SURVIVING NEUROLOGICAL LIMBO LAND - NO DX User Group
About This Group:

This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."

Founded by MrsAristotle on October 2, 2009
521 members
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TheLightSeekerAug 25, 2012
arfeAug 22, 2012
arfeAug 22, 2012
arfeAug 22, 2012
TheLightSeekerJul 19, 2012
6
By arfe Blank
Ive been diagnosed by my doctor on Neuropatic pain, first ive experience pins & needles on my feet, legs, shoulder, n...
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jibjenAug 21, 2012
1
By cindralee4 Blank
did anyone use effexor and then started having neurological problems? since i have used effexor i have trunk and hea...
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MrsAristotleAug 04, 2012
RicobordAug 01, 2012
sandythegeek2Aug 01, 2012
SidestepsAug 01, 2012
Jacksmom516Aug 01, 2012
7
By tjlmoo Blank
Happy Birthday Maria(Mrs.Aristotle)aka Mama Bear! I hope this year is full of the many blessings the good Lord has p...
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MrsAristotleAug 04, 2012
naf_imtyyAug 02, 2012
MrsAristotleAug 01, 2012
3
By naf_imtyy Blank
My girlfriend have facing a weird problem. When she go to bed in night for sleep she feels strong burning sensation....
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sandythegeek2Aug 02, 2012
SSMednzAug 02, 2012
jibjenAug 02, 2012
sandythegeek2Aug 02, 2012
RicobordAug 01, 2012
5
By sandythegeek2 Blank
Well I'm still in limbo. He said the large lesion looks like MS but no dx yet. Wait and see approach.
2112931_tn?1335102002
sandythegeek2Aug 02, 2012
RicobordAug 01, 2012
sandythegeek2Aug 01, 2012
jibjenJul 29, 2012
sandythegeek2Jul 28, 2012
8
By sandythegeek2 Blank
My Neuro Dr B  analyzed my MRI and LP and VER results again today and said the VER was off some but not a lot.  It wa...
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RicobordAug 01, 2012
TheLightSeekerJul 28, 2012
2
By Dina723 Blank
Hi! I'm just joining this group in hopes I can get some more insight into my undiagnosed medical condition. I have ha...
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RicobordAug 01, 2012
SidestepsAug 01, 2012
jibjenAug 01, 2012
tjlmooAug 01, 2012
4
By Jacksmom516 Blank
Met with the MSologist today or I should say his CRNP - And she is very pleased - apparently PT is working its magi...
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SidestepsJul 29, 2012
tjlmooJul 28, 2012
SidestepsJul 27, 2012
jibjenJul 27, 2012
jibjenJul 27, 2012
5
By Sidesteps Blank
I finally called my doctor today and spoke to the RN. I am in another flare --- been having some ongoing issues for a...
2012515_tn?1353879125
tjlmooJul 28, 2012
TheLightSeekerJul 27, 2012
tjlmooJul 27, 2012
tjlmooJul 27, 2012
RicobordJul 27, 2012
14
By tjlmoo Blank
Hello to all. I'm hoping everyone is getting along well and enjoying the summer. Just a week ago today our friend...
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RicobordJul 27, 2012
MrsAristotleJul 27, 2012
jibjenJul 27, 2012
SidestepsJul 25, 2012
dogmumJul 25, 2012
7
By Lulu54 Blank
Don't miss the chance to laugh, groan and maybe even shed a tear or two. I have posted the long awaiting compilation...
572651_tn?1333939396
MrsAristotleJul 27, 2012
RazCarverJul 26, 2012
2
By Lulu54 Blank
Dear neuro-limbolanders, MedHelp has given me permission to post this in this group with Mrs. Aristotle's permiss...
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tjlmooJul 23, 2012
illinwithoutacauseJul 22, 2012
MrsAristotleJul 22, 2012
illinwithoutacauseJul 21, 2012
Jacksmom516Jul 20, 2012
8
By jibjen Blank
Hey All, I just wanted to check in and see how everyone is doing...I have been trying to stay in touch but...well....
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TheLightSeekerJul 22, 2012
SSMednzJul 22, 2012
SSMednzJul 22, 2012
SSMednzJul 22, 2012
MrsAristotleJul 21, 2012
18
By SSMednz Blank
Hi again, I saw my Neuro yesterday and its official I DONT have MS. You would think I would be happy and I guess I am...
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illinwithoutacauseJul 22, 2012
TheLightSeekerJul 02, 2012
jibjenJul 02, 2012
3
By illinwithoutacause Blank
hello, i attended a support group for people suffering from chronic illness last year. as i was cleaning up some ...
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sandythegeek2Jul 20, 2012
dogmumJul 15, 2012
sandythegeek2Jul 14, 2012
dogmumJul 10, 2012
MrsAristotleJun 29, 2012
11
By sandythegeek2 Blank
When I compare my optic nerve disc to images online, mine looks more oval and narrow. Weird. It looks kind of like a...
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sandythegeek2Jul 18, 2012
TheLightSeekerJul 15, 2012
dogmumJul 15, 2012
MrsAristotleJul 15, 2012
sandythegeek2Jul 15, 2012
5
By MrsAristotle Blank
Well here is one for you. I have 22.5 showing in my blood for Hexene when it should be 0.0 - 7.9 and xylene is slight...
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dogmumJul 18, 2012
TheLightSeekerJul 16, 2012
dogmumJul 16, 2012
TheLightSeekerJul 15, 2012
dogmumJul 15, 2012
8
By dogmum Blank
I wanted to give an update here as so many of you have been so kind as to answer my many questions and hang with me t...
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RicobordJul 18, 2012
SidestepsJul 16, 2012
Audrey_MJul 16, 2012
dogmumJul 15, 2012
MrsAristotleJul 14, 2012
6
By torikat32 Blank
its official I have MS I dont know wheather to jump and down or cry after all these years I finaly get validated . ...
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TheLightSeekerJul 17, 2012
1
By Audrey_M Blank
I've been in Limbo Land for years now. At the moment, I am in my second "spell" since November. I stopped seeing a ne...
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