Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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By falling_apart_at_50
I ate dinner and went for a short walk. I now have a pain in my chest that feels like my stomach is pulling down on m...
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TabyTabySep 18, 2014
JuneLoweAug 15, 2012
bluegraniteOct 27, 2011
WuvubabyJul 07, 2011
6
By coachwalker Blank
Is Cyclic Vomiting Syndrome just a name slapped on a person who "throws up" for no apparent reason? Maybe my daughter...
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By mimi01281959
I have GERDS and a Hiatal Hernia. I see a Gastroenterologist next Wednesday. For several years I've been vomiting eve...
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Sus_01Feb 29
Dr Santos Dec 28, 2011
2
By jess2889 Blank
I want to know if there is anything i can do about my vagina being really itchy. There is no odor or discharge differ...
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Sus_01Feb 29
Dr Santos Aug 08, 2011
2
By yammie052574 Blank
I have been suffering vaginal itch for about 6 months now. i have been using different kinds of treatment both orally...
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By cnote Blank
I'm 32 male. I have a LONG history of an anxiety disorder. I was put on ativan and other trial antidepressants for ab...
785204 tn?1236313113
allexxxFeb 17
allexxxFeb 17
Dr Santos Sep 18, 2010
Jen77MSep 16, 2010
4
By hayles211 Blank
Hi I have been diagnosed with BRIC (Benign Recurrent Intrahepatic Cholestasis), I have been told it is a very rare ...
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By Tinkerbell70 Blank
I have a cold with an occasional headache for 2 weeks now. Along with it is a lump on the right side of my throat tha...
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ArgylJan 30
Dr Santos Aug 29, 2010
2
By arkshanthi1966 Blank
my husband has been treated for I T P [ideopathic thrombocytic purpura] 5 years back.an un known cause of lack of pla...
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By PWC45 Blank
Hi I'm very worried about my 14 year old son he has stretch marks on his back he has grown a few Inshes in the last f...
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By Honeydanny Blank
From last 2 months I am suffering from digestion problem. My bowel is not getting cleaned up. Apart from this I am a...
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GemflyJan 18
1
By StevenS2000 Blank
 I am a 16 year old male and have been having severe pain, aches, and morning stiffness in many joints. This started ...
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By agnes86 Blank
hi, I'm Agnes (from Poland) I had Psychogenic movement disorders (PMDs) and speechesdisorders since 2006. Now I'm 30 ...
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By jhek Blank
hi every one, Im currently reviewing one of my notes and I find it difficult to explain as to why does the urine spec...
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By Chrystalheart Blank
Hi. I probably have mitochodrial disease (I'm in the last stages of diagnosis) so I'm researching it and I have some ...
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By Florin_Adminul2015 Blank
What treatment do you follow?
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By painintheneck81 Blank
Hi everyone! I hope you all had a good holiday. I could use some advice regarding falling to the point where I get ...
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By AleeKhalid Blank
Hello i am a 19 year old male.. I've a serious problem. I had a accident 2 months back, not a major one, but just giv...
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mazrkhanDec 24, 2015
lahsiv2004Jan 25, 2013
2
By lahsiv2004 Blank
Hello, For the past one year, I have lost my ability to sneeze completely. I get the sensation to sneeze but that ...
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By fit4life12 Blank
When sleeping on my left side, I'm awakened by severe pain and numbness on the entire left side of my body. The only...
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