Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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By stel123
please help!? i have this strange burning sensation all over my body for 2 years now it will always be only on the on...
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izsebellaAug 26, 2015
KattamakiSep 20, 2013
BirnaSep 19, 2013
mzdeziah1Dec 23, 2010
YxDestinyxYSep 03, 2009
9
By HeatherShow Blank
This is a bit long and complicated, but I beg you, please read and help if you can - my life may depend on it. My...
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55raindropAug 19, 2015
ginbudDec 30, 2010
triciarfcDec 21, 2010
Dr Santos Oct 18, 2009
strayzbabymarlaSep 09, 2009
5
By Legerpartyof7 Blank
My 3 year old daughter has been vomiting every night at the same time (between 12:30 a.m. and 1:30 a.m.) Then usually...
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By Lightninghop
I feel so helpless....wait aND see is not comfortible for me. What do others do? nd
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By Xlizziex6
My baby had multiple seizures a few hours after birth. His MRI scans showed his brain cells were dying off quickly in...
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selmaSAug 14, 2015
1
By Begley14
Her symptoms are Nausea, stomach pain, dizziness, headaches ( these come and go) She is always in pain, her muscles a...
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Chopper713Aug 12, 2015
SwathidimpsJul 23, 2015
FuvarJun 27, 2015
hllwngrlMay 06, 2015
lcarrollAug 26, 2014
27
By Jamie126 Blank
I've been having left leg pain - only at night. The pain is dull, nagging pain throughout my entire leg that doesn't...
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selmaSAug 12, 2015
1
By mcue94 Blank
I am a 21 year old female, and I've had constant leg pain since I was little. When I was little I use to always get g...
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ScintoAug 06, 2015
Dr Santos Jan 09, 2012
2
By kimmie769 Blank
I have muscle spasms, twitches, severe weakness in arms, legs, hands, feet, trouble swallowing, sinus and ear pain, w...
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By layas Blank
I was born with Microphthalmia which literally means "small eye" and since birth I've been wearing an artificial eye ...
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rascallytazJul 28, 2015
DianadlbJan 08, 2014
jazega29Oct 13, 2010
tjqSep 01, 2008
dr_simranAug 29, 2008
5
By tjq Blank
my right arm and hand are losing muscle and control 2 MRI'S came out negitive neck shoulder and quad chest right side...
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By Jon_knapp Blank
I first noticed a slight dent in the inner portion of my right pec muscle about 5 years ago. Today I am missing half ...
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By rkb2484 Blank
Hello my age is 63, approximately two months back I developed acute abdomen pain, I was diagnosed my gall bladder sto...
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LouDLouJul 15, 2015
DBrattOct 16, 2014
NCWolfOct 24, 2009
timr306Oct 22, 2009
jlawSep 18, 2009
8
By jlaw Blank
I am searching for answers to a male flushing issue which has been going on for 3 years now. I am a 51 year old male....
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By stvmre Blank
I had a bug behind my eye and it turned into a worm that was in my veins.it stared behind my eye but it was everywher...
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By legpresser Blank
I have leg pains not sure how to describe it.. The pain only goes away if I push against something like my bed frame ...
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By MitchSpud Blank
Hello and thank you to anyone who reads this! I recently had been hospitalized by my neurologist to help fin...
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By mumina_____ Blank
Hi there , I had severe leg pain last night and couldn't sleep too well. The pain was on my upper thighs and my hi...
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AnshuKabirJul 09, 2015
buckhistoryJan 04, 2015
buckhistoryJan 04, 2015
buckhistoryJan 04, 2015
Dr Santos Mar 04, 2012
5
By buckhistory Blank
For most of my life, I was an athlete. I ran marathons, cross-country, played football and almost all sports. I wa...
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By Penny78 Blank
Read this if you have dercums disease. http://m.aol.com/article/2015/06/04/this-stunning-discovery-about-t...
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