Rare Diseases Community
About This Community:

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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1
By snahita
Hi I've had thus thing where its hard to tauch my skin on my left arm for about a year. Now it has started to go the ...
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Dr Santos May 03
1
By gums1980
I am normally a healthy,active 59 yr old. I do take 2 blood pressure pills a day and at the time I was also taking a ...
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Dr Santos May 03
1
By Jdwca123 Blank
Hi, there. Thanks for taking the time to read this. I'm desperate for some guidance. I'm a 40 year old male with ...
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Dr Santos May 03
1
By sophiedaphne Blank
Hi. I am a 26-year old female and have been having "weird" symptoms for the last 2 years or so. All of them tend to b...
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Dr Santos May 03
1
By Ann_nyc Blank
How many possible Marfan symptoms is it necessary to have before pursuing a diagnosis? - I have a noticeably protrud...
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Dr Santos May 03
1
By deseperate Blank
I am 31 years old female, thin and healthy in general ..I have MTHFR mutation but nothing bothered me and they found ...
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Dr Santos May 03
1
By voloshand Blank
Hello I have some concern on a strange growth just inside the mouth of my penis channel, I suspect it goes furthe...
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Dr Santos May 03
1
By RoseandBrandon Blank
I am at a loss and figured it is time to ask for your opinion on what the heck is growing all over Lillyannah's Diap...
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Dr Santos May 03
1
By otto12
I had tests done recently. My dhea levels were 64. Norma is 102 to Over a thousand. My acth levels were 6 normal is...
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Dr Santos May 03
1
By AdaEnyi
Please I feel dizzy most of the time and feel like passing out. Also I have these internal shakes and vibrations ...
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Dr Santos May 03
1
By Jnlopez
been suffering from the neck pain and the pressure in tha back, this all started with me being lightheaded for 3 wee...
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Dr Santos May 03
1
By MommyofBrittany
My daughter who is 14 now has had 7 surgeries to her skull. She has a rare tumor called Desmoplastic Fibromia. They a...
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Dr Santos May 03
1
By Josierose5
Hi, I have been suffering for the past 7 months with chronic dizziness, light headedness, headaches and occasional ...
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Jenn1302May 02
Dr Santos Apr 04
3
By Daanvir Blank
I am a Male, at 30. for the last 10 years i have been suffering from flatulence and stomach distension, i am healthy...
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By mannufrommathura
I am from Mathura India and i am suffering from low grade fever in the evening around 3 or 3:30. it never goes more t...
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try1958May 01
1
By try1958
Some type worm like that uses the inside of hair shaft or any thing else like that , microscopic size, color red, whi...
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olene74May 01
selmaSMay 01
2
By olene74
I am a female 65 years old. For about 6 years I have been having dizziness that hits me violently. When this comes on...
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Larsid2Apr 30
Robbie989Dec 05, 2013
MtlqcAug 07, 2013
kizzie007May 16, 2013
delightbSep 24, 2012
11
By RBK42 Blank
for over a week now, I have been suffering from random swelling. It started with the right side of my lower lip. ov...
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1
By jenrenek1017
I am having sudden pain in left arm. Sudden headache. Blood pressure been high few days. Heart rate 125. A little ...
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selmaSApr 28
PantxApr 24
2
By cphill33 Blank
I am a very healthy 28 year old male that eats well and plays soccer and is outdoors almost every day. About 6 month...
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Top Rare Diseases Answerers
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selmaS
Allentown, PA