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Heart Disease  (Expert Forum)
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death
This forum is for questions and support regarding heart issues such as: Angina, Angioplasty, Arrhythmia, Bypass Surgery, Cardiomyopathy, Coronary Artery Disease, Defibrillator, Heart Attack, Heart Disease, High Blood Pressure, Mitral Valve, Pacemaker, PAD, Stenosis, Stress Tests

death

by momule, Apr 05, 2001 12:00AM
I am writing because of the death of my 39 yr old son from dilated cardiomyopathy(biventricular dilation) per coroner

heart weight @ death 440 grams, no congenital malformations, valves of normal size, ventricles of normal dimensions, but both dilated....no artherosclerosis, aorta free of lesions and normal, vena cava and tributaries are not remarkable........lungs, no lesions(rght weighs510 grams, lft weighs450 grams) pulmonary arteries are free of thrombi and bronchial tree is clean.....Dec 6 2000



upon recieving my sons medical records, here is the finding on oct 18 2000......."no" heart enlargement.........He presented  @ the emerg room with moderately severe chest pains and both arms hurting...arms tingling, nausea, vomiting, shortness of breath,  sweating, palpitations.......

no edema, or syncope......cardiac protocol was performed....



Echo, ekg, monitor for 24 hrs was done...LV EF was 61%, Bp 160/92

which came down with iv and lopressor, sodium, and aspirin.....

anyway, no active disease, lungs clear, no evidence of infiltrate



4 physicians attended or read records and comments which i am still trying to decipher.......I am sorry this is so long, he was sent home with 800 mg of ibuphrophen 3 times a day for 10 days,

and after 10 days another prescription of same.........he was told to quit smoking and not to drink.......he had lifted a roll of coiled steel in sept and had been hurting ever since to one degree or another, but no lesions or tears were found by dr or coroner.......what am i missing?.......how could heart go from "no " enlargement to 440 grams in 6weeks and produce death in fibrillation?......coroner said we wouldd have had to have been standing there with the paddles to save him(he lived alone)....

thank you for your time

by CCF-M.D.-DLB, Apr 09, 2001 12:00AM
I am sorry to hear about your son. It sounds like he died from an arrhythmia due to dilated cardiomyopathy, possibly from a viral infection. I agree with the coroner that there is nothing that you, your son or your doctors could have done differently to prevent this tragedy.
Member Comments (15)

by Addie, Apr 05, 2001 12:00AM
My deepest sympathy to you and your family.  Your story hit home.



My father also died at the age of 39.  He had chest pains in Janaury and had a work up and was told to take a few days off.  They thought it was job stress.  In March, while he and I were walking, the pains were horrible.  He died that night at home.



This was years ago and I know if Angiography was available then, my father would most likley had a bypass and not died.



But, today, with so much available for a heart or suspected heart patient, my father's story should be history.  



I too am puzzled about your son.  With chest pain, did they not do a heart catherization to look and see?



God Bless You.  I feel your pain.

by momule, Apr 05, 2001 12:00AM
so sorry also for your dad, mine also died @ 38......of a heart attack, his dad @ 40 of a heart attack.........I am looking for answers, that i don't believe I will find easily......I failed to mention in my previous post that my son also had xantac for anxiety during his 24 hrs in the hospital and when i asked him

what the prognosis was, he only said he had low blood pressure

and no heart attack, an irregular heartbeat and low potassium....



as a baby, he never slept over 4 hrs @ a time and this followed thru to adulthood, he was diagnosed @ 8yrs old as depressed and

hyperactive.....he also had allergies(ocassional asthma from specific foods and cats) over the years he has had torfanil, elavil and tegritol(no longer than 3 mos @ a time)...for allergies he has taken tedral and prednisone, not regularly, only when needed...in 1997 he was diagnosed as bi-polar and had 3 mos of prozac, but didn't like the way it made him feel physically even though mentally it served him well....he took an occasional inhalant when he would get around something he was allergic to(most recent).....He actually was a very healthy individual

always very physical @ work or play and never complained of anything except sleep problems and was tired from lack of sleep

when you asked, but he kept on going and he took a multivitamin

the only other thing is the qt @ 415 which i think is long between heartbeats.......still i question, what would cause the heart to go from "no enlargement" to 440 grams in 6 weeks?......



thanks for your comment

by dodgybeats, Apr 06, 2001 12:00AM
To: momule
I am very sorry to read of the loss of your son.  I lost my brother to idiopathic biventricular dilated cardiomyopathy 9 years ago and it has a been a never ending struggle ever since to try and determine how this condition was not picked up by his Drs.  My brother presented to ER about 1 year before his death with tachycardia (200 beats/min) and extra beats.  he had every single medical test you can imagine including echos.  Everything appeared normal and he was told his condition was essentially benign (his cardiologist said that SVT in healthy young people is almost always benign).  He had a few more episodes of SVT and some chest pain and so was evaluated regularly at one of the top cardiac centres here in Australia, and given Tamboccor which seemed to control the fast heart rate and chest pain.  He had an echo approx. 3months before he died which his Dr said was normal and healthy.  He died on mothers day whilst playing sport - like your son, he died of ventricular fibrillation.  He was 17. I am still at a loss as to why the numerous tests failed to pick up his enlarged heart (it was 500g at autopsy).  It is now acknowleged that approx. 50% of cardiomyopathy cases are familial - this could explain the premature deaths in your family.  If you have any other children/grandchildren please monitor them - I myself am constantly annoying my Drs as I have some symptoms of heart problems myself (I am 29).  Cardiomyopathy is a horrible, mysterious disease which the medical profession readily admits it knows little about.  I guess in some cases (possibly your son's and my brother's) degeneration into heart failure is incredibly rapid and difficult to detect.  I hope that reading about my experience helps you know that you are not alone.  My parents and I are not religeous people but we like to think that my little brother is still here with us -  if only in our thoughts and memories.

by momule