Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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By Lina_0000
Dear Doctor, About more than 3 months ago, On January 2015, I have been noticing strange white discharge, which I ...
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By MyLuke
Our son has a complicated medical history, but I will try to keep it brief for this initial conversation. No signific...
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By JulieAnn63
My daughter's gynecologist is extremely concerned that she has a severe rectocele that just developed, as she has jus...
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By Mexicodave
Hi, Please help? I live in Mexico. Retired American. I was in a motorcycle accident 8 years ago that fractured my fem...
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By vmroche
ive been having constant aching in my legs from my knees down to my ankles it wakes me up most nights and can continu...
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1
By shine0124
Hi i came across a topic about hs and i want to ask.i had a single bump in my armpit when i was 14yo..it never pop...
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By Jazzielanai
Is this a disease or syndrome? Are you born with it?
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By Rat_trap
I am waking almost every night with leg pains.I have tried anti inflammatory meds, hot baths,heating pads.Relief for ...
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1
By rickferris
I have a client who presents with the following: normal CBC/diff. Serum iron 51, unsaturated IBC 410-high, calculate...
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1
By sherryberg
I have recently been diagnosed with a rare medical condition called POTS by my cardiologist, but he wants me to see a...
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livmybabyApr 07
kmarcDec 16, 2009
HeatherShowAug 12, 2009
3
By KayDesigner Blank
I am a 48 year old woman and approximately a year ago, I stated having leg weakness and excruciating calf muscle and ...
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shine0124Apr 07
1
By crazyuga
For past two weeks,i am suffering from severe pain from cramps in the calf of my right leg and sometimes the pain spr...
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By Jennylhartfield
Hi my name is Jenny, i have bumps thats been on my skin for years now on my vaginal area.. It looks like its under th...
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vedadharMar 31
1
By Jennylhartfield
Hi, my name is jenny and im currently crying and itching. Ive been breaking out in what looks like nasty swirly whipl...
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By TrsaStrch Blank
I have been running for over 25 years; I ran in a 5K last Saturday and at the 2 mile marker, both knees blew out. To...
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JhaleAug 30, 2014
LitabalochJun 18, 2014
danmancaFeb 02, 2014
bob01273Jan 04, 2013
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By Kaci_mxm Blank
Hello, I am a young, fit 21 year old female & I am confused as to why i am having all these difficulties! The symp...
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By rose_cruz
have these bumps on my lips for 6 days and I don't know it is. Can some one please tell me what these bumps are?
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By rose_cruz
I have these bumps on my lips for 6 days and I don't know it is. Can some one please tell me what these bumps are?
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Sian_EvsMar 16
Sian_EvsMar 08
Sian_EvsMar 08
sekhmatMar 02
Sian_EvsFeb 08
5
By Sian_Evs Blank
Has anyone else on here been diagnosed with PG?
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smithkkMar 14
1
By smithkk
I am 21 years old and have no set diagnosis, but a variety of symptoms that have lasted for years that don't add up o...
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Rare Diseases Community Resources
RSS Expert Activity
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Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
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New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
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TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
Top Rare Diseases Answerers
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selmaS
Allentown, PA