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Respiratory Disorders (Expert Forum)
Scared about Possible Sarcoidosis
Answered by
This forum is for questions and support regarding lung and respiratory issues such as: Allergies, Asthma, Bronchitis, Colds - Flu, Chronic Cough, COPD, Cystic Fibrosis, Emphysema, Fibrosis, Lung Abscess, Nasal Polyps, Pleurisy, Pneumonia, Sarcoidosis, Sinusitis, Tuberculosis
Scared about Possible Sarcoidosis
by quillswriting, Jun 17, 2007 12:00AM
I will let you know first that I have not been diagnosed, my GP thinks it's anxiety. But I have a number of probs the possibilities after looking into it could be MS, ME or Sarcoidosis.
Big list of MS related symptoms, spots in front of eyes, joint and muscle pain, pins and needles, twitching neck with electric shocks in head, buzzing sensations which is rythmic, raynaud's symptoms, one cold hand one normal, uneven pupils (Argyll-Robertson Pupil), Terry Nails.
Lots of bloodwork done, all normal except fluctuating Calcium level. Thyroid normal. FBC, ESR, ANA, Albumin normal. EFGR normal. Glucose normal. 2 Chest X rays both normal. ECGs find sinus tachy. Ectopic beats, palps. Petechiae. Fatigue. Sweats. Inner trembles. Burping, bloating. Red throat not sore (crimson crescents). generalised itching, but a lot on and around my nose and eyes. Itching inside ears. Not filling lungs properly.
Really scared, need advice.
Big list of MS related symptoms, spots in front of eyes, joint and muscle pain, pins and needles, twitching neck with electric shocks in head, buzzing sensations which is rythmic, raynaud's symptoms, one cold hand one normal, uneven pupils (Argyll-Robertson Pupil), Terry Nails.
Lots of bloodwork done, all normal except fluctuating Calcium level. Thyroid normal. FBC, ESR, ANA, Albumin normal. EFGR normal. Glucose normal. 2 Chest X rays both normal. ECGs find sinus tachy. Ectopic beats, palps. Petechiae. Fatigue. Sweats. Inner trembles. Burping, bloating. Red throat not sore (crimson crescents). generalised itching, but a lot on and around my nose and eyes. Itching inside ears. Not filling lungs properly.
Really scared, need advice.
Doctor's Answer
by National Jewish, Jun 22, 2007 12:00AM
, Jun 22, 2007 12:00AM
Anxiety is not an unreasonable conclusion and may be a large part of what you are experiencing. Many of the symptoms you describe are consistent with the diagnosis of multiple sclerosis (MS), but are non-specific and far from diagnostic. Raynaud’s is a not rare problem. It may occur secondary to any of a number of systemic diseases but 50% of the time it is a primary disorder unrelated to any disease, seen more in women than men, and it often regresses spontaneously. None of what you describe suggests sarcoidosis.
The numerous normal lab and x-ray results you list do not exclude physical disease, but are very reassuring. Nonetheless, your concern about MS is legitimate and you should seek consultation with a neurologist, if only for peace of mind.
The numerous normal lab and x-ray results you list do not exclude physical disease, but are very reassuring. Nonetheless, your concern about MS is legitimate and you should seek consultation with a neurologist, if only for peace of mind.
Member Comments (2)
by CLaney, Jul 02, 2007 12:00AM
To: COULD BE sarcoidosis
Actually, the flucuating calcium DOES suggest possible sarcoidosis, as sarcoidsosis (with attendent excess Vitamin D produced by cell-deficent bacteria living in macrophages) can cause calcium deregulation.
