Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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GG_14_0222002 minutes
BellisamaNov 27, 2014
rbarlow72Oct 15, 2014
Dr Santos Feb 24, 2013
4
By clcav Blank
I have severe pain in my neck, lower back (SI area), both hips, knees, shoulders, elbows, wrists/hands/fingers, ankle...
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trylaMay 21
CatinCOApr 04
JNCL14Jul 31, 2014
AKchicNov 14, 2010
Dr Santos Sep 26, 2010
19
By lorih1220 Blank
My 15 year old son has had marks, which look like stretch marks, on his back for 6-8 months. He is tall and slim and ...
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By LaurieDK
Where can I find info for my Primary Doctor? And where can I find info about the prognosis? Any rare disease r...
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By hakan1
Hi I will talk about my medical issue and how I fix it. I have a right atrium tachicardia since almost 15 years. ...
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oscarmarkMay 21
TinaInTexasJul 03, 2014
TinaInTexasJul 03, 2014
nsilkApr 01, 2014
nsilkApr 01, 2014
67
By Jhewels Blank
I have a extremily rare orphan disease called Dercum's Disease. Is there any doctor on this site familiar with this d...
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DamienDJan 24
pamelalaAug 17, 2014
noba19Sep 07, 2013
75dryzalJan 01, 2012
10
By noba19 Blank
i have been suffering from internal heat. the external body temperarture is normal. this usually around my neck and h...
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Maite5468May 20
SkieyOct 19, 2013
dhruvmehta84May 01, 2013
connorsmom11110Aug 09, 2012
daishasmomFeb 21, 2012
8
By cilycoed Blank
I have a granddaughter, aged 2 10/12ths. She has been diagnosed with Incomplete Lissencephaly. Anna is unable to hold...
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sleasman5Nov 05, 2013
Dr_VeenaMay 20, 2009
3
By Marmar21 Blank
Yesterday had an ex-ray that showed abnomormal amount of trapped air in stomach. Symptoms are exteneded stomach from...
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By Ljk111
Hi, my 11 year old daughter has started complaining about pain in her achilles. It only pains when she sleeps and for...
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By GRACIE1104
I GET TOP OF THIGH PAIN ONLY AT NIGHT HAVE TRIED OTC MEDS, SALVES BUT NOTHING SEEMS TO HELP
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bortiz92May 17
mha99Mar 19, 2013
mha99Mar 19, 2013
keshaspikeNov 19, 2011
skyhorseApr 06, 2011
7
By skyhorse Blank
I'm a 59 year old female in poor health since visiting central Mexico 11 months ago. I live with a spit cup because ...
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6
By ikrarpurba
Hi, I'm 27 years old. I have a dog with skin problem, I already take it into several doctor, but they can't do anythi...
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1
By mahidha
Dear all, from my latest test results for an unexplained illness, it seems that i have herpes. I have yet to see the ...
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DSH519May 12
1
By floretta123
I have been having a crawling feeling down my left arm since Sunday any ideas?
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DSH519May 12
1
By Greeneyez7000
Hi my older brother has been suffering since last summer. All of his symptoms started after he was mowing the lawn i...
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By metzboy
In short, I can't write because my hands start twitching. Other than that I am completely normal. What are treatment ...
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hllwngrlMay 06
lcarrollAug 26, 2014
Kmn111Aug 13, 2014
PotsandpansAug 09, 2014
Lazio1982Dec 12, 2013
24
By Jamie126 Blank
I've been having left leg pain - only at night. The pain is dull, nagging pain throughout my entire leg that doesn't...
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By finthecelt
my 15yo son has dull pain in arms and legs that go to his hands. it comes and goes and isnt overly severe. he also ha...
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nomasasaMay 05
Muirnin2Nov 08, 2014
LazyCharlieApr 16, 2014
1991helpApr 12, 2014
cbfreckJan 09, 2014
33
By msneedhelp Blank
Please help me.. I have started feeling like there is something crawling under my skin.. I first felt it on my arms...
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1
By Willk1
I live in South Korea. Recently I heard an Animal in my false ceiling of my apartment. Maybe a rat? Or worse yet a...
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Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
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New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
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TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank