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SURVIVING NEUROLOGICAL LIMBO LAND - NO DX Group

This is a group for anyone who is currently living in limbo land with a neurological disorder but doesn't have a diagnosis. Many people are living with chronic and disabling neurological problems which mirror such diseases as multiple sclerosis, lupus, M.E., Fibromyalgia, Lymes disease, Vitimin D deficiency, Migraines, Parkinsons yet have no diagnosis and are left to literally struggle on alone. I have set up this group to help support people through their journey, whether its just for a moan, sharing a joke, experiences, advise on how to survive just plain anything. I know there are a lot of us out there. Anyone who feels lost, or needs to share or just wants a big hug please join, there will always be someone to give you support. OUR MOTTO IS: "we are still all in this together..no matter what point of our journey we are in...limbo, dx. or just joining...we are all here for a reason...to seek support, make a friend and find answers..."

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3498544_tn?1347498891
I have been in search of a answer for many of months. I started having soreness pain in both wrists, that continued to get worse with use, I was already on prescription pain meds for another issue, they did not help at all. I bought wris...
stressed1976 | Last answer
163240_tn?1337907961
why is it that your neurologist or like me even my muscularneurologist have me take these tests then see them in 3 months? We wont ever get a dx if i constantly have to wait so long to see them. Even after the muscular neurologist said t...
chefaid90 | Last answer
803938_tn?1403751853
I have been on medhelp for a few years but just discovered this site today. I'll make a list of my symptoms, maybe someone can shed some light on a possible diagnosis?? 2002: i get my first stomach pain problems. Basically very intens...
Ecologic | Last answer
956292_tn?1334058469
Hey guys, Well much to my surprise he does not think this is a flare...He gave me a lecture about heat/beach as he commented me on my tan..naughty naughty..He said my exam was normal but I was a little off and he thinks due to my c...
jibjen | Last answer
1760800_tn?1406757051
While dealing with the drudgery of having a chronic illness and other illnesses as some of us have here, sometimes it is hard to remember to smile. The day to day of drugs, dealing with symptoms and just dealing period makes it tough! ...
Jacksmom516 | Last answer
Avatar_universal
A day after I had knee surgery to repair a tear, I had a warm rushing sensation go up through my chest and then I felt weak on my right side and had pins and needles on my right face, arm and chest. I went to the hospital and they said ...
JCNBKCJ | Last answer
551343_tn?1350880995
Well guys today I was told by my private doctor i have MS. WOO HOO, balloons, and bunting, and lots of champagne lol. She has based the diagnosis of MS on the first MRIs I had and the latest MRI I had 2 years ago and also the results ...
MrsAristotle | Last answer
2012515_tn?1353879125
Hello Dear Limbolanders! This forum has been really quiet lately. Either everyone is doing better or everyone is busy and hopefully it is not the latter(feeling bad or in flares or?) I hope vacations were relaxing LOL. I have s...
tjlmoo | Last answer
3114202_tn?1341898812
Ive been diagnosed by my doctor on Neuropatic pain, first ive experience pins & needles on my feet, legs, shoulder, neck, face & head, im thinking of a stroke or heart attack but after a series of test such as neck ultrasound. doppler st...
arfe | Last answer
Avatar_universal
did anyone use effexor and then started having neurological problems? since i have used effexor i have trunk and head spasms and brain zaps. it is starting to effect my right eye and hand. just wondering if anyone else started to have...
cindralee4 | Last answer
2012515_tn?1353879125
Happy Birthday Maria(Mrs.Aristotle)aka Mama Bear! I hope this year is full of the many blessings the good Lord has planned for you. A year full of happy days and feel good days. A year for answers. A year that dreams come true. I wi...
tjlmoo | Last answer
Avatar_universal
My girlfriend have facing a weird problem. When she go to bed in night for sleep she feels strong burning sensation.Suddenly temperature of her legs go so high and she cant tolerate the pain. For this reason she cant sleep tight in nig...
naf_imtyy | Last answer
2112931_tn?1335102002
Well I'm still in limbo. He said the large lesion looks like MS but no dx yet. Wait and see approach.
sandythegeek2 | Last answer
2112931_tn?1335102002
My Neuro Dr B  analyzed my MRI and LP and VER results again today and said the VER was off some but not a lot.  It wasn't off enough for her to say that it was a lesion on my optic nerve for sure.  She said my LP was normal but 1/3 of pe...
sandythegeek2 | Last answer
1857376_tn?1328886464
Hi! I'm just joining this group in hopes I can get some more insight into my undiagnosed medical condition. I have had some type of nerve condition for almost a year now. I have many other symptoms and was tested for many things,and I'm...
Dina723 | Last answer
1760800_tn?1406757051
Met with the MSologist today or I should say his CRNP - And she is very pleased - apparently PT is working its magic and my legs are significantly stronger - My Vision tests are all normal and when she did the neuro test all was basic...
Jacksmom516 | Last answer
1475492_tn?1332887767
I finally called my doctor today and spoke to the RN. I am in another flare --- been having some ongoing issues for about 6 weeks but nothing that screamed "FLARE" until this week. After a long talk trying to decipher the pain, it appear...
Sidesteps | Last answer
2012515_tn?1353879125
Hello to all. I'm hoping everyone is getting along well and enjoying the summer. Just a week ago today our friends son(our son's bestest friend) just had brain surgery due to having Chiari Malformation Type 1. He has done well,Prais...
tjlmoo | Last answer
572651_tn?1333939396
Don't miss the chance to laugh, groan and maybe even shed a tear or two. I have posted the long awaiting compilation of LIES MY NEURO TOLD ME as a new Health Page on the MS Forum. This is put together from everyone's contributions and ...
Lulu54 | Last answer
572651_tn?1333939396
Dear neuro-limbolanders, MedHelp has given me permission to post this in this group with Mrs. Aristotle's permission, and I hope many of you will see this and want to help. I have submitted an entry to MAYO clinic for their soci...
Lulu54 | Last answer
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