Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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By 6096giulia
I really need help. I have been feeling unwell for a few months now. Thought it may have been the start of a virus in...
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traveler69Nov 28, 2013
yrdarlin1Apr 17, 2013
JenSaltApr 19, 2011
JenSaltApr 19, 2011
10
By JenSalt Blank
For 17 years off and on I have suffered some very debilitating and often horrible symptoms lasting between 4 to 14 da...
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By Lauren4Jesus
I am experiencing sensations in my head neck and chest area that last for days then goes away then comes back. It fee...
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DebbieqAug 19
Camile33469Apr 19, 2013
5
By Camile33469 Blank
About a year and a half ago I took a hormone called hcg sublingually for weight loss purposes. After wards I began to...
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By Kiadawn
My 26 yr. old nephew has a large red circle with a lighter circle in the middle, and no apparent symptoms. It really ...
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By giasroom
I have a family member who has something wrong with her and the doctors she has been going to have not had any answer...
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maatsonAug 18
maatsonAug 18
10
By Hdonohue80
I have had rt thigh, calf and hip edema since 1/14. It came on out of nowhere. No injury. Neg for DVT, neg MRI for ma...
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By tomjene
if u r on tramadol STOP I beg you. I lost my 23 yr old daughter less than a year out of nursing school and a few mo...
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guy7hsimAug 18
selmaSApr 02
2
By SewinKy
My daughter was diagnosed with hypohydrosis / anhydrosis. it's Spring, which in Kentucky quickly turns to Summer. ...
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By RCruz
I have been seeing a eye Retina Specialist since May 2014 for a unknown benign tumor in my eye causing blood vessels ...
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pamelalaAug 17
noba19Sep 07, 2013
75dryzalJan 01, 2012
noba19Mar 03, 2011
Dr Santos Mar 02, 2011
8
By noba19 Blank
i have been suffering from internal heat. the external body temperarture is normal. this usually around my neck and h...
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By dhruvi118
Hi I.am 20years old female . I.am suffering from constant hunger in day time n night as well. . And I cannot resist...
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maatsonAug 14
maatsonAug 12
3
By blueskies31
Hello, While taking a bath this morning I accidentally got a lot of water up my nose when attempting to rinse my h...
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Kmn111Aug 13
Lazio1982Dec 12, 2013
KidzrgratNov 21, 2013
FranzuaOct 17, 2013
22
By Jamie126 Blank
I've been having left leg pain - only at night. The pain is dull, nagging pain throughout my entire leg that doesn't...
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By Sgriego
What is areata alopecia
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LPN
By Steve9606
can clindamycin treat mersa?
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By Potsandpans
Hi. I've been having pains in my upper right leg for quite a while now. It's on the right side of my right leg close ...
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By MaryAnda
I am a 35 year old overweight woman whose legs swell all the time. I have had my heart valve replaced for about ten ...
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By MaryAnda
My nine year old was just diagnosed with Autism and has been diagnosed with ADHD since he was six. We are just notici...
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MaryAndaAug 08
Dr Santos Nov 05, 2011
maatsonOct 26, 2011
maatsonOct 26, 2011
MaryAndaOct 26, 2011
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By MaryAnda Blank
I am 33 years old and have had two heart surgeries for MVP. I currently have an artificial heart valve and take Jant...
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