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Gastroenterology (Expert Forum)
too many problems, no answers
This forum is for questions regarding Gastroenterology issues such as Acid Reflux (GERD), Barretts Esophagus, Colitis, Colon/Bowel Disorders, Crohn's Disease, Diverticulitis/Diverticulosis, Digestive Disorders, IBS, Stomach Pain.
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too many problems, no answers
by micki_kp, Oct 22, 2002 12:00AM
I have been sick almost a year it started out with upset stomach, diarrhea, vomiting, pain, I noticed I was not
digesting most of the food I was eating I have been seeing doctors for a year now with several diagnosis and all of
those being changed a second opinion and all I still have no comfort level with meds or treatment of any kind my
personal opinion “it is a sin to be this sick” the diagnosis I have received so far are ulcerative colitis, 2 ulcers one
of which is benign (they say that I do not have cancer what does that make the second ulcer then) crohn’s disease, the next week they called and changed it I had microscopic colitis, no crohns disease, still had 2 ulcers 1 of which is still benign, an internal hemorrhoid, called me the next week and told me I had the 2 ulcers, heiatel hernia and the internal hemorrhoid, now mind you I have had test after test i think they have probe all that is possible to discover all of this finally got tired of the games and sought out a second opinion to which that doc told me I was perfectly healthy(he is a quack) so I decided to give up and not worry anymore, I went about 2 months and decided I couldn’t stand it anymore so back to doc I went I told him “simply cure the lip curling nausea that last every waking minute and I will not worry about anything else" here I go again more test some of which I have already had to no avail here I sit waiting for answer and suggestions does anyone know something I do not know that can help me. open to all suggestions at this point i will try anything. thank you very much in advance ~Micki
digesting most of the food I was eating I have been seeing doctors for a year now with several diagnosis and all of
those being changed a second opinion and all I still have no comfort level with meds or treatment of any kind my
personal opinion “it is a sin to be this sick” the diagnosis I have received so far are ulcerative colitis, 2 ulcers one
of which is benign (they say that I do not have cancer what does that make the second ulcer then) crohn’s disease, the next week they called and changed it I had microscopic colitis, no crohns disease, still had 2 ulcers 1 of which is still benign, an internal hemorrhoid, called me the next week and told me I had the 2 ulcers, heiatel hernia and the internal hemorrhoid, now mind you I have had test after test i think they have probe all that is possible to discover all of this finally got tired of the games and sought out a second opinion to which that doc told me I was perfectly healthy(he is a quack) so I decided to give up and not worry anymore, I went about 2 months and decided I couldn’t stand it anymore so back to doc I went I told him “simply cure the lip curling nausea that last every waking minute and I will not worry about anything else" here I go again more test some of which I have already had to no avail here I sit waiting for answer and suggestions does anyone know something I do not know that can help me. open to all suggestions at this point i will try anything. thank you very much in advance ~Micki
Also, ask for a gastric emptying test. It will measure the length of time it takes to digest food. It is an easy and non invasive test, and might give some answers.
Good luck.
I am so sorry to hear that you have having such problems. I can relate 2nd hand. My wife is also suffering with very similar problems. She has been diagnosed with Gastroparesis (stomach paralysis) for almost two years. I agree with 4gpact, ask a GI doctor to do a gastric emptying test. It took the GI doctor almost a year to diagnose her. At one point, my wife's showed 0% emptying after 2 hours (most stomachs empty almost competely in ~90 minutes). She has an extreme case of it.
I'm no doctor, but have done extensive research on gastric pacemakers (made by MedTronics) -- my wife now has one, gastroparesis, and I am now investigating the use of Lupron to treat Idiopathic Gastroparesis (means doctors don't know what causes it) in young women. My wife has fought it for many years, but her pain has become unbearable - even with high pain meds and she goes to the hospital about once/month to be rehydrated because she can keep nothing down for at least a week or two/month. She just started Lupron treatments and it seems to be helping her a lot! I understand how you feel when doctors (and friends, family, etc) tell you that there is nothing wrong with you. Many don't understand this illness.
I just found this site yesterday, so I decided to start making others aware of gastroparesis so maybe they won't have to go through everything my wife went through on this. The pacer has worked marginally well, but the Lupron seems to work pretty well for her. Thanks for asking.
I think if you go to the site, you can probably send a email to find out how to get back on, or whatever the problem is. I, too, am trying to be aware, and help educate those that might have this disease and not know it. I have not heard of the medication your wife takes, but will have to look it up!
My fellow online group member arrived here last night, and is having a second botox injection in her stomach tomorrow, and hopefully the pacemaker next week. Where did you wife have hers done? My friend is going to U of M Hospital, she travelled from Kansas for this surgery.