Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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785204 tn?1236313113
allexxxFeb 17
allexxxFeb 17
Dr Santos Sep 18, 2010
Jen77MSep 16, 2010
4
By hayles211 Blank
Hi I have been diagnosed with BRIC (Benign Recurrent Intrahepatic Cholestasis), I have been told it is a very rare ...
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By Tinkerbell70
I have a cold with an occasional headache for 2 weeks now. Along with it is a lump on the right side of my throat tha...
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ArgylJan 30
Dr Santos Aug 29, 2010
2
By arkshanthi1966 Blank
my husband has been treated for I T P [ideopathic thrombocytic purpura] 5 years back.an un known cause of lack of pla...
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By PWC45
Hi I'm very worried about my 14 year old son he has stretch marks on his back he has grown a few Inshes in the last f...
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By Honeydanny
From last 2 months I am suffering from digestion problem. My bowel is not getting cleaned up. Apart from this I am a...
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GemflyJan 18
1
By StevenS2000 Blank
 I am a 16 year old male and have been having severe pain, aches, and morning stiffness in many joints. This started ...
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By agnes86 Blank
hi, I'm Agnes (from Poland) I had Psychogenic movement disorders (PMDs) and speechesdisorders since 2006. Now I'm 30 ...
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By jhek Blank
hi every one, Im currently reviewing one of my notes and I find it difficult to explain as to why does the urine spec...
1064552 tn?1322583358
1
By Chrystalheart Blank
Hi. I probably have mitochodrial disease (I'm in the last stages of diagnosis) so I'm researching it and I have some ...
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By Florin_Adminul2015 Blank
What treatment do you follow?
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By painintheneck81 Blank
Hi everyone! I hope you all had a good holiday. I could use some advice regarding falling to the point where I get ...
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By AleeKhalid Blank
Hello i am a 19 year old male.. I've a serious problem. I had a accident 2 months back, not a major one, but just giv...
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mazrkhanDec 24, 2015
lahsiv2004Jan 25, 2013
2
By lahsiv2004 Blank
Hello, For the past one year, I have lost my ability to sneeze completely. I get the sensation to sneeze but that ...
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By fit4life12 Blank
When sleeping on my left side, I'm awakened by severe pain and numbness on the entire left side of my body. The only...
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sharinDec 12, 2015
1
By Serex Blank
Hi Please I need some urgent help, when ever I am around people they start coughing, clearing their throats, rubbing ...
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CatinCODec 08, 2015
NanAnn5Sep 18, 2015
trylaMay 21, 2015
CatinCOApr 04, 2015
JNCL14Jul 31, 2014
21
By lorih1220 Blank
My 15 year old son has had marks, which look like stretch marks, on his back for 6-8 months. He is tall and slim and ...
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AuxinDec 03, 2015
Dr Santos Jun 06, 2011
Bhupinder Kaur, MD May 31, 2011
3
By JACKIEBO Blank
what medication do they give people with chrons
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By sonjao Blank
About 5 days ago I noticed a rash on the top of my feet and lower legs. They are as small as pin pricks, they don't i...
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qwest1Nov 15, 2015
ScrappattyJul 16, 2014
Rose_ENov 27, 2008
Mar6811Nov 18, 2008
4
By Rose_E Blank
I really need your help.The symptoms described below began in Feb 08. As yet, there has been no conclusive diagnosis ...
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selmaSNov 13, 2015
1
By chris2244 Blank
I'm 14 years old I'm 5'8 and 134 I've been getting stretch marks I have them on my thigh,back,arm,and my knee idk wha...
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