Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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mike_flowersSep 18, 2015
CorvinApr 14, 2009
2
By artsystacey Blank
Hello I'm a 21 yr old female...looking for some answers. My case is a bit complicated and I'm seeing a neurolo...
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By stel123 Blank
please help!? i have this strange burning sensation all over my body for 2 years now it will always be only on the on...
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By Itsverypersonal Blank
My son (14) has recurrent croup with a barky cough, neck swelling and loose stools off and on throughout the infectio...
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By Mashmallows Blank
Hi I have had chronic right leg pain right on my thigh area only at night for about three months now it's all around ...
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justcakeSep 13, 2008
ChitChatNineSep 07, 2008
jodi247Sep 04, 2008
Grandma50Aug 30, 2008
5
By lilflower Blank
52 yr. old white male lost over 100 lbs in 8 months,1,swollen lymph node in groin ,biopsy in 5 nodes no malignancy.co...
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selmaSSep 05, 2015
1
By ramonssalas Blank
I don't know if I should be concerned but every now and then, I get this pressure in my brain/ head that lasts for on...
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By stel123 Blank
please help!? i have this strange burning sensation all over my body for 2 years now it will always be only on the on...
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izsebellaAug 26, 2015
KattamakiSep 20, 2013
BirnaSep 19, 2013
mzdeziah1Dec 23, 2010
YxDestinyxYSep 03, 2009
9
By HeatherShow Blank
This is a bit long and complicated, but I beg you, please read and help if you can - my life may depend on it. My...
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55raindropAug 19, 2015
ginbudDec 30, 2010
triciarfcDec 21, 2010
Dr Santos Oct 18, 2009
strayzbabymarlaSep 09, 2009
5
By Legerpartyof7 Blank
My 3 year old daughter has been vomiting every night at the same time (between 12:30 a.m. and 1:30 a.m.) Then usually...
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By Lightninghop Blank
I feel so helpless....wait aND see is not comfortible for me. What do others do? nd
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By Xlizziex6 Blank
My baby had multiple seizures a few hours after birth. His MRI scans showed his brain cells were dying off quickly in...
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selmaSAug 14, 2015
1
By Begley14 Blank
Her symptoms are Nausea, stomach pain, dizziness, headaches ( these come and go) She is always in pain, her muscles a...
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selmaSAug 12, 2015
1
By mcue94 Blank
I am a 21 year old female, and I've had constant leg pain since I was little. When I was little I use to always get g...
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ScintoAug 06, 2015
Dr Santos Jan 09, 2012
2
By kimmie769 Blank
I have muscle spasms, twitches, severe weakness in arms, legs, hands, feet, trouble swallowing, sinus and ear pain, w...
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By layas Blank
I was born with Microphthalmia which literally means "small eye" and since birth I've been wearing an artificial eye ...
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rascallytazJul 28, 2015
DianadlbJan 08, 2014
jazega29Oct 13, 2010
tjqSep 01, 2008
dr_simranAug 29, 2008
5
By tjq Blank
my right arm and hand are losing muscle and control 2 MRI'S came out negitive neck shoulder and quad chest right side...
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By Jon_knapp Blank
I first noticed a slight dent in the inner portion of my right pec muscle about 5 years ago. Today I am missing half ...
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By rkb2484 Blank
Hello my age is 63, approximately two months back I developed acute abdomen pain, I was diagnosed my gall bladder sto...
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LouDLouJul 15, 2015
DBrattOct 16, 2014
NCWolfOct 24, 2009
timr306Oct 22, 2009
jlawSep 18, 2009
8
By jlaw Blank
I am searching for answers to a male flushing issue which has been going on for 3 years now. I am a 51 year old male....
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By stvmre Blank
I had a bug behind my eye and it turned into a worm that was in my veins.it stared behind my eye but it was everywher...
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