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Rare Diseases Community
This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.
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please help!? i have this strange burning sensation all over my body for 2 years now it will always be only on the one side of my body it...
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This is a bit long and complicated, but I beg you, please read and help if you can - my life may depend on it. My name is Heather, I'...
10 answers |
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I feel so helpless....wait aND see is not comfortible for me. What do others do? nd
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My baby had multiple seizures a few hours after birth. His MRI scans showed his brain cells were dying off quickly in multiple areas of t...
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Her symptoms are Nausea, stomach pain, dizziness, headaches ( these come and go) She is always in pain, her muscles are getting weak ( th...
1 answer |
Avatar universal
I am a 21 year old female, and I've had constant leg pain since I was little. When I was little I use to always get growing pains in my l...
1 answer |
Avatar universal
I have muscle spasms, twitches, severe weakness in arms, legs, hands, feet, trouble swallowing, sinus and ear pain, with bladder pain, do...
2 answers |
Avatar universal
I was born with Microphthalmia which literally means "small eye" and since birth I've been wearing an artificial eye "prosthetic". I don'...
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tjq
my right arm and hand are losing muscle and control 2 MRI'S came out negitive neck shoulder and quad chest right side. What could be the ...
5 answers |
Avatar universal
I first noticed a slight dent in the inner portion of my right pec muscle about 5 years ago. Today I am missing half of my pec as it cont...
Avatar universal
Hello my age is 63, approximately two months back I developed acute abdomen pain, I was diagnosed my gall bladder stones and inflammation...
Avatar universal
I am searching for answers to a male flushing issue which has been going on for 3 years now. I am a 51 year old male. In shape, blood pre...
8 answers |
Avatar universal
I had a bug behind my eye and it turned into a worm that was in my veins.it stared behind my eye but it was everywhere, its been about 3 ...
14810149 tn?1436664593
I have leg pains not sure how to describe it.. The pain only goes away if I push against something like my bed frame when i had a water b...
Avatar universal
Hello and thank you to anyone who reads this! I recently had been hospitalized by my neurologist to help find out whats wrong wi...
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Hi there , I had severe leg pain last night and couldn't sleep too well. The pain was on my upper thighs and my hips. I am a litlle c...
Avatar universal
For most of my life, I was an athlete. I ran marathons, cross-country, played football and almost all sports. I was always outside, an...
5 answers |
Avatar universal
Read this if you have dercums disease. http://m.aol.com/article/2015/06/04/this-stunning-discovery-about-the-brain-will-have-s...
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I am 28 years old and female. I have been struggling with these symptoms every day for over five years. My symptoms cause me discomfort a...
Avatar universal
Hey everyone i would like to ask if i will put myself in rabies risk in this situation, i was walking in our office and accidentally hit ...
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