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Sarcoidosis Support Group

Welcome to the sarcoidosis support group, a place where sarcoid sufferers can go to discuss symptoms, diagnosis and treatment in any stage of the disease.

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Avatar universal
All of a sudden i wont be able to take a breath in. I feel like im choking. Ill panic for a couple of seconds trying to force the breath in. When that doesnt work i force myself to cough hard. That usually gets me breathing again. I usua...
  Posted
1602878 tn?1304339616
Hi - my husband was recently diagnosed with Sarcoidodis at Mayo in Rochester. He had an acute flare they called lofgren's syndrome. The biopsies of his enlarged lymph nodes from his neck down to the lungs contained granulomas.. His feve...
  Posted
Avatar universal
I was just diagnosed with Sacoidosis and am seeing a lung specialist in April to decide on a treatment plan. I am also a diabetic, making corticosteroids (such as Prednisone) out of the question. I'm interested in hearing from people tha...
  Posted
Avatar universal
Hi, I am new to the site and would like to request some help from the contributors on here.I was first diagnosed with sarcoidosis in 1990 and had quite a rough time including a severe outbreak of uveitis that was partly treated with an i...
  Posted
787406 tn?1339206783
Two weeks ago I started itching on the back of my right upper forearm (6 inches long) except there was not a rash or discoloration. , then about a week ago I noticed the small pea sized lumps under the skin that are itchy and painful to ...
  Posted
Avatar universal
Is there a way to lose weight while on prednesone, dx with sarcoidosis over 15 years ago lesions in heart & lungs and joint pains. I have also had problems with synocope insidents, head aches,diabetes and confussion. I have continually ...
  Posted
787406 tn?1339206783
The last 3 years I have been dealing with all kinds of symptoms (Muscle pain, muscle spasms,double vision, blurred vision,headaches, nausea, spinal pain, sacral arthritis, fluid on both knees, feet pain, pain in fingers, tendon pain, jus...
  Posted
Avatar universal
Hi, Over ten years ago I was diagnosed with sarcoidosis on the lungs. It was found with a chest x ray. Apart from being breathless I had no particular symptoms so I didnt have any treatment. About two years ago the gp told me it was ...
  Posted
Avatar universal
Hi, I have been diagnosed with probable MS, but have my doubts. I recently was looking up sarcoid for my cousin and was surprised to read that many of the symptoms of neurosarcoid resemble MS. What is making me wonder now if I have sa...
  Posted
1182479 tn?1273376014
Hi I have just joined this group, I am so glad there is now a support group for this terrible disease I was diagnosed with Neuro Sarcoidosis early last year, I had also been misdiagnosed with MS which i just found out last week ...
  Posted
1643112 tn?1301658465
I also posted this question on the Autoimmune disorder forum; My Dr has done a autoimmune blood panel because I have several symptoms like feeling ill,raised rash,uvetis,night sweats and swollen lymph node. But everything I read says ...
  Posted
Avatar universal
Last month my AST level was at 59 and my ALT was at 95 in my liver. I go to hear the results of my blood work from yesterday today at 2 and I wonder how high the readings are now. My worry is at what level should I start freaking out??
  Posted
434278 tn?1324709825
Thank you Misty for your time and devotion to helping people in this support group forum. I currently am on Nexium (2xs/day), armour thyroid, plaquinel (for lupus), and vit D. I have had a dry cough for about 8 months. Tried e...
  Posted
Avatar universal
I have been going to doctors for 3 years now and haven't found a diagnosis. All of my symptoms started while doing some remodeling. The doctor I went to diagnosed me with allergies. I have had a chronic stuffy nose, fatigue, difficul...
  Posted
Avatar universal
My sister has sarcoidosis, and I was wandering what are the chances I would have it too. My sister and I share alot of the same symptoms. I have been voicing my concern about all these issues and the only thing I get from my doctor,is oh...
  Posted
967168 tn?1343732745
I'm going to try and keep this short; sorry if I ramble. I have so many questions because I've had 2 doctors suggest I may have either sarcoidosis or amyloidosis due to some rare heart rhythm issues (malignant ventricular tachycardia). ...
  Posted
Avatar universal
Hi. I'm new to this group. I'm trying to figure out if the direction my doctors are leading me is actually giving me the answers I should have or if I should persue other options. My history: I have a history of a chronic cough. I...
  Posted
Avatar universal
my friend went for a follow up at the chest clinic, and they have told him, he his not showing any signs of sarcoidosis. Even though they have previously diagnosed him with it in 2008. Also what bloodtests should he have done to conf...
  Posted
Avatar universal
I was diagnosised with sarcoidosis in July 2010. I had the normal fatigue, dry cough, chest pain, weight loss, rash on legs, night sweats. Most of these symtoms are much better. Now I'm having headaches and pain and soreness in my armpit...
  Posted
Avatar universal
Hi. Im posting this question for my friend who has sarcoidosis. But doesnt know much about it, and neither do the doctor who is treating him for it. Recently my friend was complaining of funny headaches, and a foggy head, His consultan...
  Posted
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