Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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Johnnyflyer45Nov 12, 2015
Johnnyflyer45Nov 12, 2015
Madhu913Jul 17, 2015
3
By Madhu913 Blank
My mother is 50 years old. She is going through the problem of entire body ache from mpre than 6 months. Initially sh...
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JenBen2094Nov 10, 2015
wiserladySep 30, 2015
wiserladySep 30, 2015
Bliu4meApr 21, 2014
neckDCDDSep 26, 2012
10
By sunbow76 Blank
I am having a hard time finding pain management doctors that believe I have symptomatic Tarlov cysts. My neurosurgon...
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TheLightSeekerNov 05, 2015
1
By mward65
My 14 year old son has been throwing up for at least two weeks out of every month for the past ten months. He wakes i...
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lisaob1Mar 03, 2011
3
By kimmie647 Blank
I am a mother of an otherwise healthy 17 y/o male who has been recently diagnosed with Necrotizing myopathy without i...
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By OliverCarr
I was diagnosed with a hepatic cyst around a month ago as well as a 2mm kidney stone and GERD. My concern is the live...
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selmaSOct 29, 2015
1
By JonamDelhi
My son is 15 we surfaced some stretch marks on his back few months before and overlook as he develop height so we wer...
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PixiangeljOct 24, 2015
1
By Wlkrdude
29 year old male  5'11  147 lbs  My symptoms started in December. I had swollen neck lymph nodes, night sweats a...
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PixiangeljOct 24, 2015
1
By mrandmrsw
Does anyone have symptoms from all kinds of autoimmune diseases with negative results
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RoybumOct 24, 2015
leigh244Feb 22, 2012
Chelsers90Jan 21, 2012
Red_StarJan 03, 2012
4
By RyanPaul79 Blank
Hello, I am a 32 year old male who was perfectly healthy and active as a child and adolescent. When I was 22 and...
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selmaSOct 05, 2015
1
By ksp1
My 13 year daughter for the past 2 weeks have been complaining about severe left leg pain. she is not a child that w...
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Pamster22Oct 02, 2015
Dr Santos Apr 27, 2010
cmacauleApr 19, 2010
3
By vera1296 Blank
i am perfectly healthy and uninjured. Every night I wake up around 3 or 4 in the morning with pain in my left leg. t...
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By 7235
Why does no doctor in salt lake city utah know about this disease. They are guessing on how to treat it people are ...
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By lola200677
This may not be the right forum but I'm trying several in search for some desperately needed advice on prednisolone. ...
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shezza58Sep 21, 2015
starwarsstefDec 29, 2014
lizzylyn64Apr 10, 2014
DInygJun 30, 2013
Dr Santos Mar 20, 2013
5
By Brailum Blank
I have had Dercums Disease for many years but this is the first time I have heard anyone say about Type 11 or other t...
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mike_flowersSep 18, 2015
CorvinApr 14, 2009
2
By artsystacey Blank
Hello I'm a 21 yr old female...looking for some answers. My case is a bit complicated and I'm seeing a neurolo...
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By stel123
please help!? i have this strange burning sensation all over my body for 2 years now it will always be only on the on...
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By Itsverypersonal
My son (14) has recurrent croup with a barky cough, neck swelling and loose stools off and on throughout the infectio...
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By Mashmallows
Hi I have had chronic right leg pain right on my thigh area only at night for about three months now it's all around ...
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justcakeSep 13, 2008
ChitChatNineSep 07, 2008
jodi247Sep 04, 2008
Grandma50Aug 30, 2008
5
By lilflower Blank
52 yr. old white male lost over 100 lbs in 8 months,1,swollen lymph node in groin ,biopsy in 5 nodes no malignancy.co...
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selmaSSep 05, 2015
1
By ramonssalas
I don't know if I should be concerned but every now and then, I get this pressure in my brain/ head that lasts for on...
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