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SURVIVING NEUROLOGICAL LIMBO LAND - NO DX Group
This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."
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3498544 tn?1347498891
I have been in search of a answer for many of months. I started having soreness pain in both wrists, that continued to get worse with use...
1 answer |
163240 tn?1337907961
why is it that your neurologist or like me even my muscularneurologist have me take these tests then see them in 3 months? We wont ever g...
4 answers |
803938 tn?1403751853
I have been on medhelp for a few years but just discovered this site today. I'll make a list of my symptoms, maybe someone can shed some ...
4 answers |
956292 tn?1334058469
Hey guys, Well much to my surprise he does not think this is a flare...He gave me a lecture about heat/beach as he commented me on ...
10 answers |
1760800 tn?1406757051
While dealing with the drudgery of having a chronic illness and other illnesses as some of us have here, sometimes it is hard to remember...
6 answers |
Avatar universal
A day after I had knee surgery to repair a tear, I had a warm rushing sensation go up through my chest and then I felt weak on my right s...
1 answer |
551343 tn?1350880995
Well guys today I was told by my private doctor i have MS. WOO HOO, balloons, and bunting, and lots of champagne lol. She has based th...
10 answers |
2012515 tn?1353879125
Hello Dear Limbolanders! This forum has been really quiet lately. Either everyone is doing better or everyone is busy and hopefully i...
6 answers |
3114202 tn?1341898812
Ive been diagnosed by my doctor on Neuropatic pain, first ive experience pins & needles on my feet, legs, shoulder, neck, face & head, im...
6 answers |
Avatar universal
did anyone use effexor and then started having neurological problems? since i have used effexor i have trunk and head spasms and brain z...
1 answer |
2012515 tn?1353879125
Happy Birthday Maria(Mrs.Aristotle)aka Mama Bear! I hope this year is full of the many blessings the good Lord has planned for you. A y...
7 answers |
Avatar universal
My girlfriend have facing a weird problem. When she go to bed in night for sleep she feels strong burning sensation.Suddenly temperature...
3 answers |
2112931 tn?1335102002
Well I'm still in limbo. He said the large lesion looks like MS but no dx yet. Wait and see approach.
5 answers |
2112931 tn?1335102002
My Neuro Dr B  analyzed my MRI and LP and VER results again today and said the VER was off some but not a lot.  It wasn't off enough for ...
8 answers |
1857376 tn?1328886464
Hi! I'm just joining this group in hopes I can get some more insight into my undiagnosed medical condition. I have had some type of nerve...
2 answers |
1760800 tn?1406757051
Met with the MSologist today or I should say his CRNP - And she is very pleased - apparently PT is working its magic and my legs are si...
4 answers |
1475492 tn?1332887767
I finally called my doctor today and spoke to the RN. I am in another flare --- been having some ongoing issues for about 6 weeks but not...
5 answers |
2012515 tn?1353879125
Hello to all. I'm hoping everyone is getting along well and enjoying the summer. Just a week ago today our friends son(our son's best...
14 answers |
572651 tn?1333939396
Don't miss the chance to laugh, groan and maybe even shed a tear or two. I have posted the long awaiting compilation of LIES MY NEURO TO...
7 answers |
572651 tn?1333939396
Dear neuro-limbolanders, MedHelp has given me permission to post this in this group with Mrs. Aristotle's permission, and I hope many...
2 answers |
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