Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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By giasroom Blank
I have a family member who has something wrong with her and the doctors she has been going to have not had any answer...
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Hdonohue80Aug 18, 2014
maatsonAug 18, 2014
Hdonohue80Aug 18, 2014
maatsonAug 18, 2014
Hdonohue80Aug 18, 2014
10
By Hdonohue80 Blank
I have had rt thigh, calf and hip edema since 1/14. It came on out of nowhere. No injury. Neg for DVT, neg MRI for ma...
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By tomjene Blank
if u r on tramadol STOP I beg you. I lost my 23 yr old daughter less than a year out of nursing school and a few mo...
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guy7hsimAug 18, 2014
selmaSApr 02, 2014
2
By SewinKy Blank
My daughter was diagnosed with hypohydrosis / anhydrosis. it's Spring, which in Kentucky quickly turns to Summer. ...
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By RCruz Blank
I have been seeing a eye Retina Specialist since May 2014 for a unknown benign tumor in my eye causing blood vessels ...
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pray4peaceIsraelAug 16, 2014
1
By dhruvi118 Blank
Hi I.am 20years old female . I.am suffering from constant hunger in day time n night as well. . And I cannot resist...
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maatsonAug 14, 2014
blueskies31Aug 12, 2014
maatsonAug 12, 2014
3
By blueskies31 Blank
Hello, While taking a bath this morning I accidentally got a lot of water up my nose when attempting to rinse my h...
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By Sgriego Blank
What is areata alopecia
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By Steve9606 Blank
can clindamycin treat mersa?
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By Potsandpans Blank
Hi. I've been having pains in my upper right leg for quite a while now. It's on the right side of my right leg close ...
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By MaryAnda Blank
I am a 35 year old overweight woman whose legs swell all the time. I have had my heart valve replaced for about ten ...
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By MaryAnda Blank
My nine year old was just diagnosed with Autism and has been diagnosed with ADHD since he was six. We are just notici...
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MaryAndaAug 08, 2014
Dr Santos Nov 05, 2011
maatsonOct 26, 2011
maatsonOct 26, 2011
MaryAndaOct 26, 2011
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By MaryAnda Blank
I am 33 years old and have had two heart surgeries for MVP. I currently have an artificial heart valve and take Jant...
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By xiulishanshui Blank
Dear Dr Santos,I am a man from China,I go to hospital for my eye problem,the doctor touch my palpebra interna by her ...
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By Syd_16_ Blank
I'm a 16 year old female. I have what feels to be a 3 in. lump under the muscle of the right side of my neck that's b...
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JNCL14Jul 31, 2014
AKchicNov 14, 2010
Dr Santos Sep 26, 2010
bluedevil167Sep 23, 2010
bluedevil167Sep 23, 2010
17
By lorih1220 Blank
My 15 year old son has had marks, which look like stretch marks, on his back for 6-8 months. He is tall and slim and ...
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By 5kidsnbusy Blank
My brother is in a facility and has had his gallbladder removed and sense has pancreatitis and hepatitis c. How is th...
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By LMazal Blank
I have developed 6th nerve palsy (diagnosed by my surgeon) after a brain tumor removal. Apparently the skull base ...
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Delerious_9Jul 27, 2014
NME4483Jul 26, 2014
Dr Santos Jun 03, 2014
3
By tgent99 Blank
I am a 33 year old male. Never had any health problems up until... About 2 1/2 years ago I began getting tingling ...
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By blade2093 Blank
Hello heres my question. I am a 36 year male who was diagnosed with brugada type 1. I have throughout my life have a ...
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