i have gone n hour without problems. i have gone days witout problems.
i am confused about what u wrote. couldnt understand it. sorry
i read about the myclonus. do get them when trying to fal asleep. the other so bad that i actually sat up in bed. as far as awake ad just lying or sitting yes its there.
these few days the nerve pin has gone crazy. now in back. walking bare foot on vinyl floor zooms burning sensation more. i can feel hot or cold but the water hitting my body hurts. only when flare of sysmptos.
one more thing. i got a chance to post in neurology. so lets see what they say.
ok one more thing. i keep thinking of things
cant recall any injury.
i always had upper respitory infections. i am 28. last two yrs allerges and sinus problems.
in 2001 after my second pregnancy i developed uti. for the whole yr. trace of blood in urine. went to urologist who did all kinds of cultures and blood test and looked inside with camera. anyways no more utis but still to this day trace blood in urine.
my general doc said could be relaed to muscle problems. but neuro didnt say much abou it.
ok i have been saying past week my flare has been bad. before this i became sick from viral infection (upper espitory stuff) and today sneezing and stuff again.
yet again
i have also a lot of pain in legs in front in the bone to run or hop. cant do it. it came about after the flu shot.
ended up in er after shot in 2003 cause they doc thought it was guillian barre but the neuro in hospital said no.
so still sufering
Sorry I wasn't able to help. Hope Neuro will eventually.
I need to go get a valium. *Try not to multiple post too
much. Ea. new thread you start, moves board down & deletes
others. Many of us ck. posted dates & read that day + scan.
Maybe someone will have an answer for you. Gd-luck.
Makina your biopsy and ck levels are normal.Mild changes do occur as we age or after infections.These test are saying its not a muscular disorger.Thats great!
The myoclonus extends from the c-spine.Some myoclonus are normal,small jumps in limbs upon falling a sleep.Large ones and them happening while a wake is not.
Spacticity also extends from the c-spine.
When there is an injury at the c-spine area everything below that area will be effected.Have you had any MRI's?
This could extend from a viral infection.POST VIRAL SYNDROME.
Also there is a syndrome called BENIGN CRAMP FASCICULATION SYNDROME.Several symptoms from unknown origin.