Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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Scooter905649 minutes
mess570Feb 22, 2010
mq456Sep 08, 2008
kristinMCAug 29, 2008
dr_simranAug 29, 2008
5
By sickgirl99 Blank
I have been getting sick for a little over a year now. It has been severely interfering with school and making it di...
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By Lina_0000
Dear Doctor, About more than 3 months ago, On January 2015, I have been noticing strange white discharge, which I ...
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By MyLuke
Our son has a complicated medical history, but I will try to keep it brief for this initial conversation. No signific...
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By JulieAnn63
My daughter's gynecologist is extremely concerned that she has a severe rectocele that just developed, as she has jus...
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1
By Mexicodave
Hi, Please help? I live in Mexico. Retired American. I was in a motorcycle accident 8 years ago that fractured my fem...
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1
By vmroche
ive been having constant aching in my legs from my knees down to my ankles it wakes me up most nights and can continu...
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1
By shine0124
Hi i came across a topic about hs and i want to ask.i had a single bump in my armpit when i was 14yo..it never pop...
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1
By Jazzielanai
Is this a disease or syndrome? Are you born with it?
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1
By Rat_trap
I am waking almost every night with leg pains.I have tried anti inflammatory meds, hot baths,heating pads.Relief for ...
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1
By rickferris
I have a client who presents with the following: normal CBC/diff. Serum iron 51, unsaturated IBC 410-high, calculate...
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1
By sherryberg
I have recently been diagnosed with a rare medical condition called POTS by my cardiologist, but he wants me to see a...
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livmybabyApr 07
kmarcDec 16, 2009
HeatherShowAug 12, 2009
3
By KayDesigner Blank
I am a 48 year old woman and approximately a year ago, I stated having leg weakness and excruciating calf muscle and ...
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shine0124Apr 07
1
By crazyuga
For past two weeks,i am suffering from severe pain from cramps in the calf of my right leg and sometimes the pain spr...
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CatinCOApr 04
JNCL14Jul 31, 2014
AKchicNov 14, 2010
Dr Santos Sep 26, 2010
bluedevil167Sep 23, 2010
18
By lorih1220 Blank
My 15 year old son has had marks, which look like stretch marks, on his back for 6-8 months. He is tall and slim and ...
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By Jennylhartfield
Hi my name is Jenny, i have bumps thats been on my skin for years now on my vaginal area.. It looks like its under th...
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vedadharMar 31
1
By Jennylhartfield
Hi, my name is jenny and im currently crying and itching. Ive been breaking out in what looks like nasty swirly whipl...
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1
By TrsaStrch
I have been running for over 25 years; I ran in a 5K last Saturday and at the 2 mile marker, both knees blew out. To...
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JhaleAug 30, 2014
LitabalochJun 18, 2014
danmancaFeb 02, 2014
bob01273Jan 04, 2013
22
By Kaci_mxm Blank
Hello, I am a young, fit 21 year old female & I am confused as to why i am having all these difficulties! The symp...
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By rose_cruz
have these bumps on my lips for 6 days and I don't know it is. Can some one please tell me what these bumps are?
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By rose_cruz
I have these bumps on my lips for 6 days and I don't know it is. Can some one please tell me what these bumps are?
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TMJ/TMJ The Connection Between Teet...
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