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Rare Diseases Community
This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.
101 - 120 (of 3779) questions
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My 14 year old son has been throwing up for at least two weeks out of every month for the past ten months. He wakes in the middle of the ...
1 answer |
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I am a mother of an otherwise healthy 17 y/o male who has been recently diagnosed with Necrotizing myopathy without inflammation. Based o...
3 answers |
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I was diagnosed with a hepatic cyst around a month ago as well as a 2mm kidney stone and GERD. My concern is the liver. I was given 500mg...
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My son is 15 we surfaced some stretch marks on his back few months before and overlook as he develop height so we were hoping that will d...
1 answer |
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Does anyone have symptoms from all kinds of autoimmune diseases with negative results
1 answer |
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My 13 year daughter for the past 2 weeks have been complaining about severe left leg pain. she is not a child that weeps in pain but tho...
1 answer |
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i am perfectly healthy and uninjured. Every night I wake up around 3 or 4 in the morning with pain in my left leg. the pain is inside of...
3 answers |
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Why does no doctor in salt lake city utah know about this disease. They are guessing on how to treat it people are dieing from this dis...
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This may not be the right forum but I'm trying several in search for some desperately needed advice on prednisolone. I had toxoplasmosi...
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I have had Dercums Disease for many years but this is the first time I have heard anyone say about Type 11 or other types. How do you kno...
5 answers |
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Hello I'm a 21 yr old female...looking for some answers. My case is a bit complicated and I'm seeing a neurologist, but no one has...
2 answers |
Avatar universal
please help!? i have this strange burning sensation all over my body for 2 years now it will always be only on the one side of my body it...
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My son (14) has recurrent croup with a barky cough, neck swelling and loose stools off and on throughout the infection. He gets these ep...
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Hi I have had chronic right leg pain right on my thigh area only at night for about three months now it's all around the back of my knee ...
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52 yr. old white male lost over 100 lbs in 8 months,1,swollen lymph node in groin ,biopsy in 5 nodes no malignancy.complete loss of appit...
5 answers |
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I don't know if I should be concerned but every now and then, I get this pressure in my brain/ head that lasts for only 10-20 seconds, th...
1 answer |
Avatar universal
please help!? i have this strange burning sensation all over my body for 2 years now it will always be only on the one side of my body it...
Avatar universal
This is a bit long and complicated, but I beg you, please read and help if you can - my life may depend on it. My name is Heather, I'...
9 answers |
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I feel so helpless....wait aND see is not comfortible for me. What do others do? nd
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My baby had multiple seizures a few hours after birth. His MRI scans showed his brain cells were dying off quickly in multiple areas of t...
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