Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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selmaSless than a minute
1
By Tooyoungtobesick
I have night sweats, occasional chills tht can last anywhere from 10min to an hour and recently wen I took my temp du...
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selmaS2 minutes
1
By Bflywarrior
EDS (Ehlers Danlos) question: while sitting still, I can breathe and my back cracks. Is this related to EDS? I hav...
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By orleon
Hello, I was with my friend playing with his puppy. When i was holding him and was going to fall i guickly grab hi...
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By giamoeba
Has Morgellons been labeled as real yet? I don't understand how the government can deny people from all walks of life...
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By annieh098
i get hiccups everyday.. like 10 but just one hiccup and like 1 or 2 hours later another. it started about 2 years ag...
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Jayo76Sep 10
Jayo76Sep 10
RJ233Oct 31, 2008
RJ233Oct 31, 2008
4
By Nicky269 Blank
Dear Ms. or Sir, I have a parasitic infection that is not limited to my digestive system. Having seen a specimen un...
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By yosemitesrafiki
I have had issues ranging from not being able to completely empty my bladder while having a bowel movement, to a swol...
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pjmorganSep 09
Foggy2Sep 08
2
By pjmorgan
I have leg pain in bed at night
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M_NmommySep 08
selmaSSep 05
2
By onlythefamily
I am pregnant with twins and was told today that after my amniocentesis results came back that my babies have Trisomy...
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Foggy2Sep 08
1
By enchilada
What can I buy over the counter antibiotics for drity urine infection.
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Foggy2Sep 08
1
By minzhu1987
Hi, my mom is 72 years old and had the PPSV shot 18 days ago after which she had constant fever (low temperature abov...
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Foggy2Sep 07
1
By Sheila95
I was diagnosed with Rocky Mountain Spotted Fever and have to take Doxycycline and flatly, I have been directed to st...
10200871_tn?1408475488
selmaSSep 05
1
By Kiadawn
My 26 yr. old nephew has a large red circle with a lighter circle in the middle, and no apparent symptoms. It really ...
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By Elsilyn
What might cause a deep throbbing pain, pulsing every three seconds not made better or worse by changing position? ..
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By chrissychongs
Ok I sweat a lot more than most people, when I eat food and walk around the end of my nose drips with sweat like a ta...
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cheybaraAug 31
Dr Santos Apr 04, 2011
kristy545Apr 04, 2011
Dr Santos Apr 03, 2011
Dr Santos Apr 03, 2011
5
By kristy545 Blank
I have expereinced something since I was five years old. Off and on throughout my entire life. The last time I expere...
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JhaleAug 30
danmancaFeb 02
bob01273Jan 04, 2013
Joe8392Aug 24, 2012
21
By Kaci_mxm Blank
Hello, I am a young, fit 21 year old female & I am confused as to why i am having all these difficulties! The symp...
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lcarrollAug 26
Kmn111Aug 13
Lazio1982Dec 12, 2013
KidzrgratNov 21, 2013
23
By Jamie126 Blank
I've been having left leg pain - only at night. The pain is dull, nagging pain throughout my entire leg that doesn't...
10254295_tn?1408837854
maatsonAug 25
1
By killmenow77
i had 3 cancer surgeries, 2 heart attacks 6 weeks later and a stroke. please tell me how to die without all this mes...
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kristy12Aug 24
1
By 6096giulia
I really need help. I have been feeling unwell for a few months now. Thought it may have been the start of a virus in...
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Emotional Eating Control: How to St...
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selmaS
Allentown, PA