Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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1
By Rat_trap
I am waking almost every night with leg pains.I have tried anti inflammatory meds, hot baths,heating pads.Relief for ...
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1
By rickferris
I have a client who presents with the following: normal CBC/diff. Serum iron 51, unsaturated IBC 410-high, calculate...
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1
By sherryberg
I have recently been diagnosed with a rare medical condition called POTS by my cardiologist, but he wants me to see a...
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livmybabyApr 07
kmarcDec 16, 2009
HeatherShowAug 12, 2009
3
By KayDesigner Blank
I am a 48 year old woman and approximately a year ago, I stated having leg weakness and excruciating calf muscle and ...
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shine0124Apr 07
1
By crazyuga
For past two weeks,i am suffering from severe pain from cramps in the calf of my right leg and sometimes the pain spr...
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By Jennylhartfield
Hi my name is Jenny, i have bumps thats been on my skin for years now on my vaginal area.. It looks like its under th...
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vedadharMar 31
1
By Jennylhartfield
Hi, my name is jenny and im currently crying and itching. Ive been breaking out in what looks like nasty swirly whipl...
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1
By TrsaStrch
I have been running for over 25 years; I ran in a 5K last Saturday and at the 2 mile marker, both knees blew out. To...
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JhaleAug 30, 2014
LitabalochJun 18, 2014
danmancaFeb 02, 2014
bob01273Jan 04, 2013
22
By Kaci_mxm Blank
Hello, I am a young, fit 21 year old female & I am confused as to why i am having all these difficulties! The symp...
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By rose_cruz
have these bumps on my lips for 6 days and I don't know it is. Can some one please tell me what these bumps are?
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By rose_cruz
I have these bumps on my lips for 6 days and I don't know it is. Can some one please tell me what these bumps are?
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Sian_EvsMar 16
Sian_EvsMar 08
Sian_EvsMar 08
sekhmatMar 02
Sian_EvsFeb 08
5
By Sian_Evs
Has anyone else on here been diagnosed with PG?
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smithkkMar 14
1
By smithkk
I am 21 years old and have no set diagnosis, but a variety of symptoms that have lasted for years that don't add up o...
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Justin9711Apr 07, 2014
sibanezApr 03, 2014
Justin9711Mar 22, 2009
PlateletGalMar 20, 2009
5
By Justin9711 Blank
Hi everybody. I was hoping somebody could give some tips about a condition that has slowly grown worse over the past ...
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By tbtlw50
I would like to contact anyone who is living with Hereditary Spherocytosis and still has their gallbladder and spleen...
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By woainimtz101
In December 17th of 2013 my little sister was admitted into the hospital for symptoms of what appeared to be stroke l...
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maatsonFeb 26
1
By Portia2012 Blank
About three years ago I started getting short of breath when walking, a slight cough, and almost fainting. My primary...
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maatsonFeb 26
1
By Tawanyh
Hello, I was wondering if you could help me figure out what could this be: she's been having these symptoms: Mout...
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LadymeukOct 26, 2014
Ed276Sep 28, 2012
Dr. Kokil Mathur Jul 30, 2009
6
By Betsy688 Blank
Hi, I sometimes have severe leg pain at night that radiates from the back of my knees. I have always been told it is ...
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3
By Momonamission81
My daughter (8yo) was diagnosed with PFAPA 3 years ago. She had a t&a and the symptoms went away. About a year ago sh...
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Rare Diseases Community Resources
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Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
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New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
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TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank