SURVIVING NEUROLOGICAL LIMBO LAND - NO DX User Group
About This Group:

This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."

Founded by MrsAristotle on October 2, 2009
531 members
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163240 tn?1337907961
panda2526Nov 06, 2012
senneferNov 06, 2012
panda2526Oct 28, 2012
chefaid90May 22, 2012
chefaid90May 22, 2012
7
By chefaid90 Blank
I am still in this hell called limbo. My neuro and pcp keep testing for everything but my pcp can only do so much and...
2014820 tn?1328235655
panda2526Nov 04, 2012
burma57Oct 29, 2012
panda2526Oct 28, 2012
MrsAristotleMar 19, 2012
Valkyrie568Mar 17, 2012
6
By yesterdayschild Blank
well the last doc said neuropathy but he did so without any tests, I insisted with my outside voice that my damn (so...
551343 tn?1350880995
jibjenNov 03, 2012
tjlmooOct 30, 2012
2
By MrsAristotle Blank
I hope all my buddies on the forum stay safe in this awful hurricane. All we can do in the UK is sit and watch the ne...
1627868 tn?1333889942
jibjenNov 03, 2012
Jacksmom516Nov 02, 2012
RicobordNov 01, 2012
tjlmooOct 30, 2012
4
By sarahw244 Blank
Hello Friends! Just thought I'd pop in to let you all know that I am still around. I know I haven't posted or come ...
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massivepesurvivorNov 02, 2012
RicobordNov 01, 2012
massivepesurvivorNov 01, 2012
massivepesurvivorNov 01, 2012
MrsAristotleNov 01, 2012
6
By massivepesurvivor Blank
I have an undiagnosed or misdiagnosed condition. I am looking for anyone with similar experiences, input, or ideas. ...
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UnsureMSNov 02, 2012
UnsureMSNov 02, 2012
TheLightSeekerNov 01, 2012
RicobordNov 01, 2012
4
By UnsureMS Blank
Dear my second family, Today I rejoiced in at least one prayer being answered. Then I realized that others out the...
Avatar f tn
RicobordNov 01, 2012
tjlmooOct 30, 2012
2
By burma57 Blank
Please tell me how to begin with my journey. I have a new doctor and want to finally get ONE person in charge. In the...
Avatar f tn
UnsureMSOct 30, 2012
tjlmooOct 30, 2012
UnsureMSOct 30, 2012
MrsAristotleOct 30, 2012
4
By UnsureMS Blank
Hi second family, A bit back I post asking for prayer and support. I want to say thanks to all who prayed for me. ...
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panda2526Oct 28, 2012
UnsureMSOct 22, 2012
unperfectbeing500Sep 02, 2012
unperfectbeing500Sep 02, 2012
RicobordSep 01, 2012
6
By unperfectbeing500 Blank
OK i joined this group cause i don't want to be the only one out here feeling lost cause i have an unknown disease of...
2012515 tn?1353879125
tjlmooOct 23, 2012
MrsAristotleOct 21, 2012
jibjenOct 21, 2012
TheLightSeekerOct 21, 2012
UnsureMSOct 20, 2012
5
By tjlmoo Blank
Hello to All, Just wanted to share with you all the news as to why I've not been present lately and posting. Some ...
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UnsureMSOct 23, 2012
jibjenOct 23, 2012
MrsAristotleOct 23, 2012
3
By UnsureMS Blank
Today I feel lost. My health program called to tell me that they don't have a neuro anymore under them. So my journey...
551343 tn?1350880995
MrsAristotleOct 21, 2012
Mables3Oct 20, 2012
Jacksmom516Oct 19, 2012
UnsureMSOct 19, 2012
jibjenOct 18, 2012
5
By MrsAristotle Blank
Well you know my story lol...yada yada, 6 years waiting, being finally told I probably had Lymes, a co infection and ...
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UnsureMSOct 19, 2012
MrsAristotleOct 19, 2012
2
By UnsureMS Blank
Today as some may know I went to see my primary care doctor for the first time this second go around in hopes of bein...
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TheLightSeekerOct 18, 2012
UnsureMSOct 18, 2012
MrsAristotleOct 18, 2012
UnsureMSOct 15, 2012
TheLightSeekerOct 14, 2012
12
By UnsureMS Blank
A bless day to all. First off I want to start by saying thank you to anyone who can give me more information. I am 28...
551343 tn?1350880995
MrsAristotleOct 17, 2012
Mables3Oct 17, 2012
MrsAristotleOct 06, 2012
tjlmooOct 05, 2012
Mables3Oct 05, 2012
6
By MrsAristotle Blank
Hi guys any ideas for Mables3? Mables3 11 hours Wow, I can't believe so many people can't get a firm yeh or ...
1475492 tn?1332887767
RicobordOct 15, 2012
RicobordOct 15, 2012
SidestepsOct 11, 2012
jibjenOct 09, 2012
tjlmooOct 08, 2012
5
By Sidesteps Blank
Hi all, it's been awhile since I posted. I haven't been feeling as well and a lot of personal changes going on - movi...
1530171 tn?1448133193
RicobordOct 15, 2012
AmyKate73Oct 12, 2012
AmyKate73Oct 12, 2012
TheLightSeekerOct 09, 2012
AmyKate73Oct 07, 2012
19
By TheLightSeeker Blank
Hi Everyone! I haven't been here for a while. Honestly, I felt today, that there was something important here for me...
551343 tn?1350880995
RicobordOct 15, 2012
UnsureMSOct 12, 2012
Jacksmom516Oct 09, 2012
tjlmooOct 05, 2012
jibjenSep 30, 2012
5
By MrsAristotle Blank
Hi guys sorry i havent been on here for a few months, but i got myself a bit depressed and just couldnt face it. ...
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UnsureMSOct 09, 2012
tjlmooOct 09, 2012
Jacksmom516Oct 09, 2012
3
By UnsureMS Blank
Hello all, I just found this group tonight. I had joined the MS forum but I haven't been dxs with MS yet. I am a 28 y...
551343 tn?1350880995
dogmumOct 08, 2012
techiemom64Sep 11, 2012
MrsAristotleJul 13, 2012
dogmumJul 06, 2012
MrsAristotleJun 16, 2012
11
By MrsAristotle Blank
As so many are interested i thought we could share a thread on everything and anything gluten free. Its such an inter...
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