Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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pamelalaAug 17
noba19Sep 07, 2013
75dryzalJan 01, 2012
noba19Mar 03, 2011
Dr Santos Mar 02, 2011
8
By noba19 Blank
i have been suffering from internal heat. the external body temperarture is normal. this usually around my neck and h...
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By dhruvi118
Hi I.am 20years old female . I.am suffering from constant hunger in day time n night as well. . And I cannot resist...
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maatsonAug 14
maatsonAug 12
3
By blueskies31
Hello, While taking a bath this morning I accidentally got a lot of water up my nose when attempting to rinse my h...
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By Sgriego
What is areata alopecia
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LPN
By Steve9606
can clindamycin treat mersa?
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By Potsandpans
Hi. I've been having pains in my upper right leg for quite a while now. It's on the right side of my right leg close ...
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By MaryAnda
I am a 35 year old overweight woman whose legs swell all the time. I have had my heart valve replaced for about ten ...
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By MaryAnda
My nine year old was just diagnosed with Autism and has been diagnosed with ADHD since he was six. We are just notici...
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MaryAndaAug 08
Dr Santos Nov 05, 2011
maatsonOct 26, 2011
maatsonOct 26, 2011
MaryAndaOct 26, 2011
10
By MaryAnda Blank
I am 33 years old and have had two heart surgeries for MVP. I currently have an artificial heart valve and take Jant...
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By xiulishanshui
Dear Dr Santos,I am a man from China,I go to hospital for my eye problem,the doctor touch my palpebra interna by her ...
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By Syd_16_
I'm a 16 year old female. I have what feels to be a 3 in. lump under the muscle of the right side of my neck that's b...
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JNCL14Jul 31
AKchicNov 14, 2010
Dr Santos Sep 26, 2010
bluedevil167Sep 23, 2010
bluedevil167Sep 23, 2010
17
By lorih1220 Blank
My 15 year old son has had marks, which look like stretch marks, on his back for 6-8 months. He is tall and slim and ...
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By 5kidsnbusy
My brother is in a facility and has had his gallbladder removed and sense has pancreatitis and hepatitis c. How is th...
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By LMazal
I have developed 6th nerve palsy (diagnosed by my surgeon) after a brain tumor removal. Apparently the skull base ...
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NME4483Jul 26
Dr Santos Jun 03
3
By tgent99 Blank
I am a 33 year old male. Never had any health problems up until... About 2 1/2 years ago I began getting tingling ...
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By blade2093
Hello heres my question. I am a 36 year male who was diagnosed with brugada type 1. I have throughout my life have a ...
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swampcritterJul 21, 2010
annesfJul 20, 2010
3
By babychelle Blank
I am a 32 year old woman 5'4" 118lbs. I have always been in good shape, but odly enough i do not sweat nor have i eve...
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1
By Etk
What is happening that when I lay down to sleep and am tired, my heart rate increases. It is very uncomfortable. 100 ...
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By Sp00n
I since birth have had a rash-looking skin condition on my ball sack, and it was not even noticeable. Until the age o...
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selmaSJul 21
1
By nanasandy2
does Midrodrine cause weight gain? Have POTS Gained 5 lbs since on Midrodrine and 0.1 Fludrocortisone for 3 mont...
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