Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

Font Size:
A
A
A
Sort by:
Last Post
Date Started
Background:
Blank
Blank
Blank
Avatar_f_tn
By hakan1 Blank
Hi I will talk about my medical issue and how I fix it. I have a right atrium tachicardia since almost 15 years. ...
Avatar_f_tn
TinaInTexasJul 03, 2014
TinaInTexasJul 03, 2014
nsilkApr 01, 2014
nsilkApr 01, 2014
nsilkApr 01, 2014
66
By Jhewels Blank
I have a extremily rare orphan disease called Dercum's Disease. Is there any doctor on this site familiar with this d...
Avatar_f_tn
SusanSavardMay 20, 2015
DamienDJan 24, 2015
pamelalaAug 17, 2014
noba19Sep 07, 2013
75dryzalJan 01, 2012
10
By noba19 Blank
i have been suffering from internal heat. the external body temperarture is normal. this usually around my neck and h...
Avatar_f_tn
Maite5468May 20, 2015
SkieyOct 19, 2013
dhruvmehta84May 01, 2013
connorsmom11110Aug 09, 2012
daishasmomFeb 21, 2012
8
By cilycoed Blank
I have a granddaughter, aged 2 10/12ths. She has been diagnosed with Incomplete Lissencephaly. Anna is unable to hold...
Avatar_n_tn
annilennoxnisbetMay 20, 2015
sleasman5Nov 05, 2013
Dr_VeenaMay 20, 2009
3
By Marmar21 Blank
Yesterday had an ex-ray that showed abnomormal amount of trapped air in stomach. Symptoms are exteneded stomach from...
Avatar_m_tn
MN_Autonomic_GalMay 19, 2015
1
By Ljk111 Blank
Hi, my 11 year old daughter has started complaining about pain in her achilles. It only pains when she sleeps and for...
Avatar_f_tn
By GRACIE1104 Blank
I GET TOP OF THIGH PAIN ONLY AT NIGHT HAVE TRIED OTC MEDS, SALVES BUT NOTHING SEEMS TO HELP
Avatar_f_tn
bortiz92May 17, 2015
mha99Mar 19, 2013
mha99Mar 19, 2013
keshaspikeNov 19, 2011
skyhorseApr 06, 2011
7
By skyhorse Blank
I'm a 59 year old female in poor health since visiting central Mexico 11 months ago. I live with a spit cup because ...
Avatar_f_tn
ikrarpurbaMay 16, 2015
ikrarpurbaMay 16, 2015
ikrarpurbaMay 16, 2015
ikrarpurbaMay 16, 2015
CaryopterisMay 16, 2015
6
By ikrarpurba Blank
Hi, I'm 27 years old. I have a dog with skin problem, I already take it into several doctor, but they can't do anythi...
Avatar_m_tn
CaryopterisMay 16, 2015
1
By mahidha Blank
Dear all, from my latest test results for an unexplained illness, it seems that i have herpes. I have yet to see the ...
Avatar_f_tn
DSH519May 12, 2015
1
By floretta123 Blank
I have been having a crawling feeling down my left arm since Sunday any ideas?
Avatar_f_tn
DSH519May 12, 2015
1
By Greeneyez7000 Blank
Hi my older brother has been suffering since last summer. All of his symptoms started after he was mowing the lawn i...
Avatar_m_tn
By metzboy Blank
In short, I can't write because my hands start twitching. Other than that I am completely normal. What are treatment ...
Avatar_m_tn
By finthecelt Blank
my 15yo son has dull pain in arms and legs that go to his hands. it comes and goes and isnt overly severe. he also ha...
Avatar_f_tn
TheLightSeekerApr 30, 2015
1
By Willk1 Blank
I live in South Korea. Recently I heard an Animal in my false ceiling of my apartment. Maybe a rat? Or worse yet a...
Avatar_f_tn
elaine1124Oct 17, 2008
Dr_Smita_SOct 17, 2008
2
By elaine1124 Blank
My question is, my grandson was born with epidermal nevus. He is 3 weeks old, are there any treatments for this condi...
Avatar_n_tn
Scooter9056Apr 19, 2015
mess570Feb 22, 2010
mq456Sep 08, 2008
kristinMCAug 29, 2008
dr_simranAug 29, 2008
5
By sickgirl99 Blank
I have been getting sick for a little over a year now. It has been severely interfering with school and making it di...
Avatar_f_tn
By Lina_0000 Blank
Dear Doctor, About more than 3 months ago, On January 2015, I have been noticing strange white discharge, which I ...
Avatar_f_tn
By MyLuke Blank
Our son has a complicated medical history, but I will try to keep it brief for this initial conversation. No signific...
Avatar_n_tn
By JulieAnn63 Blank
My daughter's gynecologist is extremely concerned that she has a severe rectocele that just developed, as she has jus...
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Rare Diseases Community Resources