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Rare Diseases Community

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

41 - 60 (of 3748) questions
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Avatar universal
I really need your help.The symptoms described below began in Feb 08. As yet, there has been no conclusive diagnosis and the ailment is impacting every part of my personal and professional life. I have been to 50+MD's and the Mayo Clinic...
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Avatar universal
I'm 14 years old I'm 5'8 and 134 I've been getting stretch marks I have them on my thigh,back,arm,and my knee idk what to do is it normal to get alot of stretch marks the ones on my back are the ones that kinda bothers me there not like ...
  Posted
Avatar universal
My mother is 50 years old. She is going through the problem of entire body ache from mpre than 6 months. Initially she had this problem only in winters. But this year, the problem doesnot seem to go as she has constant body achw he every...
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Avatar universal
I am having a hard time finding pain management doctors that believe I have symptomatic Tarlov cysts. My neurosurgon is at UC Davis in Sacramento who I'm schedulted to see next week, and I live in San Diego. A whole days drive. No doc...
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Avatar universal
My 14 year old son has been throwing up for at least two weeks out of every month for the past ten months. He wakes in the middle of the night vomiting. He doesn't have time to get to the bathroom. This will happen every night for two to...
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Avatar universal
I am a mother of an otherwise healthy 17 y/o male who has been recently diagnosed with Necrotizing myopathy without inflammation. Based on muscle biopsy, high CK, abnormal liver enzymes, and lack any other objective findings. His symptom...
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Avatar universal
I was diagnosed with a hepatic cyst around a month ago as well as a 2mm kidney stone and GERD. My concern is the liver. I was given 500mg of Levofloxacin, but only 5 tablets. Since I finished the course I have been in much more discomfor...
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Avatar universal
My son is 15 we surfaced some stretch marks on his back few months before and overlook as he develop height so we were hoping that will disappear soon. But now we realise that they become bigger and now looks worry some. So kindly help
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Avatar universal
29 year old male  5'11  147 lbs  My symptoms started in December. I had swollen neck lymph nodes, night sweats and chills. Doctor wasn't concerned about cancer but did a neck CT scan which came back good. WBC was a little elevated, ...
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Avatar universal
Does anyone have symptoms from all kinds of autoimmune diseases with negative results
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Avatar universal
Hello, I am a 32 year old male who was perfectly healthy and active as a child and adolescent. When I was 22 and Iin college I had this random episode where I was sitting watching t.v. and all of a sudden started to just feel strang...
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Avatar universal
My 13 year daughter for the past 2 weeks have been complaining about severe left leg pain. she is not a child that weeps in pain but those nights she did. She will come to our room in the middle of the night weeping. it is around her ...
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Avatar universal
i am perfectly healthy and uninjured. Every night I wake up around 3 or 4 in the morning with pain in my left leg. the pain is inside of my leg and reminants throughout my entire leg, I try to change positions to sleep but it dosen't ma...
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Avatar universal
Why does no doctor in salt lake city utah know about this disease. They are guessing on how to treat it people are dieing from this disease
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Avatar universal
This may not be the right forum but I'm trying several in search for some desperately needed advice on prednisolone. I had toxoplasmosis when I was 17 and took prednisone for three months then tapered off without any worries. It ha...
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Avatar universal
I have had Dercums Disease for many years but this is the first time I have heard anyone say about Type 11 or other types. How do you know the type you have? My consultant many years ago said it was Dercum's and told me to look on the in...
  Posted
Avatar universal
Hello I'm a 21 yr old female...looking for some answers. My case is a bit complicated and I'm seeing a neurologist, but no one has found out what is wrong with me. My Freshman year of college, I randomly collapsed and hit my ...
  Posted
Avatar universal
please help!? i have this strange burning sensation all over my body for 2 years now it will always be only on the one side of my body it feels like the pain when having flu when your body feels sore, it will only be one spot at a time m...
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Avatar universal
My son (14) has recurrent croup with a barky cough, neck swelling and loose stools off and on throughout the infection. He gets these episodes 6-7 times a year and takes oral steroids. He was also born with low immunity (low IgG\low Ig...
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Avatar universal
Hi I have had chronic right leg pain right on my thigh area only at night for about three months now it's all around the back of my knee only this week the pain is there 24/ 7 the pain in these two areas are unbearable painkillers don't ...
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