Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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By Glenelg10
Why do I get a bunrning sensation in my legs
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By Glenelg10
I have back pain across the bottom of back which radiates down front both side of stomach to also have burning sensat...
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By Glenelg10
I have burning above ankles not hot to feel my g p has carried out blood tests which are negative
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Glenelg1023 hours
Glenelg1023 hours
I_B_LostJun 07, 2014
Lori637Jun 26, 2010
Dr Santos Apr 16, 2010
9
By M_Iddings Blank
Periodically, my ears will begin to flush and burn. It then spreads to my face, neck, shoulders, elbows, knees and an...
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msmary15Jun 27
manitobaSep 17, 2011
Dr Santos May 13, 2010
rkolkMay 12, 2010
gigicarn1940Jan 06, 2009
5
By molly5673 Blank
Has anyone on here every been told that they have Polymyalgia Rheumatica? I cant find anyone. My dr says I have it....
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FuvarJun 27
hllwngrlMay 06
lcarrollAug 26, 2014
Kmn111Aug 13, 2014
PotsandpansAug 09, 2014
25
By Jamie126 Blank
I've been having left leg pain - only at night. The pain is dull, nagging pain throughout my entire leg that doesn't...
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FasilaApr 01, 2013
Dr Santos Jul 31, 2011
JCV7856Jul 30, 2011
Dr Santos Mar 29, 2010
10
By icedolphin22 Blank
For the past two weeks I have noticed my cuticles a very pink color. Then four days ago I took off my socks at the en...
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Rajnair7Jun 22
Cha06Jun 13
helpinglpFeb 23
sexynomoreMay 10, 2014
nananxyzMar 22, 2013
9
By venkii Blank
I am 25 year old gentleman, one thing has been ruining my life for the last 12 to 15 years, that foul smell is coming...
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By Koko_Austin
Hello I have been having this occasional mild sensation, (i don't want to call it pain) in my lower abdomen, close...
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By caverlady
I have been spending many sleepless nights lately. Shortly after I go to sleep, I am awakened by pain in my legs. Th...
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By UmarSid
Hi I am Umar n i'm 17 i have problem of feeling pressure in my throat head nose all over my head when i talks sings d...
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DavidEberhardtJul 22, 2009
Dr. Kokil Mathur Jul 22, 2009
3
By DavidEberhardt Blank
Since I was eight years old, my tonsils occasionally have been secreting white lumps of material. In some stressful ...
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KFS32Dec 03, 2014
KFS32Dec 03, 2014
5
By Yvonne2014 Blank
So I went to my follow up for c.t scan results and hey guess what they found no kidney problem at all hence the probl...
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selmaSJun 03
1
By LaurieDK
Where can I find info for my Primary Doctor? And where can I find info about the prognosis? Any rare disease r...
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By mpuppy2000
For the past three days I have had the hiccups. They have been sporadic, but tend to last 3 to 4 hours or more at a ...
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selmaSJun 01
1
By Paigeb5
Hi all. I'm new to the website. I've been experiencing an onset of symptoms for a little over a year Now. I tryed po...
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By GrandmaShirley
I have pain in my left buttocks. Sometimes I have pain in my upper leg on left. Sometimes I have pain in my lower l...
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oscarmarkMay 27
Castor_oil_userMar 01, 2014
annierossmanFeb 11, 2014
KattamakiJun 13, 2013
BabswubyJun 12, 2013
25
By Kattamaki Blank
Could someone tell me if there are any reports of the prognosis of Dercums disease or lipomatosis dolorosa? This illn...
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BellisamaNov 27, 2014
rbarlow72Oct 15, 2014
Dr Santos Feb 24, 2013
4
By clcav Blank
I have severe pain in my neck, lower back (SI area), both hips, knees, shoulders, elbows, wrists/hands/fingers, ankle...
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trylaMay 21
CatinCOApr 04
JNCL14Jul 31, 2014
AKchicNov 14, 2010
Dr Santos Sep 26, 2010
19
By lorih1220 Blank
My 15 year old son has had marks, which look like stretch marks, on his back for 6-8 months. He is tall and slim and ...
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Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
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