SURVIVING NEUROLOGICAL LIMBO LAND - NO DX User Group
About This Group:

This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."

Founded by MrsAristotle on October 2, 2009
520 members
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tjlmooNov 19, 2012
TheLightSeekerNov 18, 2012
TheLightSeekerNov 18, 2012
3
By Mlkjmom Blank
This is my first time posting in this forum! I am trying my best to "survive limbo land" and today wasn't one of my b...
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tjlmooNov 19, 2012
TheLightSeekerNov 19, 2012
TheLightSeekerNov 19, 2012
TheLightSeekerNov 19, 2012
UnsureMSNov 08, 2012
6
By jibjen Blank
Hi All, I know I have been AWOL but I think of you all often..I have been fighting fatigue lately..I wanted to sen...
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senneferNov 18, 2012
RicobordNov 17, 2012
UnsureMSNov 13, 2012
senneferNov 12, 2012
RicobordNov 10, 2012
7
By sennefer Blank
Hi, I have been feeling the trembles. My hands shakes. My mood is sadness. My attention span is short. As a fo...
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senneferNov 18, 2012
senneferNov 18, 2012
RicobordNov 17, 2012
tjlmooNov 16, 2012
4
By sennefer Blank
Hi, Can someone tell me if spastic hands and feet attributeable to neuro. I mean I have been having some very pai...
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panda2526Nov 17, 2012
RicobordNov 17, 2012
panda2526Nov 13, 2012
panda2526Nov 13, 2012
RicobordNov 10, 2012
7
By panda2526 Blank
Hello everyone, and I apologize if this has been covered in other posts, but I haven't read through all of them. What...
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RicobordNov 17, 2012
tjlmooNov 14, 2012
MrsAristotleNov 11, 2012
tjlmooNov 11, 2012
RicobordNov 10, 2012
5
By tjlmoo Blank
Hello to ALL my limbo friends & family. I finally have a brain mri w/wo contrast scheduled for this Wed.Nov.14. It ...
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UnsureMSNov 12, 2012
MrsAristotleNov 11, 2012
RicobordNov 10, 2012
UnsureMSNov 08, 2012
jibjenNov 08, 2012
5
By UnsureMS Blank
Good morning all, Today after some deep research and posting in the Lyme forum. I want to say I believe I have lym...
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tjlmooNov 11, 2012
RicobordNov 10, 2012
2
By jibjen Blank
Hi all, I went to my doc yesterday. He wants to send me for a sleep study as we were discussing my fatigue issues...
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TheLightSeekerNov 11, 2012
RicobordNov 10, 2012
UnsureMSNov 08, 2012
tjlmooNov 06, 2012
jibjenNov 06, 2012
5
By sennefer Blank
Hi, I was told to make sure when I join the forum to give everyone here a shout out. So, here it goes. Hiiiiiiii...
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RicobordNov 10, 2012
UnsureMSNov 08, 2012
AZRNJenNov 04, 2012
theasianJul 28, 2010
RedFlameJul 27, 2010
40
By RedFlame Blank
I don't know about any of you, but I have been working on not talking about anything regarding my neuro issues for at...
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UnsureMSNov 06, 2012
panda2526Nov 06, 2012
UnsureMSNov 02, 2012
panda2526Nov 02, 2012
UnsureMSOct 29, 2012
15
By UnsureMS Blank
First off thanks to everyone who has shown support this week. Next today I called to find out blood work results. The...
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panda2526Nov 06, 2012
senneferNov 06, 2012
panda2526Oct 28, 2012
chefaid90May 22, 2012
chefaid90May 22, 2012
7
By chefaid90 Blank
I am still in this hell called limbo. My neuro and pcp keep testing for everything but my pcp can only do so much and...
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panda2526Nov 04, 2012
burma57Oct 29, 2012
panda2526Oct 28, 2012
MrsAristotleMar 19, 2012
Valkyrie568Mar 17, 2012
6
By yesterdayschild Blank
well the last doc said neuropathy but he did so without any tests, I insisted with my outside voice that my damn (so...
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jibjenNov 03, 2012
tjlmooOct 30, 2012
2
By MrsAristotle Blank
I hope all my buddies on the forum stay safe in this awful hurricane. All we can do in the UK is sit and watch the ne...
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jibjenNov 03, 2012
Jacksmom516Nov 02, 2012
RicobordNov 01, 2012
tjlmooOct 30, 2012
4
By sarahw244 Blank
Hello Friends! Just thought I'd pop in to let you all know that I am still around. I know I haven't posted or come ...
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massivepesurvivorNov 02, 2012
RicobordNov 01, 2012
massivepesurvivorNov 01, 2012
massivepesurvivorNov 01, 2012
MrsAristotleNov 01, 2012
6
By massivepesurvivor Blank
I have an undiagnosed or misdiagnosed condition. I am looking for anyone with similar experiences, input, or ideas. ...
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UnsureMSNov 02, 2012
UnsureMSNov 02, 2012
TheLightSeekerNov 01, 2012
RicobordNov 01, 2012
4
By UnsureMS Blank
Dear my second family, Today I rejoiced in at least one prayer being answered. Then I realized that others out the...
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RicobordNov 01, 2012
tjlmooOct 30, 2012
2
By burma57 Blank
Please tell me how to begin with my journey. I have a new doctor and want to finally get ONE person in charge. In the...
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UnsureMSOct 30, 2012
tjlmooOct 30, 2012
UnsureMSOct 30, 2012
MrsAristotleOct 30, 2012
4
By UnsureMS Blank
Hi second family, A bit back I post asking for prayer and support. I want to say thanks to all who prayed for me. ...
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panda2526Oct 28, 2012
UnsureMSOct 22, 2012
unperfectbeing500Sep 02, 2012
unperfectbeing500Sep 02, 2012
RicobordSep 01, 2012
6
By unperfectbeing500 Blank
OK i joined this group cause i don't want to be the only one out here feeling lost cause i have an unknown disease of...
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