Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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Justin9711Apr 07, 2014
sibanezApr 03, 2014
Justin9711Mar 22, 2009
PlateletGalMar 20, 2009
5
By Justin9711 Blank
Hi everybody. I was hoping somebody could give some tips about a condition that has slowly grown worse over the past ...
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By tbtlw50
I would like to contact anyone who is living with Hereditary Spherocytosis and still has their gallbladder and spleen...
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By woainimtz101
In December 17th of 2013 my little sister was admitted into the hospital for symptoms of what appeared to be stroke l...
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maatsonFeb 26
1
By Portia2012 Blank
About three years ago I started getting short of breath when walking, a slight cough, and almost fainting. My primary...
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maatsonFeb 26
1
By Tawanyh Blank
Hello, I was wondering if you could help me figure out what could this be: she's been having these symptoms: Mout...
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LadymeukOct 26, 2014
Ed276Sep 28, 2012
Dr. Kokil Mathur Jul 30, 2009
6
By Betsy688 Blank
Hi, I sometimes have severe leg pain at night that radiates from the back of my knees. I have always been told it is ...
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3
By Momonamission81 Blank
My daughter (8yo) was diagnosed with PFAPA 3 years ago. She had a t&a and the symptoms went away. About a year ago sh...
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HeiferlyFeb 21
1
By NicksMoomy Blank
Hi everyone. I am 30 years old, and for the last year, maybe a few months longer, I have had these weird spells where...
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HeiferlyFeb 21
1
By danell_de_bruyn Blank
Hi Throughout my entire life I have felt like I have over sensitive fingertips, wrists and feet. Its I feeling I do...
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afraidinVAJul 18, 2014
Dr Santos Jul 07, 2010
3
By msneedhelp Blank
Please help me.. I have started feeling like there is something crawling under my skin.. I first felt it on my arms...
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Cherie762Sep 09, 2008
LG0526Sep 07, 2008
dr_simranSep 07, 2008
4
By LG0526 Blank
I am desperately seeking help for my symptoms. I have been out of work for over a month and don't seem to be any bet...
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azel13Jan 31
lyn1235Jul 17, 2014
johnnie199164Sep 29, 2013
itsme156Jan 18, 2013
22yroldfemaleMar 12, 2011
9
By foreverinfaith60 Blank
I have Liddle Syndrome,and it is a very rare kidney disease. Very few Doctors know about it. It is passed through fam...
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By springcolor Blank
Male, 45, was diagnosed with Mesenteric fibromatosis in March, 2014. The tumor was completely removed by surgery. 4 m...
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swampcritterJan 10, 2009
rika92Jan 10, 2009
Diana190Jan 10, 2009
Cherie762Jan 09, 2009
17
By Diana190 Blank
Please help me ! Very soon I'll be out of my mind, completely crazy. These musical hallucinations started in October ...
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maatsonJan 22
1
By lelam35 Blank
We recently found stretch marks in the middle of my 14 year old back she is thin and about 5 ft 5 in. I've never seen...
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By amber_240 Blank
is there methadone programs that still also use lamm for treatment for opioid addiction in maryalnd
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By ladygmfd1 Blank
Hi...I have the worst ache in my legs at night! they are so bad, I cannot remember when I have slept through the nig...
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maatsonJan 18
1
By Elequenaosabe Blank
I've been having some symptoms for over half a year now, and I'm very concerned about what all of this might be. I do...
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By kaitlotus Blank
ive been a single parent now for nearly 3 years.i have had not a single partner intimately since the last time i was ...
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1
By AbhinavDhamaniya Blank
Hello guys. I am 17 now and tallest guy in my class. My height is 6 foot 1 inch (186 cms), which is too much for my a...
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Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
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Top Rare Diseases Answerers
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selmaS
Allentown, PA