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Gastroenterology (Expert Forum)
9cm hemangioma
This forum is for questions regarding Gastroenterology issues such as Acid Reflux (GERD), Barretts Esophagus, Colitis, Colon/Bowel Disorders, Crohn's Disease, Diverticulitis/ Diverticulosis, Digestive Disorders, IBS, Stomach Pain.
9cm hemangioma
by tlh, Mar 03, 2002 12:00AM
I am 31 & just diagnosed with a 9cmX10cmX6cm benign cavenous hemangioma. I had an ultrasound (thinking it was gallbladder), a CT scan with oral & IV contrast, & an RBC scan. I am trying to find a GI Dr. who is familiar with this. So far no one has seen something this size. My symptoms include: RUQ pain, nausea, weight loss, & fatigue. The GI Dr. here said "no physical activity" until I can find a specialist to handle it. What is the risk of rupture or bleeding? With a mass that size, is there a possibility of resection? I just had my 2nd child 16 mos. ago; one Dr. said estrogen could have made it grow. Is there a possibility of it shrinking with male hormone treatment? I have calls into the Cleveland Clinic & University Hospital in Colombus. One Dr. did mention symptoms of congestive heart failure; ironically, 8 weeks after I had me baby I began a cardiovascular workout regimen. I experienced chest pain every workout. Could this be related? Can you tell me what my risks and options might be? My husband is a general internist here in Mansfield, OH; but we are new to Ohio. We have been very concerned, especially since we can't find anyone in this area who has seen a hemangioma this big. Does the sheer size make it that uncommon? Or do I just have to leave this geographical are to find someone to help? Thank you.
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Thanks.
My main concern is the danger involved in removing a gall bladder when an 8 cm. hemangioma is sitting right next to it. I understand from my own research that laser surgery is out of the question as that poses a greater danger to rupturing the hemangioma, but even if I decide to have conventional gall bladder surgery, I understand it's dangerous due to the proximity of the hemangioma to the gall bladder.
I apologize for rambling on. I'm worried and haven't slept. I don't know that I will find my way back to this board, so if anyone could share his/her knowledge and/or experience with me, I would be most grateful. I can be E.mailed at ***@****
Thank you for your time.
I have a giant cavernous hemangioma on the right lobe of my liver. This now measures 17.14 x 12.4 x 11.3 cm. compared to 10 yrs ago at 7 cm. I just left my gastro doctor who is now referring me to a liver surgeon. She is very concerned and canceled a procedure I was to have done. My questions I had, she wants the liver surgeon to answer. Maybe you can. Since this is on my right side, could this explain the nausea I have. I do get pain on the right so I guess that is normal. I was not concerned about this turning cancerous until I read the above. If you do any research on this, can you also find out about Epithelioid Hemangioendothelioma. My son passed away in 2004 from this rare cancer and the 2nd name does have the hemangio in it.
Anyone out there that reads this and wants to respond or email me, please do so.
Thanks,
jmb