Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

Font Size:
A
A
A
Sort by:
Last Post
Date Started
Background:
Blank
Blank
Blank
Avatar_f_tn
By Jennylhartfield
Hi my name is Jenny, i have bumps thats been on my skin for years now on my vaginal area.. It looks like its under th...
Avatar_f_tn
By Jennylhartfield
Hi, my name is jenny and im currently crying and itching. Ive been breaking out in what looks like nasty swirly whipl...
Avatar_f_tn
1
By TrsaStrch
I have been running for over 25 years; I ran in a 5K last Saturday and at the 2 mile marker, both knees blew out. To...
Avatar_f_tn
By vmroche
ive been having constant aching in my legs from my knees down to my ankles it wakes me up most nights and can continu...
Avatar_n_tn
JhaleAug 30, 2014
LitabalochJun 18, 2014
danmancaFeb 02, 2014
bob01273Jan 04, 2013
22
By Kaci_mxm Blank
Hello, I am a young, fit 21 year old female & I am confused as to why i am having all these difficulties! The symp...
Avatar_f_tn
By rose_cruz
have these bumps on my lips for 6 days and I don't know it is. Can some one please tell me what these bumps are?
Avatar_f_tn
By rose_cruz
I have these bumps on my lips for 6 days and I don't know it is. Can some one please tell me what these bumps are?
Avatar_f_tn
Sian_EvsMar 16
Sian_EvsMar 08
Sian_EvsMar 08
sekhmatMar 02
Sian_EvsFeb 08
5
By Sian_Evs
Has anyone else on here been diagnosed with PG?
12648020_tn?1426465932
By Mexicodave
Hi, Please help? I live in Mexico. Retired American. I was in a motorcycle accident 8 years ago that fractured my fem...
Avatar_f_tn
smithkkMar 14
1
By smithkk
I am 21 years old and have no set diagnosis, but a variety of symptoms that have lasted for years that don't add up o...
Avatar_m_tn
Justin9711Apr 07, 2014
sibanezApr 03, 2014
Justin9711Mar 22, 2009
PlateletGalMar 20, 2009
5
By Justin9711 Blank
Hi everybody. I was hoping somebody could give some tips about a condition that has slowly grown worse over the past ...
Avatar_f_tn
By tbtlw50
I would like to contact anyone who is living with Hereditary Spherocytosis and still has their gallbladder and spleen...
Avatar_m_tn
By woainimtz101
In December 17th of 2013 my little sister was admitted into the hospital for symptoms of what appeared to be stroke l...
11937255_tn?1422251357
maatsonFeb 26
1
By Portia2012
About three years ago I started getting short of breath when walking, a slight cough, and almost fainting. My primary...
Avatar_f_tn
maatsonFeb 26
1
By Tawanyh
Hello, I was wondering if you could help me figure out what could this be: she's been having these symptoms: Mout...
Avatar_n_tn
LadymeukOct 26, 2014
Ed276Sep 28, 2012
Dr. Kokil Mathur Jul 30, 2009
6
By Betsy688 Blank
Hi, I sometimes have severe leg pain at night that radiates from the back of my knees. I have always been told it is ...
Avatar_n_tn
helpinglpFeb 23
sexynomoreMay 10, 2014
nananxyzMar 22, 2013
AttinowJan 13, 2013
jami515Nov 13, 2011
7
By venkii Blank
I am 25 year old gentleman, one thing has been ruining my life for the last 12 to 15 years, that foul smell is coming...
Avatar_f_tn
3
By Momonamission81
My daughter (8yo) was diagnosed with PFAPA 3 years ago. She had a t&a and the symptoms went away. About a year ago sh...
Avatar_f_tn
HeiferlyFeb 21
1
By NicksMoomy
Hi everyone. I am 30 years old, and for the last year, maybe a few months longer, I have had these weird spells where...
Avatar_f_tn
HeiferlyFeb 21
1
By danell_de_bruyn
Hi Throughout my entire life I have felt like I have over sensitive fingertips, wrists and feet. Its I feeling I do...
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Rare Diseases Community Resources
RSS Expert Activity
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank