Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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mags0301Oct 03
rwelchFeb 22, 2011
2
By SMESLLC Blank
Recent Medical History @ 1 month ago Hollie went to see Rebecca Sanders because she was feeling all around ill. (Let...
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2
By Bflywarrior
EDS (Ehlers Danlos) question: while sitting still, I can breathe and my back cracks. Is this related to EDS? I hav...
10402629_tn?1409903223
Foggy2Sep 27
1
By yosemitesrafiki
I have had issues ranging from not being able to completely empty my bladder while having a bowel movement, to a swol...
10328616_tn?1409340361
Foggy2Sep 27
1
By giamoeba
Has Morgellons been labeled as real yet? I don't understand how the government can deny people from all walks of life...
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Foggy2Sep 27
1
By annieh098
i get hiccups everyday.. like 10 but just one hiccup and like 1 or 2 hours later another. it started about 2 years ag...
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Foggy2Sep 23
JetaceSep 23
Foggy2Sep 23
3
By Jetace
I am 78 years old and for about a month now I have been experiencing leg pain, mainly at night. At first it was in th...
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TabyTabySep 18
JuneLoweAug 15, 2012
bluegraniteOct 27, 2011
WuvubabyJul 07, 2011
CarmenvbNov 14, 2010
5
By coachwalker Blank
Is Cyclic Vomiting Syndrome just a name slapped on a person who "throws up" for no apparent reason? Maybe my daughter...
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1
By orleon
Hello, I was with my friend playing with his puppy. When i was holding him and was going to fall i guickly grab hi...
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KimmerbeSep 16
faultydnaJun 10
faultydnaJun 10
Dr Santos Jun 03
4
By faultydna Blank
Have you ever seen vitiligo as circular patches on the breast? I was diagnosed with vitiligo however my dermatologist...
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selmaSSep 15
1
By Tooyoungtobesick
I have night sweats, occasional chills tht can last anywhere from 10min to an hour and recently wen I took my temp du...
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Jayo76Sep 10
Jayo76Sep 10
RJ233Oct 31, 2008
RJ233Oct 31, 2008
4
By Nicky269 Blank
Dear Ms. or Sir, I have a parasitic infection that is not limited to my digestive system. Having seen a specimen un...
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M_NmommySep 08
selmaSSep 05
2
By onlythefamily
I am pregnant with twins and was told today that after my amniocentesis results came back that my babies have Trisomy...
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Foggy2Sep 08
1
By enchilada
What can I buy over the counter antibiotics for drity urine infection.
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Foggy2Sep 08
1
By minzhu1987
Hi, my mom is 72 years old and had the PPSV shot 18 days ago after which she had constant fever (low temperature abov...
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Foggy2Sep 07
1
By Sheila95
I was diagnosed with Rocky Mountain Spotted Fever and have to take Doxycycline and flatly, I have been directed to st...
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selmaSSep 05
1
By Kiadawn
My 26 yr. old nephew has a large red circle with a lighter circle in the middle, and no apparent symptoms. It really ...
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By Elsilyn
What might cause a deep throbbing pain, pulsing every three seconds not made better or worse by changing position? ..
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cheybaraAug 31
Dr Santos Apr 04, 2011
kristy545Apr 04, 2011
Dr Santos Apr 03, 2011
Dr Santos Apr 03, 2011
5
By kristy545 Blank
I have expereinced something since I was five years old. Off and on throughout my entire life. The last time I expere...
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JhaleAug 30
danmancaFeb 02
bob01273Jan 04, 2013
Joe8392Aug 24, 2012
21
By Kaci_mxm Blank
Hello, I am a young, fit 21 year old female & I am confused as to why i am having all these difficulties! The symp...
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lcarrollAug 26
Kmn111Aug 13
Lazio1982Dec 12, 2013
KidzrgratNov 21, 2013
23
By Jamie126 Blank
I've been having left leg pain - only at night. The pain is dull, nagging pain throughout my entire leg that doesn't...
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Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
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The 3 Essentials to Ending Emotiona...
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Sep 04 by Roger Gould, M.D.Blank