SURVIVING NEUROLOGICAL LIMBO LAND - NO DX User Group
About This Group:

This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."

Founded by MrsAristotle on October 2, 2009
521 members
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panda2526Oct 28, 2012
UnsureMSOct 22, 2012
unperfectbeing500Sep 02, 2012
unperfectbeing500Sep 02, 2012
RicobordSep 01, 2012
6
By unperfectbeing500 Blank
OK i joined this group cause i don't want to be the only one out here feeling lost cause i have an unknown disease of...
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tjlmooOct 23, 2012
MrsAristotleOct 21, 2012
jibjenOct 21, 2012
TheLightSeekerOct 21, 2012
UnsureMSOct 20, 2012
5
By tjlmoo Blank
Hello to All, Just wanted to share with you all the news as to why I've not been present lately and posting. Some ...
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UnsureMSOct 23, 2012
jibjenOct 23, 2012
MrsAristotleOct 23, 2012
3
By UnsureMS Blank
Today I feel lost. My health program called to tell me that they don't have a neuro anymore under them. So my journey...
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MrsAristotleOct 21, 2012
Mables3Oct 20, 2012
Jacksmom516Oct 19, 2012
UnsureMSOct 19, 2012
jibjenOct 18, 2012
5
By MrsAristotle Blank
Well you know my story lol...yada yada, 6 years waiting, being finally told I probably had Lymes, a co infection and ...
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UnsureMSOct 19, 2012
MrsAristotleOct 19, 2012
2
By UnsureMS Blank
Today as some may know I went to see my primary care doctor for the first time this second go around in hopes of bein...
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TheLightSeekerOct 18, 2012
UnsureMSOct 18, 2012
MrsAristotleOct 18, 2012
UnsureMSOct 15, 2012
TheLightSeekerOct 14, 2012
12
By UnsureMS Blank
A bless day to all. First off I want to start by saying thank you to anyone who can give me more information. I am 28...
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MrsAristotleOct 17, 2012
Mables3Oct 17, 2012
MrsAristotleOct 06, 2012
tjlmooOct 05, 2012
Mables3Oct 05, 2012
6
By MrsAristotle Blank
Hi guys any ideas for Mables3? Mables3 11 hours Wow, I can't believe so many people can't get a firm yeh or ...
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RicobordOct 15, 2012
RicobordOct 15, 2012
SidestepsOct 11, 2012
jibjenOct 09, 2012
tjlmooOct 08, 2012
5
By Sidesteps Blank
Hi all, it's been awhile since I posted. I haven't been feeling as well and a lot of personal changes going on - movi...
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RicobordOct 15, 2012
AmyKate73Oct 12, 2012
AmyKate73Oct 12, 2012
TheLightSeekerOct 09, 2012
AmyKate73Oct 07, 2012
19
By TheLightSeeker Blank
Hi Everyone! I haven't been here for a while. Honestly, I felt today, that there was something important here for me...
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RicobordOct 15, 2012
UnsureMSOct 12, 2012
Jacksmom516Oct 09, 2012
tjlmooOct 05, 2012
jibjenSep 30, 2012
5
By MrsAristotle Blank
Hi guys sorry i havent been on here for a few months, but i got myself a bit depressed and just couldnt face it. ...
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UnsureMSOct 09, 2012
tjlmooOct 09, 2012
Jacksmom516Oct 09, 2012
3
By UnsureMS Blank
Hello all, I just found this group tonight. I had joined the MS forum but I haven't been dxs with MS yet. I am a 28 y...
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dogmumOct 08, 2012
techiemom64Sep 11, 2012
MrsAristotleJul 13, 2012
dogmumJul 06, 2012
MrsAristotleJun 16, 2012
11
By MrsAristotle Blank
As so many are interested i thought we could share a thread on everything and anything gluten free. Its such an inter...
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RicobordSep 15, 2012
1
By stressed1976 Blank
I have been in search of a answer for many of months. I started having soreness pain in both wrists, that continued t...
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RicobordSep 12, 2012
chefaid90Sep 08, 2012
MrsAristotleSep 08, 2012
RicobordSep 07, 2012
4
By chefaid90 Blank
why is it that your neurologist or like me even my muscularneurologist have me take these tests then see them in 3 mo...
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RicobordSep 12, 2012
RicobordSep 12, 2012
TheLightSeekerSep 09, 2012
EcologicSep 08, 2012
4
By Ecologic Blank
I have been on medhelp for a few years but just discovered this site today. I'll make a list of my symptoms, maybe so...
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MrsAristotleSep 08, 2012
jibjenSep 02, 2012
RicobordSep 01, 2012
SidestepsSep 01, 2012
jibjenAug 30, 2012
10
By jibjen Blank
Hey guys, Well much to my surprise he does not think this is a flare...He gave me a lecture about heat/beach as...
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Jacksmom516Sep 04, 2012
illinwithoutacauseSep 02, 2012
tjlmooAug 31, 2012
Jacksmom516Aug 30, 2012
jibjenAug 30, 2012
6
By Jacksmom516 Blank
While dealing with the drudgery of having a chronic illness and other illnesses as some of us have here, sometimes it...
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RicobordSep 01, 2012
1
By JCNBKCJ Blank
A day after I had knee surgery to repair a tear, I had a warm rushing sensation go up through my chest and then I fel...
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slloweAug 28, 2012
johnniebearAug 23, 2012
RicobordAug 16, 2012
SidestepsAug 08, 2012
jibjenAug 08, 2012
10
By MrsAristotle Blank
Well guys today I was told by my private doctor i have MS. WOO HOO, balloons, and bunting, and lots of champagne lol....
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tjlmooAug 26, 2012
tjlmooAug 23, 2012
Jacksmom516Aug 23, 2012
illinwithoutacauseAug 22, 2012
Jacksmom516Aug 22, 2012
6
By tjlmoo Blank
Hello Dear Limbolanders! This forum has been really quiet lately. Either everyone is doing better or everyone is ...
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