Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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By painintheneck81
Hi everyone! I hope you all had a good holiday. I could use some advice regarding falling to the point where I get ...
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By AleeKhalid
Hello i am a 19 year old male.. I've a serious problem. I had a accident 2 months back, not a major one, but just giv...
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mazrkhanDec 24, 2015
lahsiv2004Jan 25, 2013
2
By lahsiv2004 Blank
Hello, For the past one year, I have lost my ability to sneeze completely. I get the sensation to sneeze but that ...
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By fit4life12 Blank
When sleeping on my left side, I'm awakened by severe pain and numbness on the entire left side of my body. The only...
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sharinDec 12, 2015
1
By Serex Blank
Hi Please I need some urgent help, when ever I am around people they start coughing, clearing their throats, rubbing ...
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CatinCODec 08, 2015
NanAnn5Sep 18, 2015
trylaMay 21, 2015
CatinCOApr 04, 2015
JNCL14Jul 31, 2014
21
By lorih1220 Blank
My 15 year old son has had marks, which look like stretch marks, on his back for 6-8 months. He is tall and slim and ...
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AuxinDec 03, 2015
Dr Santos Jun 06, 2011
Bhupinder Kaur, MD May 31, 2011
3
By JACKIEBO Blank
what medication do they give people with chrons
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By sonjao Blank
About 5 days ago I noticed a rash on the top of my feet and lower legs. They are as small as pin pricks, they don't i...
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qwest1Nov 15, 2015
ScrappattyJul 16, 2014
Rose_ENov 27, 2008
Mar6811Nov 18, 2008
4
By Rose_E Blank
I really need your help.The symptoms described below began in Feb 08. As yet, there has been no conclusive diagnosis ...
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selmaSNov 13, 2015
1
By chris2244 Blank
I'm 14 years old I'm 5'8 and 134 I've been getting stretch marks I have them on my thigh,back,arm,and my knee idk wha...
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Johnnyflyer45Nov 12, 2015
Johnnyflyer45Nov 12, 2015
Madhu913Jul 17, 2015
3
By Madhu913 Blank
My mother is 50 years old. She is going through the problem of entire body ache from mpre than 6 months. Initially sh...
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JenBen2094Nov 10, 2015
wiserladySep 30, 2015
wiserladySep 30, 2015
Bliu4meApr 21, 2014
neckDCDDSep 26, 2012
10
By sunbow76 Blank
I am having a hard time finding pain management doctors that believe I have symptomatic Tarlov cysts. My neurosurgon...
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TheLightSeekerNov 05, 2015
1
By mward65 Blank
My 14 year old son has been throwing up for at least two weeks out of every month for the past ten months. He wakes i...
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lisaob1Mar 03, 2011
3
By kimmie647 Blank
I am a mother of an otherwise healthy 17 y/o male who has been recently diagnosed with Necrotizing myopathy without i...
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By OliverCarr Blank
I was diagnosed with a hepatic cyst around a month ago as well as a 2mm kidney stone and GERD. My concern is the live...
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selmaSOct 29, 2015
1
By JonamDelhi Blank
My son is 15 we surfaced some stretch marks on his back few months before and overlook as he develop height so we wer...
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PixiangeljOct 24, 2015
1
By Wlkrdude Blank
29 year old male  5'11  147 lbs  My symptoms started in December. I had swollen neck lymph nodes, night sweats a...
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PixiangeljOct 24, 2015
1
By mrandmrsw Blank
Does anyone have symptoms from all kinds of autoimmune diseases with negative results
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RoybumOct 24, 2015
leigh244Feb 22, 2012
Chelsers90Jan 21, 2012
Red_StarJan 03, 2012
4
By RyanPaul79 Blank
Hello, I am a 32 year old male who was perfectly healthy and active as a child and adolescent. When I was 22 and...
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selmaSOct 05, 2015
1
By ksp1 Blank
My 13 year daughter for the past 2 weeks have been complaining about severe left leg pain. she is not a child that w...
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