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SURVIVING NEUROLOGICAL LIMBO LAND - NO DX Group

This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."

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163240_tn?1337907961
I am still in this hell called limbo. My neuro and pcp keep testing for everything but my pcp can only do so much and my neuro is testing but it takes forever cause its like i see her get a test and dont see her for another 1-3 months. I...
chefaid90 | Last answer
2014820_tn?1328235655
well the last doc said neuropathy but he did so without any tests, I insisted with my outside voice that my damn (sorry) doctor find a specialist, I did some research and found one to take my state insurance....it seems I have fibromalg...
yesterdayschild | Last answer
551343_tn?1350880995
I hope all my buddies on the forum stay safe in this awful hurricane. All we can do in the UK is sit and watch the news and it scares the bejeebas out of me. Go safe friends. xxxx
MrsAristotle | Last answer
1627868_tn?1333889942
Hello Friends! Just thought I'd pop in to let you all know that I am still around. I know I haven't posted or come around in a REALLY long time.... These last 6 months or so have been a real roller coaster for me, which has contribu...
sarahw244 | Last answer
1035400_tn?1351545284
I have an undiagnosed or misdiagnosed condition. I am looking for anyone with similar experiences, input, or ideas. 2006 Small left pulmonary embolism treated with coumiden, followed 10 days later by a massive pulmonary embolism with...
massivepesurvivor | Last answer
Avatar_universal
Dear my second family, Today I rejoiced in at least one prayer being answered. Then I realized that others out there are in need of prayer as well. Some just dont want to ask. Others are too prideful, and many may not trust in The Lor...
UnsureMS | Last answer
Avatar_universal
Please tell me how to begin with my journey. I have a new doctor and want to finally get ONE person in charge. In the past, with my past internist everything was done in a scattered fashion with absolutely no cohesion. I had all sorts of...
burma57 | Last answer
Avatar_universal
Hi second family, A bit back I post asking for prayer and support. I want to say thanks to all who prayed for me. Today The Lord answered one of my prayers. I called my old nuero to ask if he would donate his services to me. Not many ...
UnsureMS | Last answer
Avatar_universal
OK i joined this group cause i don't want to be the only one out here feeling lost cause i have an unknown disease of some sort first of all i had this problem from age 16-43. but the funniest thing is the symptoms kinda went from one ...
unperfectbeing500 | Last answer
2012515_tn?1353879125
Hello to All, Just wanted to share with you all the news as to why I've not been present lately and posting. Some of you know from my PM(private msg) that my mother went in for back surgery Sept.19 and the back surg.went as it should ...
tjlmoo | Last answer
Avatar_universal
Today I feel lost. My health program called to tell me that they don't have a neuro anymore under them. So my journey to a dxs may come to a halt. I am still waiting on my bloodwork, and prayerful that something comes from that. But I do...
UnsureMS | Last answer
551343_tn?1350880995
Well you know my story lol...yada yada, 6 years waiting, being finally told I probably had Lymes, a co infection and MS....... So after seeing the Lymes doctor in August, I finally made a huge fuss and was told the letter to my GP ha...
MrsAristotle | Last answer
Avatar_universal
Today as some may know I went to see my primary care doctor for the first time this second go around in hopes of being dxs. Well, it went just as I expected for the most part. I got told I need to see a Nero, and I had blood drawn. She w...
UnsureMS | Last answer
Avatar_universal
A bless day to all. First off I want to start by saying thank you to anyone who can give me more information. I am 28 yr old female who 4 yrs ago developed a severe headache that lasted a week, then started to have dizzy spells for a wee...
UnsureMS | Last answer
551343_tn?1350880995
Hi guys any ideas for Mables3? Mables3 11 hours Wow, I can't believe so many people can't get a firm yeh or nay for this disease. I'll try to keep my story short. I was dx w/Crohns in March 2012(moms side of the family). I'm 47...
MrsAristotle | Last answer
1475492_tn?1332887767
Hi all, it's been awhile since I posted. I haven't been feeling as well and a lot of personal changes going on - moving, new job, etc. I am going to make this short but I saw a Naturopath MD that is part of my MS Specialist team. He ...
Sidesteps | Last answer
1530171_tn?1448133193
Hi Everyone! I haven't been here for a while. Honestly, I felt today, that there was something important here for me to look into! And normally I would have missed it, but for some Divine reason, I went to the "introduce yourself" thr...
TheLightSeeker | Last answer
551343_tn?1350880995
Hi guys sorry i havent been on here for a few months, but i got myself a bit depressed and just couldnt face it. I have been waiting and waiting for the letter from my doctor at Breakspeare to my GP explaining about my lymes, and the...
MrsAristotle | Last answer
Avatar_universal
Hello all, I just found this group tonight. I had joined the MS forum but I haven't been dxs with MS yet. I am a 28 yr okd femsle just lokking for answers. About 4 years ago I experienced a severe headache for a week, dizzy spells for a ...
UnsureMS | Last answer
551343_tn?1350880995
As so many are interested i thought we could share a thread on everything and anything gluten free. Its such an interesting subject. I will sort out a couple of my recipes and post them for yummy cakes. I was too tired yesterday it i...
MrsAristotle | Last answer
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