Rare Diseases Community
This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.
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By David8243 6 hours
Hello Everyone , my name is david , i am 20 years old and i'm having many problem at the same time i don't where to g...
By KirieHimuro Jun 18, 2013
Hello! I was visiting a home today ( I live in Denver, Colorado) and was licked on my hand by a pet dog that was owne...
By jmax731 Jun 17, 2013
I am 55 yrs old female and have Sleep apnea, COPD, and recently been dx with Wegeners. I am very confused a to what ...
By dramaqueen2013 Jun 12, 2013
what causes the foream to become very sensitive to the touch? Sometime it can lead to unbearable pain!
3
By kumquatmay May 21, 2013
I'm looking for a Dr (on Expert Forum) who knows anything about Leukocytoclastic vasculitis - skin and systemic versi...
1
By Olivia007 Jun 04, 2013
My 10 year old daughter gets bright red face when I brush her hair and she gets a lump on her scalp where it was tou...
1
By worried738 Jun 06, 2013
My brother has diabetes, high blood pressure, hepatitis c, and i think IBD? anyways, he has been having these headach...
1
By shawee Jun 06, 2013
PLEASE HELP.. my youngest brother is now admitted in a hospital since June 4, 2013. his attending Physician is an int...
By roro822 Jun 13, 2013
I was just wondering if my FSGS caused me to grow the prolactin pituitary tumor.
22
Could someone tell me if there are any reports of the prognosis of Dercums disease or lipomatosis dolorosa? This illn...
22
Please help me.. I have started feeling like there is something crawling under my skin.. I first felt it on my arms...
3
Is anyone out there dealing with one of the forms of porphyria. I have Hereditary Corporporphyria and am almost alway...
3
By Cannonball1980 May 24, 2013
32 M 148 lbs 5'9" For about two years now I have been experiencing incredibly odd excessive sweating. The sweating co...
DandelionstemsJun 03
brussel2620May 04, 2012
rfplattOct 08, 2010
msteen1881Oct 04, 2010
Concerned4youJun 19, 2010
11
First, I am a 30 yr old female, my height is 5’3”, I weigh 126 lbs, and I am a fairly active person. I don’t run mara...
15
I've been having left leg pain - only at night. The pain is dull, nagging pain throughout my entire leg that doesn't...
By sudusudu May 24, 2013
Hello everybody. I need a second opinion. I experience everyday trigeminal neuralgia like pain attacks in my head and...
1
By sarah_ketchup May 28, 2013
Hi. I am 26 years old, female. I have been struggling with this for nearly four years. I experience my symptoms every...
Red_StarMay 31
allergenicMay 29
2
By allergenic May 25, 2013
Well, to find out that my family has a rare disease gene...I am very emotional since my cousin is dying from Niemann-...
3
I have the Thalasemia trait and lately I have been feeling very tired, light headed, bloated and even forgetful. How ...
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