Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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maatsonFeb 07
1
By Rebelle585
Hi, I'm a 23 year old women and I've suffered from an unknown illness for 5 years. It started with erithema nodos...
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stpatiFeb 05
maatsonJan 26
2
By stpati
good day my friend was at work she is a medic, there was a lightning storm and she got a flash from it. She became ...
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lvfrogsFeb 05
CRSeasideFeb 04
2
EBV
By Lko123
I have been sick for almost 5 years this April. I was out doing yard work when I became ill. Started with throat pain...
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PerwenFeb 04
PerwenFeb 02
Dr Santos Feb 01
3
By Perwen
My son has been diagnosed with miller Fisher Syndrome. A couple of weeks after getting out of hospital he is still de...
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Dr Santos Feb 01
2
By BellsStewart
I am 16. I have had problems with my feet since i was about 7. I have an over-grown bone on the posterior tibial tend...
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sudusuduFeb 03
1
By sudusudu
Hi everyone. I am 15 years old and since 4 and a half months I have noticed a swolen lymph node in my neck under the ...
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danmancaFeb 02
bob01273Jan 04, 2013
Joe8392Aug 24, 2012
razzinaJun 18, 2012
sisi7Mar 29, 2012
19
By Kaci_mxm Blank
Hello, I am a young, fit 21 year old female & I am confused as to why i am having all these difficulties! The symp...
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Dr Santos Feb 01
1
By Nickeemeow
I am an 18 year old female. I have a couple of health concerns that are stressing me out. I have narcolepsy and wa...
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Dr Santos Feb 01
1
By KSailor
Hi there! I am a late 20s female (born before newborn screening), and for the past couple years I have been research...
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Dr Santos Feb 01
1
By Kevnmaz
Hello, I have been diagnosed with multiple PEs ( family history) and am on life long warfarin. After the last bout o...
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Dr Santos Feb 01
1
By Kevnmaz
Age 43 Sex :- female Latest symptoms :- hump between shoulder blades, arms and neck weakness. Headaches, constant...
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Dr Santos Feb 01
Imran2013Jan 10
Imran2013Jan 10
Dr Santos Jan 06
4
By Imran2013
Hii There is a small guilty on penis Can anyone tell what it is ??
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Dr Santos Feb 01
MbrmbrJan 07
Dr Santos Jan 06
3
By Mbrmbr
I'm a female 35 years old. I've been having Nausea on an off for the last 4 months. Sometimes i also have bloating an...
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Dr Santos Feb 01
1
By ashberrie
It's DRIVING me insane!!! All of my fingers including my thumbs at first after i wash my hands peeled very little,...
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Dr Santos Feb 01
1
By Momobears
I have these bumps on my hands, wrists and feet. They don't itch or hurt, but sometimes burn a little. They are flake...
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Dr Santos Feb 01
1
By Rachln12
I am a 21 year old female. I have been diagnosed with GERD. However, the past few months have been nothing like GERD....
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Dr Santos Feb 01
1
By lizleb
Tring to find a diagnosis. Does a raised level of NE%, ALP and BA% mean anything or possibly show a certain diagnosis?
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Dr Santos Feb 01
1
By dx90
Hi have a question can some one get rabies through a small scratch or microscopic tear in the skin (from dry hands...
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Dr Santos Feb 01
1
By chits4050
I am listing my symptoms as well as the test I have made. 1. Dry mouth at times . 2. Weakness in the body. 3. M...
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Dr Santos Feb 01
1
By whydoialwaysworry
Is thete any way to get rabies from a faulty injection, I had one in asia called rabipurband feel lik swallowing is w...
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Mar 26 by Roger Gould, M.D.Blank
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Feb 19 by J. Kyle Mathews, MD, DVMBlank
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The Death by Heroin
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selmaS
Allentown, PA