Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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starwarsstefDec 29, 2014
lizzylyn64Apr 10, 2014
DInygJun 30, 2013
Dr Santos Mar 20, 2013
4
By Brailum Blank
I have had Dercums Disease for many years but this is the first time I have heard anyone say about Type 11 or other t...
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By sleepmonster Blank
when I get stressed out, or when I do any physical, mental work,....basically whenever I am active, some heat is gene...
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By Cshad Blank
I've been having pain in my right ear/temple area and in my right jaw, and also a bad taste in my mouth and a faint b...
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eagles83Dec 14, 2014
1
By eagles83 Blank
What are all causes for multiple allergies? I have many many allergies to different pollens and different foods. ...
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JBernadetteDec 14, 2014
Dr Santos Nov 21, 2012
2
By Jessey999 Blank
Please help! I hurt everywhere, every day. I've had specific issues, all starting around the beginning of this year, ...
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archel5Dec 10, 2014
Foggy2Sep 21, 2014
pjmorganSep 09, 2014
Foggy2Sep 08, 2014
4
By pjmorgan Blank
I have leg pain in bed at night
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By Zzdog Blank
I am 50 very active in tennis and cycling and for the last few months I have been having shin pain in my left leg w...
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By luigimario Blank
I have a question about rabies that someone will hopefully be able to answer. Last night a raccoon walked onto my por...
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Alex2001HoustonDec 03, 2014
FurballsMomOct 31, 2009
2
By Ketch12 Blank
I have chronic fatigue, neuropathy in my left leg, chronic long lasting sinus infections (even with antibiotic treatm...
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By CVSgirl1102 Blank
I was recently diagnosed with Somatization (which I know is a psycho-somatic disorder), and before that I was told I ...
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By Blueeyes1950 Blank
For the past several months i have had left leg pain occuring only at night when i sleep on my side....however when i...
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QueendebNov 24, 2014
sheleneApr 20, 2012
CaskalJun 25, 2011
MzFayeMar 31, 2011
glorybellDec 09, 2010
8
By brookie1 Blank
Please provide information on warning signs, treatment, and prognosis for this horrible disease.
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By bellly Blank
My mom feel like there things walking all over her body and sand in her head and she can't take it anymore can you te...
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anoama1Nov 17, 2014
1
By chrissychongs Blank
Ok I sweat a lot more than most people, when I eat food and walk around the end of my nose drips with sweat like a ta...
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By ShouldB7 Blank
My symptoms and health issues over the last 6 years chronologically: Sudden major low thyroid function: diagnosis...
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By jezzahra Blank
Hi there, I'm currently experiencing a variety of problems. Im a 30 year old male and was fit and healthy until thi...
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By KUL2014 Blank
I got this test result at 14.20KU/L, recurring severe upper respiratory inf, antibiotics showing no results, please g...
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Katwin60Nov 02, 2014
Dr Santos Mar 31, 2010
2
By JackieWeh Blank
I am an adopted 43 year old female with flanking chronic pain on the left side. Have been diagnosed with HBP, blood ...
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Dr Santos Apr 04, 2011
1
By pennymac Blank
I have just been told ive Mesntiteric Pannculitlis and have been trying to manage it with Panadine Fort which is not ...
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onefineseamstresOct 21, 2014
1
By bluebird133 Blank
My mom had metastatic uterine leiomyosarcoma. Does that diagnosis have anything to do with the lung cancer she died ...
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