Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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Bellisama18 hours
rbarlow72Oct 15
Dr Santos Feb 24, 2013
3
By clcav Blank
I have severe pain in my neck, lower back (SI area), both hips, knees, shoulders, elbows, wrists/hands/fingers, ankle...
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QueendebNov 24
sheleneApr 20, 2012
CaskalJun 25, 2011
MzFayeMar 31, 2011
glorybellDec 09, 2010
8
By brookie1 Blank
Please provide information on warning signs, treatment, and prognosis for this horrible disease.
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By bellly
My mom feel like there things walking all over her body and sand in her head and she can't take it anymore can you te...
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anoama1Nov 17
1
By chrissychongs
Ok I sweat a lot more than most people, when I eat food and walk around the end of my nose drips with sweat like a ta...
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By mhuser11
Hi, I am 29 yr old male and I have recently realized there is a small lump on left side of my anus (on the photo it i...
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By ShouldB7
My symptoms and health issues over the last 6 years chronologically: Sudden major low thyroid function: diagnosis...
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By jezzahra
Hi there, I'm currently experiencing a variety of problems. Im a 30 year old male and was fit and healthy until thi...
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Muirnin2Nov 08
1991helpApr 12
cbfreckJan 09
Nyomi729Oct 07, 2013
32
By msneedhelp Blank
Please help me.. I have started feeling like there is something crawling under my skin.. I first felt it on my arms...
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By KUL2014
I got this test result at 14.20KU/L, recurring severe upper respiratory inf, antibiotics showing no results, please g...
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Katwin60Nov 02
Dr Santos Mar 31, 2010
2
By JackieWeh Blank
I am an adopted 43 year old female with flanking chronic pain on the left side. Have been diagnosed with HBP, blood ...
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By Yvonne2014
So I went to my follow up for c.t scan results and hey guess what they found no kidney problem at all hence the probl...
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LadymeukOct 26
Ed276Sep 28, 2012
Dr. Kokil Mathur Jul 30, 2009
JhewelsJul 29, 2009
4
By Betsy688 Blank
Hi, I sometimes have severe leg pain at night that radiates from the back of my knees. I have always been told it is ...
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Dr Santos Apr 04, 2011
1
By pennymac Blank
I have just been told ive Mesntiteric Pannculitlis and have been trying to manage it with Panadine Fort which is not ...
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By bluebird133
My mom had metastatic uterine leiomyosarcoma. Does that diagnosis have anything to do with the lung cancer she died ...
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By Kp_kp
Hi, I'm 17 years of age and for about 4 or so years I have been suffering from intense itch from my whole crotch. I a...
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By Mikef25
Age: 26 Weight: 173 lbs Height: 5'10" Lives in Connecticut Symptoms: Brain fog, fatigue, lightheaded, extreme...
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By Kiwikid69
Hi I am getting a pain in my right leg from the thigh through to the side of the knee and then in the shin and ankle ...
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By TBryant1027
I lost my child of 6months to brain damage caused by CUD, which went undiagnosed despite the newborn test. I was wo...
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DBrattOct 16
NCWolfOct 24, 2009
timr306Oct 22, 2009
jlawSep 18, 2009
alcatel2000Sep 17, 2009
7
By jlaw Blank
I am searching for answers to a male flushing issue which has been going on for 3 years now. I am a 51 year old male....
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ribosio80Oct 15
1
By ribosio80
hi, I saw a report in a television broadcast where he asked for help because the doctors do not know the disease that...
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