Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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allmymarblesApr 28, 2011
3
By allmymarbles Blank
I know someone who returned home after almost six year in Iraq (as a civilian) with perplexing symptoms of toxicity. ...
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By Brittanyxxx
Hi all :) Just wondering if any of you gave CAH?
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By lewis19
four years ago, i got this bad flu with severe coughing it went away and a month later all my symptoms begun, excessi...
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By n_alla
3 months ago time started going by really quickly for me. Weeks fly by without me realizing. I can do things without ...
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danmancaFeb 02
bob01273Jan 04, 2013
Joe8392Aug 24, 2012
razzinaJun 18, 2012
20
By Kaci_mxm Blank
Hello, I am a young, fit 21 year old female & I am confused as to why i am having all these difficulties! The symp...
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By bluebird133
My mom had metastatic uterine leiomyosarcoma. Does that diagnosis have anything to do with the lung cancer she died ...
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By laurice81
RESULTS REF RANGE coritsol, free, 24 hour urine ...
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HouseJrJun 09
HouseJrJun 09
4
By LilianaCc_
i get this pain on my right side like right next to my bellybutton , kidney & gallstones where ruled out i had an ult...
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By Simone83
Ever since I was a child I would get aching pain through the full length of both legs. It used to be random, my paren...
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By 19802008
My now 5 year old daughter has had repeated labs with blood +1 and +2. The most recent was +2 and Positive for Keton...
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HouseJrJun 16
jenbajJun 13
HouseJrJun 10
jenbajJun 10
HouseJrJun 09
5
By jenbaj
Hi, I just had my vitamin D levels tested and the result was 120. The doctor said that this is high, and that I s...
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By desertstarlover
I was diagnosed with Eosinophilic Fasciitis 1.5 years ago by a Dermatologist and it was confirmed by a Rheumatologist...
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By Dayshlynn
My name is Dacia. I went to the doctor 4 months ago complaining if fatigue, joint pain and GI problems. Ran full pane...
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By coulditreallybe
I recently was diagnosed with Rhabdomyolysis and was in the hospital for 6 days. I was discharged on Saturday, June 7...
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faultydnaJun 10
faultydnaJun 10
Dr Santos Jun 03
3
By faultydna
Have you ever seen vitiligo as circular patches on the breast? I was diagnosed with vitiligo however my dermatologist...
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I_B_LostJun 07
Lori637Jun 26, 2010
Dr Santos Apr 16, 2010
eazyaApr 15, 2010
Dr Santos Jan 08, 2010
7
By M_Iddings Blank
Periodically, my ears will begin to flush and burn. It then spreads to my face, neck, shoulders, elbows, knees and an...
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Jenn1302Jun 06
Dr Santos Jun 03
2
By Jenn1302
Hello Everyone, I am in my 20's, normal weight, I exercise a lot and eat healthy balanced meals. I have had high e...
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Dr Santos Jun 03
2
By LilianaCc_
i get this pain on my right side like right next to my bellybutton , kidney & gallstones where ruled out i had an ult...
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crddiscJun 04
Dr Santos Jun 03
2
By crddisc
Right leg artery was punctured when having heart stent placed Aug 2013. Since then I have chronic pain and swelling. ...
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Dr Santos Jun 03
2
By magdalenaeid
I have been feeling like there's something stuck in the back of my tongue, for 3 days, but I checked and there's noth...
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selmaS
Allentown, PA