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Have you been tested for celiacCeliac sprue - foods to avoid disease or other malabsorption syndromes? These can sometimes cause the symptoms you describe.
That website has many neurological forums, and can give you much info. Also, post your question there, AND on the neuro forum here at med help!
In case you might have CeliacCeliac sprue - foods to avoid Disease, try avoiding "gluten" containing foods for several months. This means avoiding WHEAT, RYE, OATS, BARLEY & BUCKWHEAT. Spelt is a form of wheat, and has gluten in it. Triticale has gluten.
I am so sorry about your diagnoses. How long did it take for them to make this diagnoses? What kind of test did you have? What does this mean for you? The doctor's said this is what was causing your numbnessNumbness and tingling? Any autoimmuneAutoimmune disorders is so horrible. It just never goes away. What are the doctor's doing for you? Please let me know how you are doing. Take care!
Good luck to you and I will keep you posted on the "paresthesiasNumbness and tingling"...the medical term for the "pins and needles" sensations we have!
Also, if you are (or were) on any ACID BLOCKING MEDS, these cause Vitamin B12 (and other vitamins & minerals) to NOT get absorbed in the small intestines, and this results in NERVE DAMAGE (Peripheral Neuropathy) that includes numbness, tingling, pain, etc.
To find out more about Peripheral Neuropathy (PN), go over to http://www.braintalk.org and go to the "Peripheral Neuropathy" forum there.
That website has many neurological forums, and can give you much info. Also, post your question there, AND on the neuro forum here at med help!
In case you might have Celiac Disease, try avoiding "gluten" containing foods for several months. This means avoiding WHEAT, RYE, OATS, BARLEY & BUCKWHEAT. Spelt is a form of wheat, and has gluten in it. Triticale has gluten.
Brown rice is gluten free, and nourishing. But some Celiac patients do better, by first avoiding ALL grains. Corn is gluten free, but is very "allergenic", so avoid it. Millet may or may not agree with Celiac patients, so avoid it.
Also, avoid milk products, in case you have a lactose intolerance (can occur due to Celiac Disease). Later on, Celiacs may produce lactase enzymes again, when their small intestines heal, and the microscopic finger-like projections called "villi" re-grow. (Gluten DESTROYS the vital "villi"!)
There is also lactase enzyme, like "Lactaid" in pill or liquid form, if someone wants to use milk products, but is lactose (milk sugar) intolerant.
Digestive enzymes and "probiotics" (like acidophilus & bifidus) are usually very helpful for Celiac patients. So are vitamin and mineral supplements, and very nutritious foods.
You should check neurological forums, in case something else is going on, instead of, or in addition to, digestive problems.
Good luck to you. I hope others give you their opinions, too.
Sincerely, Concerned lady
http://cantbreathesuspectvcd.com
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They haven't really said this is the cause of the tingling...but it sounds like autoimmune disease in general may cause this (Lupus does, I think). I have never seen a specific reference to my particular disorder. My fear is that autoimmune problems often come in groups...and I am worried I may have more than one. So far, I don't have any really severe symptoms to point towards anything. I know Multiple Sclerosis can cause the tingling, and that is my biggest fear.
My diagnosis came quickly...I luckily found great doctors. My liver enzymes were elevated, they did ultrasound and then a liver biopsy...after testing for other possible causes of liver inflammation...and were able to give a pretty definite diagnosis right away. Autoimmune disease is very hard to diagnose...it is not an exact science.
Good luck to you and I will keep you posted on the "paresthesias"...the medical term for the "pins and needles" sensations we have!