Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

Font Size:
A
A
A
Sort by:
Last Post
Date Started
Background:
Blank
Blank
Blank
Avatar_f_tn
fifinaz3434Aug 22, 2014
traveler69Nov 28, 2013
yrdarlin1Apr 17, 2013
JenSaltApr 19, 2011
JenSaltApr 19, 2011
10
By JenSalt Blank
For 17 years off and on I have suffered some very debilitating and often horrible symptoms lasting between 4 to 14 da...
10184447_tn?1408379244
By Lauren4Jesus
I am experiencing sensations in my head neck and chest area that last for days then goes away then comes back. It fee...
Avatar_f_tn
DebbieqAug 19, 2014
RheumatologyJul 15, 2014
RheumatologyJul 15, 2014
RheumatologyJul 09, 2014
Camile33469Apr 19, 2013
5
By Camile33469 Blank
About a year and a half ago I took a hormone called hcg sublingually for weight loss purposes. After wards I began to...
Avatar_m_tn
By giasroom
I have a family member who has something wrong with her and the doctors she has been going to have not had any answer...
Avatar_f_tn
Hdonohue80Aug 18, 2014
maatsonAug 18, 2014
Hdonohue80Aug 18, 2014
maatsonAug 18, 2014
Hdonohue80Aug 18, 2014
10
By Hdonohue80
I have had rt thigh, calf and hip edema since 1/14. It came on out of nowhere. No injury. Neg for DVT, neg MRI for ma...
Avatar_n_tn
By tomjene
if u r on tramadol STOP I beg you. I lost my 23 yr old daughter less than a year out of nursing school and a few mo...
Avatar_f_tn
guy7hsimAug 18, 2014
selmaSApr 02, 2014
2
By SewinKy Blank
My daughter was diagnosed with hypohydrosis / anhydrosis. it's Spring, which in Kentucky quickly turns to Summer. ...
Avatar_f_tn
By RCruz
I have been seeing a eye Retina Specialist since May 2014 for a unknown benign tumor in my eye causing blood vessels ...
Avatar_f_tn
pray4peaceIsraelAug 16, 2014
1
By dhruvi118 Blank
Hi I.am 20years old female . I.am suffering from constant hunger in day time n night as well. . And I cannot resist...
Avatar_f_tn
maatsonAug 14, 2014
blueskies31Aug 12, 2014
maatsonAug 12, 2014
3
By blueskies31
Hello, While taking a bath this morning I accidentally got a lot of water up my nose when attempting to rinse my h...
Avatar_n_tn
By Sgriego
What is areata alopecia
Avatar_n_tn
LPN
By Steve9606
can clindamycin treat mersa?
Avatar_f_tn
By Potsandpans
Hi. I've been having pains in my upper right leg for quite a while now. It's on the right side of my right leg close ...
Avatar_f_tn
By MaryAnda
I am a 35 year old overweight woman whose legs swell all the time. I have had my heart valve replaced for about ten ...
Avatar_f_tn
By MaryAnda
My nine year old was just diagnosed with Autism and has been diagnosed with ADHD since he was six. We are just notici...
Avatar_f_tn
MaryAndaAug 08, 2014
Dr Santos Nov 05, 2011
maatsonOct 26, 2011
maatsonOct 26, 2011
MaryAndaOct 26, 2011
10
By MaryAnda Blank
I am 33 years old and have had two heart surgeries for MVP. I currently have an artificial heart valve and take Jant...
Avatar_n_tn
By xiulishanshui
Dear Dr Santos,I am a man from China,I go to hospital for my eye problem,the doctor touch my palpebra interna by her ...
Avatar_f_tn
By Syd_16_
I'm a 16 year old female. I have what feels to be a 3 in. lump under the muscle of the right side of my neck that's b...
Avatar_n_tn
JNCL14Jul 31, 2014
AKchicNov 14, 2010
Dr Santos Sep 26, 2010
bluedevil167Sep 23, 2010
bluedevil167Sep 23, 2010
17
By lorih1220 Blank
My 15 year old son has had marks, which look like stretch marks, on his back for 6-8 months. He is tall and slim and ...
9928209_tn?1406729475
By 5kidsnbusy Blank
My brother is in a facility and has had his gallbladder removed and sense has pancreatitis and hepatitis c. How is th...
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Rare Diseases Community Resources
RSS Expert Activity
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
Top Rare Diseases Answerers
995833_tn?1375604252
Blank
maatson
Other