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Heart Disease (Expert Forum)
Heart Transplant Evaluation
This forum is for questions and support regarding heart issues such as: Angina, Angioplasty, Arrhythmia, Bypass Surgery, Cardiomyopathy, Coronary Artery Disease, Defibrillator, Heart Attack, Heart Disease, High Blood Pressure, Mitral Valve, Pacemaker, PAD, Stenosis, Stress Tests
Heart Transplant Evaluation
by TomE44, Feb 22, 2001 12:00AM
Regarding my "heart transplant evaluation".
It's really not as bad as it sounds - I think. My heart guys have wanted to get me on a transplant list since day one - with my EF at 15 that's all the reason they need. As it was told to me "it's just a precaution" - getting in on "the list" and getting known is very important if I ever need to get a transplant. Looks like Cleveland Clinic is the hospital of choice. (Doesn't get any better!!)
The part I don't think I have ever made anyone very clear of is: how bad I was a year and a half ago, couldn't walk - breathe - sleep - exhausted - then I was diagnosed with CHF because my feet started sweeling - put in the hospital and on lasix - didn't know any better so I got better in two days!!! Felt great! Could walk and breathe and eat and sleep - thought I was cured!!!...Then the doctors told me how bad I was - how I was going to need a transplant - did I know how serious my heart was messed up? Well I didn't need to hear that - scared me to death (excuse the pun) - I fired that guy and went with my current Cardio Doc - I at least know he's on my side LOL.
Other than the Atkins diet affair and near death experience this summer with AF - getting implanted with an ICD - it hasn't been all that bad - still walking - working and all that stuff. Thank God!!!
Don't know exactly what I am going to do regarding the transplant evaluation but will work that out too. I am still a class one CHF patient with a terrible EF LOL. But that is why I keep asking all the dumb questions I ask - like - is this condition supposed to get worse? Or was I "worse" and now better? See what I mean.
Thanks for your concern. Sorry I got long winded.
Tom Emahiser
It's really not as bad as it sounds - I think. My heart guys have wanted to get me on a transplant list since day one - with my EF at 15 that's all the reason they need. As it was told to me "it's just a precaution" - getting in on "the list" and getting known is very important if I ever need to get a transplant. Looks like Cleveland Clinic is the hospital of choice. (Doesn't get any better!!)
The part I don't think I have ever made anyone very clear of is: how bad I was a year and a half ago, couldn't walk - breathe - sleep - exhausted - then I was diagnosed with CHF because my feet started sweeling - put in the hospital and on lasix - didn't know any better so I got better in two days!!! Felt great! Could walk and breathe and eat and sleep - thought I was cured!!!...Then the doctors told me how bad I was - how I was going to need a transplant - did I know how serious my heart was messed up? Well I didn't need to hear that - scared me to death (excuse the pun) - I fired that guy and went with my current Cardio Doc - I at least know he's on my side LOL.
Other than the Atkins diet affair and near death experience this summer with AF - getting implanted with an ICD - it hasn't been all that bad - still walking - working and all that stuff. Thank God!!!
Don't know exactly what I am going to do regarding the transplant evaluation but will work that out too. I am still a class one CHF patient with a terrible EF LOL. But that is why I keep asking all the dumb questions I ask - like - is this condition supposed to get worse? Or was I "worse" and now better? See what I mean.
Thanks for your concern. Sorry I got long winded.
Tom Emahiser
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I am in the process of getting an evaluation by Cleveland clinic (which I don't think is necessary but my cardio guy does). I work every day - stay pretty active and have been symptom free for seven months.
Will let you know about the evaluation.
Tom