Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum.  ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
Gastroenterology  (Expert Forum)
 | 
Hemochromatosis symptoms
This forum is for questions regarding Gastroenterology issues such as Acid Reflux (GERD), Barretts Esophagus, Colitis, Colon/Bowel Disorders, Crohn's Disease, Diverticulitis/Diverticulosis, Digestive Disorders, IBS, Stomach Pain.

Hemochromatosis symptoms

by deb4, Feb 04, 2002 12:00AM
Does hemochromatosis have a neurological component?  I'm just being tested for this disease (my brother died from it and my mother and other  brother are suspected to have died from it) & I seem to have many of the very general symptoms with the most prominent symptom of unexplained joint pain but I also have numbness around the periphy of both of my feet & a lot of heel & particularly left arch pain.  Any connection?? and where in the literature can I find info on any neurological components?  Thanks for your help
Member Comments (5)

by imkindly, Feb 04, 2002 12:00AM
To: deb4
Hi deb4

There is alot of information about hemochromatosis (and "hereditary hemochromatosis" or "HHC") at

http://forums.delphiforums.com/liverfailure/messages



If you go there, just scroll down the column on the left side of your screen and click on "Hemochromatosis". (That will make a whole list of messages appear...click on any that interest you.)



In the meanwhile, here are two articles that describe general symptoms:

*****************************************************************



IRON DISORDERS INSTITUTE

Hemochromatosis can affect the entire system, symptoms can be numerous and similar to diseases better known to physicians such as diabetes, heart failure, arthritis, liver disease, impotence, and depression. Therefore misdiagnosis is common. Physicians might focus on one particular disease that can occur as a result of not detecting the cause: hemochromatosis.



Not everyone manifests the same same symptoms. Listed below are those most commonly associated with excessive iron build up:



chronic fatigue

arthritic pain in joints (for some the middle two fingers are affected; this is known as iron fist)

loss of libido (sex drive) or impotence

amenorrhea (premature cessation of menstrual cycle)

changes in skin color such as jaundice, bronze or gray-olive colored skin, a tan without being in the sun, redness in the palms of the hands

abdominal pain

weight loss

shortness of breath

chest pain

heart arrhythmia

depression

elevated blood sugar

hypothyroidism

enlargement of spleen

elevated liver enzymes (ALT/AST)

fibromyalgia

irritable bowel syndrome



http://www.irondisorders.org/disorders/hem/symptoms.htm



****************************************************************



American Hemochromatosis Society

One or more of the following complaints can point to Hemochromatosis:

* Chronic fatigue

* Increased susceptibility for infections

* Liver function abnormalities

* Arthritis (pain, swelling and morning stiffness of certain joints, often the hands)

* Diabetes

* Loss of libido (less desire in sex) and impotence

* Infertility

* Swollen stomach (or uncomfortable, heavy feeling, mostly on the right side of the belly)

* Heart complaints

* Shortness of breath with physical effort

* Skin pigmentation (bronze or grey coloured skin)

* Loss of weight

* Decrease in body hair

* Early menopause

* Porphyria Cutanea Tarda



Every doctor should consider Hemochromatosis in his diagnose when there is no direct cause found for one of the above complaints.



http://www.americanhs.org/ah00018.html

****************************************************************



Hope this helps.

by sharon29570, Feb 05, 2002 12:00AM
Deb4, I hope you can find some answers soon. I wish you the best.

Imkindly thank you so muc for posting all that. I have found it very interesting. Plus it answered alot of questions I had. Now I don't have to post them thanks again. Hope yall have a wonder day.

by deb4, Feb 07, 2002 12:00AM
To: imkindly
Thank you for all of that information.  I have already been to the site you mentioned but in spite of all the available information on hemochromatosis I cannot seem to locate any information regarding a neurological component, specifically peripheral neuropathy.

by imkindly, Feb 07, 2002 12:00AM
To: deb4
Hi Deb4

Keep in mind that I'm not a doctor...so the following is just my thoughts, okay?

Hemochromatosis can cause iron to deposit in different organs.

When iron deposits in the pancreas....it can cause symptoms of diabetes. (Hemochromatosis is sometimes called "bronze diabetes")



One of the symptoms of diabetes is peripheral neuropathy.



Have you had your blood sugar checked?

by deb4, Feb 11, 2002 12:00AM
To: imkindly
Thank you imkindly for your continued conversation with me.  Yes, I have been tested for diabetes & that was negative.  Even so, the neuropathy started in my heels which is not typical of diabetes which would start in the toes.....so my doctor tells me.  The neurologist says it's idiopathic....in other works...he doesn't know the cause.  It is possibly completely unrelated to hemochromatosis....which I don't know if I have yet because as of friday my blood work still wasn't back