Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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By Dayshlynn
My name is Dacia. I went to the doctor 4 months ago complaining if fatigue, joint pain and GI problems. Ran full pane...
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By coulditreallybe
I recently was diagnosed with Rhabdomyolysis and was in the hospital for 6 days. I was discharged on Saturday, June 7...
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I_B_LostJun 07
Lori637Jun 26, 2010
Dr Santos Apr 16, 2010
eazyaApr 15, 2010
Dr Santos Jan 08, 2010
7
By M_Iddings Blank
Periodically, my ears will begin to flush and burn. It then spreads to my face, neck, shoulders, elbows, knees and an...
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Jenn1302Jun 06
Dr Santos Jun 03
2
By Jenn1302
Hello Everyone, I am in my 20's, normal weight, I exercise a lot and eat healthy balanced meals. I have had high e...
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Dr Santos Jun 03
2
By LilianaCc_
i get this pain on my right side like right next to my bellybutton , kidney & gallstones where ruled out i had an ult...
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crddiscJun 04
Dr Santos Jun 03
2
By crddisc
Right leg artery was punctured when having heart stent placed Aug 2013. Since then I have chronic pain and swelling. ...
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Dr Santos Jun 03
2
By magdalenaeid
I have been feeling like there's something stuck in the back of my tongue, for 3 days, but I checked and there's noth...
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By DebMox
Hey there, In 1994 I contracted acute Cytomegalovirus that was misdiagnosed as Mono and I was sent home with enceph...
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Dr Santos Jun 03
1
By tbj1985
Hey I have idiopathic cyclic neutropenia. It's a genetic disorder...just wanted to see if anyone else has it or has ...
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Dr Santos Jun 03
1
By jeshotwell
My blood test came back with high protein and high globulin. Went in and had another blood test showed monoclonal ant...
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Dr Santos Jun 03
1
By vishalsood
My wife delivered a baby girl on 11th May on Mother's day. During her pregnancy, she was perfectly healthy & normal a...
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Dr Santos Jun 03
1
By Liberace
Hello, So for the past half a year or so I had varied levels of anxiety whilst starting University, which I have le...
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Dr Santos Jun 03
1
By Chrisw030290
Hi I have recently notice more birthmarks are appearing on my body as I got neutofibmotas type one is it normal for m...
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Dr Santos Jun 03
1
By Fruitykem
Wherever I go within one minute I see a fly Or flies there. Even after a bath I can a tiny reddish fruitfly like fly...
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Dr Santos Jun 03
1
By seuntermeyer
I am a 46 year old female; always in good health till a year ago. About 9 months ago I started experiencing wrist pa...
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Dr Santos Jun 03
1
By otto12
Hi. Since October I have been living with chills all day. They can be pretty bad. At night I usually break out in a h...
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By bobbyguest
After my biopsy on my liver, after treatments and you are cured do you get back the energy you use to have? How much ...
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rrobby37Jun 02
1
By closehrs1
A month ago I noticed a pressure in my ears, almost like i was getting a double ear infection. Within two days i had ...
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OSSupMay 27
selmaSAug 07, 2012
EveningsunJul 30, 2012
LeagueCityREALTORJul 29, 2012
EveningsunJul 29, 2012
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By Eveningsun Blank
I am a 56 yr old woman, 155, 5'9" and my tracker name is: eveningsun I have way too many problems all at one ti...
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jemma116May 21
PantxMay 18
jemma116May 17
3
By Michelle_Kivett
My 15 yr old son had been recently diagnosed and treated fro Gillian Barre Syndrome. When he was admitted to the hosp...
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