Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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MegadodgerSep 17, 2014
1
By orleon Blank
Hello, I was with my friend playing with his puppy. When i was holding him and was going to fall i guickly grab hi...
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KimmerbeSep 16, 2014
faultydnaJun 10, 2014
faultydnaJun 10, 2014
Dr Santos Jun 03, 2014
4
By faultydna Blank
Have you ever seen vitiligo as circular patches on the breast? I was diagnosed with vitiligo however my dermatologist...
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selmaSSep 15, 2014
1
By Tooyoungtobesick Blank
I have night sweats, occasional chills tht can last anywhere from 10min to an hour and recently wen I took my temp du...
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Jayo76Sep 10, 2014
Jayo76Sep 10, 2014
RJ233Oct 31, 2008
RJ233Oct 31, 2008
4
By Nicky269 Blank
Dear Ms. or Sir, I have a parasitic infection that is not limited to my digestive system. Having seen a specimen un...
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M_NmommySep 08, 2014
selmaSSep 05, 2014
2
By onlythefamily Blank
I am pregnant with twins and was told today that after my amniocentesis results came back that my babies have Trisomy...
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Foggy2Sep 08, 2014
1
By enchilada Blank
What can I buy over the counter antibiotics for drity urine infection.
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Foggy2Sep 08, 2014
1
By minzhu1987 Blank
Hi, my mom is 72 years old and had the PPSV shot 18 days ago after which she had constant fever (low temperature abov...
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Foggy2Sep 07, 2014
1
By Sheila95 Blank
I was diagnosed with Rocky Mountain Spotted Fever and have to take Doxycycline and flatly, I have been directed to st...
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selmaSSep 05, 2014
1
By Kiadawn Blank
My 26 yr. old nephew has a large red circle with a lighter circle in the middle, and no apparent symptoms. It really ...
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By Elsilyn Blank
What might cause a deep throbbing pain, pulsing every three seconds not made better or worse by changing position? ..
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cheybaraAug 31, 2014
Dr Santos Apr 04, 2011
kristy545Apr 04, 2011
Dr Santos Apr 03, 2011
Dr Santos Apr 03, 2011
5
By kristy545 Blank
I have expereinced something since I was five years old. Off and on throughout my entire life. The last time I expere...
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lcarrollAug 26, 2014
Kmn111Aug 13, 2014
PotsandpansAug 09, 2014
Lazio1982Dec 12, 2013
KidzrgratNov 21, 2013
23
By Jamie126 Blank
I've been having left leg pain - only at night. The pain is dull, nagging pain throughout my entire leg that doesn't...
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maatsonAug 25, 2014
1
By killmenow77 Blank
i had 3 cancer surgeries, 2 heart attacks 6 weeks later and a stroke. please tell me how to die without all this mes...
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kristy12Aug 24, 2014
1
By 6096giulia Blank
I really need help. I have been feeling unwell for a few months now. Thought it may have been the start of a virus in...
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fifinaz3434Aug 22, 2014
traveler69Nov 28, 2013
yrdarlin1Apr 17, 2013
JenSaltApr 19, 2011
JenSaltApr 19, 2011
10
By JenSalt Blank
For 17 years off and on I have suffered some very debilitating and often horrible symptoms lasting between 4 to 14 da...
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By Lauren4Jesus Blank
I am experiencing sensations in my head neck and chest area that last for days then goes away then comes back. It fee...
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DebbieqAug 19, 2014
RheumatologyJul 15, 2014
RheumatologyJul 15, 2014
RheumatologyJul 09, 2014
Camile33469Apr 19, 2013
5
By Camile33469 Blank
About a year and a half ago I took a hormone called hcg sublingually for weight loss purposes. After wards I began to...
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By giasroom Blank
I have a family member who has something wrong with her and the doctors she has been going to have not had any answer...
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Hdonohue80Aug 18, 2014
maatsonAug 18, 2014
Hdonohue80Aug 18, 2014
maatsonAug 18, 2014
Hdonohue80Aug 18, 2014
10
By Hdonohue80 Blank
I have had rt thigh, calf and hip edema since 1/14. It came on out of nowhere. No injury. Neg for DVT, neg MRI for ma...
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By tomjene Blank
if u r on tramadol STOP I beg you. I lost my 23 yr old daughter less than a year out of nursing school and a few mo...
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TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
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Abdominal Aortic Aneurysm-treatable... Blank
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The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank