When I was diagnosed with Unilateral Vocal Fold Paralysis a year ago, I found it very difficult to find others who also suffer from this. I was, actually still am devastated as it has affected every aspect of my life, and not for the better :-(
I have had two Vocal Fold Augmentations over the last year, just buying time to see if my RLN would decide to recover. My doctor is now ready to move on to a more permanent solution. I just want to make the best decision, just like I am sure you do. This is where patients sharing there personal experiences with other patients is so critical. Straight information... nothing sugar coated... just the fact. I mean, we are talking about our voice, as well as the rest of our lives!
I would love to bring people who suffer from VCP together to share our stories, feelings, experiences, treatment outcomes, etc.
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