Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

Font Size:
A
A
A
Sort by:
Last Post
Date Started
Background:
Blank
Blank
Blank
Avatar_f_tn
By luigimario
I have a question about rabies that someone will hopefully be able to answer. Last night a raccoon walked onto my por...
Avatar_m_tn
Alex2001HoustonDec 03, 2014
FurballsMomOct 31, 2009
2
By Ketch12 Blank
I have chronic fatigue, neuropathy in my left leg, chronic long lasting sinus infections (even with antibiotic treatm...
Avatar_n_tn
By CVSgirl1102
I was recently diagnosed with Somatization (which I know is a psycho-somatic disorder), and before that I was told I ...
Avatar_f_tn
By Blueeyes1950
For the past several months i have had left leg pain occuring only at night when i sleep on my side....however when i...
Avatar_n_tn
BellisamaNov 27, 2014
rbarlow72Oct 15, 2014
Dr Santos Feb 24, 2013
3
By clcav Blank
I have severe pain in my neck, lower back (SI area), both hips, knees, shoulders, elbows, wrists/hands/fingers, ankle...
Avatar_f_tn
QueendebNov 24, 2014
sheleneApr 20, 2012
CaskalJun 25, 2011
MzFayeMar 31, 2011
glorybellDec 09, 2010
8
By brookie1 Blank
Please provide information on warning signs, treatment, and prognosis for this horrible disease.
Avatar_f_tn
By bellly
My mom feel like there things walking all over her body and sand in her head and she can't take it anymore can you te...
Avatar_m_tn
anoama1Nov 17, 2014
1
By chrissychongs Blank
Ok I sweat a lot more than most people, when I eat food and walk around the end of my nose drips with sweat like a ta...
Avatar_f_tn
By ShouldB7
My symptoms and health issues over the last 6 years chronologically: Sudden major low thyroid function: diagnosis...
Avatar_m_tn
By jezzahra
Hi there, I'm currently experiencing a variety of problems. Im a 30 year old male and was fit and healthy until thi...
Avatar_m_tn
Muirnin2Nov 08, 2014
LazyCharlieApr 16, 2014
1991helpApr 12, 2014
cbfreckJan 09, 2014
Nyomi729Oct 07, 2013
32
By msneedhelp Blank
Please help me.. I have started feeling like there is something crawling under my skin.. I first felt it on my arms...
Avatar_m_tn
By KUL2014
I got this test result at 14.20KU/L, recurring severe upper respiratory inf, antibiotics showing no results, please g...
Avatar_f_tn
Katwin60Nov 02, 2014
Dr Santos Mar 31, 2010
2
By JackieWeh Blank
I am an adopted 43 year old female with flanking chronic pain on the left side. Have been diagnosed with HBP, blood ...
Avatar_f_tn
Dr Santos Apr 04, 2011
1
By pennymac Blank
I have just been told ive Mesntiteric Pannculitlis and have been trying to manage it with Panadine Fort which is not ...
Avatar_f_tn
onefineseamstresOct 21, 2014
1
By bluebird133 Blank
My mom had metastatic uterine leiomyosarcoma. Does that diagnosis have anything to do with the lung cancer she died ...
Avatar_f_tn
By Kp_kp Blank
Hi, I'm 17 years of age and for about 4 or so years I have been suffering from intense itch from my whole crotch. I a...
Avatar_m_tn
By Mikef25 Blank
Age: 26 Weight: 173 lbs Height: 5'10" Lives in Connecticut Symptoms: Brain fog, fatigue, lightheaded, extreme...
Avatar_f_tn
By Kiwikid69 Blank
Hi I am getting a pain in my right leg from the thigh through to the side of the knee and then in the shin and ankle ...
Avatar_m_tn
By TBryant1027 Blank
I lost my child of 6months to brain damage caused by CUD, which went undiagnosed despite the newborn test. I was wo...
Avatar_n_tn
DBrattOct 16, 2014
NCWolfOct 24, 2009
timr306Oct 22, 2009
jlawSep 18, 2009
alcatel2000Sep 17, 2009
7
By jlaw Blank
I am searching for answers to a male flushing issue which has been going on for 3 years now. I am a 51 year old male....
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Rare Diseases Community Resources
RSS Expert Activity
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
Top Rare Diseases Answerers
Avatar_m_tn
Blank
maatson
Other