Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

Font Size:
A
A
A
Sort by:
Last Post
Date Started
Background:
Blank
Blank
Blank
Avatar_f_tn
By rose_cruz
have these bumps on my lips for 6 days and I don't know it is. Can some one please tell me what these bumps are?
Avatar_f_tn
By rose_cruz
I have these bumps on my lips for 6 days and I don't know it is. Can some one please tell me what these bumps are?
Avatar_f_tn
Sian_EvsMar 16
Sian_EvsMar 08
Sian_EvsMar 08
sekhmatMar 02
Sian_EvsFeb 08
5
By Sian_Evs
Has anyone else on here been diagnosed with PG?
Avatar_f_tn
smithkkMar 14
1
By smithkk
I am 21 years old and have no set diagnosis, but a variety of symptoms that have lasted for years that don't add up o...
Avatar_m_tn
Justin9711Apr 07, 2014
sibanezApr 03, 2014
Justin9711Mar 22, 2009
PlateletGalMar 20, 2009
5
By Justin9711 Blank
Hi everybody. I was hoping somebody could give some tips about a condition that has slowly grown worse over the past ...
Avatar_f_tn
By tbtlw50
I would like to contact anyone who is living with Hereditary Spherocytosis and still has their gallbladder and spleen...
Avatar_m_tn
By woainimtz101
In December 17th of 2013 my little sister was admitted into the hospital for symptoms of what appeared to be stroke l...
11937255_tn?1422251357
maatsonFeb 26
1
By Portia2012
About three years ago I started getting short of breath when walking, a slight cough, and almost fainting. My primary...
Avatar_f_tn
maatsonFeb 26
1
By Tawanyh
Hello, I was wondering if you could help me figure out what could this be: she's been having these symptoms: Mout...
Avatar_n_tn
LadymeukOct 26, 2014
Ed276Sep 28, 2012
Dr. Kokil Mathur Jul 30, 2009
6
By Betsy688 Blank
Hi, I sometimes have severe leg pain at night that radiates from the back of my knees. I have always been told it is ...
Avatar_n_tn
helpinglpFeb 23
sexynomoreMay 10, 2014
nananxyzMar 22, 2013
AttinowJan 13, 2013
jami515Nov 13, 2011
7
By venkii Blank
I am 25 year old gentleman, one thing has been ruining my life for the last 12 to 15 years, that foul smell is coming...
Avatar_f_tn
3
By Momonamission81
My daughter (8yo) was diagnosed with PFAPA 3 years ago. She had a t&a and the symptoms went away. About a year ago sh...
Avatar_f_tn
HeiferlyFeb 21
1
By NicksMoomy
Hi everyone. I am 30 years old, and for the last year, maybe a few months longer, I have had these weird spells where...
Avatar_f_tn
HeiferlyFeb 21
1
By danell_de_bruyn
Hi Throughout my entire life I have felt like I have over sensitive fingertips, wrists and feet. Its I feeling I do...
Avatar_f_tn
KFS32Dec 03, 2014
KFS32Dec 03, 2014
4
By Yvonne2014 Blank
So I went to my follow up for c.t scan results and hey guess what they found no kidney problem at all hence the probl...
Avatar_m_tn
afraidinVAJul 18, 2014
Dr Santos Jul 07, 2010
3
By msneedhelp Blank
Please help me.. I have started feeling like there is something crawling under my skin.. I first felt it on my arms...
Avatar_f_tn
Cherie762Sep 09, 2008
LG0526Sep 07, 2008
dr_simranSep 07, 2008
4
By LG0526 Blank
I am desperately seeking help for my symptoms. I have been out of work for over a month and don't seem to be any bet...
Avatar_f_tn
azel13Jan 31
lyn1235Jul 17, 2014
johnnie199164Sep 29, 2013
itsme156Jan 18, 2013
22yroldfemaleMar 12, 2011
9
By foreverinfaith60 Blank
I have Liddle Syndrome,and it is a very rare kidney disease. Very few Doctors know about it. It is passed through fam...
Avatar_f_tn
By springcolor
Male, 45, was diagnosed with Mesenteric fibromatosis in March, 2014. The tumor was completely removed by surgery. 4 m...
Avatar_f_tn
swampcritterJan 10, 2009
rika92Jan 10, 2009
Diana190Jan 10, 2009
Cherie762Jan 09, 2009
17
By Diana190 Blank
Please help me ! Very soon I'll be out of my mind, completely crazy. These musical hallucinations started in October ...
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Rare Diseases Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank