Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

Font Size:
A
A
A
Sort by:
Last Post
Date Started
Background:
Blank
Blank
Blank
Avatar m tn
By Glenelg10 Blank
Why do I get a bunrning sensation in my legs
Avatar m tn
By Glenelg10 Blank
I have back pain across the bottom of back which radiates down front both side of stomach to also have burning sensat...
Avatar m tn
By Glenelg10 Blank
I have burning above ankles not hot to feel my g p has carried out blood tests which are negative
Avatar n tn
msmary15Jun 27, 2015
manitobaSep 17, 2011
Dr Santos May 13, 2010
rkolkMay 12, 2010
gigicarn1940Jan 06, 2009
5
By molly5673 Blank
Has anyone on here every been told that they have Polymyalgia Rheumatica? I cant find anyone. My dr says I have it....
Avatar m tn
crazyjessieJun 22, 2015
FasilaApr 01, 2013
Dr Santos Jul 31, 2011
JCV7856Jul 30, 2011
Dr Santos Mar 29, 2010
10
By icedolphin22 Blank
For the past two weeks I have noticed my cuticles a very pink color. Then four days ago I took off my socks at the en...
Avatar n tn
Rajnair7Jun 22, 2015
Cha06Jun 13, 2015
helpinglpFeb 23, 2015
sexynomoreMay 10, 2014
nananxyzMar 22, 2013
9
By venkii Blank
I am 25 year old gentleman, one thing has been ruining my life for the last 12 to 15 years, that foul smell is coming...
Avatar m tn
By Koko_Austin Blank
Hello I have been having this occasional mild sensation, (i don't want to call it pain) in my lower abdomen, close...
Avatar n tn
By caverlady Blank
I have been spending many sleepless nights lately. Shortly after I go to sleep, I am awakened by pain in my legs. Th...
Avatar m tn
By UmarSid Blank
Hi I am Umar n i'm 17 i have problem of feeling pressure in my throat head nose all over my head when i talks sings d...
976511 tn?1248276741
SmithSmytheSmythJun 12, 2015
DavidEberhardtJul 22, 2009
Dr. Kokil Mathur Jul 22, 2009
3
By DavidEberhardt Blank
Since I was eight years old, my tonsils occasionally have been secreting white lumps of material. In some stressful ...
Avatar f tn
Yvonne2014Jun 07, 2015
Yvonne2014Feb 18, 2015
Yvonne2014Feb 18, 2015
KFS32Dec 03, 2014
KFS32Dec 03, 2014
5
By Yvonne2014 Blank
So I went to my follow up for c.t scan results and hey guess what they found no kidney problem at all hence the probl...
Avatar f tn
selmaSJun 03, 2015
1
By LaurieDK Blank
Where can I find info for my Primary Doctor? And where can I find info about the prognosis? Any rare disease r...
Avatar m tn
By mpuppy2000 Blank
For the past three days I have had the hiccups. They have been sporadic, but tend to last 3 to 4 hours or more at a ...
Avatar f tn
selmaSJun 01, 2015
1
By Paigeb5 Blank
Hi all. I'm new to the website. I've been experiencing an onset of symptoms for a little over a year Now. I tryed po...
Avatar m tn
By GrandmaShirley Blank
I have pain in my left buttocks. Sometimes I have pain in my upper leg on left. Sometimes I have pain in my lower l...
Avatar f tn
Castor_oil_userMar 01, 2014
annierossmanFeb 11, 2014
KattamakiJun 13, 2013
BabswubyJun 12, 2013
KattamakiApr 19, 2013
24
By Kattamaki Blank
Could someone tell me if there are any reports of the prognosis of Dercums disease or lipomatosis dolorosa? This illn...
Avatar f tn
By hakan1 Blank
Hi I will talk about my medical issue and how I fix it. I have a right atrium tachicardia since almost 15 years. ...
Avatar f tn
SusanSavardMay 20, 2015
DamienDJan 24, 2015
pamelalaAug 17, 2014
noba19Sep 07, 2013
75dryzalJan 01, 2012
10
By noba19 Blank
i have been suffering from internal heat. the external body temperarture is normal. this usually around my neck and h...
Avatar m tn
MN_Autonomic_GalMay 19, 2015
1
By Ljk111 Blank
Hi, my 11 year old daughter has started complaining about pain in her achilles. It only pains when she sleeps and for...
Avatar f tn
By GRACIE1104 Blank
I GET TOP OF THIGH PAIN ONLY AT NIGHT HAVE TRIED OTC MEDS, SALVES BUT NOTHING SEEMS TO HELP
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Rare Diseases Community Resources
RSS Expert Activity
233488 tn?1310696703
Blank
Marathon Running Done Over Many Yea...
05/15 by John C Hagan III, MD, FACS, FAAOBlank
233488 tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
05/15 by John C Hagan III, MD, FACS, FAAOBlank
748543 tn?1463449675
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank