Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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afraidinVAJul 18, 2014
Dr Santos Jul 07, 2010
3
By msneedhelp Blank
Please help me.. I have started feeling like there is something crawling under my skin.. I first felt it on my arms...
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Cherie762Sep 09, 2008
LG0526Sep 07, 2008
dr_simranSep 07, 2008
4
By LG0526 Blank
I am desperately seeking help for my symptoms. I have been out of work for over a month and don't seem to be any bet...
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azel13Jan 31
lyn1235Jul 17, 2014
johnnie199164Sep 29, 2013
itsme156Jan 18, 2013
22yroldfemaleMar 12, 2011
9
By foreverinfaith60 Blank
I have Liddle Syndrome,and it is a very rare kidney disease. Very few Doctors know about it. It is passed through fam...
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By springcolor Blank
Male, 45, was diagnosed with Mesenteric fibromatosis in March, 2014. The tumor was completely removed by surgery. 4 m...
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swampcritterJan 10, 2009
rika92Jan 10, 2009
Diana190Jan 10, 2009
Cherie762Jan 09, 2009
17
By Diana190 Blank
Please help me ! Very soon I'll be out of my mind, completely crazy. These musical hallucinations started in October ...
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maatsonJan 22
1
By lelam35 Blank
We recently found stretch marks in the middle of my 14 year old back she is thin and about 5 ft 5 in. I've never seen...
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By amber_240 Blank
is there methadone programs that still also use lamm for treatment for opioid addiction in maryalnd
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By ladygmfd1 Blank
Hi...I have the worst ache in my legs at night! they are so bad, I cannot remember when I have slept through the nig...
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maatsonJan 18
1
By Elequenaosabe Blank
I've been having some symptoms for over half a year now, and I'm very concerned about what all of this might be. I do...
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By kaitlotus Blank
ive been a single parent now for nearly 3 years.i have had not a single partner intimately since the last time i was ...
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1
By AbhinavDhamaniya Blank
Hello guys. I am 17 now and tallest guy in my class. My height is 6 foot 1 inch (186 cms), which is too much for my a...
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By johnyboy92 Blank
Hello, My cat recently developed a cut on it's back about 3 or 4 days back. Not sure if he was in a fight or was c...
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Dr Santos Jan 18, 2010
2
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By Rustyhd13 Blank
I have been having pain in my left arm, around the elbow, how this morning when I woke up it feels swollen and my han...
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By enforcernm Blank
I have been having significant leg pain in one leg (right) at night for the past 2 months. Usually starts behind the...
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By sabinaandricovich Blank
I have toe fungus but the real problem is the pain in both big toes I had an ingrown toe nail removed from one toe ...
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maatsonJan 03
1
By jusselneo Blank
Hi there, I've been experiencing this skin problem since i was 12. I am 20years old now. The problem seemed to be mor...
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timmanrobDec 30, 2014
mike2111May 30, 2012
2
By adriank2k Blank
I have deep wrinkles on top of my scalp, at first i thought it had to do with the fact im a little overweight but i w...
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Rangr90Dec 29, 2014
1
By mhuser11 Blank
Hi, I am 29 yr old male and I have recently realized there is a small lump on left side of my anus (on the photo it i...
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starwarsstefDec 29, 2014
lizzylyn64Apr 10, 2014
DInygJun 30, 2013
Dr Santos Mar 20, 2013
4
By Brailum Blank
I have had Dercums Disease for many years but this is the first time I have heard anyone say about Type 11 or other t...
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By sleepmonster Blank
when I get stressed out, or when I do any physical, mental work,....basically whenever I am active, some heat is gene...
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Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
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New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
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Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank