Did you get your medical records from the surgery? Your answers could be there. Some symptoms present and they don't have to tell you. I am currently waiting my results, I had surgery and had an allergic reaction also bronchiospasm. There are tests for lupus and autoimmune disease, the type of person you could go to that can treat everything in adults is an Internal Medicine or Internist.(not Intern)
The hysterectomy could have triggered the problems. (As could menopause in a susceptable person). With the changes in hormones, illnesses sensitive to it can trigger, and many or most of the autoimmune illnesses can be sensitive. i.e. Doesn't happen to everyone at menopause who is going to get an autoimmune condition, but it does happen for some. Seeing a gyno and endocrinologist for HRT for other ideas might help.
To give one specific example I know is a friend's mom who complainted with her hysterectomy that something wasn't quite right ever again. Some fatigue, but some specific muscle pain and weakness too. Some years later it got bad enough to work hard on a diagnosis. It turned out to be a rare condition (in the autoimmune family), that was sensitive to the hormone levels so she sense of not-quite-right post-hyst was correct.
There is a forum hystersisters.com (hope I spelled the right), for women with hysterecotomies. Maybe you can find some sense of how it can happen there. (Most of the site is about the procedure it's self, but there's a real mix of women who post.)
Hope that helps!
Have you been to a neurologist yet?
my surgery was in October 2005. Since then I have had many things go wrong. Stuttering, left arm, left leg and tongue going asleep or numb, blurred or double vision, can't concentrate, very forgettable, heart beats real fast, have since developed a thyroid problem, dizzy all the time. I have been to 14 doctors so far, and yesterday the regular Doctor wanted to run the ANA test and a test for Lyme disease. Thank you for responding. I keep reading the posts on these forums hoping to see if anyone else has had these things to happen to them so I won't be asking the same questions.
The hysterectomy could have triggered the problems. (As could menopause in a susceptable person). With the changes in hormones, illnesses sensitive to it can trigger, and many or most of the autoimmune illnesses can be sensitive. i.e. Doesn't happen to everyone at menopause who is going to get an autoimmune condition, but it does happen for some. Seeing a gyno and endocrinologist for HRT for other ideas might help.
To give one specific example I know is a friend's mom who complainted with her hysterectomy that something wasn't quite right ever again. Some fatigue, but some specific muscle pain and weakness too. Some years later it got bad enough to work hard on a diagnosis. It turned out to be a rare condition (in the autoimmune family), that was sensitive to the hormone levels so she sense of not-quite-right post-hyst was correct.
There is a forum hystersisters.com (hope I spelled the right), for women with hysterecotomies. Maybe you can find some sense of how it can happen there. (Most of the site is about the procedure it's self, but there's a real mix of women who post.)
As far as the neurologist who laughed at you...laugh back at him! He needs to here how ridiculous he sounds!
Hope that helps!
Thank you all so much for responding. I have seen 3 neurologists and don't plan on seeing any more. I too have the not-quite-right feeling since the surgery. I just want it to get better and hope it does. I have never been to so many Doctors before in my whole life. Maybe in time it will.
Drug induced Lupus is caused by specific drugs, and usually goes away soon after the drugs are stopped. I do not think that anenthesia could do it, but perhaps some of the oter meds you got with your surgery could be culprit. You should look them up individually. Autoimmune diseases (theoretically) can be set off by your immune system being overstimulated, and then not being able to shut off. This is most likely in people who were already at risk of developing an autoimmune disease. How long ago was your surgery?