Sarcoidosis Support User Group
About This Group:

Welcome to the sarcoidosis support group, a place where sarcoid sufferers can go to discuss symptoms, diagnosis and treatment in any stage of the disease.

Founded by mygoode on October 4, 2010
31 members
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By adventurer53 Blank
Hi - my husband was recently diagnosed with Sarcoidodis at Mayo in Rochester. He had an acute flare they called lofgr...
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By Nicole_V Blank
I was just diagnosed with Sacoidosis and am seeing a lung specialist in April to decide on a treatment plan. I am als...
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By Blueshaman79 Blank
Hi, I am new to the site and would like to request some help from the contributors on here.I was first diagnosed with...
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BessieySep 20, 2012
iris986Jun 11, 2012
mygoodeMay 28, 2012
iris986May 25, 2012
mygoodeMay 21, 2012
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By iris986 Blank
Two weeks ago I started itching on the back of my right upper forearm (6 inches long) except there was not a rash or ...
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jennywillAug 19, 2012
mygoodeJun 08, 2012
2
By Testtyiiii Blank
Is there a way to lose weight while on prednesone, dx with sarcoidosis over 15 years ago lesions in heart & lungs and...
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By iris986 Blank
The last 3 years I have been dealing with all kinds of symptoms (Muscle pain, muscle spasms,double vision, blurred vi...
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mygoodeMay 19, 2012
MaddymadgeMay 18, 2012
mygoodeMay 17, 2012
3
By Maddymadge Blank
Hi, Over ten years ago I was diagnosed with sarcoidosis on the lungs. It was found with a chest x ray. Apart from...
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mygoodeMay 17, 2012
1
By JemmAus Blank
Hi, I have been diagnosed with probable MS, but have my doubts. I recently was looking up sarcoid for my cousin and w...
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mygoodeMay 17, 2012
1
By tyler911 Blank
Hi I have just joined this group, I am so glad there is now a support group for this terrible disease I was dia...
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tyler911Jun 20, 2011
MydnightnurseApr 03, 2011
2
By nmac30 Blank
I also posted this question on the Autoimmune disorder forum; My Dr has done a autoimmune blood panel because I ha...
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MydnightnurseApr 03, 2011
mygoodeMar 12, 2011
2
By flyboy84pc Blank
Last month my AST level was at 59 and my ALT was at 95 in my liver. I go to hear the results of my blood work from ye...
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karajoMar 24, 2011
karajoMar 24, 2011
mygoodeMar 23, 2011
karajoMar 12, 2011
mygoodeMar 12, 2011
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By karajo Blank
Thank you Misty for your time and devotion to helping people in this support group forum. I currently am on Nexi...
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mygoodeMar 23, 2011
1
By navyguitar Blank
I have been going to doctors for 3 years now and haven't found a diagnosis. All of my symptoms started while doin...
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mygoodeMar 12, 2011
mygoodeMar 12, 2011
2
By Barb0106 Blank
My sister has sarcoidosis, and I was wandering what are the chances I would have it too. My sister and I share alot o...
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Mom2four85Feb 03, 2011
1
By Mom2four85 Blank
I'm going to try and keep this short; sorry if I ramble. I have so many questions because I've had 2 doctors suggest ...
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mygoodeDec 28, 2010
1
By MountainReader Blank
Hi. I'm new to this group. I'm trying to figure out if the direction my doctors are leading me is actually giving m...
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mygoodeDec 28, 2010
1
By thyroidian Blank
my friend went for a follow up at the chest clinic, and they have told him, he his not showing any signs of sarcoidos...
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mygoodeNov 02, 2010
1
By tt007 Blank
I was diagnosised with sarcoidosis in July 2010. I had the normal fatigue, dry cough, chest pain, weight loss, rash o...
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thyroidianOct 30, 2010
mygoodeOct 28, 2010
thyroidianOct 27, 2010
mygoodeOct 27, 2010
4
By thyroidian Blank
Hi. Im posting this question for my friend who has sarcoidosis. But doesnt know much about it, and neither do the do...
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mygoodeOct 19, 2010
1
By iris986 Blank
Muscle pain all over, joint pain in knees, ankles, wrist and thumb. muscle spasms in legs, arms, back, ribs and feet....
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