SURVIVING NEUROLOGICAL LIMBO LAND - NO DX User Group
About This Group:

This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."

Founded by MrsAristotle on October 2, 2009
531 members
Font Size:
A
A
A
Sort by:
Last Post
Date Started
Background:
Blank
Blank
Blank
2014820_tn?1328235655
panda2526Nov 04, 2012
burma57Oct 29, 2012
panda2526Oct 28, 2012
MrsAristotleMar 19, 2012
Valkyrie568Mar 17, 2012
6
By yesterdayschild Blank
well the last doc said neuropathy but he did so without any tests, I insisted with my outside voice that my damn (so...
551343_tn?1350880995
jibjenNov 03, 2012
tjlmooOct 30, 2012
2
By MrsAristotle Blank
I hope all my buddies on the forum stay safe in this awful hurricane. All we can do in the UK is sit and watch the ne...
1627868_tn?1333889942
jibjenNov 03, 2012
Jacksmom516Nov 02, 2012
RicobordNov 01, 2012
tjlmooOct 30, 2012
4
By sarahw244 Blank
Hello Friends! Just thought I'd pop in to let you all know that I am still around. I know I haven't posted or come ...
1035400_tn?1351545284
massivepesurvivorNov 02, 2012
RicobordNov 01, 2012
massivepesurvivorNov 01, 2012
massivepesurvivorNov 01, 2012
MrsAristotleNov 01, 2012
6
By massivepesurvivor Blank
I have an undiagnosed or misdiagnosed condition. I am looking for anyone with similar experiences, input, or ideas. ...
Avatar_f_tn
UnsureMSNov 02, 2012
UnsureMSNov 02, 2012
TheLightSeekerNov 01, 2012
RicobordNov 01, 2012
4
By UnsureMS Blank
Dear my second family, Today I rejoiced in at least one prayer being answered. Then I realized that others out the...
Avatar_f_tn
RicobordNov 01, 2012
tjlmooOct 30, 2012
2
By burma57 Blank
Please tell me how to begin with my journey. I have a new doctor and want to finally get ONE person in charge. In the...
Avatar_f_tn
UnsureMSOct 30, 2012
tjlmooOct 30, 2012
UnsureMSOct 30, 2012
MrsAristotleOct 30, 2012
4
By UnsureMS Blank
Hi second family, A bit back I post asking for prayer and support. I want to say thanks to all who prayed for me. ...
Avatar_m_tn
panda2526Oct 28, 2012
UnsureMSOct 22, 2012
unperfectbeing500Sep 02, 2012
unperfectbeing500Sep 02, 2012
RicobordSep 01, 2012
6
By unperfectbeing500 Blank
OK i joined this group cause i don't want to be the only one out here feeling lost cause i have an unknown disease of...
2012515_tn?1353879125
tjlmooOct 23, 2012
MrsAristotleOct 21, 2012
jibjenOct 21, 2012
TheLightSeekerOct 21, 2012
UnsureMSOct 20, 2012
5
By tjlmoo Blank
Hello to All, Just wanted to share with you all the news as to why I've not been present lately and posting. Some ...
Avatar_f_tn
UnsureMSOct 23, 2012
jibjenOct 23, 2012
MrsAristotleOct 23, 2012
3
By UnsureMS Blank
Today I feel lost. My health program called to tell me that they don't have a neuro anymore under them. So my journey...
551343_tn?1350880995
MrsAristotleOct 21, 2012
Mables3Oct 20, 2012
Jacksmom516Oct 19, 2012
UnsureMSOct 19, 2012
jibjenOct 18, 2012
5
By MrsAristotle Blank
Well you know my story lol...yada yada, 6 years waiting, being finally told I probably had Lymes, a co infection and ...
Avatar_f_tn
UnsureMSOct 19, 2012
MrsAristotleOct 19, 2012
2
By UnsureMS Blank
Today as some may know I went to see my primary care doctor for the first time this second go around in hopes of bein...
Avatar_f_tn
TheLightSeekerOct 18, 2012
UnsureMSOct 18, 2012
MrsAristotleOct 18, 2012
UnsureMSOct 15, 2012
TheLightSeekerOct 14, 2012
12
By UnsureMS Blank
A bless day to all. First off I want to start by saying thank you to anyone who can give me more information. I am 28...
551343_tn?1350880995
MrsAristotleOct 17, 2012
Mables3Oct 17, 2012
MrsAristotleOct 06, 2012
tjlmooOct 05, 2012
Mables3Oct 05, 2012
6
By MrsAristotle Blank
Hi guys any ideas for Mables3? Mables3 11 hours Wow, I can't believe so many people can't get a firm yeh or ...
1475492_tn?1332887767
RicobordOct 15, 2012
RicobordOct 15, 2012
SidestepsOct 11, 2012
jibjenOct 09, 2012
tjlmooOct 08, 2012
5
By Sidesteps Blank
Hi all, it's been awhile since I posted. I haven't been feeling as well and a lot of personal changes going on - movi...
1530171_tn?1418143903
RicobordOct 15, 2012
AmyKate73Oct 12, 2012
AmyKate73Oct 12, 2012
TheLightSeekerOct 09, 2012
AmyKate73Oct 07, 2012
19
By TheLightSeeker Blank
Hi Everyone! I haven't been here for a while. Honestly, I felt today, that there was something important here for me...
551343_tn?1350880995
RicobordOct 15, 2012
UnsureMSOct 12, 2012
Jacksmom516Oct 09, 2012
tjlmooOct 05, 2012
jibjenSep 30, 2012
5
By MrsAristotle Blank
Hi guys sorry i havent been on here for a few months, but i got myself a bit depressed and just couldnt face it. ...
Avatar_f_tn
UnsureMSOct 09, 2012
tjlmooOct 09, 2012
Jacksmom516Oct 09, 2012
3
By UnsureMS Blank
Hello all, I just found this group tonight. I had joined the MS forum but I haven't been dxs with MS yet. I am a 28 y...
551343_tn?1350880995
dogmumOct 08, 2012
techiemom64Sep 11, 2012
MrsAristotleJul 13, 2012
dogmumJul 06, 2012
MrsAristotleJun 16, 2012
11
By MrsAristotle Blank
As so many are interested i thought we could share a thread on everything and anything gluten free. Its such an inter...
3498544_tn?1347498891
RicobordSep 15, 2012
1
By stressed1976 Blank
I have been in search of a answer for many of months. I started having soreness pain in both wrists, that continued t...
Recent Activity
5265383_tn?1438113919
Blank
aspentoo Fell. ER. Leg immobilizer ... Comment
Aug 25
5265383_tn?1438113919
Blank
aspentoo commented on ConfirmedRachel's status
Aug 18
Avatar_f_tn
Blank
JDBTST added the Anxiety/Panic Tracker
Aug 15