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SURVIVING NEUROLOGICAL LIMBO LAND - NO DX Group
This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."
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163240 tn?1337907961
I am still in this hell called limbo. My neuro and pcp keep testing for everything but my pcp can only do so much and my neuro is testing...
7 answers |
2014820 tn?1328235655
well the last doc said neuropathy but he did so without any tests, I insisted with my outside voice that my damn (sorry) doctor find a s...
6 answers |
551343 tn?1350880995
I hope all my buddies on the forum stay safe in this awful hurricane. All we can do in the UK is sit and watch the news and it scares the...
2 answers |
1627868 tn?1333889942
Hello Friends! Just thought I'd pop in to let you all know that I am still around. I know I haven't posted or come around in a REALLY l...
4 answers |
1035400 tn?1351545284
I have an undiagnosed or misdiagnosed condition. I am looking for anyone with similar experiences, input, or ideas. 2006 Small left p...
6 answers |
Avatar universal
Dear my second family, Today I rejoiced in at least one prayer being answered. Then I realized that others out there are in need of pr...
4 answers |
Avatar universal
Please tell me how to begin with my journey. I have a new doctor and want to finally get ONE person in charge. In the past, with my past ...
2 answers |
Avatar universal
Hi second family, A bit back I post asking for prayer and support. I want to say thanks to all who prayed for me. Today The Lord answe...
4 answers |
Avatar universal
OK i joined this group cause i don't want to be the only one out here feeling lost cause i have an unknown disease of some sort first of ...
6 answers |
2012515 tn?1353879125
Hello to All, Just wanted to share with you all the news as to why I've not been present lately and posting. Some of you know from my ...
5 answers |
Avatar universal
Today I feel lost. My health program called to tell me that they don't have a neuro anymore under them. So my journey to a dxs may come t...
3 answers |
551343 tn?1350880995
Well you know my story lol...yada yada, 6 years waiting, being finally told I probably had Lymes, a co infection and MS....... So aft...
5 answers |
Avatar universal
Today as some may know I went to see my primary care doctor for the first time this second go around in hopes of being dxs. Well, it went...
2 answers |
Avatar universal
A bless day to all. First off I want to start by saying thank you to anyone who can give me more information. I am 28 yr old female who 4...
12 answers |
551343 tn?1350880995
Hi guys any ideas for Mables3? Mables3 11 hours Wow, I can't believe so many people can't get a firm yeh or nay for this disease...
6 answers |
1475492 tn?1332887767
Hi all, it's been awhile since I posted. I haven't been feeling as well and a lot of personal changes going on - moving, new job, etc. ...
5 answers |
1530171 tn?1448133193
Hi Everyone! I haven't been here for a while. Honestly, I felt today, that there was something important here for me to look into! And ...
19 answers |
551343 tn?1350880995
Hi guys sorry i havent been on here for a few months, but i got myself a bit depressed and just couldnt face it. I have been waiting ...
5 answers |
Avatar universal
Hello all, I just found this group tonight. I had joined the MS forum but I haven't been dxs with MS yet. I am a 28 yr okd femsle just lo...
3 answers |
551343 tn?1350880995
As so many are interested i thought we could share a thread on everything and anything gluten free. Its such an interesting subject. ...
11 answers |
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