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Gastroenterology  (Expert Forum)
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Let's ALL talk about H-Pylori Eradication and All That Follows.
This forum is for questions regarding Gastroenterology issues such as Acid Reflux (GERD), Barretts Esophagus, Colitis, Colon/Bowel Disorders, Crohn's Disease, Diverticulitis/ Diverticulosis, Digestive Disorders, IBS, Stomach Pain.

Let's ALL talk about H-Pylori Eradication and All That Follows.

by Lynn28, Apr 11, 2002 12:00AM
I couldn't help myself when I read the post below regarding the length of time it takes to heal an ulcer and stomach inflammation, which is Gastritis once H-Pylori is eradicated.

Everyone's response just hit a chord with me. My father, along with a few friends and MANY colleagues suffer from stomach ulcers. Some are very young and some are up there in age. My father for instance has had an ulcer since he was a teenager. Today he's 63 and is in the best of health. Much better than his 27 year old daughter. He's never taken medication for this, but when in need, he takes an over the counter pepcid. I think his good health has to do with fear of doctors. The man has never been to a doctor in his life and refuses when it's needed. He always seems to recover on his own. Except one day last year his ulcer got to be too much to handle. Not a GP, but a trip to the ER and a capping latter, he was fine. Still to this day he is fine as well as many of my friends and colleagues as mentioned above. Most all of these ulcers were discovered via upper GI with barium x-ray. I would love to put money it had they gone down with the endoscope and took a biopsy that low and behold H-Pylori would be swimming around playing. However, this was not the case. This would explain to "Me" why none of these people suffer like that of H-Pylori treated patients. The debate on whether or not H-Pylori should be eradicated and if it indeed is beneficial, has been discussed all over within the medical profession and documented. Now I know everyone's not going to agree, (continued)
Member Comments (22)

by Lynn28, Apr 11, 2002 12:00AM
and everyone's degree of ulceration is different, but that is exactly the point I'm trying to make. When the ulcer is severe, the endoscope goes down and low and behold the h-pylori, but when it's not as bad, no endoscope is needed, therefore H-Pylori is still lurking around untreated. I've never had an upper GI and looking back now, I sure wish I did. They were so quick to put the tube down my throat to search for this bug, that OF COURSE, was there. My pain was tolerable then, but as soon as I took that prevpac for two weeks, ALL my nightmares began. Chronic gastritis, esophagitis, duodenitis and the loss of 15lbs because I no longer can eat like I use to. I'm in CONSTANT pain and if anything, things are just getting worse, not better. I also NEVER, EVER, EVER experienced burning or gas reflux (burping)prior to this treatment. Now I burp literally "24-7" and the burning is HORRIFIC! My pain was just a "Mild" discomfort that I thought I should get checked out. I still ate pizza, Italian, drink my lemonade, etc, etc. NOW, those are only dreams! You couldn't pay me enough to touch them. Now I understand why men seem so much healthier than women. They "NEVER"  go to the doctor! I agree with the poster below, all PPI's should be stopped. Naturally should be the way to go. Restoring the body back to it's normal state. I'm sure it will take a LOT of time, but it can't be ANYMORE worse than this.



Does everyone think H-Pylori should be eradicated if detected?

I apologize for the length, I just couldn't resist.

by JH, Apr 11, 2002 12:00AM
I can really sympathize with what you are going through.  

I can feel your pain.  I have gone thorough the same experience as you have:  Before H pylori treatment, 100% healthy and after the treatment, my health is virtually wrecked.  I have posted in this thread before and I will say it again:  Think twice before you subject yourself to antibiotic treatment for H pylori. The treatment itself can be an express way ticket to the hell.  



After two rounds of antibiotic treatment, I had and still have gastritis and IBS.  My intestine feels very hard and I feel naseated after meal.  Food does not go down very smoothly and I hear weird gurrgling noises in my guts after the meal and just after I wake up.  Intestinal flora has been decimated my harsh antibiotics and it will take long time to reestabilish if I can ever do it.  Last year, I could not sleep more than 4 hours a night due to abdominal pain and I quit job temporarily due to this pain.



I have corresponded to several folks who are suffering from side effects of antibiotics. Some have recovered after about 6 months.  Some are still suffering 2 to 3 years after the treatment.  For me, it has been about a year and three months and even though pain has mitigated somewhat, I am still suffering from most of the side effects that I have mentioned above.



I almost felt like suing the first doctor who was so obsessed with killing this bug and ordered me with multiple antibiotic treatment. The way he was going to erradicate the bacteria for mee was to kill me.  My current physician do not recommend the treatment for asympomatic patients with this bug.  I feel the same way with him.. The treatment itself may not be necessary.

in fact, this bug may have some properties that help prevent acid refluxes in human beings. There are some medical data that are showing increased acid reflux frequency after erradication of this bug.

by Lynn28, Apr 11, 2002 12:00AM
To: JONG
I completely agree. I guess I was sort of lucky. It only took one treatment to eradicate the H-Pylori. I also don't take any medication (antibiotics) I do take pepcid and carafate to coat the tummy at night. I'm also seeking out the attention of an alternative doctor. Before this I ran, mountain biked and walked miles. I drank water like it was going out of style and the health food store was my best friend. I've since been using a lot of ginger and it has been helping a LOT. I also need to get the whole digestive system back to it's original state. I've been reading through this site a lot lately and it has a bunch of helpul things. Perhaps you'll be interested in going through it. When you get there, click on "Self Care" at the top. Once you've done that, click on Digestion on the right. The whole site in general is great. Keep me posted. We'll get there ;)

Jennifer





http://www.mapi.com/catalog/index.html?session_id=325833_15665773_1018568906&affil=&prod_page=catalog/index.html

by INALOTOFPAIN, Apr 11, 2002 12:00AM
...........Toccoah, your words are extremely painful to read because they are the exact characterization of what my life has now become, in fact, I just had my wife read them because she has been in a way reluctant to believe the agony  of a 32 year old man, with not a single visit to a doctor for any reason. Prevpac, was prescribed for my, although negative, but on the "high side" pylory infection blood test results. I went to this so called physician's clinic on a bleeding ulcer issue, a blood test was prescribed for hpylori because my doctor "had read extensively about this new wonderful discovery" that said virus was the cause of reoccurrent ulcers. I have ( still there) had this ulcer which due to my stress and or lack of care on and off created trouble, it was nothing to preocupy for since it would go away after some "prevention" steps. Now....... I have been on priolsec, Nexium, and any and all acid reducers known to all of us, yet my condition keeps on getting worse and worse. If I had the chance to take my bleeding ulcer back in exchange for my current situation I would in a heart beat. The acid is overwhelming, the pain is unberable. I have applied and immediately approved for insurance coverage (boy are they in for a big surprise) for I have had no medical problems whatsoever. I strongly urge anyone out there who reads this note, not to take this antibiotic treatment unless all tests are done, i.e. endoscopies, biopsies, blood tests and to carefully double tripple check the doctor's decisions as to his/her condition, and not to immediately agree to anything simply because the doctor orders it, i.e. gallbladder removal, ERCPs, etc etc.



I sincerely hope one day my poor stomach goes back to normal, I am aggresively watching what I put in my mouth and most certainly making sure no one's adivse goes unchallenged and or fully scrutnized.



Hope you get better.

by reb, Apr 12, 2002 12:00AM
I hate to here of all your pain, but I know how you feel about treatment with antibiotics and I beg you to try probiotics, even if your antibiotic treatment was over a year ago. Please try them as even if it isn't your problem, they will do no harm to you. I was in unbearable pain after antibiotics, to the point where in order to mask the pain, by accident I burned my stomach with a hot water bottle, even though my stomach was burned I kept up with the heat because it was preferable to the unbearable stomach pain. I would just sit and cry. After taking probiotics the pain immeasurably eased after just a few days, before that I tried every traditonal medicine available with not much help because they were only treating the symptoms not the cause.

Now, I am still extremely tired, which I hate, being only 28 years old, but I can't complain as I am not in pain- I can even eat tomato-based things now (after about 3 weeks of treatment).

I have read that imbalances in digestive flora can take up to 2 years to manifest itself (giving it time for bad organims to grow  since your healthy bacteria can not keep them in check) so I urge you to take these supplements even if your treatment was a long time ago.

Please try the probiotics, I hate to hear you all in pain when there may be a chance that you can remedy it. If you already have been taking probiotics and they haven't helped I apologise in advance for wasting your time.



by reb, Apr 12, 2002 12:00AM
p.s. Toccoah, how did you get on at the doc's today?

by Lynn28, Apr 12, 2002 12:00AM
To: Reb
I'm going today at 2 and I CAN'T WAIT. I'm SO sick of this, you have no idea, but than again, perhaps you do. At least most people are eating somewhat, I on the other hand am not eating AT all. It's horrible. Believe you me, I am DEFINITELY going back to the probiotics, but I just wanted to wait until afetr today. I will keep you posted ;)

by individual, Apr 13, 2002 12:00AM
I am very thankfull that I saw a naturopathe who discovered my h-pylori. He put me on bismuth (I think that's what it was called) which opens up the pores where they hide, and then gave me a strong anti-biotic. I took a very potent acidophilus 3 times a day, which was probably key. He also had me taking other vitamins to support the intestines. It has cost me more money to see a naturopathe, but it's been worth every penny.

I'm so sorry that all of you are suffering from this. I'm suffering from an incompetent doctor who delivered my daughter 16 years ago.