Rare diseases- breaking down the barriers User Group
About This Group:

Poviding opportunity to discuss and create awareness of the issues faced by rare condition sufferers and their families. Rare diseases can often leave patients and their loved ones feeling isolated, yet the issues we face are common. By speaking with one voice, we can together evoke change. Your story is unique, and we invite you to join our group and share your experiences.

Founded by porkia on October 2, 2009
21 members
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By Novkortera Blank
I've been ill for 1 1/2 years now with fevers(non-stop) fatigue, nausea, vomiting, swelling, enlarged spleen, hot and...
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ILADVOCATEOct 17, 2009
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By porkia Blank
Every story is unique, but as rare disease sufferers, we share common challenges. Your story could inspire others to ...
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