I am a 30 year old who has Neutopenia. It was discovered over ten years ago and the doctors I have seen seem to think it is probably something I have had since birth. I had a bone marrow biopsy 3 years ago and the results were normal. My count varies (at it's highest it is at 500 and lowest 130). The bone marrow biopsy was the only way to rule out 100% that it wasn't Lukemia... I think the hematologist did the procedure to cya, because I did not have any other symptoms and he said he fully expected it to come back ok. He also said that since I don't have chronic lung/respitatory infections that there really is nothing too wrong. Those with neutropenia that have pnemonia or chronic broncitus are the ones who may have more going on. I hope this helps... I am still looking for answers myself, but I thought something of my case may help. Best of luck!
I do not know much about this condition, but I would suggest seeing a pediatric hematologist. Thak a written list of questions with you, and make sure you understand all the answers. Hopefully you will hear answers that are comforting, but in case you don't, it would be a good idea to take a friend with you in order to get more out of it. If the Dr. tells you things that are upsetting, it may be hard to listen carefully, and remember everything he says. A friend would give you someone to discuss it with later when you are feeling calmer. You'll be in my prayers, as I have a young daughter myself, and I understand how scary this must be.