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Stroke Community

This patient support community is for discussions relating to stroke, rehabilitation, ability to eat/swallow, alertness, bowel/bladder control, depression, motor skills, nutrition, orthotics/braces, pain, prevention, senses, and spasticity.
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Central Pain Syndromne( Stroke in the Thalamus area in the brain)

by SrikalaS, Apr 12, 2006 12:00AM
Hello,

My father had got a stroke about 3 years ago due to which many brain cells in the Thalamus area were affected. He has Blood pressure and is Diabetic. 3 months after the stroke he started facing great pain in the leg, thighs , hands and shoulders followed by swelling of the palm and legs. There is also burning sensation and tingling/pressure and numbness in the feet and hands which he is not able to bear. We have consulted many many doctors but with no cure. He is being given anti-depressants, diabetic and blood pressure medicines. But the situation has worsened where he is not even able to walk much becouse of the pain in the thighs and legs.

Can you please please advice what can be done in this situation?

I was thinking of buying a Nuetrotrac rehab instrument for excercising and improving blood circulation in the limbs .. Whether it is advisable to go for it?

And what kind of medicines are usually prescribed for this kind of situation.

Please advice. Thanks a lot- Sri. If anyone of the similar situation also please reply to me regarding what treatments are being given and how are you facing the situation. As I am not able to see my father in this kind of pain. I would like to help him in whatever way I can .Please reply.
Member Comments

by SrikalaS, May 03, 2006 12:00AM
No reply on this still :-( :-( :-(

Please can any medical support be given on this

Please

:-(

by Rajool, May 16, 2006 12:00AM
sorry you got answer so late BUT today I got a bit free to surf on this site & I saw you are very concerned & your second post reflects you are sad no body answered.



Do not panic.panic will lead you no where.



No body has answers for you for so called thalamic pain & paraesthesia.there is no drug to help this pain



BUT CERTAINLY YOU can get rid off this pain totally in very short time if you will do as under.



1) Do not let any one touch the skin of painful area. This is a must.(Including your touch as well)

2) Let your father move his good hand on the skin area on the affected painful side having paraesthesia.

3) repeat for long hours as long as 5 hours a day & you will find your father telling you HE IS SURPRISED PAIN HAS VANISHED.



REPORT ME directly on ***@****



u may check www.brainstrokes.com

by SrikalaS, May 25, 2006 12:00AM
Thanks a lot.. I will advice my father.. Thanks again

by Choco347, Dec 27, 2007 03:04PM
To: SnkalaS
Has your father gotten any relief??? My daughter recently had a stroke in the thalamus area, and she is now experiencing a lot of pain in her leg from the knee on down.  She is on pain meds, but they aren't helping much.  I need to find something to give her relief --- she's only 25 years old!!!!!

by 93Tigger, Mar 19, 2008 08:32AM
To: Hello
I am a 43 year old female.  I was just told I had had a stroke in the thalamus.  I was told I also had a small hole in my heart that needed repaired.  Last night my left arm began hurting me to the point I could not get comfortable to go to sleep. Could this be due to coumadein or the stroke in the area that I had it?  Could someone please help me with an answer.

Sincerely,
Brigette  

by 080707, Mar 30, 2008 11:30AM
I had a thalamic stroke on the left side of my brani on 08/07/07 which all of the doctors in the hospital called a "small" stroke from which I would recover in a few weeks.  They could not have been more wrong.  Though I did not have any vision, walking or talking difficulties at the time -- just a lot of pins/needles/tingling on my entire right side, I developed central pain syndrom or thalamic pain syndrome which has impacted my right index finger (and, of course, I'm right handed so working with computer and mouse is VERY difficult), my right hand, my right arm, right side of my face/scalp and my right knee and the bottom of my right foot very seriously.  I take 2400 mg of neurontin each day, 90 mg of cymbalta, 10 mg folic acid, 20 mg lispinopril, 40 mg lipitor, 1500 calcium as well as calcium infused aspirin which has worked to a point, but my recent increase in neurontin and change from capsule form to pill form has caused dizziness and episodes of fainting.  I am thinking of asking my neurologis to consider Lyrica versus neurontin or even Trileptal which are both used for other pain syndromes.  I have found some relief -- esp with being able to fall asleep and stay asleep for more than 4 hours -- with weekly acupuncture treatments.  I also have occupational PT on my arm/hand twice a week and most recently my Federal government health plan -- the one which the Presidential candidates RAVE about -- has started sending me "surveys" to complete to determine if my medical problems are in anyway related to a work-related incident, an accident or other reason, which I'm guessing is because they want to pass along some of my high medical expenses.  At least I have health insurance, but their bet is that you pay them and they only have to pay minimal expenses for policy holders, nothing like what I'm going through.  Light exercise -- walking, stretching over a hugh exercise ball, some squeezing of therapuddy.  Hope this helps!!1

by Dr_Aparna, Jun 06, 2008 12:15PM
To: Srikalas
Hi,
Central pain syndrome is a neurological condition caused by damage specifically to the central nervous system (CNS) -- brain, brainstem, or spinal cord. The pain is steady and is usually described as a burning, aching, or cutting sensation. Occasionally there may be brief, intolerable bursts of sharp pain.
Patients are somewhat numb in the areas affected by this burning pain. The burning and loss of touch appreciation are usually most severe on the distant parts of the body, such as the feet or hands. Pain may be moderate to severe in intensity and is often exacerbated by movement and temperature changes, usually cold temperatures.
Generally pain medications provide little or no relief for those affected by central pain syndrome. Patients should be sedated and the nervous system should be kept quiet and as free from stress as possible.
Tricyclic antidepressants such as nortriptyline or anticonvulsants such as neurontin (gabapentin) can be useful.
ref:http://healthlink.mcw.edu/article/921391401.html
Hope this helps you.

by mistyrayne, Jul 06, 2008 09:52PM
Hi
I am 62, and I had a stroke in the right side of the thalamus about 3 yrs ago. since then i have had burning and pain in my legs and feet.sometime in my arms and it hurts so bad i can't lay in bed. It mostly in my right arm but will go across chest and into left arm too. I read that neurontin can help this in the notes above. I am taking only 30mg of this right now,am thinking I should ask my doctor to up the amount I take. this information is very helpful.
Thanks
joy

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