Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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izsebellaless than a minute
KattamakiSep 20, 2013
BirnaSep 19, 2013
mzdeziah1Dec 23, 2010
YxDestinyxYSep 03, 2009
9
By HeatherShow Blank
This is a bit long and complicated, but I beg you, please read and help if you can - my life may depend on it. My...
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By Wlkrdude
29 year old male  5'11  147 lbs  My symptoms started in December. I had swollen neck lymph nodes, night sweats a...
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ginbudDec 30, 2010
triciarfcDec 21, 2010
Dr Santos Oct 18, 2009
strayzbabymarlaSep 09, 2009
5
By Legerpartyof7 Blank
My 3 year old daughter has been vomiting every night at the same time (between 12:30 a.m. and 1:30 a.m.) Then usually...
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By Lightninghop
I feel so helpless....wait aND see is not comfortible for me. What do others do? nd
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By Xlizziex6
My baby had multiple seizures a few hours after birth. His MRI scans showed his brain cells were dying off quickly in...
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selmaSAug 14
1
By Begley14
Her symptoms are Nausea, stomach pain, dizziness, headaches ( these come and go) She is always in pain, her muscles a...
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FuvarJun 27
hllwngrlMay 06
lcarrollAug 26, 2014
27
By Jamie126 Blank
I've been having left leg pain - only at night. The pain is dull, nagging pain throughout my entire leg that doesn't...
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selmaSAug 12
1
By mcue94
I am a 21 year old female, and I've had constant leg pain since I was little. When I was little I use to always get g...
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ScintoAug 06
Dr Santos Jan 09, 2012
2
By kimmie769 Blank
I have muscle spasms, twitches, severe weakness in arms, legs, hands, feet, trouble swallowing, sinus and ear pain, w...
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By layas
I was born with Microphthalmia which literally means "small eye" and since birth I've been wearing an artificial eye ...
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DianadlbJan 08, 2014
jazega29Oct 13, 2010
tjqSep 01, 2008
dr_simranAug 29, 2008
5
By tjq Blank
my right arm and hand are losing muscle and control 2 MRI'S came out negitive neck shoulder and quad chest right side...
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By Jon_knapp
I first noticed a slight dent in the inner portion of my right pec muscle about 5 years ago. Today I am missing half ...
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By rkb2484
Hello my age is 63, approximately two months back I developed acute abdomen pain, I was diagnosed my gall bladder sto...
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nomasasaMay 05
Muirnin2Nov 08, 2014
LazyCharlieApr 16, 2014
1991helpApr 12, 2014
34
By msneedhelp Blank
Please help me.. I have started feeling like there is something crawling under my skin.. I first felt it on my arms...
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Madhu913Jul 17
1
By Madhu913
My mother is 50 years old. She is going through the problem of entire body ache from mpre than 6 months. Initially sh...
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LouDLouJul 15
DBrattOct 16, 2014
NCWolfOct 24, 2009
timr306Oct 22, 2009
jlawSep 18, 2009
8
By jlaw Blank
I am searching for answers to a male flushing issue which has been going on for 3 years now. I am a 51 year old male....
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By stvmre
I had a bug behind my eye and it turned into a worm that was in my veins.it stared behind my eye but it was everywher...
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By legpresser
I have leg pains not sure how to describe it.. The pain only goes away if I push against something like my bed frame ...
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By MitchSpud
Hello and thank you to anyone who reads this! I recently had been hospitalized by my neurologist to help fin...
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By mumina_____
Hi there , I had severe leg pain last night and couldn't sleep too well. The pain was on my upper thighs and my hi...
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Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
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Top Rare Diseases Answerers
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selmaS
Allentown, PA