Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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By Syd_16_
I'm a 16 year old female. I have what feels to be a 3 in. lump under the muscle of the right side of my neck that's b...
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JNCL14Jul 31
AKchicNov 14, 2010
Dr Santos Sep 26, 2010
bluedevil167Sep 23, 2010
bluedevil167Sep 23, 2010
17
By lorih1220 Blank
My 15 year old son has had marks, which look like stretch marks, on his back for 6-8 months. He is tall and slim and ...
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By 5kidsnbusy
My brother is in a facility and has had his gallbladder removed and sense has pancreatitis and hepatitis c. How is th...
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By LMazal
I have developed 6th nerve palsy (diagnosed by my surgeon) after a brain tumor removal. Apparently the skull base ...
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NME4483Jul 26
Dr Santos Jun 03
3
By tgent99
I am a 33 year old male. Never had any health problems up until... About 2 1/2 years ago I began getting tingling ...
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By blade2093
Hello heres my question. I am a 36 year male who was diagnosed with brugada type 1. I have throughout my life have a ...
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swampcritterJul 21, 2010
annesfJul 20, 2010
3
By babychelle Blank
I am a 32 year old woman 5'4" 118lbs. I have always been in good shape, but odly enough i do not sweat nor have i eve...
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1
By Etk
What is happening that when I lay down to sleep and am tired, my heart rate increases. It is very uncomfortable. 100 ...
9849878_tn?1406251668
By Sp00n
I since birth have had a rash-looking skin condition on my ball sack, and it was not even noticeable. Until the age o...
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selmaSJul 21
1
By nanasandy2
does Midrodrine cause weight gain? Have POTS Gained 5 lbs since on Midrodrine and 0.1 Fludrocortisone for 3 mont...
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By auntie_923
Any ideas of why after 90 loud weight loss, my back pain increased. Scoliosis had been stable for 10 years @ 65-70° ...
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Dr Santos Jul 07, 2010
2
By msneedhelp Blank
Please help me.. I have started feeling like there is something crawling under my skin.. I first felt it on my arms...
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lyn1235Jul 17
johnnie199164Sep 29, 2013
itsme156Jan 18, 2013
22yroldfemaleMar 12, 2011
reughrMar 09, 2011
8
By foreverinfaith60 Blank
I have Liddle Syndrome,and it is a very rare kidney disease. Very few Doctors know about it. It is passed through fam...
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Rose_ENov 27, 2008
Mar6811Nov 18, 2008
3
By Rose_E Blank
I really need your help.The symptoms described below began in Feb 08. As yet, there has been no conclusive diagnosis ...
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oldoldnavyNov 14, 2008
oldoldnavyNov 14, 2008
UkonNov 13, 2008
4
By oldoldnavy Blank
I recently (7/28) had a defib unit installed. Seven weeks later, I contracted an infection under the unit. I was put...
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By CMT1A
Is there anyone that has this disease on this site?
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selmaSJul 11
1
By disasterfullbeauty
So I have been diagnosed with chiari malformation but currently have no insurance and have not seen a doctor in 2+ ye...
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KATSBACKJul 09
michelle7676Nov 23, 2008
shay423Nov 23, 2008
michelle7676Nov 22, 2008
4
By shay423 Blank
I keep having these spells like my brain is flipping upside down, Can someone help me? It only lasts a minute and the...
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By shwetaisit
Hi, My mother legs pain a lot only in night when she goes to bed. It is such intense that she cannot sleep. Also we ...
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By SallyLovesJack Blank
On November 3rd, I realized that my left tonsil hurt when I swallowed. I'd had a little drainage over the weekend fro...
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