Sarcoidosis Support User Group
About This Group:

Welcome to the sarcoidosis support group, a place where sarcoid sufferers can go to discuss symptoms, diagnosis and treatment in any stage of the disease.

Founded by mygoode on October 4, 2010
32 members
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By sdlecce Blank
All of a sudden i wont be able to take a breath in. I feel like im choking. Ill panic for a couple of seconds trying ...
1602878 tn?1304339616
By adventurer53 Blank
Hi - my husband was recently diagnosed with Sarcoidodis at Mayo in Rochester. He had an acute flare they called lofgr...
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By Nicole_V Blank
I was just diagnosed with Sacoidosis and am seeing a lung specialist in April to decide on a treatment plan. I am als...
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By Blueshaman79 Blank
Hi, I am new to the site and would like to request some help from the contributors on here.I was first diagnosed with...
787406 tn?1339206783
BessieySep 20, 2012
iris986Jun 11, 2012
mygoodeMay 28, 2012
iris986May 25, 2012
mygoodeMay 21, 2012
8
By iris986 Blank
Two weeks ago I started itching on the back of my right upper forearm (6 inches long) except there was not a rash or ...
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jennywillAug 19, 2012
mygoodeJun 08, 2012
2
By Testtyiiii Blank
Is there a way to lose weight while on prednesone, dx with sarcoidosis over 15 years ago lesions in heart & lungs and...
787406 tn?1339206783
By iris986 Blank
The last 3 years I have been dealing with all kinds of symptoms (Muscle pain, muscle spasms,double vision, blurred vi...
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mygoodeMay 19, 2012
MaddymadgeMay 18, 2012
mygoodeMay 17, 2012
3
By Maddymadge Blank
Hi, Over ten years ago I was diagnosed with sarcoidosis on the lungs. It was found with a chest x ray. Apart from...
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mygoodeMay 17, 2012
1
By JemmAus Blank
Hi, I have been diagnosed with probable MS, but have my doubts. I recently was looking up sarcoid for my cousin and w...
1182479 tn?1273376014
mygoodeMay 17, 2012
1
By tyler911 Blank
Hi I have just joined this group, I am so glad there is now a support group for this terrible disease I was dia...
1643112 tn?1301658465
tyler911Jun 20, 2011
MydnightnurseApr 03, 2011
2
By nmac30 Blank
I also posted this question on the Autoimmune disorder forum; My Dr has done a autoimmune blood panel because I ha...
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MydnightnurseApr 03, 2011
mygoodeMar 12, 2011
2
By flyboy84pc Blank
Last month my AST level was at 59 and my ALT was at 95 in my liver. I go to hear the results of my blood work from ye...
434278 tn?1324709825
karajoMar 24, 2011
karajoMar 24, 2011
mygoodeMar 23, 2011
karajoMar 12, 2011
mygoodeMar 12, 2011
5
By karajo Blank
Thank you Misty for your time and devotion to helping people in this support group forum. I currently am on Nexi...
Avatar m tn
mygoodeMar 23, 2011
1
By navyguitar Blank
I have been going to doctors for 3 years now and haven't found a diagnosis. All of my symptoms started while doin...
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mygoodeMar 12, 2011
mygoodeMar 12, 2011
2
By Barb0106 Blank
My sister has sarcoidosis, and I was wandering what are the chances I would have it too. My sister and I share alot o...
967168 tn?1343732745
Mom2four85Feb 03, 2011
1
By Mom2four85 Blank
I'm going to try and keep this short; sorry if I ramble. I have so many questions because I've had 2 doctors suggest ...
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mygoodeDec 28, 2010
1
By MountainReader Blank
Hi. I'm new to this group. I'm trying to figure out if the direction my doctors are leading me is actually giving m...
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mygoodeDec 28, 2010
1
By thyroidian Blank
my friend went for a follow up at the chest clinic, and they have told him, he his not showing any signs of sarcoidos...
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mygoodeNov 02, 2010
1
By tt007 Blank
I was diagnosised with sarcoidosis in July 2010. I had the normal fatigue, dry cough, chest pain, weight loss, rash o...
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thyroidianOct 30, 2010
mygoodeOct 28, 2010
thyroidianOct 27, 2010
mygoodeOct 27, 2010
4
By thyroidian Blank
Hi. Im posting this question for my friend who has sarcoidosis. But doesnt know much about it, and neither do the do...
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