Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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Ladymeuk43 minutes
Ed276Sep 28, 2012
Dr. Kokil Mathur Jul 30, 2009
JhewelsJul 29, 2009
4
By Betsy688 Blank
Hi, I sometimes have severe leg pain at night that radiates from the back of my knees. I have always been told it is ...
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Dr Santos Apr 04, 2011
1
By pennymac Blank
I have just been told ive Mesntiteric Pannculitlis and have been trying to manage it with Panadine Fort which is not ...
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By bluebird133
My mom had metastatic uterine leiomyosarcoma. Does that diagnosis have anything to do with the lung cancer she died ...
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By Kp_kp
Hi, I'm 17 years of age and for about 4 or so years I have been suffering from intense itch from my whole crotch. I a...
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By Mikef25
Age: 26 Weight: 173 lbs Height: 5'10" Lives in Connecticut Symptoms: Brain fog, fatigue, lightheaded, extreme...
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By Kiwikid69
Hi I am getting a pain in my right leg from the thigh through to the side of the knee and then in the shin and ankle ...
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By TBryant1027
I lost my child of 6months to brain damage caused by CUD, which went undiagnosed despite the newborn test. I was wo...
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DBrattOct 16
NCWolfOct 24, 2009
timr306Oct 22, 2009
jlawSep 18, 2009
alcatel2000Sep 17, 2009
7
By jlaw Blank
I am searching for answers to a male flushing issue which has been going on for 3 years now. I am a 51 year old male....
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rbarlow72Oct 15
Dr Santos Feb 24, 2013
2
By clcav Blank
I have severe pain in my neck, lower back (SI area), both hips, knees, shoulders, elbows, wrists/hands/fingers, ankle...
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ribosio80Oct 15
1
By ribosio80
hi, I saw a report in a television broadcast where he asked for help because the doctors do not know the disease that...
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Jon540Oct 14
Denne86Nov 10, 2012
selmaSNov 09, 2012
Denne86Nov 06, 2012
Denne86Nov 06, 2012
6
By Denne86 Blank
Hello. I am 25 years old an for the 2 past months i gotten insomnia problems... i got stiff neck, headaches, lack ...
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Red_StarOct 12
cmt2Oct 11
denceSep 27
ducky406Jan 23, 2012
FMA1977Jan 22, 2012
7
By ducky406 Blank
My husband has autosomal dominant Charcot-Marie-Tooth Syndrome. That means that there is a 50/50 chance any baby we h...
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By cmt2
Hello Group, Has anyone had any experience with exercising on a treadmill: Does it help or exacerbate your CMT sympto...
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By 020884Lg
Hi im 30 yrs old and i have recently been having this awful deep arm and leg pain its the worst at night. Sometimes i...
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By Dussow
I have bumps and rashes all over even in my palms and under my feet and they bite and scratches. i have not been able...
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By flobett1
pain in legs when I lay on my side, I had surgery on my back [lamanectomy] 3/ 4 yrs ago also had ablation surgery on ...
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1
By nocturnalvomiting
My 3 year old daughter started waking up at 4 am 3-4 times a week vomiting anywhere from 1-3 times and as soon as she...
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rmfieldOct 06
selmaSFeb 19
AE87Mar 29, 2013
DeaMcDec 24, 2012
12
By ckeenan8 Blank
My 3 yr old daughter has had a lump/swelling located on her lower spine which has been there for 10 months. The lump...
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By LaserOzaki
For a while now, my fingers have been bright red. When I press on my fingers, the redness disapears for a few seonds,...
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mags0301Oct 03
rwelchFeb 22, 2011
2
By SMESLLC Blank
Recent Medical History @ 1 month ago Hollie went to see Rebecca Sanders because she was feeling all around ill. (Let...
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