SURVIVING NEUROLOGICAL LIMBO LAND - NO DX User Group
This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."
Founded by MrsAristotle on October 2, 2009
517 members
517 members
Search this Group:
I finally called my doctor today and spoke to the RN. I am in another flare --- been having some ongoing issues for a...
14
Hello to all.
I'm hoping everyone is getting along well and enjoying the summer.
Just a week ago today our friend...
RicobordJul 27, 2012
MrsAristotleJul 27, 2012
jibjenJul 27, 2012
SidestepsJul 25, 2012
dogmumJul 25, 2012
7
Don't miss the chance to laugh, groan and maybe even shed a tear or two. I have posted the long awaiting compilation...
MrsAristotleJul 27, 2012
RazCarverJul 26, 2012
2
Dear neuro-limbolanders,
MedHelp has given me permission to post this in this group with Mrs. Aristotle's permiss...
tjlmooJul 23, 2012
illinwithoutacauseJul 22, 2012
MrsAristotleJul 22, 2012
illinwithoutacauseJul 21, 2012
Jacksmom516Jul 20, 2012
8
Hey All,
I just wanted to check in and see how everyone is doing...I have been trying to stay in touch but...well....
NikodicretaJul 22, 2012
SSMednzJul 22, 2012
SSMednzJul 22, 2012
SSMednzJul 22, 2012
MrsAristotleJul 21, 2012
18
Hi again, I saw my Neuro yesterday and its official I DONT have MS. You would think I would be happy and I guess I am...
3
hello,
i attended a support group for people suffering from chronic illness last year. as i was cleaning up some ...
sandythegeek2Jul 20, 2012
dogmumJul 15, 2012
sandythegeek2Jul 14, 2012
dogmumJul 10, 2012
MrsAristotleJun 29, 2012
11
When I compare my optic nerve disc to images online, mine looks more oval and narrow. Weird. It looks kind of like a...
sandythegeek2Jul 18, 2012
NikodicretaJul 15, 2012
dogmumJul 15, 2012
MrsAristotleJul 15, 2012
sandythegeek2Jul 15, 2012
5
Well here is one for you. I have 22.5 showing in my blood for Hexene when it should be 0.0 - 7.9 and xylene is slight...
dogmumJul 18, 2012
NikodicretaJul 16, 2012
dogmumJul 16, 2012
NikodicretaJul 15, 2012
dogmumJul 15, 2012
8
I wanted to give an update here as so many of you have been so kind as to answer my many questions and hang with me t...
RicobordJul 18, 2012
SidestepsJul 16, 2012
Audrey_MJul 16, 2012
dogmumJul 15, 2012
MrsAristotleJul 14, 2012
6
its official I have MS I dont know wheather to jump and down or cry after all these years I finaly get validated . ...
NikodicretaJul 17, 2012
1
I've been in Limbo Land for years now. At the moment, I am in my second "spell" since November. I stopped seeing a ne...
sandythegeek2Jul 15, 2012
jibjenJul 14, 2012
2
Hi guys sorry i havent been on much, i had my daughter stay after her ankle operation for about 4 days then on Tuesda...
sandythegeek2Jul 14, 2012
MrsAristotleJul 13, 2012
sandythegeek2Jul 10, 2012
SidestepsJul 09, 2012
sandythegeek2Jul 04, 2012
14
I posted this on the MS forum already. My Nuero's office called and said they want me to have the VER test. They rece...
Well, I have to say this past week has been one for the books for me....It started my husband was admitted to hospita...
SidestepsJul 10, 2012
jibjenJul 04, 2012
RicobordJul 02, 2012
MrsAristotleJul 02, 2012
NikodicretaJul 01, 2012
8
She said i am VERY SICK.
Basically just with my defiencys alone i am sick.
B12, Glutathione, choline, Vitimi...
SSMednzJul 09, 2012
RicobordJul 09, 2012
SSMednzJul 08, 2012
jibjenJul 07, 2012
MrsAristotleJul 06, 2012
5
Hi I'm new to this forum. I have had symptoms for about two and a half years now. In New Zealand all healthcare is fr...
RicobordJul 04, 2012
NikodicretaJul 04, 2012
MrsAristotleJul 04, 2012
RicobordJul 03, 2012
NikodicretaJul 02, 2012
12
On one blood test that have come back I am deficient on :
B12, Choline, Oleic Acid, Zinc, Gluthatione, Vitimin E, ...
NikodicretaJul 02, 2012
RicobordJul 02, 2012
MrsAristotleJun 29, 2012
NikodicretaJun 28, 2012
Jacksmom516Jun 28, 2012
8
Hi all! I have been absent for awhile bc I don't seem to find a lot of answers and I haven't needed much moral suppo...
illinwithoutacauseJun 28, 2012
NikodicretaJun 27, 2012
MrsAristotleJun 27, 2012
RicobordJun 26, 2012
Valkyrie568Jun 26, 2012
13
Hi i just had a long letter from my doctor i went to see to MY other normal GP. I got a copy. Basically the examinati...
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