Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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By voloshand
Hello I have some concern on a strange growth just inside the mouth of my penis channel, I suspect it goes furthe...
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By Ann_nyc
How many possible Marfan symptoms is it necessary to have before pursuing a diagnosis? - I have a noticeably protrud...
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Dr Santos Mar 02
2
By wantsadvice
Hi, I am a 32 year male who has been very healthy and active so far.I have smoked occasionally (< 10 cigarettes in ...
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Dr Santos Mar 02
1
By Jdog67
This is going to sound really weird and gross but bear with me. This is the second time that I have found a stick lik...
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Dr Santos Mar 02
1
By Nevaehmag
What causes this white film on lips and sometimes red soreness corner of lips.
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Dr Santos Mar 02
1
By Ladyice123
I am 40 year old female, recieved the varicell shot Friday @ 3 pm, 2 days ago. It has spread to a 5x6 (inches) block ...
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Dr Santos Mar 02
1
By marieelaine720
I have recently began to have weak legs after I go upstairs. My legs feel like I've worked out for a long time afterw...
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Dr Santos Mar 02
1
By deedeedeedeedeedee
I have avascular necrosis of the scaphoid. Workers comp is trying to say my condition is permanent and stationary, th...
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Dr Santos Mar 02
1
By mermaiiidxo
I have a somewhat mild form of OI, which mainly effects my femurs. I have broken various bones throughout my body ove...
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Dr Santos Mar 02
1
By OliviaMarie
If I had the deer tick and classic bullseye rash is it a positive for Lyme? My blood tests came back negative, but I ...
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Dr Santos Mar 02
1
By Nil1234
I had mild fever before 2 months after treating for more than 2 weeks dr. Performed blood test a bacterial infection...
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By sophiedaphne
Hi. I am a 26-year old female and have been having "weird" symptoms for the last 2 years or so. All of them tend to b...
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KattamakiJun 13, 2013
BabswubyJun 12, 2013
KattamakiApr 19, 2013
24
By Kattamaki Blank
Could someone tell me if there are any reports of the prognosis of Dercums disease or lipomatosis dolorosa? This illn...
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By szumerspirit
DIAGNOSIS: Hidradenitis Suppurativa (HS); Stage 3 42 yr old Female Symptoms started at 19 immediately after pregna...
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1
By Avott
Toe edema/purple color in the third toe on the left in the segment closest to the toe. No known injury, no pain. Some...
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By Jdwca123
Hi, there. Thanks for taking the time to read this. I'm desperate for some guidance. I'm a 40 year old male with ...
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selmaSFeb 19
AE87Mar 29, 2013
DeaMcDec 24, 2012
ErinBBCFeb 04, 2010
11
By ckeenan8 Blank
My 3 yr old daughter has had a lump/swelling located on her lower spine which has been there for 10 months. The lump...
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FloxedplwFeb 17
syntax2002May 14, 2013
Blue_AngelMay 07, 2013
Blue_AngelMay 07, 2013
Dr Santos Apr 30, 2013
5
By Blue_Angel Blank
I need help please. My doctors had me on Levaquin for 4 years straight. I believe it's destroyed most of my immune sy...
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chuganipFeb 15
2
By chuganip
I am 69 at present. When asleep I do not realise the pain but when awake I get numbness in my legs, though it becomes...
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Dr Santos Feb 09
1
By MichelleMM123
Hi, Certain results in my test are creatinine 1.04, carbon dioxide 17, potassium level came back 6.9, but the result...
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selmaS
Allentown, PA