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Rare Diseases Community
This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.
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Avatar universal
Hello and thank you to anyone who reads this! I recently had been hospitalized by my neurologist to help find out whats wrong wi...
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Hi there , I had severe leg pain last night and couldn't sleep too well. The pain was on my upper thighs and my hips. I am a litlle c...
Avatar universal
For most of my life, I was an athlete. I ran marathons, cross-country, played football and almost all sports. I was always outside, an...
5 answers |
Avatar universal
Read this if you have dercums disease. http://m.aol.com/article/2015/06/04/this-stunning-discovery-about-the-brain-will-have-s...
Avatar universal
I am 28 years old and female. I have been struggling with these symptoms every day for over five years. My symptoms cause me discomfort a...
Avatar universal
Hey everyone i would like to ask if i will put myself in rabies risk in this situation, i was walking in our office and accidentally hit ...
Avatar universal
Why do I get a bunrning sensation in my legs
Avatar universal
I have back pain across the bottom of back which radiates down front both side of stomach to also have burning sensations in legs ankles ...
Avatar universal
I have burning above ankles not hot to feel my g p has carried out blood tests which are negative
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Has anyone on here every been told that they have Polymyalgia Rheumatica? I cant find anyone. My dr says I have it. I dont believe him...
5 answers |
Avatar universal
For the past two weeks I have noticed my cuticles a very pink color. Then four days ago I took off my socks at the end of the day and my ...
10 answers |
Avatar universal
I am 25 year old gentleman, one thing has been ruining my life for the last 12 to 15 years, that foul smell is coming out of my nose when...
9 answers |
Avatar universal
Hello I have been having this occasional mild sensation, (i don't want to call it pain) in my lower abdomen, close to the appendix for...
Avatar universal
I have been spending many sleepless nights lately. Shortly after I go to sleep, I am awakened by pain in my legs. The right leg is basic...
Avatar universal
Hi I am Umar n i'm 17 i have problem of feeling pressure in my throat head nose all over my head when i talks sings drinks water running ...
976511 tn?1248276741
Since I was eight years old, my tonsils occasionally have been secreting white lumps of material. In some stressful situations, these se...
3 answers |
Avatar universal
So I went to my follow up for c.t scan results and hey guess what they found no kidney problem at all hence the problems started with my ...
5 answers |
Avatar universal
Where can I find info for my Primary Doctor? And where can I find info about the prognosis? Any rare disease researchers or studie...
1 answer |
Avatar universal
For the past three days I have had the hiccups. They have been sporadic, but tend to last 3 to 4 hours or more at a time. When I go to ...
Avatar universal
Hi all. I'm new to the website. I've been experiencing an onset of symptoms for a little over a year Now. I tryed posting in the undiagn...
1 answer |
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