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Thyroid  (Expert Forum)
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confused
Answered by
Mark Lupo, M.D. - Thyroid Nodules, Thyroid Cancer, hyperthyroidism, hypothyroidism, Thyroid Ultrasound
Thyroid & Endocrine Center of Florida Sarasota - FL
Questions in the Thyroid forum are answered by Dr. Mark Lupo. Topics covered include goiter, graves disease, Hashimoto's thyroiditis, hyperthyroid, hypothyroid, thyroid cancers, thyroiditis, and thyroid stimulating hormone (TSH).

confused

by staren, Nov 29, 2006 12:00AM
I have TT scheduled for dec 1 and my surgeon called me today to let me know that cat scan showed that it was enlarged but not restricting my airway.  My TSH is .9 and I dont understannd what is to do.  I cant wear certain clothing and it feels like a tennis ball is in my neck.  I am always lathargic and tired.  I eat well and exercise yet dont lose weight appropriately.  He stated that they can treat me with a low dose of synthroid which will not shrink the thyroid but trick the mind to think the thyroid is working well.  I have a family history of thyroid problem and a grandmother with thyroid ca.  can u please tell me what to do I want to take it out because I will be on synthroid anyway why wait Im 30 now my body can bounce back.  I have been struggling with this thyroid since 1998.

by Mark Lupo, M.D., Dec 03, 2006 12:00AM
The thyroid is "working well" right now - current guidelines would not support using thyroid medication with a TSH of 0.9 with the goiter you describe.



I cannot give you specific advice, but with your compressive symptoms ("tennis ball" feeling) and grandmother's history, a TT is not unreasonable.  But remember, the thyroid hormone levels are normal now so this may not be the explanation of the lethargy and weight gain -- so TT may not "fix" this part of the problem.
Member Comments (5)

by tinkerbell 2006, Nov 29, 2006 12:00AM
People who have had TT almost to a person regret it it opens a whole new world of problems.



Why are you having it taken out?



Have you had an antibodies test? An enlarged thyroid means it's working overtime trying to produce hormones and could be under antibodies attack. Meds will reduce the TSH close to zero if you have Hashimoto's Disease which tricks the disease that the thyroid is not being stimulated therefore reducing the attack



What are your Free T3 and Free T4 labs like? Symptoms? the Free's are the important things, TSH is not a reliable diagnostic tool

by staren, Nov 29, 2006 12:00AM
To: Tinkerbell 2006
I understand what you are saying.  My thyroid is 6cm on each side and I have a family history of thyroid cancer.  Most of the time they dont know the pathology until they remove it.  It keeps growing and my lung capacity is now only 61 percent.  My T3 and T4 are low normal but he thyroid is not what is giving off these hormones it one of the nodules.  I just feel that at the end of the day I am going to have to do it anyway.  Have you had a TT or now someone who has had it done.  This is confusing to me.

by Lake Lover, Nov 30, 2006 12:00AM
To: tinkerbell 2006


Tinkerbell 2006

I had a TT for different reasons and it did not open a whole new world of problems. Quite the contrary for me, my life has never been better. You should save your comments for yourself.



Staren

A TT sounds like it could improve your life based on the thyroid issues you say you have been experiencing, especially with the history of thyroid cancer in your family.  It certainly would remove the doubt and fear you must feel about what could happen in the future.



Why do you have reduced lung capacity?



by hawkfan, Dec 01, 2006 12:00AM
I think you should get it out.  I had mine out last February and the only thing I deal with is regulating the synthroid.  I had mine removed due to ca.  I think you would feel better getting it out and then knowing for complete certainty that it was not cancer or that it was and deal with it.  The not knowing and your family history may be the worse thing to deal with.  Good Luck.  



Always remember it is your body and your health.  Ask questions and keep asking until YOU are comfortable.  No one knows how you feel except YOU!
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