Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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By Penny78 Blank
Read this if you have dercums disease. http://m.aol.com/article/2015/06/04/this-stunning-discovery-about-t...
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By sarah_ketchup Blank
I am 28 years old and female. I have been struggling with these symptoms every day for over five years. My symptoms c...
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By Bertmorales Blank
Hey everyone i would like to ask if i will put myself in rabies risk in this situation, i was walking in our office a...
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By Glenelg10 Blank
Why do I get a bunrning sensation in my legs
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By Glenelg10 Blank
I have back pain across the bottom of back which radiates down front both side of stomach to also have burning sensat...
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By Glenelg10 Blank
I have burning above ankles not hot to feel my g p has carried out blood tests which are negative
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Glenelg10Jun 30, 2015
Glenelg10Jun 30, 2015
I_B_LostJun 07, 2014
Lori637Jun 26, 2010
Dr Santos Apr 16, 2010
9
By M_Iddings Blank
Periodically, my ears will begin to flush and burn. It then spreads to my face, neck, shoulders, elbows, knees and an...
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msmary15Jun 27, 2015
manitobaSep 17, 2011
Dr Santos May 13, 2010
rkolkMay 12, 2010
gigicarn1940Jan 06, 2009
5
By molly5673 Blank
Has anyone on here every been told that they have Polymyalgia Rheumatica? I cant find anyone. My dr says I have it....
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crazyjessieJun 22, 2015
FasilaApr 01, 2013
Dr Santos Jul 31, 2011
JCV7856Jul 30, 2011
Dr Santos Mar 29, 2010
10
By icedolphin22 Blank
For the past two weeks I have noticed my cuticles a very pink color. Then four days ago I took off my socks at the en...
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Rajnair7Jun 22, 2015
Cha06Jun 13, 2015
helpinglpFeb 23, 2015
sexynomoreMay 10, 2014
nananxyzMar 22, 2013
9
By venkii Blank
I am 25 year old gentleman, one thing has been ruining my life for the last 12 to 15 years, that foul smell is coming...
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By Koko_Austin Blank
Hello I have been having this occasional mild sensation, (i don't want to call it pain) in my lower abdomen, close...
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By caverlady Blank
I have been spending many sleepless nights lately. Shortly after I go to sleep, I am awakened by pain in my legs. Th...
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By UmarSid Blank
Hi I am Umar n i'm 17 i have problem of feeling pressure in my throat head nose all over my head when i talks sings d...
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SmithSmytheSmythJun 12, 2015
DavidEberhardtJul 22, 2009
Dr. Kokil Mathur Jul 22, 2009
3
By DavidEberhardt Blank
Since I was eight years old, my tonsils occasionally have been secreting white lumps of material. In some stressful ...
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Yvonne2014Jun 07, 2015
Yvonne2014Feb 18, 2015
Yvonne2014Feb 18, 2015
KFS32Dec 03, 2014
KFS32Dec 03, 2014
5
By Yvonne2014 Blank
So I went to my follow up for c.t scan results and hey guess what they found no kidney problem at all hence the probl...
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selmaSJun 03, 2015
1
By LaurieDK Blank
Where can I find info for my Primary Doctor? And where can I find info about the prognosis? Any rare disease r...
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By mpuppy2000 Blank
For the past three days I have had the hiccups. They have been sporadic, but tend to last 3 to 4 hours or more at a ...
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selmaSJun 01, 2015
1
By Paigeb5 Blank
Hi all. I'm new to the website. I've been experiencing an onset of symptoms for a little over a year Now. I tryed po...
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By GrandmaShirley Blank
I have pain in my left buttocks. Sometimes I have pain in my upper leg on left. Sometimes I have pain in my lower l...
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Castor_oil_userMar 01, 2014
annierossmanFeb 11, 2014
KattamakiJun 13, 2013
BabswubyJun 12, 2013
KattamakiApr 19, 2013
24
By Kattamaki Blank
Could someone tell me if there are any reports of the prognosis of Dercums disease or lipomatosis dolorosa? This illn...
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