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granulomatous mastitis User Group
About This Group:

This group is intended as a meeting place and forum for those who have been diagnosed with granulomatous mastitis ('GM') or idiopathic granulomatous mastitis ('IGM'). I think one of the greatest challenges with this disease is its rarity and the associated lack of understanding in the medical community. But we can share here - and hopefully make the healing process a little easier for each other.

Founded by JoJo45 on January 17, 2010
264 members
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By Lopine808 Blank
Can anyone recommend a good dr who has treated GM in Orange County or Los Angeles?
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coffeeknitterJun 23, 2014
Guzmom3Jun 22, 2014
Guzmom3Jun 22, 2014
3
By coffeeknitter Blank
Hi everyone It has been awhile since I posted on here. October will be my 2 year mark of being recovered from ...
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BostonAliGMJun 15, 2014
JoJo45Jun 14, 2014
2
By BostonAliGM Blank
I've just been diagnosed with GM, after only being symptomatic for 2 weeks (I'm lucky to have great medical care in t...
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By JoJo45 Blank
Hi: ok three times lucky..have tried to post this three times, but to no avail, not sure why, I think it may have ...
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JoJo45Jun 14, 2014
AiniZayanaJun 04, 2014
kuulei04Apr 30, 2014
katcat88Apr 20, 2014
kuulei04Mar 09, 2014
6
By kuulei04 Blank
I have a few questions: 1. Have you healed from GM or do you currently still have a mass and/or abscesses? 2. ...
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JoJo45Jun 14, 2014
Sush560Jun 07, 2014
2
By dlsa1 Blank
Hi! I was diagnosed recently and most days I feel no pain. When I do have pain it is a burning sensation that doesn't...
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By JoJo45 Blank
Hi everyone, this is jojo I founded this site, had to go away for awhile, but trying to come back I have co...
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JoJo45Jun 14, 2014
upsetnadconfusedJun 11, 2014
2
By pagpri Blank
I just got diagnosed with GM last week after 7 months of treat of antibiotics and 3 biopsies in total. All this while...
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JoJo45Jun 14, 2014
1
By dlsa1 Blank
Has anyone had a mastectomy to resolve IGM? I am considering this option and my doctor suggested a simple mastectomy...
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Kekoa10Jun 09, 2014
kuulei04Jun 04, 2014
kuulei04Jun 04, 2014
3
By Kekoa10 Blank
Just wondering what type (brand?) of turmeric is most effective? After doing some research it seems some are better ...
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LilFlo211May 29, 2014
kuulei04May 26, 2014
LilFlo211May 25, 2014
kuulei04May 24, 2014
4
By LilFlo211 Blank
Hi ladies, I'm glad I found this group and other ladies that can relate to this rare condition. I am a new mom with ...
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Sush560May 28, 2014
Veronica36May 21, 2014
Sush560May 19, 2014
Sush560May 19, 2014
katcat88Apr 20, 2014
9
By JoJo45 Blank
Hi everyone: I founded this group in 2010 in much desperation as there was nothing even on the web about our disea...
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By Lumpymcgree Blank
So glad to find this place! What a crazy awful disease this is! This is my second reoccurrence . I had it last yr but...
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Lopine808May 23, 2014
Veronica36May 22, 2014
2
By Lopine808 Blank
So very happy to find this group. Was diagnosed GM after 10 weeks of unsuccessful treatment. I've been on 6 course...
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Sush560May 19, 2014
Veronica36May 09, 2014
ruostentatiousOct 20, 2013
kuulei04Oct 12, 2013
19
By OnemoreVancouver Blank
How incredible to find this forum. I think I'm learning more from the discussions than from the myriad of specialist...
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coffeeknitterMay 03, 2014
1
By aubie93 Blank
I have read recently that prednisone can hinder wound healing, my question is then, why do they prescribe it when the...
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Veronica36May 01, 2014
kuulei04Apr 30, 2014
2
By Veronica36 Blank
Hi all! I have had GM since July 2012..I wonder if takes more than 2 years to go away..it is much better now, but n...
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Amy669Apr 29, 2014
katcat88Apr 20, 2014
russiangirlApr 11, 2014
87CareBearApr 06, 2014
russiangirlMar 31, 2014
9
By 87CareBear Blank
Hi I'm a new user who found this community when trying to figure out how to treat my idiopathic granulomatous mastiti...
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katcat88Apr 20, 2014
Mac0411Mar 10, 2014
kuulei04Jan 29, 2014
3
By n8ve_ontario Blank
Hi, I was diagnosed with GM 2 months ago, a month before that I got that painful Erythema Nodosum, which went away..N...
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katcat88Apr 20, 2014
1
By Clairebear11 Blank
I am a 41 year old mum of two living in Auckland, NZ and have had this disease since March 2013. I have been on anti...
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