Rare Diseases Community
This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.
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baffled123Feb 19
1
By baffled123 Feb 19, 2013
I've had it all my life.The dent in the middle of my head is from the top of the occipital bone to the middle of the ...
By ccal Feb 05, 2013
Hello!
I am male, 30 years old and really hope someone has an advice for me.
I have already been to a dermatologist...
gaskellFeb 17
Lizbeth1219Aug 02, 2012
Jodie379Jun 26, 2012
rosaprettymamaMay 03, 2012
allmymarblesJan 28, 2011
11
I have had the trigger points of fibromylgia with wide spread pain. I also have painful knots, lumps, some are not p...
By Sue1431 Feb 11, 2013
I have recently experienced a sudden weakness in my left hand and leg. I first noticed it in my hand in the am when ...
1
By rachphillips Feb 08, 2013
Hi I'm 25 and I have Idiopathic granulomatous mastitis it Started in sepetember of 2012 with a hard lump 10 cm by 8 ...
1
By SisN13 Feb 09, 2013
my dr used nylon sutures on the inside of a muscle flap and now they are working their way out. needless to say they...
1
By AuA7x Feb 09, 2013
Im 17,and i suffered from this thing since I was 2 and a half.
I cant walk properly,my arms and legs arent straight....
1
By Stacey7705 Feb 14, 2013
Good Morning
I wonder if someone can help and give me advice? I have been suffering for 20 years and approx 15/20 o...
By Arqam Feb 11, 2013
My 15 years old cousin feels breathing problem so admited in hospital at 12:30am. BP 11O/90, PR 130, TEMP 98. She giv...
By judithkayr Feb 14, 2013
DOES MGUS HAVE ANY CONNECTION TO MTHFR DNA ANALYSIS RESULTS OF TWO IDENTIFIED MUTATIONS, C577T AND A1298C? IF ONE RE...
kateinazFeb 13
1
I noticed a soft pea size lump above/on my left collar bone about 3 days after getting the flu shot and am wondering ...
selmaSFeb 10
1
By Arasevera Feb 10, 2013
I've seen specialists 2x now for my autonomic nervous system dysfunction that was dx'd after a 4 day hospital stay la...
fugue79Feb 09
2
By fugue79 Feb 05, 2013
Last evening I got the news from my neurologist that I have a tapeworm infection that has spread to my brain (cerebel...
Red_StarFeb 09
1
By justinwj40 Feb 05, 2013
I just got out of the hospital with Pancreatitus. This is about the 5th time in about the last 8 years I have had th...
4
By Birdiewinters Feb 07, 2013
I'm 15 and recently (about November 2012) I developed a sort of writing dyslexia. And when I try to slow down and foc...
grendsloriFeb 05
maatsonJan 29
2
By purakitty Jan 20, 2013
I'm going to a neurologist on Tuesday to determine what's wrong with me, but I exhibit many symptoms of epilepsy, yet...
grendsloriFeb 05
2
By byrag Jan 29, 2013
I am a 70 yr old male and have had problem with chronic naseau and vomiting for about a year and a half now. My famil...
By bes4556 Feb 01, 2013
I have had it for over 5 years, and it is getting worse... it started on my chest and now it is spreading up my neck...
By ShellyC23 Jan 28, 2013
Docs think I probably have this disease but as there are less than 600 reported cases worldwide I just wondered if an...
Rare Diseases Community Resources
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