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SURVIVING NEUROLOGICAL LIMBO LAND - NO DX Group
This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."
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Avatar universal
Hi all I tried to post in the 'introduction' section a few days ago, but it doesn't seem to have worked. But not a lot is working righ...
3 answers |
1475492 tn?1332887767
I am sorry I haven't been around as much! I hope everyone is as well as they can be...or BETTER! We just completed an out of state mo...
5 answers |
1475492 tn?1332887767
Name Result Normal Range Thyroid Stimulating...
2 answers |
956292 tn?1334058469
Hey everyone, I had my sleep study done this week and now just waiting for results. Hopefully will not have to do that again. I hop...
1 answer |
Avatar universal
neurological limbo land fits me to a "T" Thats my dx with no tx. After having survived a roll over that landed me in a coma for a little ...
3 answers |
Avatar universal
Hello family, Today is my 7th voice with no voice. During my time with no voice I am learning to listen more. So, I have heard Gods cr...
1530171 tn?1448133193
To All. Dr. Garth Nicolson is coming back to MedHelp next week to answer your Auto-immune related questions. He's a leading expert in...
2 answers |
Avatar universal
Well hello my second family, I just wanted to see how everyone was doing. Any new developments for anyone stuck here in limbo land? Ho...
9 answers |
956292 tn?1334058469
Hi, for those of you celebrating this week, have a Happy Thanksgiving! I hope you have a peaceful day! Love Jibs
4 answers |
1874425 tn?1321976260
This is my first time posting in this forum! I am trying my best to "survive limbo land" and today wasn't one of my best days. I am in...
3 answers |
956292 tn?1334058469
Hi All, I know I have been AWOL but I think of you all often..I have been fighting fatigue lately..I wanted to send a hug message to e...
6 answers |
Avatar universal
Hi, I have been feeling the trembles. My hands shakes. My mood is sadness. My attention span is short. As a footnote, I am an adve...
7 answers |
Avatar universal
Hi, Can someone tell me if spastic hands and feet attributeable to neuro. I mean I have been having some very painful spastism in my ...
4 answers |
4173379 tn?1355360151
Hello everyone, and I apologize if this has been covered in other posts, but I haven't read through all of them. What interested me in th...
7 answers |
2012515 tn?1353879125
Hello to ALL my limbo friends & family. I finally have a brain mri w/wo contrast scheduled for this Wed.Nov.14. It has been a year and ...
5 answers |
Avatar universal
Good morning all, Today after some deep research and posting in the Lyme forum. I want to say I believe I have lymes. The sxs fit, and...
5 answers |
956292 tn?1334058469
Hi all, I went to my doc yesterday. He wants to send me for a sleep study as we were discussing my fatigue issues. Is this a common s...
2 answers |
Avatar universal
Hi, I was told to make sure when I join the forum to give everyone here a shout out. So, here it goes. Hiiiiiiiiiiiiiiiiiiiiiiiiiiii...
5 answers |
1312898 tn?1314571733
I don't know about any of you, but I have been working on not talking about anything regarding my neuro issues for at least the past 3 mo...
40 answers |
Avatar universal
First off thanks to everyone who has shown support this week. Next today I called to find out blood work results. They said nothing has c...
15 answers |
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