Rare Diseases Community
This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.
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3
By pcekpr25 Apr 05, 2013
What is the difference between these lung disorders. My heart scan showed lung cysts, my lung lining looks like Swis...
By kumquatmay May 21, 2013
I'm looking for a Dr (on Expert Forum) who knows anything about Leukocytoclastic vasculitis - skin and systemic versi...
By AngusSensArmy May 18, 2013
Facts:
I'm a 19 year old male.
I had 20/20 vision about a year and a half ago, now I see 20/40, and 20/25.
...
By Decoysnake May 17, 2013
Hi everyone any advice would be greatly appreciated this has all happened so quick space of about 3 weeks, my strange...
1
By TheCatfish May 15, 2013
Ok I got some provigil. I took 100mg the first day, it worked, only side effect was dry mouth..day two, I took half d...
1
By bubbles954 May 11, 2013
Have a bubbles floating in my right eye from 3 days, please can you advice what is it and how serious the problem is....
8
for over a week now, I have been suffering from random swelling. It started with the right side of my lower lip. ov...
Hi there,
My situation is slightly complicated so I will try to summarise in bullet points.
Let me start...
4
By Blue_Angel Apr 25, 2013
I need help please. My doctors had me on Levaquin for 4 years straight. I believe it's destroyed most of my immune sy...
By MyloEvers May 09, 2013
Hi,
My 4 year old has numerous (20-30) small white headed pimples on the inside walls of his bum cheeks. It star...
1
By staysafe Apr 30, 2013
Hi,
I would like to know your input with regard to this HIV like disease.
http://edition.cnn.com/2012/08/23/hea...
1
By shellysue3131 May 09, 2013
Why am I hardly ever thirsty? My first guess it's the hypothalamus and if it is would should be done about it?
Hi everyone. I'm 20 years old and since May of 2007, I've had chronic pain in the left flank area of my back, which h...
14
I've been having left leg pain - only at night. The pain is dull, nagging pain throughout my entire leg that doesn't...
By Archimorg May 01, 2013
I have a history of M-spike with Alpha 2 elevations, IgG Kappa type Monoclonal Gammopathy.
We are doing the "watch...
dhruvmehta84May 01
connorsmom11110Aug 09, 2012
daishasmomFeb 21, 2012
mari337Dec 07, 2010
cilycoedAug 30, 2008
6
I have a granddaughter, aged 2 10/12ths. She has been diagnosed with Incomplete Lissencephaly. Anna is unable to hold...
1
By Giga818 Apr 27, 2013
I have been trying to fight breast cancer for a couple years. I also have enlarged heart. & thymus gland. My left foo...
1
By Marie1012 Apr 19, 2013
Hello:
I have been battling a problem from about a month now and have been to a gym, primary doctor and urgent car...
1
By Babygurly22 Apr 23, 2013
Hello ok so let me start by saying that i have already visited a GI and had a colonoscopy and a lactose intolerance a...
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