Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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selmaSApr 18
selmaSApr 16
3
By LazyCharlie
My symptoms: Groggy. Brain fog. Sad. Clench jaws all the time. Jaws pop. Stress. Bad anxiety. Depression. Wake up st...
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2
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By absolomise
good day. I am a married male aged 37. for the past two days I noticed that when I defecate I have a burning sensatio...
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1991helpApr 12
cbfreckJan 09
Nyomi729Oct 07, 2013
mima1299Aug 30, 2013
31
By msneedhelp Blank
Please help me.. I have started feeling like there is something crawling under my skin.. I first felt it on my arms...
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selmaSApr 15
1
By Joeyzoom
Hello all! I have a unique set of symptoms that I'm wondering if anyone else has, or if anyone has some answers t...
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PantxApr 14
1
By feellucky
Where to find a Dr. that treats Chronicle Inflamatory Myositis area of Conn. she is pain always her whole body is is ...
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By mikey1990
Do the following occurrences put the insertive partner at risk of HIV? Unprotected Cunnilingus on unknown HIV st...
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S_9Apr 13
Alice417Mar 19
3
By PapaSmurf1502
Hello, My girlfriend has been experiencing various symptoms for over a year now and has seen several doctors (neur...
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By Jnlopez
been suffering from the neck pain and the pressure in tha back, this all started with me being lightheaded for 3 wee...
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Dr Santos Apr 04
2
By dheeraj824
Two days ago my right hand suddenly went numb. Mainly affects are my 2 smaller fingers. Not completely paralyzed, I...
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PantxApr 12
1
By bella0426
I have been given the run around by rheumatologists and endos so need help please,recent lab work show: TSH: 4.28(...
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DInygJun 30, 2013
Dr Santos Mar 20, 2013
3
By Brailum Blank
I have had Dercums Disease for many years but this is the first time I have heard anyone say about Type 11 or other t...
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By gums1980
I am normally a healthy,active 59 yr old. I do take 2 blood pressure pills a day and at the time I was also taking a ...
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By AdaEnyi
Please I feel dizzy most of the time and feel like passing out. Also I have these internal shakes and vibrations ...
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By AimeeNeiman
My sister is 14 years old. This recent summer, she started feeling nauseous and tired all the time. After some testin...
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sibanezApr 03
Justin9711Mar 22, 2009
PlateletGalMar 20, 2009
4
By Justin9711 Blank
Hi everybody. I was hoping somebody could give some tips about a condition that has slowly grown worse over the past ...
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ShafieApr 07
nonny419Apr 06
Dr Santos Apr 04
3
By Shafie
I'm a 25 year old man and about 7 years ago when i was still young a stray cat was dying cause it got hit by a car so...
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1
By Slindsey0903
My daughter is 13. She had a 152 IQ participated in numerous advanced programs and activities. Was a normal child. In...
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nonny419Apr 06
nonny419Apr 06
2
By Drewxo
so I have had a swollen tongue for over 3 months now, So swollen I've been in hospital in and out for a long time, I'...
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Dr Santos Apr 04
1
By Daanvir
I am a Male, at 30. for the last 10 years i have been suffering from flatulence and stomach distension, i am healthy...
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Dr Santos Apr 04
1
By sherifbasry
my dad is in coma for 90 days he is 67 years old he had a stroke in the left side of brain in 13-12-2013 and in 14-1...
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selmaS
Allentown, PA