nsilkApr 01, 2014
68
By Jhewels Blank
I have a extremily rare orphan disease called Dercum's Disease. Is there any doctor on this site familiar with this d...
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LynntaseaMay 26
LynntaseaMay 25
GG_14_022200May 23, 2015
BellisamaNov 27, 2014
rbarlow72Oct 15, 2014
6
By clcav Blank
I have severe pain in my neck, lower back (SI area), both hips, knees, shoulders, elbows, wrists/hands/fingers, ankle...
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doe3018Apr 29
Chopper713Aug 12, 2015
SwathidimpsJul 23, 2015
30
By Jamie126 Blank
I've been having left leg pain - only at night. The pain is dull, nagging pain throughout my entire leg that doesn't...
920782 tn?1253332002
gaskellFeb 17, 2013
Lizbeth1219Aug 02, 2012
Jodie379Jun 26, 2012
rosaprettymamaMay 03, 2012
12
By thickman44 Blank
I have had the trigger points of fibromylgia with wide spread pain. I also have painful knots, lumps, some are not p...
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mcoen38May 22
annilennoxnisbetMay 20, 2015
sleasman5Nov 05, 2013
Dr_VeenaMay 20, 2009
4
By Marmar21 Blank
Yesterday had an ex-ray that showed abnomormal amount of trapped air in stomach. Symptoms are exteneded stomach from...
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scdxyfApr 03
scdxyfApr 03
azel13Jan 31, 2015
lyn1235Jul 17, 2014
12
By foreverinfaith60 Blank
I have Liddle Syndrome,and it is a very rare kidney disease. Very few Doctors know about it. It is passed through fam...
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By Tess2101
I have been diagnosed with raynauds a few years ago, not sure if it has Anyang to do with it but I didn't have them b...
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Rob_dunMay 16
Dr Santos Jan 22, 2011
2
By like2playbass Blank
I too have difficulty yawning,I start to yawn and can't complete it,it just shuts down and I feel like I can't take...
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By Xanton
We've been on a trek in Nepal and our guide told us about a really strange medical condition his 11 years old sister ...
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Maite5468May 20, 2015
SkieyOct 19, 2013
dhruvmehta84May 01, 2013
connorsmom11110Aug 09, 2012
9
By cilycoed Blank
I have a granddaughter, aged 2 10/12ths. She has been diagnosed with Incomplete Lissencephaly. Anna is unable to hold...
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By cholton64
I am a 53 year old man with extreme flushing and burning on face. All bloodwork and urine tests tests are good for Ca...
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mrandmrswApr 28
1
By sgreen25
This may not be the typical question posed on this forum but I would really appreciate any insight. I am trying to id...
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CHRISTINASIMMar 24, 2015
JhaleAug 30, 2014
LitabalochJun 18, 2014
danmancaFeb 02, 2014
23
By Kaci_mxm Blank
Hello, I am a young, fit 21 year old female & I am confused as to why i am having all these difficulties! The symp...
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malihaiApr 07
Dr Santos Apr 19, 2011
achooApr 19, 2011
Dr Santos Apr 10, 2011
4
By malihai Blank
low grade fever in the nights for months comes on and off for 30 or so years. Exhausted with the fever and now back o...
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GemflyApr 02
1
By jemon
So, I'm 31 and have never had any major health problems and am not overweight. I have had a few instances where the u...
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GemflyApr 02
1
By Amy2699
Why am i getting these weird feeling it's like as if something is moving inside my foot I've had it for 13 years I g...
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GemflyApr 02
2
By dylanbraut94
Been feeling sick all my life with no answers. Ive had numerous blood tests and neurologists and gastro-ologist appoi...
4861218 tn?1360159550
GemflyApr 02
2
By lichthrall
Hi all, I've been experiencing some strange and alarming symptoms. Anyone got any clues? Long term symptoms: In...
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FRC23Apr 01
selmaSDec 31, 2012
2
By karabear0422 Blank
Hi, i am a 20 year old female and i was diagnosed with bells palsy about 14 months ago, i took the presidone as direc...
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By falling_apart_at_50
I ate dinner and went for a short walk. I now have a pain in my chest that feels like my stomach is pulling down on m...
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Marathon Running Done Over Many Yea...
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