Arrhythmia and Diastolic Dysfunction of LV (E/A<1)
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Cleveland - OH
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How does one "get off" a powerful medicine such as flecainide , safely, or once started, doe one have to take it indefinitely ?
How would an EP doc ever ablate away arrhythmias if he/she cannot observe them in action during the procedure (due to presence of medicine e.g. flecainide) ?
RF Ablation, as a permanent fix without the side effects of heart drugs, is my choice, but EP docs are reluctant to attempt ablation if it looks like their chances of success are not good.
I had to stop taking antiarrythmics (rhythmol, in my case) about 5-7 days prior to the ablation. I was permitted to take Inderal 20mg if the ectopics were really bad.
Any idea what percentage of your heart beats are ectopic? Mine were about 24%.
I had 2 ablations (I was multifocal) and 3 years later, I have nowhere near the number of ectopic events. The procedures were truly a blessing in my case. Have your doctors said they are uncertain as to ablating with reasonable success?
connie
Can you tell me likely side effects of flecainide and rhythmol (what the man in the street is experiencing) ? My top concerns are ability to think and exercise and general levels of energy and libido. How dangerous to come off the meds ?
Is there an arrhythmia support group on the web (beyond this good one) ?
ChrisAAA
You're welcome. For what it's worth, when my pvcs were at 24%, the doctor still wasn't set on ablating. However, I ended up developing a cardiomyopathy about a year after that Holter and it became much more necessary to get the ectopics under control. Cardiomyopathy is a rare presentation as a result of chronic, frequent pvcs.
When I was on the flecainide, I remember it affected my central nervous system (WEIRD dreams, tremors, concnetration as I recall), but I don't remember why else I wanted to switch to another med. I'll try and remember : )
Check out www.heartcenteronline. There are some great folks over there (very supportive) who have lots of info on arrythmias and other cardiac stuff.
Good luck!!