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Rare Diseases Community
This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.
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Avatar universal
On july 13th 2016, a stray cat that has been around my house for a few years bumped into me accidentally trying to come to my house. Prob...
1 answer | 1 comment |
Avatar universal
for over a week now, I have been suffering from random swelling. It started with the right side of my lower lip. over a 18 hour period ...
17 answers | 3 comments |
Avatar universal
EDS Hypermobility, familial. Finally getting the diagnosis at 40, have had signs & symptoms since birth, like reflux, hypermobility, vomi...
1 answer |
Avatar universal
It happened 4 years ago. I had a gf before, she just took a new baby dog (2months~3months old). When we played naked, we also touched t...
Avatar universal
I went to a water park in San Miguel de Allende (Mexico), about a week ago, and I got water up my nose four times. I had a frontal headac...
Avatar universal
I went to a water park, about a week ago, and I got water up my nose four times. I had a frontal headache recently and I am very worried ...
Avatar universal
I really need your help.The symptoms described below began in Feb 08. As yet, there has been no conclusive diagnosis and the ailment is i...
5 answers | 1 comment |
Avatar universal
I have a extremily rare orphan disease called Dercum's Disease. Is there any doctor on this site familiar with this disease or has treate...
68 answers | 1 comment |
Avatar universal
Periodically, my ears will begin to flush and burn. It then spreads to my face, neck, shoulders, elbows, knees and ankles. I literally fe...
9 answers | 5 comments |
Avatar universal
I have had chronic infections since infancy (usually throat, lungs, urinary system. and joint and muscle pain since 8 years of age. Pain ...
16465326 tn?1448206292
I an a 53 year old male. I have been having muscle spasms, pain and vibration type sensations in different parts of my body for about six...
Avatar universal
relationship between hepatitis c and hypermobility
19457880 tn?1478059742
I'm just wondering how many of us are post sex change that have a health problem reminding us of what we were. I have Kennedy Disease fo...
19457880 tn?1478059742
I'm just wondering how common it is for us. I don't think I've seen any stats for it online. But I'd think our risk factors are higher ...
19457880 tn?1478059742
I have CAIS, OCA2, Vitiligo, and Kennedy Disease.
19457880 tn?1478059742
I was XY and absorbed and XX twin. Well another close blood family member was an XY who absorbed and XY twin. I only discovered I had t...
19457880 tn?1478059742
Are there any specific diet recommendations for Kennedy Disease? I have a few other genetic conditions too. Only other relevant one mig...
Avatar universal
my 4-year-old child was bitten by another child ,could rabies be transmitted by human saliva
1 answer |
Avatar universal
it is a rare case, just want to know about its cause and treatment
Avatar universal
I've been having left leg pain - only at night. The pain is dull, nagging pain throughout my entire leg that doesn't go away with a mass...
28 answers | 4 comments |
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