Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum.  ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
Heart Disease  (Expert Forum)
 | 
Neurocadiogenic syncope and IST
This forum is for questions and support regarding heart issues such as: Angina, Angioplasty, Arrhythmia, Bypass Surgery, Cardiomyopathy, Coronary Artery Disease, Defibrillator, Heart Attack, Heart Disease, High Blood Pressure, Mitral Valve, Pacemaker, PAD, Stenosis, Stress Tests

Neurocadiogenic syncope and IST

by Neener44, Sep 14, 2002 12:00AM
Is it possible to have both neurocardiogenic syncope and IST at the same time?  Would the syncope be the result of medications? I have been taking sotalol 80 mg twice a day. My cadiologist/ep told me yesterday that I have N.S. (diagnosed from a recent holter monitor and symptoms of lightheadedness and pre-syncope) previously he said I had a rapid heart rate originating from the sinus node. I have had 2 ep studies with ablations and the rapid heart rate returned both times. I have difficult to control moderately high blood pressure, readings have varied from 140/90 to 184/108 taken at doctor's offices and at home during the last 3 months. Without meds my resting H.R. stays around 110 to 120 bpm jumping much higher with minimal activity.



Yesterday the doctor suggested I cut the dosage of sotalol to 40mg twice a day and begin taking Altace 2.5 mg to lower my blood pressure. I'll try it, but don't understand the rationale. How could my blood pressure and heart rate be both low resulting in neurocardiogenic syncope and high at the same time. I questioned him, but he did not seem to want to try and explain it to me. I get the feeling that he is frustrated with me since the ablations did not get rid of my problem and he has been seeing me now for about 2 years. He told me to try this new combination of meds and come back in 6 months. I am feeling very discouraged at this point as this is truly affecting my lifestyle. I like to hike and play sports, but these activities have been difficult if not impossible.



Thanks in advance for any advice.

Neener



by CCF-M.D.-KE, Sep 15, 2002 12:00AM
Dear Neener 99,



From your discription is sounds as if you have neurocardiogenic syncope. Neurocardiogenic syncope occurs as a result of the triggering receptors which leads to a drop in heart rate and blood pressure. The rapid heart rate you  experience from time to time may also be contributing to your syncope and lightheadedness.

Blood pressure is a parameter that changes from second to second and moment to moment. It sounds as if you do have high blood pressure, though at other times such as during syncope your blood pressure and pulse may be low. This is very typical. It also sounds as if you need more aggressive blood pressure control if you are continuing to have readings of 180/108.

You may consider going to a large medical center with doctors who specialize in this area. I do not know what type of rhythm disturbance you have had, but you describe 2 failed ablations. Though your medical regimen seems reasonable you may consider seeing a specialist who can put your history together and offer another opinion.



Thanks for your question,





CCF-MD-KE

Member Comments (9)

by Neener44, Sep 14, 2002 12:00AM
Just noticed I left out the "r" in neurocardiogenic.

by jan, Sep 15, 2002 12:00AM
I have been diagnosed with both and even had a 2nd opinion at a univ. hospital.

by HealThySelf, Sep 16, 2002 12:00AM
To: neener99
Unfortunately Beta Blockers can cause syncope or near syncope in some people.  

by Neener44, Sep 16, 2002 12:00AM
To: jan
Have you found any treatment that has been helpful? I am very discouraged at this point and tired of the drugged feeling I get from the medications. At times I have just stopped taking all medications and except for mild chest pain and occaisional dizziness I actually felt much better. However I do realize that my high blood pressure does need to be controlled. Sotalol however makes me feel lousy. I have tried other beta blockers, but they made me feel even worse and did not control my heart rate. My heart is mildly enlarged and so my doctor feels that my heart rate must be controlled to prevent damage to my heart.

by jan, Sep 16, 2002 12:00AM
To: neener
Hi,

My symptoms were mainly fatigue and brain fog, but when they put me on atenolol it was like I had my life back!  I have a low tolerance to drugs, so I couldn't tolerate more than 12.5mg of atenolol which wasn't enough to control the tachycardia.  My EP added verapamil 180mg and this seems to do the trick.  We found that if I take the atenolol in the morning and the verapamil at bedtime I have fewer episodes of breakthru tachy.  Later he started me on a 1g salt tablet.  (I am now experiencing a good bit of fatigue again, but have other health problems, so I don't at this point know what the cause is).

I hope this helps you and that you can find something to work for you.

by Neener44, Sep 19, 2002 12:00AM
To: Jan
Thanks for your response Jan. Have you had an EP study? During the most recent ep/ablation that I had done my doctor told me he would attempt to modify the sinus node in my heart, but he ended up not even trying because he was afraid I would end up on a pacemaker. He did ablate numberous areas close to my sinus node, and one in the ventricles, but the tachycardia returned in less than 2 weeks. I'm just so tired of the medications and side effects.

by jan, Sep 20, 2002 12:00AM
To: neener
Hi Neener,

I haven't had a EP study, it's funny because all of my dr.s think I should have had one.  I am glad I haven't and why should I?  I am not willing to get my sinus node modified.  A dr. from this forum (I think it was Dr. Cole) suggested looking into, but I am not interested, at least not yet.  I don't know if I could get off of meds even with having it done, because of the NCS. It sounds like mine is better controlled than yours, also.  I am not aware of any side effects with the atenolol being so low, nor with the verapamil.

I hope you can find something soon to help you!

Let me give you this link, it is a forum for autonomic dysfunction.  Maybe you will find it helpful talking to others with these problems.



http://216.149.163.247/cgi-bin/forumdisplay.cgi?action=topics&forum=NDRF+General+Discussion&number=1&DaysPrune=20&LastLogin=

by jk35, Sep 27, 2002 12:00AM
I was just diagnosed with Neurocardiogenic syndrome.  I would like to know what symptoms other people have with it.  I have had palpatation on and off for many years.  There are also times where I feel dizzy, weak, andd chest pain.  I feel like I'm going to faint.  Also at night, there are times I wake up with rapid heart rate and I feel like I'm going to die.  Initially the doctors thought it was stress related and put me on Paxil.  It was working.  I have been off it now for 3 months and my syptoms have come back.  I decided to go to a cardiologist.  He gave me a tilt table test which replicated all the symptoms I get.  He diagnosed me with neurocardiogenic syndrome and put me on nadolol.  I have been on it for 1 month and I don't feel any better.  My bp has been 90/60 and my pulse rate has been been 55 & 61.  My bp before being on the medicine used to be 120/80 and my pulse rate was much higher before.  DOes anyone have any suggestions????





I
Continue discussion
Expert Activity
National Spinal Health Day
Oct 08 by Adam R. Tanase, D.C.
PAD Awareness Month
Oct 05 by Lee Kirksey, MD
When You Need to Know If You're Pre...
Sep 11 by Elaine Brown, MD