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Rare Diseases Community
This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.
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Avatar universal
Today for the first time my skin started leaking oil. Literally my forearms where bright all of a sudden. I rubbed it off thinking I had ...
1 answer | 1 comment
Avatar universal
for over a week now, I have been suffering from random swelling. It started with the right side of my lower lip. over a 18 hour period ...
21 answers | 9 comments
  gidgegirl,    gidgegirl,    LMcDowell28,    LMcDowell28,    LMcDowell28
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Hello doc i am a 32yrs old male. I need some urgent advice concerning my health. My stories goes like this; I had a sexual encounter w...
4 answers
Avatar universal
I have muscle spasms, twitches, severe weakness in arms, legs, hands, feet, trouble swallowing, sinus and ear pain, with bladder pain, do...
3 answers | 1 comment
Avatar universal
When I lay down my right calf will start burning and then it becomes a deep ache. And it is only in my right calf. Doctors have said they...
Avatar universal
Hello, I am a 32 year old male who was perfectly healthy and active as a child and adolescent. When I was 22 and Iin college I had t...
7 answers
  messageofhope,    messageofhope,    cesar41
Avatar universal
I have had several instances where I have urinated a live worm. The first time, I thought it must have been in there prior. The second ...
6 answers
Avatar universal
My daughter has had a sensitive stomach for as long as I can remember. She has always had a hard time keeping weight on. She is a profe...
Avatar universal
Had a protected sex with my partner during her cycle but 3 days after got a rash inside my mouth and penis so I went to the emergency roo...
Avatar universal
I'm 22 female and a college student. For approximately 6 years I have suffered from TMJD, which got worse about 4 years ago. Around two y...
Avatar universal
Hi. I keep getting a rapid dripping in my throat witch sounds and feels like it's letting out air and some sort of liquid in a rapid cli...
1 answer
Avatar universal
When I exhale the air people around me feel very bad, disgusting smell similar to feces. Before this smell it was similar to the smell of...
1 answer
Avatar universal
Last year in June or July my cat made a hole in the screen to the back porch, and he was getting out for about a week or so. One night I ...
Avatar universal
I've been having left leg pain - only at night. The pain is dull, nagging pain throughout my entire leg that doesn't go away with a mass...
29 answers | 4 comments
  chloef1234,    jtolson
Avatar universal
hello.I'm 39 years old woman.My Ca 19-9 blood marker is 125 and tumor m2-pk ondure is 25. No symptoms, which are painful. All other resu...
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I am 25 year old gentleman, one thing has been ruining my life for the last 12 to 15 years, that foul smell is coming out of my nose when...
10 answers
Avatar universal
Two months ago I got arose thorn in my eye. About 10 days later it ached, swelled and there was an infection. Had drops. The next week in...
Avatar universal
On july 13th 2016, a stray cat that has been around my house for a few years bumped into me accidentally trying to come to my house. Prob...
1 answer | 1 comment
  gtc234,    Penyair
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EDS Hypermobility, familial. Finally getting the diagnosis at 40, have had signs & symptoms since birth, like reflux, hypermobility, vomi...
1 answer
  Trac78
Avatar universal
It happened 4 years ago. I had a gf before, she just took a new baby dog (2months~3months old). When we played naked, we also touched t...
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