Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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By Kp_kp
Hi, I'm 17 years of age and for about 4 or so years I have been suffering from intense itch from my whole crotch. I a...
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By Mikef25
Age: 26 Weight: 173 lbs Height: 5'10" Lives in Connecticut Symptoms: Brain fog, fatigue, lightheaded, extreme...
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By Kiwikid69
Hi I am getting a pain in my right leg from the thigh through to the side of the knee and then in the shin and ankle ...
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By TBryant1027
I lost my child of 6months to brain damage caused by CUD, which went undiagnosed despite the newborn test. I was wo...
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DBrattOct 16, 2014
NCWolfOct 24, 2009
timr306Oct 22, 2009
jlawSep 18, 2009
alcatel2000Sep 17, 2009
7
By jlaw Blank
I am searching for answers to a male flushing issue which has been going on for 3 years now. I am a 51 year old male....
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ribosio80Oct 15, 2014
1
By ribosio80
hi, I saw a report in a television broadcast where he asked for help because the doctors do not know the disease that...
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Jon540Oct 14, 2014
Denne86Nov 10, 2012
selmaSNov 09, 2012
Denne86Nov 06, 2012
Denne86Nov 06, 2012
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By Denne86 Blank
Hello. I am 25 years old an for the 2 past months i gotten insomnia problems... i got stiff neck, headaches, lack ...
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Red_StarOct 12, 2014
cmt2Oct 11, 2014
denceSep 27, 2014
ducky406Jan 23, 2012
FMA1977Jan 22, 2012
7
By ducky406 Blank
My husband has autosomal dominant Charcot-Marie-Tooth Syndrome. That means that there is a 50/50 chance any baby we h...
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By cmt2
Hello Group, Has anyone had any experience with exercising on a treadmill: Does it help or exacerbate your CMT sympto...
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By 020884Lg
Hi im 30 yrs old and i have recently been having this awful deep arm and leg pain its the worst at night. Sometimes i...
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By Dussow
I have bumps and rashes all over even in my palms and under my feet and they bite and scratches. i have not been able...
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By flobett1
pain in legs when I lay on my side, I had surgery on my back [lamanectomy] 3/ 4 yrs ago also had ablation surgery on ...
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LaserOzakiOct 07, 2014
1
By nocturnalvomiting
My 3 year old daughter started waking up at 4 am 3-4 times a week vomiting anywhere from 1-3 times and as soon as she...
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rmfieldOct 06, 2014
selmaSFeb 19, 2014
DeniseGreisenFeb 19, 2014
AE87Mar 29, 2013
DeaMcDec 24, 2012
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By ckeenan8 Blank
My 3 yr old daughter has had a lump/swelling located on her lower spine which has been there for 10 months. The lump...
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By LaserOzaki
For a while now, my fingers have been bright red. When I press on my fingers, the redness disapears for a few seonds,...
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mags0301Oct 03, 2014
rwelchFeb 22, 2011
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By SMESLLC Blank
Recent Medical History @ 1 month ago Hollie went to see Rebecca Sanders because she was feeling all around ill. (Let...
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pray4peaceIsraelOct 02, 2014
selmaSSep 15, 2014
2
By Bflywarrior Blank
EDS (Ehlers Danlos) question: while sitting still, I can breathe and my back cracks. Is this related to EDS? I hav...
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Foggy2Sep 27, 2014
1
By yosemitesrafiki Blank
I have had issues ranging from not being able to completely empty my bladder while having a bowel movement, to a swol...
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Foggy2Sep 27, 2014
1
By giamoeba Blank
Has Morgellons been labeled as real yet? I don't understand how the government can deny people from all walks of life...
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Foggy2Sep 27, 2014
1
By annieh098 Blank
i get hiccups everyday.. like 10 but just one hiccup and like 1 or 2 hours later another. it started about 2 years ag...
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TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
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Abdominal Aortic Aneurysm-treatable... Blank
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The 3 Essentials to Ending Emotiona...
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