Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

Font Size:
A
A
A
Sort by:
Last Post
Date Started
Background:
Blank
Blank
Blank
Avatar_f_tn
Dr Santos May 01
1
By Giga818
I have been trying to fight breast cancer for a couple years. I also have enlarged heart. & thymus gland. My left foo...
Avatar_n_tn
Dr Santos Apr 30
1
By Marie1012
Hello: I have been battling a problem from about a month now and have been to a gym, primary doctor and urgent car...
Avatar_f_tn
Dr Santos Apr 30
1
By Babygurly22
Hello ok so let me start by saying that i have already visited a GI and had a colonoscopy and a lactose intolerance a...
Avatar_f_tn
LindsmitApr 28
1
By Lindsmit
My hubby has been diagnosed with porphyria and im just wondering if any one else has it and could explain a little. A...
173939_tn?1333221450
3
By Trialanderror
A month ago I had mindlessly "overdosed" on chewable pills that promote saliva flow and dental health through xylitol...
Avatar_m_tn
21
By msneedhelp Blank
Please help me.. I have started feeling like there is something crawling under my skin.. I first felt it on my arms...
Avatar_n_tn
Dr Santos Apr 22
3
By jimmyjones34
I don't know if this is infection, parasitic, or even a disease..I just know I've had to deal with this for about 4 y...
Avatar_f_tn
Not_usualApr 23
1
By Not_usual
Hi ther Hi there, I am 25yo female from Russia.My life seems to be crap,but I am still cheerful.Since I am still a...
Avatar_m_tn
Dr Santos Apr 22
1
By Brian5252
Hi I'm 23 years old, last night when I fell asleep i recall a sudden vivid dream and than i woke up quickly to my ent...
Avatar_n_tn
Dr Santos Apr 22
1
By ROBDOG22
IT FEELS LIKE BUGS ARE CRAWLING ONMY SCIN
Avatar_m_tn
Dr Santos Apr 22
1
By Kimberly37
I have a friend currently in the hospital with fevers, sweats, a high white cell count and anemia. He had all this 2...
Avatar_m_tn
Dr Santos Apr 22
1
By awp512
I have this problem with my nail, right hand middle finger, it was infected by fungus (That’s what Doctor said) maybe...
Avatar_f_tn
1
By Camile33469
About a year and a half ago I took a hormone called hcg sublingually for weight loss purposes. After wards I began to...
Avatar_f_tn
KattamakiApr 19
KattamakiMay 31, 2012
777LauraMay 30, 2012
justrobin1111Mar 08, 2012
20
By Kattamaki Blank
Could someone tell me if there are any reports of the prognosis of Dercums disease or lipomatosis dolorosa? This illn...
Avatar_f_tn
yrdarlin1Apr 17
JenSaltApr 19, 2011
JenSaltApr 19, 2011
JenSaltApr 19, 2011
justguessingFeb 02, 2011
8
By JenSalt Blank
For 17 years off and on I have suffered some very debilitating and often horrible symptoms lasting between 4 to 14 da...
327385_tn?1333915796
ursula38Apr 13
alaska30Jan 26, 2012
alaska30May 23, 2011
DanaferenceMar 17, 2011
6
By brainpain Blank
hi,im very upset. i had a 22mm pituitary tumor removed by crainotomy in 06. i keep gaining weight and i can gain as m...
Avatar_m_tn
sudusuduApr 14
Red_StarApr 12
2
By sudusudu
Hello everybody. I am 14 and female. Since I live in a country that is not really famous for exellent doctors, I hav...
Avatar_f_tn
Dr Santos Apr 14
2
By lola200677
Ok, those of u who wish to help me research this/give me some opinions, I would be incredibly great full! I have t...
Avatar_f_tn
Dr Santos Apr 13
1
By Shabila
Im 40 years old female and Im diabetic and have high blood pressure. I had an operation of gallblader 3 years back an...
Avatar_n_tn
By Bzzzzzz
Hi I have a Cataract and Fuchs' dystrophy, I am also very shortsighted in this eye -9 and would like to have Laser...
Blank
Weight Tracker
Reach your weight goal faster
Start Tracking Now
Rare Diseases Community Resources
RSS Expert Activity
1741471_tn?1349564002
Blank
Parkinson Awareness Month: Parkinso... Blank
May 10 by Michael Gonzalez-WallaceBlank
233488_tn?1310696703
Blank
NEW STUDIES ON PREVENTING PROGRESSI...
May 08 by John C Hagan III, MD, FACS, FAAOBlank
2126606_tn?1346348724
Blank
Heroin Use in the U.S.
May 08 by Clare Waismann Kavin, Blank
Top Rare Diseases Answerers
620923_tn?1366319552
Blank
selmaS
Allentown, PA
1756321_tn?1364494483
Blank
Red_Star
Queensland, Australia
995833_tn?1336663431
Blank
maatson
Other