Aspiration Pneumonia
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My mom is 74 and has been quadriplegic for 22 years (C5 incomplete, if you know what that means). Other than that, she enjoyed excellent health until December when she, like your dad, developed aspiration pneumonia.
Mom was admitted to the hospital on January 2, and was intubated and moved to the ICU on January 4. She spent 6 weeks there, during which time she had a tracheotomy. She moved to a step-down unit in mid-February, during which time she had a PEG (feeding) tube inserted. She moved to rehab on March 3, and she should come home Wednesday.
Like your dad, her aspiration pneumonia progressed to MRSA pneumonia, and she became anemic. In addition, she became malnourished, developed secondary infections (yeast, UTI), and ended up with a stage 2 pressure ulcer.
To recap: My mom can't move, breathe on her own, speak much of the time (because of the vent), or eat. The doctors think she can't be weaned from the vent, and it's only a matter of time until she gets pneumonia again.
The docs may be right. BUT she's kicked the pneumonia and secondary infections, is no longer anemic, her nutrition is good and continues to improve, and, most important, she's happy to be alive and is loving life. Of course she's nervous about how she'll adjust to her new situation (ventilator, PEG tube), but she's not overwhelmed by it.
Personally, I can't wait to get her back home, and I expect her to get her even healthier. The medical care she's received has been excellent, but hospitals aren't set up to give her the intensive hands-on care that she'll get from us.
Plus, there's great psychological benefit to be gained from achieving the one goal she expressed over and over in the hospital: "going home and sleeping next to my husband." :)
Oh my, I've been long-winded. Worse yet, I've been long-winded without offering any answers. Apologies. Please accept my post for what it is: a statement of understanding, an expression of empathy.
Wow, that's great that your mom has battled through all that and is almost ready to come home. My dad is putting up quite a battle too. He's not ready to give up, but the doctor is. I've been fighting right along side him. The issue remains that they just can't seem to get rid of the infection. I have researched MRSA and the normal antibiotic treatment is Vacomycin. There is another term called VISA which is a Vancomycin resistant infection. The drug of choice for that is Zyvox. I made a doctor change today. He is specialized in internal medicine. I am going to see what he can do for my dad and ask him if we could try the Zyvox. I figure I'm not going to let them give up so easily.
Thanks again for your reply. It sure helps to talk to someone with similar circumstances, as I've been feeling really helpless and alone in this matter. Let me know how things turn out with your mom.
We had doctors who clearly thought our choice to fight on mom's behalf was wrongheaded; one doc actually told me flat out that my mom should be a DNR (do not resuscitate). Be that as it may, when he understood that she wanted to fight tooth and nail to live, his treatment was aggressive as all get out.
I don't know if it makes a difference, but my mom was at a teaching hospital, and her attending doctors were "pulmonary intensivists" (pulmonologists who specialize in intensive care, I think). Watching them care for her was like watching someone fine tune a high-performance automobile. (Though she'd probably say she's more of a junker than a Ferrari. LOL)
I'll be holding you and your father in the light. I will update and hope you will too.
development of pneumonia.
She is a stroke victim requiring total care. She does breathe on her own with an oxygen supplement.
There was a solution for the phlegm that worked for a few years (no longer effective now) that might help you. By accident, in the attempt to control her erratic and very high blood pressure, she ended up with the use of a clonidine PATCH. I emphasize patch because her doctor initially prescribed clonidine pills and that just aggravated the blood pressure problem. The Patch has a controlled release of the medication and the blood pressure swings are not as bad.
The very pleasant side effect was that the phlegm production was almost completely curbed. This lasted for a few years.
If you or your loved one does not have a blood pressure problem, there are a few other drugs that have the side effect of curbing phlegm. Another one is elavil (anti-depressant). There are others.
As with all medication, watch out for your own unique reactions