Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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selmaSJan 01
1
By wingnutt
I'm confused and lost for answers! 47 yrs old Chiari Malformation, Fibromuscular Dysplasia of Carotid and Vetebral Ar...
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Zo10Dec 23, 2013
CaryopterisDec 23, 2013
2
By Zo10
I recently have been to the doctors 4 times in the past 5 weeks I have been tested for Gonorreah chlmydia trichmonis ...
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Verymotivated1Dec 22, 2013
selmaSDec 15, 2013
2
By Verymotivated1
I'm a 30 yr. old female not overweight used to be pretty active until July 29th 2013! I wont go thru everything and ...
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Lazio1982Dec 12, 2013
KidzrgratNov 21, 2013
FranzuaOct 17, 2013
FranzuaOct 17, 2013
Kmn1115801Aug 20, 2013
20
By Jamie126 Blank
I've been having left leg pain - only at night. The pain is dull, nagging pain throughout my entire leg that doesn't...
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luckyman316Dec 08, 2013
1
By luckyman316
I'll backtrack a little bit. Was always perfectly fine, never was really "sick" and such. Always got out. In June, I ...
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flipper336Dec 06, 2013
BobbyRobbyDec 05, 2013
2
By assu
I am well grow boy my height is6feet7inch.but my penis is very small almost 3inch.I am virgin. Will my penis increase...
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Robbie989Dec 05, 2013
MtlqcAug 07, 2013
kizzie007May 16, 2013
delightbSep 24, 2012
brookiered007Nov 16, 2010
10
By RBK42 Blank
for over a week now, I have been suffering from random swelling. It started with the right side of my lower lip. ov...
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SuksterDec 02, 2013
rowdyrose77Jan 06, 2011
Dr Santos Jan 05, 2011
rowdyrose77Jan 03, 2011
rowdyrose77Dec 17, 2010
7
By rowdyrose77 Blank
For the last two weeks I've been waking up with a lot of pain in my legs. The pain it's so bad that it wakes me up a...
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Jay_476Dec 01, 2013
Dr Santos Nov 30, 2013
2
By Jay_476
Not sure if this is we're to post or not but here it goes, I'm a 23 year old male and I've been having this weird sym...
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Dr Santos Nov 30, 2013
1
By siouxiemo
friend has very low blood platelets, vomiting, blood in urine, fatigue, sores on his skin.
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Dr Santos Nov 30, 2013
1
By KKCAL
What do you think for Prader Willi Syndrome, Being 55 male , I remember some of episodes during childhood- Late Spee...
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Dr Santos Nov 30, 2013
1
By Tinker35
My 10-yr-old adopted son was diagnosed Wednesday (by a pediatric geneticist) with Russell-Silver Syndrome. Secondary ...
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Dr Santos Nov 30, 2013
1
By vishalc
I am from India, a week ago I was sitting waiting for a bus this dog came around and started sniffing me, I had kept ...
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Dr. Kokil Mathur Nov 30, 2013
1
By klm47941
i have a burning sensation at the tip of my penis,and also a sticking sensation on the tip of my penis,what symptoms ...
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cerna0rNov 28, 2013
Dr Santos Oct 31, 2013
2
By cerna0r
So this past monday afternoon my brother and I went outside to skateboard. We went through the woods to get to a spot...
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traveler69Nov 28, 2013
yrdarlin1Apr 17, 2013
JenSaltApr 19, 2011
JenSaltApr 19, 2011
JenSaltApr 19, 2011
9
By JenSalt Blank
For 17 years off and on I have suffered some very debilitating and often horrible symptoms lasting between 4 to 14 da...
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CaryopterisNov 20, 2013
vedadharNov 20, 2013
2
By auntpatti
My aunt has had her entire Vulva removed and is having difficulty controlling her urine stream. Is there something o...
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AirdaleNov 19, 2013
Dr Santos Nov 18, 2013
2
By Airdale
I developed malaria in Vietnam in the late 1960s. Last Christmas I had one vodka tonic which I never drink. About two...
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selmaSNov 19, 2013
edavoudiNov 19, 2013
selmaSNov 11, 2013
3
By edavoudi
I am a 35 year old female, live in the bay area. I have had diarrhea for almost two years. Throw up most mornings...
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Dr Santos Nov 18, 2013
1
By tracieb
Hi. Ive been very sick for two years now. I was diagnosed with a uti (ecoli) two years ago and I continue to battle w...
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How to Silence Your Inner Critic an...
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Emotional Eaters: How to Silence Yo...
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selmaS
Allentown, PA