Trigeminal Neuralgia Community
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This patient support community is for discussions relating to trigeminal neuralgia.

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By Suzy003 Blank
I experienced a major flare up of TN about 3 weeks ago. My neurologist has me on neurontin and tegretol which seems t...
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Suzy003May 07, 2014
nancy99nBlankMay 03, 2014
Suzy003May 02, 2014
nancy99nBlankApr 25, 2014
4
By Suzy003 Blank
Hi. I was diagnosed with ATN 14 years ago. The pain has been well-controlled with neurontin until 3 weeks ago. I had ...
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By Suzy003 Blank
I've been on Trileptal (450 mgs. 2x a day) and last evening I experienced a red rash with small bumps on my upper arm...
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nancy99nBlankApr 25, 2014
1
By rwright946 Blank
I have had both decompression and Gamma Knife; and neither worked. Has anyone else experienced this?
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MadsmartyApr 25, 2014
ed48700Dec 05, 2009
LisaMichelleFineNov 05, 2009
3
By heartwings378 Blank
I am a 51 year old woman suffering from vagal glossopharyngeaal neuralgia (its much like Trigeminal Neuralgia but mu...
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Suzy003Apr 24, 2014
justjane37Mar 17, 2014
Mimosa68Dec 05, 2013
21tulipsNov 09, 2013
nancy99nBlankOct 16, 2013
8
By Mimosa68 Blank
Hello, I'm new to this group. I hope to find answers here, as no doctor seems able to help me (ENT, neuro, dentist, E...
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justjane37Mar 17, 2014
nat2006Nov 21, 2013
nancy99nBlankNov 10, 2013
3
By nat2006 Blank
My current neuro saw small white matter sub cortical lesions on an MRI from a couple years ago. I am 26, is this norm...
1695384_tn?1306455153
justjane37Mar 17, 2014
cookie12345Feb 23, 2014
Becca415123Feb 19, 2014
mizliz13Jan 09, 2013
Ruth1246Jan 05, 2013
22
By TucsonNeNe Blank
I posted this question a few minutes ago, but have no idea "where" it is!!! So here I go again..... I'm a female ...
671714_tn?1394401593
FsherwoodMar 11, 2014
1
By Fsherwood Blank
I am a patient advocate with the TNA Suburban Detroit Trigeminal Neuralgia Support Group. I would like patients to b...
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nancy99nBlankFeb 17, 2014
awallmy3sonsFeb 16, 2014
2
By rheamoss Blank
I have had chronic facial pain for the past 3 years. It started one morning and basically has lasted everyday since...
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nancy99nBlankFeb 16, 2014
awallmy3sonsFeb 15, 2014
jopmomDec 10, 2013
nancy99nBlankDec 10, 2013
4
By jopmom Blank
I had Gamma-Knife Surgery 4 months ago for Trigeminal Neuralgia. After the surgery, I felt no different than before....
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SusanBrickerFeb 15, 2014
1
By burkenpas Blank
Has anyone experienced the endoscopic "keyhole approach" surgery for trigeminal neuralgia?
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Violet713Feb 04, 2014
nancy99nBlankJan 20, 2013
2
By Iainsmith Blank
I have just had an initial diagnosis of TN and am having my MRI on Wednesday. I saw a neurosurgeon yesterday who move...
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esterlJan 28, 2014
nancy99nBlankJul 24, 2013
2
By jimbo0 Blank
I have suffered from TN for 8 years now. Two MVD surgeries have failed and now I am waiting for a Rhizotomy. Meanwhi...
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nancy99nBlankJan 24, 2014
1
By moomsie Blank
Has the alpha-stem technology helped the majority of TN patients? The machine seems very expensive to buy --- so I n...
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nancy99nBlankDec 16, 2013
1
By nsp1274 Blank
Hi I am hoping someone will be able to help me. For the past 6 months my daughter has been suffering from extreme...
2047903_tn?1330191149
nancy99nBlankDec 16, 2013
JudyL57Dec 15, 2013
nancy99nBlankApr 27, 2012
3
By monnie115 Blank
I'm wondering if anyone else has numb fingertips as a side effect from Trileptal...I am currently taking 600 mg. I'm ...
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tetee77Dec 12, 2013
grungema3Dec 11, 2013
2
By noctenurse Blank
Does anyone ever experience sudden facial pain in their cheeks,radiating to their jaws, ears and down the neck prior ...
911669_tn?1294102788
AmduceyNov 26, 2013
nancy99nBlankApr 23, 2013
2
By tjj3761 Blank
Hi, I was wondering if anyone on forum had positive MRI finding of sphenoid sinus disease? I found it is a part of t...
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lindaw82Nov 19, 2013
nancy99nBlankNov 16, 2013
2
By lindaw82 Blank
Hi all! I was diagnosed with TN last Thursday by my MD. I went in thinking I had shingles, the left side of my face, ...
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