Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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darlaa198617 minutes
Amy2699Mar 15
WeindyDec 15, 2015
sharinDec 10, 2015
38
By msneedhelp Blank
Please help me.. I have started feeling like there is something crawling under my skin.. I first felt it on my arms...
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1
By Danheth
Hi! Please help me. I got some itchy skin. And it feels like something is crawling inside my skin. And i can't help b...
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doe3018Apr 29
Chopper713Aug 12, 2015
SwathidimpsJul 23, 2015
FuvarJun 27, 2015
29
By Jamie126 Blank
I've been having left leg pain - only at night. The pain is dull, nagging pain throughout my entire leg that doesn't...
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mrandmrswApr 28
1
By sgreen25
This may not be the typical question posed on this forum but I would really appreciate any insight. I am trying to id...
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CHRISTINASIMMar 24, 2015
JhaleAug 30, 2014
LitabalochJun 18, 2014
danmancaFeb 02, 2014
23
By Kaci_mxm Blank
Hello, I am a young, fit 21 year old female & I am confused as to why i am having all these difficulties! The symp...
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malihaiApr 07
Dr Santos Apr 19, 2011
achooApr 19, 2011
Dr Santos Apr 10, 2011
4
By malihai Blank
low grade fever in the nights for months comes on and off for 30 or so years. Exhausted with the fever and now back o...
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scdxyfApr 03
scdxyfApr 03
azel13Jan 31, 2015
lyn1235Jul 17, 2014
johnnie199164Sep 29, 2013
11
By foreverinfaith60 Blank
I have Liddle Syndrome,and it is a very rare kidney disease. Very few Doctors know about it. It is passed through fam...
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By livingstone1
Every night I am awakened by intense pain/discomfort in both legs. Try turning position & stretching legs, eases sli...
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By livingstone1
Every night I am awakened by intense pain/discomfort in both legs. Try turning position & stretching legs, eases sli...
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GemflyApr 02
1
By jemon
So, I'm 31 and have never had any major health problems and am not overweight. I have had a few instances where the u...
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GemflyApr 02
1
By Amy2699
Why am i getting these weird feeling it's like as if something is moving inside my foot I've had it for 13 years I g...
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GemflyApr 02
2
By dylanbraut94
Been feeling sick all my life with no answers. Ive had numerous blood tests and neurologists and gastro-ologist appoi...
4861218 tn?1360159550
GemflyApr 02
2
By lichthrall
Hi all, I've been experiencing some strange and alarming symptoms. Anyone got any clues? Long term symptoms: In...
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FRC23Apr 01
selmaSDec 31, 2012
2
By karabear0422 Blank
Hi, i am a 20 year old female and i was diagnosed with bells palsy about 14 months ago, i took the presidone as direc...
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By falling_apart_at_50
I ate dinner and went for a short walk. I now have a pain in my chest that feels like my stomach is pulling down on m...
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By RBK42 Blank
for over a week now, I have been suffering from random swelling. It started with the right side of my lower lip. ov...
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TabyTabySep 18, 2014
JuneLoweAug 15, 2012
bluegraniteOct 27, 2011
WuvubabyJul 07, 2011
6
By coachwalker Blank
Is Cyclic Vomiting Syndrome just a name slapped on a person who "throws up" for no apparent reason? Maybe my daughter...
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By mimi01281959
I have GERDS and a Hiatal Hernia. I see a Gastroenterologist next Wednesday. For several years I've been vomiting eve...
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Sus_01Feb 29
Dr Santos Dec 28, 2011
2
By jess2889 Blank
I want to know if there is anything i can do about my vagina being really itchy. There is no odor or discharge differ...
1753784 tn?1312291329
Sus_01Feb 29
Dr Santos Aug 08, 2011
2
By yammie052574 Blank
I have been suffering vaginal itch for about 6 months now. i have been using different kinds of treatment both orally...
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Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
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